Nooby
Greenlighter
- Joined
- Sep 24, 2013
- Messages
- 18
Umm, hi. I'm Nooby, 38, was a recreational cannabis user in my youth, married the sweetest, best, squarest guy in the world in my twenties so gave it up then. I have an untreatable, incurable condition, which means I am treated almost as if I am in palliative care, my medical team try and treat my symptoms rather than the cause. After 8 long and complicated operations, where a lot of my digestive tract was removed, I've been left with chronic and severe pain, caused by adhesions and my remaining gut sticking both to itself and to my other organs. I get blockages and twists in my gut regularly, and am often restricted to a liquid only diet. I'm a positive person, and a lot of the pain web forums feel like a giant pity party game of top trumps. I'm not interested in competing, I think pain and pain management are highly individual, but I refuse to let this define me, and I try hard not to be the type of person consumed by their condition, or the bitterness caused by it.
So, what am I doing here? I'm currently taking what feel to be enormous amounts of opiates in a bid to control my pain enough to try and manage some semblance of normality, without being SO dozy I can't get up. I'd be so grateful if you could point me in the direction of any threads about different opiates and their effects. I'm pretty sure my pain team will be talking to me about fentanyl, as i'm now on three times my original Oxycodone slow release dose, with 80mg breakthrough three times a day. Oxycodone has been amazing because it doesn't make me sleepy, whereas MST and tramadol knock me out. Oramorph for terrible breakthrough used to be effective at 5ml/10mg but now I need 25ml/50mg to get the same relief. I don't know much about the alternative opiates. We did tree years of max dose gabapentin, when I came off it to try pregabalin instead, I didn't notice any change in pain, and couldn't tolerate the pregabalin, so now have no neuropathic element to my menu. If my post is completely inappropriate then please remove/delete, it just struck me that some of you know so much about the drugs, and I'm trying to gather as much information as I can, so I can go prepared to see the Drs. Thanks in advance.
So, what am I doing here? I'm currently taking what feel to be enormous amounts of opiates in a bid to control my pain enough to try and manage some semblance of normality, without being SO dozy I can't get up. I'd be so grateful if you could point me in the direction of any threads about different opiates and their effects. I'm pretty sure my pain team will be talking to me about fentanyl, as i'm now on three times my original Oxycodone slow release dose, with 80mg breakthrough three times a day. Oxycodone has been amazing because it doesn't make me sleepy, whereas MST and tramadol knock me out. Oramorph for terrible breakthrough used to be effective at 5ml/10mg but now I need 25ml/50mg to get the same relief. I don't know much about the alternative opiates. We did tree years of max dose gabapentin, when I came off it to try pregabalin instead, I didn't notice any change in pain, and couldn't tolerate the pregabalin, so now have no neuropathic element to my menu. If my post is completely inappropriate then please remove/delete, it just struck me that some of you know so much about the drugs, and I'm trying to gather as much information as I can, so I can go prepared to see the Drs. Thanks in advance.
