Chronic Lymphocytic Leukaemia

[F.U.B.A.R.]

Anyone here got experience of this condition?

I've just been diagnosed and am not sure what to expect...

 

[ageingpartyfiend]

Sorry to hear this man.

I can't offer much, but I knew someone who had the same thing, diagnosed in his early-60's and he went on to live until 73/74 and died of something unrelated.

I'm almost certain he was never treated for it either. He was pretty stoic about the diagnosis and I remember him telling me that many people who have it die with it as opposed to from it, a bit like prostate cancer perhaps?

Best wishes as always

 

[F.U.B.A.R.]

Sorry to hear this man.

I can't offer much, but I knew someone who had the same thing, diagnosed in his early-60's and he went on to live until 73/74 and died of something unrelated.

I'm almost certain he was never treated for it either. He was pretty stoic about the diagnosis and I remember him telling me that many people who have it die with it as opposed to from it, a bit like prostate cancer perhaps?

Best wishes as always

Cheers mate. Yeh, I'm not too worried tbh. Apparently I'll need to be on medication and monitoring for life, but no chemo or radio involved. I'll find out next week exactly what treatment I'll receive.

 

[kiely]

Survival rate in very long. My auntie had it. Leukemia. She had it for decades.

She did good. We couldn't even tell. Wow. Do you feel alright ??

 

[Robi]

Research and get immunotherapy would my best advice,it helped a girlfriend out immensely she had trouble with infections,fatigue before treatment.She teamed up and received self care management,living with cancer doesn't have to be a complete nightmare.Best of positive vibes sent in this era of your life.

 

[F.U.B.A.R.]

Do you feel alright ??

Yes, I do, thank you. Funnily enough, I feel better since my diagnosis than I have done for a couple of years.

I think I've secretly known that there was something wrong for a while now, which seems to have manifested various psychosomatic aches, pains and general fatigue.

But now I know, I seem to have my mojo back.

Weird...

 

[kiely]

Oh that's so tearful. I'm glad you are better. And feeling well.

And you can.

My Auntie lived a long wonderful life actually knowing what she did.

She kept it a secret when her 2 daughters and son were young.

She saw them all grow up and and they lived a great life knowing what they all knew when she told all of us.

Actually my uncle told me before my cousins even knew.

Talk about something being heavy, wow.

But you keep in touch and when ever you want then we will just know that you will be just fine. k .

It's okay. I guess we all suffer one way or another.

This way we can all care much more and better. Awe. It is worrisome though.

Everything always is.

Thanks @F.U.B.A.R. foobies.

It can make you stronger though if you know how to heal and stay in health mode and you can recover

in the best way possible. Just stay healthy because health means so much these days.

Take Care You !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Yes, I do, thank you. Funnily enough, I feel better since my diagnosis than I have done for a couple of years.

I think I've secretly known that there was something wrong for a while now, which seems to have manifested various psychosomatic aches, pains and general fatigue.

But now I know, I seem to have my mojo back.

Weird...

 

[kiely]

YOU SOUND GOOD @F.U.B.A.R.

 

[Skorpio]

I’m sorry to hear that, though at least it is a chronic diagnosis and it has explained your nagging symptoms.

I have some close secondhand experience with cancer signaling (half my lab studied various cancers), and some of the drugs used to treat CLL are familiar. Feel free to reach out here or privately if you have questions about them and I can answer them with a non-clinical lens.

Wishing you the best!

 

[pixies+]

Sending you so much love and light.
You’re clearly a motherfucking fighter my friend.

Now stop being a ninny and shove some fancy drugs up yer arse

 

[ageingpartyfiend]

I feel sorry for the fuckin' Leukemia tbh -

It'll be wondering what it did wrong in a previous life to have landed in Fubz blood - I mean, can you even imagine what shite is already in there?

It'll be like "Get me the fuck outta here someone". It's got no chance.

 

[kiely]

My mom thinks her sister got Leukemia from getting radiation treatments when she was young because she had acne.

Sometimes in is hereditary. Where does anything come from .... and the trigger.

My aunt was healthy and did not do anything wrong. If you learn how to survive you apparently can.


Oh I don't know. I'm sorry @F.U.B.A.R. I think that you are yoiung and you will get through this.

I suffer from shock a lot. It's mild. But talk about chronic. I don't know what to tell you. I just fear that..

but you know you will get through this and be fine. j

It's all I have.

 

[F.U.B.A.R.]

I feel sorry for the fuckin' Leukemia tbh -

It'll be wondering what it did wrong in a previous life to have landed in Fubz blood - I mean, can you even imagine what shite is already in there?

It'll be like "Get me the fuck outta here someone". It's got no chance.

You're not wrong there mate

I reckon I've got off pretty lightly tbh. I was convinced my liver and kidneys were well fucked, but absolutely everything else is fine. I've just got bad blood...

 

[4DQSAR]

Cool of Skorpio to chip in as that BLer undersells their skill-set. They likely know more than your doctor.

I hear ir hurts like f**k but if I happen to be a match, you are welcome to some of my bone marrow - because I know you would do that for ME.

BTW Are you aware of the BNF explaination of when a strong opioid is appropriate? I will give you a clue, it's got nothing to do with pain. It's prescribable to treat 'unacceptable suffering' and that can mean physical and/or emotional. I'm not suggesting you persue that pathway, I just wanted to ensure you were aware. As John Cooper Clark has noted, he fully intends to start using if he's ever placed into palliative care. That's going to be decades away for you but I feel it important that you know.

 

[F.U.B.A.R.]

Cool of Skorpio to chip in as that BLer undersells their skill-set. They likely know more than your doctor.

I hear ir hurts like f**k but if I happen to be a match, you are welcome to some of my bone marrow - because I know you would do that for ME.

Thanks mate, but hopefully it won't come to that. I'm just on monitoring for the time being. I'll need to start displaying significant symptoms before any treatment is on the cards...