Roughpoodle87
Greenlighter
Hey anyone else have this god forsake bullshit and its making them hate life?
Just curious.
Just curious.
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Anyone have Fibromyalgia?
- Thread starter Roughpoodle87
- Start date
ocean
Bluelight Crew
I have it.
My mother has it.
And I know a few BLers who have it-
You might wanna check out Healthy Living.
There were a few threads about it at one point.
Are you taking anything for it?
My mother has it.
And I know a few BLers who have it-
You might wanna check out Healthy Living.
There were a few threads about it at one point.
Are you taking anything for it?
TINK
Bluelighter
i have had fibro for over 15 yrs along with a long list of other medical issues.
if you are interested in talking about specifics you can pm me or ask here. But, when it comes to fibromyalgia there is no one answer for anyone. And you have to be carful when you are asking to general questions. I was lucky enough to have some wonderful doctors and a Bachelor's degree in Biology so had a bit of an advantage.
if you are interested in talking about specifics you can pm me or ask here. But, when it comes to fibromyalgia there is no one answer for anyone. And you have to be carful when you are asking to general questions. I was lucky enough to have some wonderful doctors and a Bachelor's degree in Biology so had a bit of an advantage.
panic in paradise
Bluelighter
there are many therapies, herbs and drugs used to treat the symptoms, and attempt to halt progression, but "recovering" isnt going to happen, if it is in-fact Fibromyalgia.
the substance that makes up your nerves is fried, so any pain, or many touch/feel sensations are heightened.
preventative maintenance, knowledge, drug and other therapies(meditation,relaxation techniques) are some things that will help.
this can be moved if you dont get more detailed info, but the subject is discussed at LARGE here, there are volumes of information and experiences-use it!
stay focused on what can be done in the near future, the key here, a big one that does help now and later, is to try and not stress.
the substance that makes up your nerves is fried, so any pain, or many touch/feel sensations are heightened.
preventative maintenance, knowledge, drug and other therapies(meditation,relaxation techniques) are some things that will help.
this can be moved if you dont get more detailed info, but the subject is discussed at LARGE here, there are volumes of information and experiences-use it!
stay focused on what can be done in the near future, the key here, a big one that does help now and later, is to try and not stress.
panic in paradise
Bluelighter
there are many therapies, herbs and drugs used to treat the symptoms, and attempt to halt progression, but "recovering" isnt going to happen, if it is in-fact Fibromyalgia.
the substance that makes up your nerves is fried, so any pain, or many touch/feel sensations are heightened.
preventative maintenance, knowledge, drug and other therapies(meditation,relaxation techniques) are some things that will help.
this can be moved if you dont get more detailed info, but the subject is discussed at LARGE here, there are volumes of information and experiences-use it!
stay focused on what can be done in the near future, the key here, a big one that does help now and later, is to try and not stress.
the substance that makes up your nerves is fried, so any pain, or many touch/feel sensations are heightened.
preventative maintenance, knowledge, drug and other therapies(meditation,relaxation techniques) are some things that will help.
this can be moved if you dont get more detailed info, but the subject is discussed at LARGE here, there are volumes of information and experiences-use it!
stay focused on what can be done in the near future, the key here, a big one that does help now and later, is to try and not stress.
TINK
Bluelighter
One thing that has really helped me was magnesium supplements. It helps to relax the muscles. I am unable to take the oral supplements so I go have IV infusions 3 times a month.
Everyone with fibromyalgia experiences it differently. I recently went through a 9 month long pain management program to learn how to deal my pain without using opiates/narcotics. I was in the class with a few other fibro patients and their complaints of their fibro where somewhat different than mine. I can not impress upon you haw important it is to not treat your fibro pains with opiates. The receptors that the opiates bind to are the same one that are over active from the fibro, long term use of opiates cause opiate hyperalgesia. Also, if you are interested they are doing a study on something they found called substance p that they are relating to chronic pain syndrome. The best pain meds you can get are your natural endorphins. Your endorphins are 20 times more potent that morphine. The catch 22 is that the things that produce endorphines in the body, fibro sufferers stay away from.
I find that my fibro is evolving everyday and I have to approach it differently each time. Especially my flare ups.
You will never be free of this illness, but it can be managed. Like I said I have had it for over 15 years and I have a full time job and live a some what functional life. I will admit that my social life sucks because of my illness, but I am working on that.
Also, If you have fibro, the chances are you also have some sort of other underlying condition. It took me 3 years of going to dozens of different doctors and pressuring them for help. I always got the brush off. As soon as a doctor hears you have fibro, they dismiss all of your other complaints and lump it all in with the fibro. I ended up testing positive for an auto-immune disease, hypothyroidism, and out of balance electrolytes. Once I started getting treatment for those my fibro symptoms list got shorter.
Everyone with fibromyalgia experiences it differently. I recently went through a 9 month long pain management program to learn how to deal my pain without using opiates/narcotics. I was in the class with a few other fibro patients and their complaints of their fibro where somewhat different than mine. I can not impress upon you haw important it is to not treat your fibro pains with opiates. The receptors that the opiates bind to are the same one that are over active from the fibro, long term use of opiates cause opiate hyperalgesia. Also, if you are interested they are doing a study on something they found called substance p that they are relating to chronic pain syndrome. The best pain meds you can get are your natural endorphins. Your endorphins are 20 times more potent that morphine. The catch 22 is that the things that produce endorphines in the body, fibro sufferers stay away from.
I find that my fibro is evolving everyday and I have to approach it differently each time. Especially my flare ups.
You will never be free of this illness, but it can be managed. Like I said I have had it for over 15 years and I have a full time job and live a some what functional life. I will admit that my social life sucks because of my illness, but I am working on that.
Also, If you have fibro, the chances are you also have some sort of other underlying condition. It took me 3 years of going to dozens of different doctors and pressuring them for help. I always got the brush off. As soon as a doctor hears you have fibro, they dismiss all of your other complaints and lump it all in with the fibro. I ended up testing positive for an auto-immune disease, hypothyroidism, and out of balance electrolytes. Once I started getting treatment for those my fibro symptoms list got shorter.
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Lazyscience
Bluelighter
i have symptoms that exactly match fibromyalgia and have done for over 10 years. thing is, im not sure its a real medical condition. i think its just a normal reaction to life stresses.it gets better when things are going ok in life and worse when life gets tough. you know?
TINK
Bluelighter
Then count yourself lucky, and it does sound like you are just suffering from stress induced illness, that goes away when your stress goes away.
Fibro sufferers don't get that luxury.
For example, right now, I have absolutely no stress. Life is good, work is good. And my body hurts, it was difficult to get out of bed this morning, I have been laying on a heating pad for the last hour or so just to get some relief. I have done my physical theraphy for the day, and my stretches. And I still hurt. Today is one of those days that I have to let my body do what its going to do, and I have to push through it but I have to make sure not to over do it.
Lazyscience
Bluelighter
maybe its more complicated like, it could be that you have some kind of repressed emotions or something and its manifesting in pain.
i think labelling yourself with a condition like 'fibromyalgia' could be harmful because it might prevent you from recovering because you dont believe its possible.
my opinion is that it is psychological and i suspect im right.
i think labelling yourself with a condition like 'fibromyalgia' could be harmful because it might prevent you from recovering because you dont believe its possible.
my opinion is that it is psychological and i suspect im right.
TINK
Bluelighter
The short answer to your question is yes. Fibro sufferers have a harder time releasing lactic acid from their muscles. Lactic acid is the by product of muscle movement. Too much lactic acid in the muscle makes the muscle cramps up or makes it more sensitive to touch.
This is one of the symptoms of fibro but not the cause. I now have a a great sleep cycle. I would have to say that if you have fibro the absolute 1st thing you need to get under control is your sleeping. You need to get on a normal, regular sleeping habit and get 8 hrs of sleep every night. This is key. Like Draigan said we have a fucked up restorative sleep cycle. Once this is corrected, other symptoms can get addressed.
TINK
Bluelighter
There are some professional that believe that fibromyalgia is caused by PTSD. Which could be the case for a lot of people. But, personally I want to believe it is something that will go away. I want to be better. I don't want to be like this. I have seen countless therapists and shrinks through out my life. I have dealt with all my issues, my childhood abuse, my addictions, my self esteem, I am completely and totally as mentally healthy as I will ever be.
I do not introduce myself as hi my name is Tink and I have fibromyalgia. Fibro does not define who I am or what I am. It is like my job, its something that I deal with and make the best of.
Most people who don't know anyone with fibro, have a hard time understanding what they go through. My mother and sister at first thought that I was just being a drama queen over my pain, and my dad thought I was just lazy. I spent a weekend with them and flared up and they saw it first hand and realized that it was not all in my head or pretend.
So you are welcomed to your opinion as everyone is, but to those who are suffering from this do not let someone tell you that it is not real. Get help physically, spiratually, and emotionally.
Lazyscience
Bluelighter
yeah its well annoying. nobody cares or believes if you try and explain about your pain to people and tell them about fibromyalgia.
people just think youre an annoying, whinging hypochondriac.
make the pain go away....please!
people just think youre an annoying, whinging hypochondriac.
make the pain go away....please!
TINK
Bluelighter
I do think that there are people that hide behind the diagnosis. As a way to escape their problems. I know a lot of people who say they have fibro and all they do is whine and complain about how sucky their life is and how unfair it is that they are sick and blah blah blah.
Those people need to get a grip. And those are usually the people that need their emotial issues healed before they can work on their physical ailments.
My sister has a friend that says she has fibromyalgia. So says she is in so much pain that she can't work and collects disability. She is like mid 20's. So, she doesn't work decause she hurts and is tired all the time but she can manage to go out and party like a fucking rock star. She drinks like no one I have ever seen. When she told me she had fibro, I asked her why she does the things she does. I told her everything you do is making or aggrivating your condition. Her answer was "if I am gonna feel like crap I might as well have some fun".
My personal opinion is even if she has fibro, she is a cry baby and a hypochondriac. She thinks some magic pill will fix her and that she has the disease of the week.
Those people need to get a grip. And those are usually the people that need their emotial issues healed before they can work on their physical ailments.
My sister has a friend that says she has fibromyalgia. So says she is in so much pain that she can't work and collects disability. She is like mid 20's. So, she doesn't work decause she hurts and is tired all the time but she can manage to go out and party like a fucking rock star. She drinks like no one I have ever seen. When she told me she had fibro, I asked her why she does the things she does. I told her everything you do is making or aggrivating your condition. Her answer was "if I am gonna feel like crap I might as well have some fun".
My personal opinion is even if she has fibro, she is a cry baby and a hypochondriac. She thinks some magic pill will fix her and that she has the disease of the week.
Thanks for your informative posts TINK!
There are so many things fucked up in my body that I don’t want to get a Fibromyalgia diagnose right now, hopefully never. I have managed to keep exercising. I sleep quite well and have been living quite healthy anyway, so in that sense it feels that I might not have it. I suffer from episodic form of Cluster headaches, my back is twisted and my other shoulder is totally wrecked. Still the quality of my life has been getting better the less pain meds I take. I do however suffer from some sort of pain almost all the time, so in that sense it seems that I might have it.
Have to admit that just now the pain from my shoulder is driving me crazy and my lame ass meds aren’t helping enough. Typing is killing me.
There are so many things fucked up in my body that I don’t want to get a Fibromyalgia diagnose right now, hopefully never. I have managed to keep exercising. I sleep quite well and have been living quite healthy anyway, so in that sense it feels that I might not have it. I suffer from episodic form of Cluster headaches, my back is twisted and my other shoulder is totally wrecked. Still the quality of my life has been getting better the less pain meds I take. I do however suffer from some sort of pain almost all the time, so in that sense it seems that I might have it.
Have to admit that just now the pain from my shoulder is driving me crazy and my lame ass meds aren’t helping enough. Typing is killing me.
panic in paradise
Bluelighter
FibroMA-fundamental, thc/cbd.
oh~
TNF's?!
what do you take currently, as an infusion?
a little factoid --
near 80% of physiological disease or disruption is an auto-immune d/o, even diabetes,..
oh~
TNF's?!
what do you take currently, as an infusion?
a little factoid --
near 80% of physiological disease or disruption is an auto-immune d/o, even diabetes,..
TINK
Bluelighter
My pain is in my shoulder/neck/back. I can tell you from experience get off the pain meds. All they do is make it worse. I suffer from migraines/tension headaches so I know how you feel. I have arthritis on c2,c3,and c4 which really doesn't help at all.
Learning correct body mechanics was the best thing I could have done. If you have good medical insurance get a physical theraphist to teach you how you can better those areas. I also use lidocaine cream and patches as well and I have a TENS unots that helps when my muscles are particularly painful. And, as I mentioned before, MAGNESIUM!!!!!! I don't know why, but I know it works!!! For migraines and muscle pain.
panic in paradise
Bluelighter
i have an empi.TENS
do luuuv
oh my, if i had that thing back in the days of !EEE! lol. id be out stealing batteries.
i was going to ask what PT could be helpful here? a TENS would be for sure. temporarily
![:\](https://bluelight.org/xf/BL_Images/Orig_Emoji/wrygrin.gif "wry grin :\")
hmph
my insurance dropped PT and devices, but then began to cover the services again.
with PT now, swimming in what im in it for.
do luuuv
oh my, if i had that thing back in the days of !EEE! lol. id be out stealing batteries.
i was going to ask what PT could be helpful here? a TENS would be for sure. temporarily
hmph
my insurance dropped PT and devices, but then began to cover the services again.
with PT now, swimming in what im in it for.
TINK
Bluelighter
I get 2mg of magnesium infused over 2 hours in a ringer solution. I have no idea why I can not take the oral supplements, I get really bad side effects and none of the benefits.
my autoimmune disorder that my body decided to chose is sjogren's. http://www.sjogrens.org/