Coming off Invega/Xeplion (paliperidone) injections v 12

[paranoid android]

My doctor wanted to test me but medicaid refuses to do it including a thyroid test.

I had to push to get a test done for it to. I had to tell the GP that it was my shrinks idea to get a test done for it. It kinda was so i wasent really lying as my shrink is all for TRT.

Im in Canada so we thankfully dont have medicaide to deal with

 

[fuckabout89]

I had to push to get a test done for it to. I had to tell the GP that it was my shrinks idea to get a test done for it. It kinda was so i wasent really lying as my shrink is all for TRT.

Im in Canada so we thankfully dont have medicaide to deal with

They tried refusing to do HIV and hepatitis test luckily he was able to get them to do that. but I been getting denied for years a simple testosterone test. Honestly if you want a real test done and not have to deal with Insurance or medicaid its best to go to a private lab and you can order what ever test you want done, costs a lot though. Wish I had the money and I would. Sitting here with MS symptoms, optic neuritis, loosing the ability to control my ability to pee, tremors, leg and arm numbness, memory problems, and sleeping all day and my ability to sweat and produce oils are completely gone to the point I cant shower because my skin gets so dry. Gonna take me years to figure out what's going on. Peed myself yesterday without even knowing it until I got up. Went from like 142 pounds to like 132 in under a month, cant eat.

 

[Pretty Green]

Please hang on people. I’m 19 months now and recovered and getting married today. What hurts me the most about this whole journey is my beautiful friend Vamsi not holding on. I miss him so much and think of him everyday. It will get better and it feels like it won’t but it does. I promise. Please hold on. I told myself I would talk to anyone losing hope. My number if anyone is not seeing the light and needs some help or reassurance that the darkness will lift and you can regain what it is like to feel human.

 

[paranoid android]

They tried refusing to do HIV and hepatitis test luckily he was able to get them to do that. but I been getting denied for years a simple testosterone test. Honestly if you want a real test done and not have to deal with Insurance or medicaid its best to go to a private lab and you can order what ever test you want done, costs a lot though. Wish I had the money and I would. Sitting here with MS symptoms, optic neuritis, loosing the ability to control my ability to pee, tremors, leg and arm numbness, memory problems, and sleeping all day and my ability to sweat and produce oils are completely gone to the point I cant shower because my skin gets so dry. Gonna take me years to figure out what's going on. Peed myself yesterday without even knowing it until I got up. Went from like 142 pounds to like 132 in under a month, cant eat.

Dude wtf? Why would they refuse a simple HIV test? That is so fucked.

Im so sorry you have all that going on. If you think you have MS can you get a test done for it? I have trigeminal neuralgia but was also tested for MS because alot of people with MS have trigeminal neuralgia. I forget exactly what tests i had done. Mind you i live in Canada so all these tests where paID for. I got them done before our health care system went to complete shit

 

[fuckabout89]

Dude wtf? Why would they refuse a simple HIV test? That is so fucked.

Im so sorry you have all that going on. If you think you have MS can you get a test done for it? I have trigeminal neuralgia but was also tested for MS because alot of people with MS have trigeminal neuralgia. I forget exactly what tests i had done. Mind you i live in Canada so all these tests where paID for. I got them done before our health care system went to complete shit

Yeah thats how fucked medicaid is...Poor doctor looked defeated. I gotta see a eye doctor and then from there probably a neurologist probably take 6 to 12 months. Took me 2 fucking years to get all my teeth pulled while I was getting infection after infection.

Oh shit I think im starting to get that just didnt knkw what was happening yeah im get sharp shocking in pains in my face that started a couple days ago right before I lost bladder control and pissed myself.

 

[asr0101]

Benztropine is awful too. That one makes me extremely angry I cant even tolerate it. Makes your memory that of a person with end stage dementia and horrible horrible dry mouth and eyes and blurred vision.

Weed usage from high concentration carts , along with invega injection and benzotropine to stop akathisia , made my memory literally non existent . I forgot what shirt I was wearing when I took it off near a pool

 

[asr0101]

Guys it’s only 10 more days until my psych appointment and I’m gonna tell the doctor I’m done with this “medication” . This is akin to torture . I’ll ask him to taper off the epival. I always feel good around day 28 of my cycle it feels like I get some mental breathing room when my brain is being drowned in this high dosage . Can you believe my fucking doc told me this wasn’t the highest dose . This is the highest monthly fda approved dosage . Fuck trusting him he even forgot what my prescription for epival was . Genuinely held him in high regards for the fist few months now I’m like fuck him he doesn’t care .

 

[fuckabout89]

Weed usage from high concentration carts , along with invega injection and benzotropine to stop akathisia , made my memory literally non existent . I forgot what shirt I was wearing when I took it off near a pool

Yeah its fucking nuts I didnt like taking thought I was causing brain damage from how dirty that drug is. It can also cause dystonia taken long term

 

[paranoid android]

Yeah thats how fucked medicaid is...Poor doctor looked defeated. I gotta see a eye doctor and then from there probably a neurologist probably take 6 to 12 months. Took me 2 fucking years to get all my teeth pulled while I was getting infection after infection.

Oh shit I think im starting to get that just didnt knkw what was happening yeah im get sharp shocking in pains in my face that started a couple days ago right before I lost bladder control and pissed myself.

Dude if your loosing control of your bladder something serioous is obviously going on. I dont see why you have to try so hard just to get some fucking tests done goddamn. I think a MRI is what i had done to make sure i didnt have MS. Turned out it was trigeminal neuralgia instead.

Ya sharp pains n the face is what i get. Thankfully i get it alot less now then i did years ago. I have been on just about every opiate from tramadol right up to fentanyl patches for it. Right ow im on morphine. Weed helps the pain somewhat and if you can get ketamine that works fantastic for it. Stops the pain right in its tracks. Shrooms also helps reduce the pain to it seems or how often you get attacks anyway. But if youve had psychosis before you may want to be careful with shrooms.

 

[fuckabout89]

Dude if your loosing control of your bladder something serioous is obviously going on. I dont see why you have to try so hard just to get some fucking tests done goddamn. I think a MRI is what i had done to make sure i didnt have MS. Turned out it was trigeminal neuralgia instead.

Ya sharp pains n the face is what i get. Thankfully i get it alot less now then i did years ago. I have been on just about every opiate from tramadol right up to fentanyl patches for it. Right ow im on morphine. Weed helps the pain somewhat and if you can get ketamine that works fantastic for it. Stops the pain right in its tracks. Shrooms also helps reduce the pain to it seems or how often you get attacks anyway. But if youve had psychosis before you may want to be careful with shrooms.

Yeah I know how bad it lol. Just numb and use tobad shit happening. Yeah have tremors so bad when sit on a toilet they shake uncontrollably like a leaf. I forgot to mention the bladder thing thag happened last summer because I forgot about it but it as said it happened again yesterday. I see him again in three months.

 

[paranoid android]

Yeah I know how bad it lol. Just numb and use tobad shit happening. Yeah have tremors so bad when sit on a toilet they shake uncontrollably like a leaf. I forgot to mention the bladder thing thag happened last summer because I forgot about it but it as said it happened again yesterday. I see him again in three months.

You should see the doctor sooner then that imo. You should really get this looked into quick it sounds quite serious.

 

[InvegaAnon]

I actually had boner from porn , last night I took trazodone for sleep but it didn’t help my sleep but today I could get aroused for first time even though it was muted orgasm , I don’t know if it’s a pill or it’s a good sign I’m recovering sexually , I tested again for testestrone and it was little low, so I hope I have no pssd anymore or and it’s more test problems , I was really losing hope this made me little less agitated , what u guys think

Antiepileptics have helped PSSD for some reason, but be careful, they have messed with people too. If you get a window, it usually means you will recover.

 

[paranoid android]

Antiepileptics have helped PSSD for some reason, but be careful, they have messed with people too. If you get a window, it usually means you will recover.

What kind of antiepileptics though? Most of them like say lamotrigine, gabapentin and carbamazepine all kind of have sucky side effects. Benzos are also anti epileptics but theres the issue of dependance with those

 

[moerez]

I really don’t know how to cope ,I literally can not sleep! It’s been 7 months and keep getting worse, fucking barely 2 hours shallow sleep, with 2 sleeping pills! Like fuck how can I survive like this! I’m getting crazy. FML I used to sleep easily 10 hours before all this shit , I can’t live when I have no sleep no joy it’s 24-7 torture!

 

[twinpeaks123]

Please hang on people. I’m 19 months now and recovered and getting married today. What hurts me the most about this whole journey is my beautiful friend Vamsi not holding on. I miss him so much and think of him everyday. It will get better and it feels like it won’t but it does. I promise. Please hold on. I told myself I would talk to anyone losing hope. My number if anyone is not seeing the light and needs some help or reassurance that the darkness will lift and you can regain what it is like to feel human.

you recovered? when did you recover

 

[Deleted member 592205]

Please hang on people. I’m 19 months now and recovered and getting married today. What hurts me the most about this whole journey is my beautiful friend Vamsi not holding on. I miss him so much and think of him everyday. It will get better and it feels like it won’t but it does. I promise. Please hold on. I told myself I would talk to anyone losing hope. My number if anyone is not seeing the light and needs some help or reassurance that the darkness will lift and you can regain what it is like to feel human.

I’am at almost 21 months and not recovering, why?

 

[paranoid android]

I really don’t know how to cope ,I literally can not sleep! It’s been 7 months and keep getting worse, fucking barely 2 hours shallow sleep, with 2 sleeping pills! Like fuck how can I survive like this! I’m getting crazy. FML I used to sleep easily 10 hours before all this shit , I can’t live when I have no sleep no joy it’s 24-7 torture!

Dude just a few hours ago you got a boner. Your recovering just hang in there ffs! Also zopiclone as you should know can create a tolerance to it and other drugs like it. 2 not working for sleep is not something to freak out about. I take atleast that my every night to sleep usually more. It's called tolerance. Either take a break from zopiclone or switch to another sleeping pill like zopiclone.

 

[InnerReturn]

Nice, be prepared most of these doctors are required to do so much when it comes to medicine like this it’ll be guess work off the top of their head. Check for any hesitancy or general statements from your doctor. Doubtful they’ll recognize the potential dangers.

I’ve become a bit more cautious about what psychiatrists say. My experience in the hospital showed me that sometimes their approach doesn’t always feel very individualized.
For example, there was a patient with anxiety and depression who was prescribed strong antipsychotics, and before discharge she seemed very emotionally blunted. She didn’t appear to have psychotic symptoms, so it was confusing to see that kind of treatment.
This made me question things at the time. At least now my new doctor listens to me more and doesn’t immediately insist on antipsychotics, which I appreciate.
In the country where I live, it can be challenging to find a specialist who feels like the right fit, so I really hope I’ve found someone better this time.
I’ve already taken amantadine before, and I tolerated it well

 

[InnerReturn]

Please hang on people. I’m 19 months now and recovered and getting married today. What hurts me the most about this whole journey is my beautiful friend Vamsi not holding on. I miss him so much and think of him everyday. It will get better and it feels like it won’t but it does. I promise. Please hold on. I told myself I would talk to anyone losing hope. My number if anyone is not seeing the light and needs some help or reassurance that the darkness will lift and you can regain what it is like to feel human.

Did your recovery happen gradually or in waves?

 

[Deleted member 592081]

fuck this piece of shit psychiatrist i have, he gave me more antipsychotics and more antidepressant i said no and he was mad. I meet him in few weeks and I will ask for ketamine if he says no im guna fire his bitch ass .