Anyone battling addiction recovery with SLE lupus?

[Lynn8514]

Hello everyone! During the past year I've had some crazy symptoms and a lot of joint pain. I attributed the fatigue and body aches to paws, but recently started having kidney trouble, skin rashes, headaches, numbness and tingling in my feet and hands with debilitating fatigue.

After finally going to the doctor, multiple tests have confirmed SLE Lupus Nephritis. Honestly, this seriously sucks. This incurable illness is like paws for the rest of my life. Is anyone else struggling from this disease? I'm on prednisone right now, but I'm not taking it much longer due to harmful side effects. I'm hoping there are vitamins or something...

 

[Caroliina]

I kept asking my doctor about this. I have endometriosis (badly) and I'm going to get possible Melanoma removed from my leg today (fun). I feel sick a lot. I feel tired, depressed, pained, sluggish. My doctors usually attribute this to my endometriosis. However, I have random severe pain, vomitting and having the general feeling of the flu coming on a lot. It's hard to not become addicted or dependent on Meds when you feel so crappy. I know, because 5 years ago, I first got sick. It's been downhill from there ;(

 

[Captain.Heroin]

I'm sorry to hear about your diagnosis.

 

[cjh1221]

I dont have a confirmed diagnosis yet...as of right now my diagnosis is Rheumatoid Arthritis so I absolutely know what youre going through. My addiction is a secret to my docs...I am 31 days (mostly) clean now and it is a struggle.
I havent told my doctors because I know that at a point in the future I will be in even more pain and deformation will start. I will go back on opiates if I must. If I have a decent amount of clean time under my belt and the pain gets to the hideous point, I will consider my frame of mind and take it from there.
I do have to say that I understand the fatigue, thats a really hard part of it, and I have chronic kidney infections that have lead to damage, so we are not so different. It is a hard row to hoe and, with myself being sober for such a short time, I do not really feel in a position to give advice but I can tell you every day gets easier and you are not alone.