I also have the Trigimenial Nueralgia (10 percent of us do). Good old 'suicide disease.' That's what the klonopin is for, I am 6 brain surgery in an still can't eat. Klonopine was the miracle bullet in meds which allowed me not to be in the 60 percent who kill themselves from pain.
I'm not going to have a quality of life without, I even looked at ordering online. I have a young child, in a full leg cast so have to survive. It's just me on disability. I was on 6 mg for 4 years until a week ago.
Rednec Rampage completely disabled? May I ask you how long it took? I didn't get diagnosis until a year ago. Showed in every MRI but they were looking at my rare disease. I had lost all feeling in right foot by diagnosis, leg is similar and vision was better than 20/20 6 months ago and now I have trifocals. The disease let's me be lazy, it does the work. I get new symptoms when I get them and have to live in now. Yeah? Somehow?
It's called 'practicing' medicine for a reason. What do you call a Dr. who graduated lowest in his class?
A doctor.
I'd be getting doctorate in neuroscience (shit, I'd be done) if I weren't sick. Research only. I'm not unusual bright and the idiots who were in one of the hardest med schools to get into proves the difference is a prescription pad and bad handwriting. They are not any wiser than us, addiction is common and no longer live by the oaths.
To fear lawsuits and allow suffering shows that 'do no harm' is too their pocket book. First thing we learned was EVEN with addicts to allow pain is against human rights. Many other options than opiates. Then Oregon prescribed more opiates than all other 49 states combined and doctors lost practices. Our Vicodin overdose still takes the cake.
It's not the opiate, its the most dangerous pharmaceutical. Tylenol. It's a killer.
Benzos alone also pose little risk. If used as indicated- max of 2 weeks and not daily, not for trauma, PTSD, bipolar, general anxiety (loss, panic attacks). Long term use only for a few conditions- I have one. Also Valuim, Xanax were made to be addictive. If I had a prescription pad I'd give up to 6 .5 klonopin for the 2 week period. That's me though
. Restless leg I'd give less unless all else was tried.
These are my opinions and stances only. I do not view benzos as dangerous when the risk factors are explained, prescribed properly, no other medications causing respiratory distress and I'd do a tox screen (blood and urine) to ensure no heroin/alcohol. Just me.
10yearsgone- I'm in cluster headache club too! The diseases which go together. You sound much worse than me (painwise). I have more TN flares than cluster headache ones. Cluster headaches and TN are in a constant battle with physicians of "most painful" Instead of $ on cures its spent trying to gadge rare disease by "worst." Im certain qualifying your pain makes it end? Right?
Thank you both for responding. Chronic illness is so lonely. You both endure so much.
Forgive the long post. I'm angry, shaking, anxious, pains at my max and there's something to be said for connecting with others who can relate. .
I wish THC or CBD oil worked for me. Least its legal here and be used by the learning hospital and prescribed. Worth considering moving to good ol' Portland Oregon if you want to pay 1,200 for a studio but explore the often life changing formulations of prescribed CBD compounds.
Stay out of the heat you two, keep symptoms at bay
