Ankylosing Spondylitis/Chronic PAIN/DumbDocs; the adventures of...

i was diagnosed with advanced Ankylosing Spondylitis today, its bad, but its a diagnosis. my wife and i have been expecting something 1/2 serious at least, so we arent too shocked, just learning about this condition, and the treatments. i have been to the ER more times then i can remember for joint pain/swelling, but never checked out enough to find a reason, or even looked at to find a cause, i would always get vicodine and be shuffled off.

Since i was 16-18 i have been having these pains, im 31 now and do wish someone would of checked looked for a cause as a great portion of the damage done could of been avoided, and not of been allowed to reach this stage of progression. the pain is 24/7, i can only seem to get 3-5 hours of sleep at a time before im awoken by pain, and ive only been offered pain meds(timed hydromophone IV doses, and hydrocodone 7.5mg), after awakining smoking marijuana stops a large amount of lower back pain with in minutes or half way through a joint, and then gone with in 20 minutes. w/o marijuana, the pain/inflamation lasts for at least 2-3 hours and is what id consider to be an 8/10.

i found that, a good 1/5 gram +,- joint works as well and is less debilitating then 20+,- of hydrocodone, or 2-4mg IV hydromorphone. i sent in for medical marijuana, and was asked to perform a shot on myself of Humira; a biogenic TNF-pain blocker, these are very expensive, $800 per preloaded syringe, i would be taking 1 shot every 2 weeks, the trouble is i dont have insurance that covers prescriptions, i am on mental disability for schizoeffective d/o and bi polar, another story, so my medical bills are paid for, just not scripts. humira generally takes a few days to start working, my rheumetologist said i might feel some relief tomorrow or the next day, so we will see how i react to this stuff, and see if it holds up value as a pain blocker as it does in its price...
 
Jebus man, I just wiki'd that. I'm glad to hear that you finally have a proper diagnosis, and will (hopefully) finally be able to get some real help with your pain, but I'm so sorry to hear that it's that that's causing your pain. Is physio still an option, or is it too far gone?
 
wow, ive been too busy...

i wanted to keep up with this more but, shit happens.

the damage done is done. all my joints besides my lower back i should 'work' to prevent joint fusion, with my lower back i need to be very cautious, my L4 and L5 need to move a bit but nothing jerky, no bad bending, proper posture... if i stay still too long they will begin to fuse from calcium build up, and if it begins to form a solid connection between the vertebrae they can fracture, or worst case shatter; the humira is supposed to help deture the calcium build up, and i have to stay aware.

i just recently heard from the pain clinic after a several weeks and have an appointment.

the humira did start working after 3-4 days, it has been amazing, imagining the pain i was feeling 2 weeks ago is difficult to do. the mmj worked out, and worked out well. the physician i saw knew a good deal about AS and humira. he suggested i eat the mmj, and said that it would compliment the humira, because of mmjs strong anti-inflammatory and leukocyte regulation properties it would curve humiras immune system suppression. the benefit is that i wont be as susceptible to viruses; that and the price are the biggest drawbacks, the flu, bronchitis etc. would wipe me out.

i can feel it begin to wear off, i take my next shot on the 9th - i have been sleeping for 6-8 hours, waking up occasionally, which is a tremendous relief all on its own. i was starting to get very frustrated, pissed, 1/2 delirious and my sense of time had been quickly diminishing.

this trumps all in my life right now, and its fucking crazy, learning about it, and how AS progresses and different symptoms that i have exhibited for so many years, its all clear now i see it. my life has been revealed to me in a third persons view it seems, as someone who new what was going on, what the signs were, how serious it is, and how my life will never be the same since i started this blog.
 
I'm so glad to hear that you're getting proper treatment, although not so much at how expensive it is. AFAIK pretty well all mmj people eat it, if they are able to. Gives a longer effect, and a better one.

Humira sounds really interesting. To the library!
 
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