Ok, I have done some research and think you need to see a specialist.
You are not alone, I found one website that will point you in the right direction.
The whole pain management direction isn't going to work, from what I have read, especially in the US.
So you need to change the focus of your "rehabilitation" in a different direction that will give you positive results.
You need a support system and I hope the link below will help you find that, as pursuing treatment for the symptoms (pain) is not going to work for this condition.
It might be politics, it might be lack of knowledge on behalf of the FDA and because of this doctors will be reluctant to prescribe pain medication without accurate test results.
The science and diagnosis of this condition is too uncertain at this time, from what I have read, and you need to know how you can get the best treatment possible.
A specialist is needed and not a GP, it sucks, I know.
So check out the link below, contact the people who are dedicating their careers to this and hopefully the light at the end of the tunnel will get brighter and brighter.
The other family issues you describe also need to be addressed and if you follow the advise I found on the site I found you would actually be moving forward on this issue without realizing it.
This is good news.
I have no knowledge of your condition, but I do know how society works and I really think that by going to the experts ASAP is the best and only option you have, but it is the right option.
Forget about the GP doctors and get the answers from these guys....................... I hope you use this as a positive outlook to your future because from an outsider's point of view (me), it is crystal clear.
If you can just take the first step, I am sure you will find clarity too with not that much effort either.
Ok. here is the link ..........
http://www.aldf.com/
Just contact these guys and take it from there................... I have a good feeling about this and hope you will start to feel it too.
SL