Greetings! I am hoping to learn much "real life" knowledge here as well as hopefully help others with my knowledge. I have a genetic connective tissue disorder called Ehlers Danlos Syndrome, and a neuroautoimmune disorder called Complex Regional Pain Syndrome. I am a (former) allied health care professional and instructor. I have no experience with recreational drug use, but have tried many, many medications to get to where I am now. My main pain doc has been just amazing over the past 13 years, but no one knows everything, especially with orphan diseases. I learn so much from other patients. Take care all,
EDS lady
Hello and welcome to Bluelight. Did you get diagnosed as a child or later in life? What are the common medications for your conditions? I'm sure that you probably already have experience with this community forum but just in case:https://www.ehlers-danlos.com/what-is-eds/
You can never have too many resources when it comes to support!
I'm sorry to hear about your condition, they both sound pretty serious. Kudos to you on not falling into the depths of "recreational drug" use to help with your condition. I look forward to your posts..
![:\](https://bluelight.org/xf/BL_Images/Orig_Emoji/wrygrin.gif "wry grin :\")
