Coming off Invega/Xeplion (paliperidone) injections v 12

[demileigh]

That exactly makes me scared that I have to put up with all these stuff blank mind and anhedonia and everything for years , it’s nightmare to wake up everyday and feeling crappy, it’s just so hard girl

Don’t be scared, you’re not alone and you could recover sooner than you realize just keep on going.
I decided to give myself 12-18 months to recover and now at 9 months I’m back to my usual self and life is good, definitely not perfect but still good.
In my experience, coming back from the hell invega puts us through has made me better, happier and stronger which no doubt is hard to believe when you’re in the thick of it but I wouldn’t say it unless I meant it.
I even started therapy while recovering and that’s been a lot of inner work and having to face shit that I buried deep within myself which honestly felt like a kick in the gut while already going through such a tough time but I survived and so can you.

 

[demileigh]

Yeah,how was I bullying? She was being rude and inconsiderate towards the others.

Towards you and RisperdalConsta50mg no one else. I’m a kind person not a nice person so don’t get it twisted.
Do you realize that a bunch of us here have history of psychosis and the chances of us being given a stimulant ADHD med that could trigger psychosis is highly unlikely which means whatever you think you read on the internet doesn’t hold much value? you think you’ve put research into this when really you’ve just got a case of confirmation bias.

Even believing those side effects you spoke of are signs of brain damage is again just confirmation bias so if that’s the hill your willing to die on, so be it.

idgaf

 

[IOSIP]

Howdy, just jumping on the new thread to state for the record that I recovered 100 percen, when I was injected i scrolled for hours at a time to find anyone proclaiming this.

Anyways, I only had 2 shots, depending on how many you get recovery will take longer. But 100 percent once this junk is totally put of your system, in time you will recover, you might experience hell in that period. But just know if you hang in there it will be ok.

 

[Deleted member 592205]

For me it’s almost derealization (severe) and tinnitus, i don’t give a fuck about sexuality and i want back cognitive facultyes instead..

 

[twinpeaks123]

i would have recovered then I got pssd unfortunately, I am so unlucky

 

[Matthew01]

Towards you and RisperdalConsta50mg no one else. I’m a kind person not a nice person so don’t get it twisted.
Do you realize that a bunch of us here have history of psychosis and the chances of us being given a stimulant ADHD med that could trigger psychosis is highly unlikely which means whatever you think you read on the internet doesn’t hold much value? you think you’ve put research into this when really you’ve just got a case of confirmation bias.

Even believing those side effects you spoke of are signs of brain damage is again just confirmation bias so if that’s the hill your willing to die on, so be it.

idgaf

Learn to read posts before posting. You blatantly ignore the damages caused by these drugs and make up things. A guy said he detected some damages after a scan and a literal doctor said I should do a brain scan for damages,. Just because its unlikely doesn't mean there's not a chance,it's one of the drugs used to combat this issue, stimulants can also be bought online. I also posted other drugs like supplements way before to combat this issue.

 

[demileigh]

Learn to read posts before posting. You blatantly ignore the damages caused by these drugs and make up things. A guy said he detected some damages after a scan and a literal doctor said I should do a brain scan for damages,. Just because it’s unlikely doesn't mean there's not a chance,it's one of the drugs used to combat this issue, stimulants can also be bought online. I also posted other drugs like supplements way before to combat this issue.

A guy saying something on the internet doesn’t make it a fact, you being told by a doctor to do a scan that you clearly haven’t done doesn’t make it a fact. You’re the one making shit up without any facts or hard evidence to support what you claim.

Drugs and supplements aren’t the same thing btw.

Acting like you know it all when your education is from a developing nation is insane.
Telling me to learn to read when I’ve done 12+ years of education, taught kids with English as a second language to read and taught my own son to read before he started school just goes to show how much of a condescending low life loser you are.

 

[dopamineClippedAngel]

There is a real problem. I come to this forum for advice, fellowship, and inspiration from people's recovery stories. The constant talk about suicide is making many contributing users want to leave the forum, but worse, as stated earlier, it just seems to be increasing more suicides and the forum is better off closed than up if that's going to be the outcome. People are starting to get frustrated because it feels like some of you are refusing to listen. @moerez I already showed hard evidence that at 5 months there is certainly the possibility that the drug is still in your system and suicide at this point would be unwise. I don't know what more to say, it would be a tragic mistake to end things. But you are at the point of saying you don't care about your family, so what can I say? I appreciate the continued testimony of @demileigh & empathize with her irritation.

Believe me, my trust in psychiatry and medicine is shattered. At the same time, these are the best treatments currently available. It sucks, but recovery is possible. Someone was saying they got PSSD from Strattera- I have been on 60mg and 80mg of Strattera this whole time. I did find it was worsening the anhedonia. I stopped it and was fine in a day or two. I was taking it for months. You don't get PSSD from a couple pills of Strattera. I am only 3 months into recovery and somewhat able to enjoy TV, writing is coming back, not creative but otherwise (I had some cognitive side effects that were quite scary initially, felt like I couldn't think). I'm trying to take a couple courses which is still a shitshow with the Invega, but these won't go towards my GPA so I am able to stimulate my brain and experiment with stuff that works. I try to get out pretty regularly to do some different things, go for walks. I believe @Trueart2 is currently working, correct me if I'm wrong.

I also had drooling and stiffening of the arms but that has resolved. The thing about anhedonia is that it can be multifactorial. If you are depressed about the Invega, that can worsen anhedonia and project the false image of a stalled recovery. I'm currently facing this invalidation with my psychiatrist, so I hate to echo it, but there are negative symptoms. It helps to stimulate your brain; I have also been exercising, not as consistently as I could be, but I think this all helps. This drug is terrible. I bawled my eyes out a couple days ago over how I feel, felt better after. Sometimes you have to take things a day at a time, but I also think it legitimately helps if you push a little past the lack of feeling. One cannot always go by how they feel. With time it gets easier. I finished a novel, in the beginning I was barely comprehending chunks of it but by the end I was able to visualize it pretty well and getting invested in the story.

 

[Trueart2]

There is a real problem. I come to this forum for advice, fellowship, and inspiration from people's recovery stories. The constant talk about suicide is making many contributing users want to leave the forum, but worse, as stated earlier, it just seems to be increasing more suicides and the forum is better off closed than up if that's going to be the outcome. People are starting to get frustrated because it feels like some of you are refusing to listen. @moerez I already showed hard evidence that at 5 months there is certainly the possibility that the drug is still in your system and suicide at this point would be unwise. I don't know what more to say, it would be a tragic mistake to end things. But you are at the point of saying you don't care about your family, so what can I say? I appreciate the continued testimony of @demileigh & empathize with her irritation.

Believe me, my trust in psychiatry and medicine is shattered. At the same time, these are the best treatments currently available. It sucks, but recovery is possible. Someone was saying they got PSSD from Strattera- I have been on 60mg and 80mg of Strattera this whole time. I did find it was worsening the anhedonia. I stopped it and was fine in a day or two. I was taking it for months. You don't get PSSD from a couple pills of Strattera. I am only 3 months into recovery and somewhat able to enjoy TV, writing is coming back, not creative but otherwise (I had some cognitive side effects that were quite scary initially, felt like I couldn't think). I'm trying to take a couple courses which is still a shitshow with the Invega, but these won't go towards my GPA so I am able to stimulate my brain and experiment with stuff that works. I try to get out pretty regularly to do some different things, go for walks. I believe @Trueart2 is currently working, correct me if I'm wrong.

I also had drooling and stiffening of the arms but that has resolved. The thing about anhedonia is that it can be multifactorial. If you are depressed about the Invega, that can worsen anhedonia and project the false image of a stalled recovery. I'm currently facing this invalidation with my psychiatrist, so I hate to echo it, but there are negative symptoms. It helps to stimulate your brain; I have also been exercising, not as consistently as I could be, but I think this all helps. This drug is terrible. I bawled my eyes out a couple days ago over how I feel, felt better after. Sometimes you have to take things a day at a time, but I also think it legitimately helps if you push a little past the lack of feeling. One cannot always go by how they feel. With time it gets easier. I finished a novel, in the beginning I was barely comprehending chunks of it but by the end I was able to visualize it pretty well and getting invested in the story.

Yep I am working, teacher.

 

[moerez]

Don’t be scared, you’re not alone and you could recover sooner than you realize just keep on going.
I decided to give myself 12-18 months to recover and now at 9 months I’m back to my usual self and life is good, definitely not perfect but still good.
In my experience, coming back from the hell invega puts us through has made me better, happier and stronger which no doubt is hard to believe when you’re in the thick of it but I wouldn’t say it unless I meant it.
I even started therapy while recovering and that’s been a lot of inner work and having to face shit that I buried deep within myself which honestly felt like a kick in the gut while already going through such a tough time but I survived and so can you.

I also decided to give my self one year but everyday when I wake up, all I do is staring at wall and the fact is at month 5 you were already recovering so fast but look at me, I can’t even focus I have so much problems I can’t even enjoy single thing, how am I supposed to cope when I can’t enjoy or at least relax for a while, I’m so fucked girl all I’m saying is almost everyone had improvements when they reach month 5 but I still dealing with all problems I had from first month, I don’t wanna give up but life is really hard at this point for me and I can’t even imagine waiting 6 more months like this , if I had little bit of enjoyment or something to cope with it I would stay as long as I could but trust me some of us have severe symptoms that may never be gone

 

[moerez]

There is a real problem. I come to this forum for advice, fellowship, and inspiration from people's recovery stories. The constant talk about suicide is making many contributing users want to leave the forum, but worse, as stated earlier, it just seems to be increasing more suicides and the forum is better off closed than up if that's going to be the outcome. People are starting to get frustrated because it feels like some of you are refusing to listen. @moerez I already showed hard evidence that at 5 months there is certainly the possibility that the drug is still in your system and suicide at this point would be unwise. I don't know what more to say, it would be a tragic mistake to end things. But you are at the point of saying you don't care about your family, so what can I say? I appreciate the continued testimony of @demileigh & empathize with her irritation.

Believe me, my trust in psychiatry and medicine is shattered. At the same time, these are the best treatments currently available. It sucks, but recovery is possible. Someone was saying they got PSSD from Strattera- I have been on 60mg and 80mg of Strattera this whole time. I did find it was worsening the anhedonia. I stopped it and was fine in a day or two. I was taking it for months. You don't get PSSD from a couple pills of Strattera. I am only 3 months into recovery and somewhat able to enjoy TV, writing is coming back, not creative but otherwise (I had some cognitive side effects that were quite scary initially, felt like I couldn't think). I'm trying to take a couple courses which is still a shitshow with the Invega, but these won't go towards my GPA so I am able to stimulate my brain and experiment with stuff that works. I try to get out pretty regularly to do some different things, go for walks. I believe @Trueart2 is currently working, correct me if I'm wrong.

I also had drooling and stiffening of the arms but that has resolved. The thing about anhedonia is that it can be multifactorial. If you are depressed about the Invega, that can worsen anhedonia and project the false image of a stalled recovery. I'm currently facing this invalidation with my psychiatrist, so I hate to echo it, but there are negative symptoms. It helps to stimulate your brain; I have also been exercising, not as consistently as I could be, but I think this all helps. This drug is terrible. I bawled my eyes out a couple days ago over how I feel, felt better after. Sometimes you have to take things a day at a time, but I also think it legitimately helps if you push a little past the lack of feeling. One cannot always go by how they feel. With time it gets easier. I finished a novel, in the beginning I was barely comprehending chunks of it but by the end I was able to visualize it pretty well and getting invested in the story.

The thing is you are at 3 months recovery and already ahead of me in everything, I can’t still watch tv my mind is blank and I’m so frustrated with everything

 

[anonymoususer777]

i would have recovered then I got pssd unfortunately, I am so unlucky

I dont think you have pssd.

 

[InvegaAnon]

I swear I love to be like I was before, but everyday when I wake up I’m hopeless I’m always pacing and nothing is interesting, movie walking exercising nothing is interesting, it’s really hard to cope like this, I can’t laugh at all which makes me so annoyed, and I have pssd as I can see, man I wish I had something I could cope with but there is nothing

I'm just sitting here watching nature documentaries on my computer and appreciating our planet just like I used to. You'll at least get to where I'm at, I promise. Most people go back to normal. A lot of people still struggle at month 5.

 

[twinpeaks123]

There is a real problem. I come to this forum for advice, fellowship, and inspiration from people's recovery stories. The constant talk about suicide is making many contributing users want to leave the forum, but worse, as stated earlier, it just seems to be increasing more suicides and the forum is better off closed than up if that's going to be the outcome. People are starting to get frustrated because it feels like some of you are refusing to listen. @moerez I already showed hard evidence that at 5 months there is certainly the possibility that the drug is still in your system and suicide at this point would be unwise. I don't know what more to say, it would be a tragic mistake to end things. But you are at the point of saying you don't care about your family, so what can I say? I appreciate the continued testimony of @demileigh & empathize with her irritation.

Believe me, my trust in psychiatry and medicine is shattered. At the same time, these are the best treatments currently available. It sucks, but recovery is possible. Someone was saying they got PSSD from Strattera- I have been on 60mg and 80mg of Strattera this whole time. I did find it was worsening the anhedonia. I stopped it and was fine in a day or two. I was taking it for months. You don't get PSSD from a couple pills of Strattera. I am only 3 months into recovery and somewhat able to enjoy TV, writing is coming back, not creative but otherwise (I had some cognitive side effects that were quite scary initially, felt like I couldn't think). I'm trying to take a couple courses which is still a shitshow with the Invega, but these won't go towards my GPA so I am able to stimulate my brain and experiment with stuff that works. I try to get out pretty regularly to do some different things, go for walks. I believe @Trueart2 is currently working, correct me if I'm wrong.

I also had drooling and stiffening of the arms but that has resolved. The thing about anhedonia is that it can be multifactorial. If you are depressed about the Invega, that can worsen anhedonia and project the false image of a stalled recovery. I'm currently facing this invalidation with my psychiatrist, so I hate to echo it, but there are negative symptoms. It helps to stimulate your brain; I have also been exercising, not as consistently as I could be, but I think this all helps. This drug is terrible. I bawled my eyes out a couple days ago over how I feel, felt better after. Sometimes you have to take things a day at a time, but I also think it legitimately helps if you push a little past the lack of feeling. One cannot always go by how they feel. With time it gets easier. I finished a novel, in the beginning I was barely comprehending chunks of it but by the end I was able to visualize it pretty well and getting invested in the story.

I definitely got pssd from strattera, I felt different instantly after I took strattera and all my symptoms align, I am not trying to be negative but that’s just the reality

 

[Matthew01]

A guy saying something on the internet doesn’t make it a fact, you being told by a doctor to do a scan that you clearly haven’t done doesn’t make it a fact. You’re the one making shit up without any facts or hard evidence to support what you claim.

Drugs and supplements aren’t the same thing btw.

Acting like you know it all when your education is from a developing nation is insane.
Telling me to learn to read when I’ve done 12+ years of education, taught kids with English as a second language to read and taught my own son to read before he started school just goes to show how much of a condescending low life loser you are.

Again,learn to read. I specifically said it's stated in the library of medicine(the leading biomedical library) that there are drugs that are used to combat this issue,don't say things that are clearly false. I haven't done it because I'm making plans to find a suitable doctor to do a test. Also what does being an English teacher have to do with psychiatry?you don't even have knowledge of this particular issue. Stop this already,this aggression is pointless

 

[moerez]

I definitely got pssd from strattera, I felt different instantly after I took strattera and all my symptoms align, I am not trying to be negative but that’s just the reality

Me too I can feel it after taking Prozac , idk even if we recovery what we gotta do with pssd

 

[moerez]

I'm just sitting here watching nature documentaries on my computer and appreciating our planet just like I used to. You'll at least get to where I'm at, I promise. Most people go back to normal. A lot of people still struggle at month 5.

I’m pretty sure I have some damages since I have no interest literally no interest in anything, I can’t even watch tv, the only good part is I started exercising and that’s it, everyday when I wake up I’m worse than the day before in terms of being suicidal and my sexuality is literally on 0, I can’t have hope if it goes like this at this point I don’t even know if it’s the drug or psychosis or both

 

[InvegaAnon]

I’m pretty sure I have some damages since I have no interest literally no interest in anything, I can’t even watch tv, the only good part is I started exercising and that’s it, everyday when I wake up I’m worse than the day before in terms of being suicidal and my sexuality is literally on 0, I can’t have hope if it goes like this at this point I don’t even know if it’s the drug or psychosis or both

It won't go on like this, trust me. Most people recover, even if they got PSSD. I know two other people who took Prozac after you and still recovered and one didn't get PSSD at all. He's long gone from these threads though.

 

[demileigh]

There is a real problem. I come to this forum for advice, fellowship, and inspiration from people's recovery stories. The constant talk about suicide is making many contributing users want to leave the forum, but worse, as stated earlier, it just seems to be increasing more suicides and the forum is better off closed than up if that's going to be the outcome. People are starting to get frustrated because it feels like some of you are refusing to listen. @moerez I already showed hard evidence that at 5 months there is certainly the possibility that the drug is still in your system and suicide at this point would be unwise. I don't know what more to say, it would be a tragic mistake to end things. But you are at the point of saying you don't care about your family, so what can I say? I appreciate the continued testimony of @demileigh & empathize with her irritation.

Believe me, my trust in psychiatry and medicine is shattered. At the same time, these are the best treatments currently available. It sucks, but recovery is possible. Someone was saying they got PSSD from Strattera- I have been on 60mg and 80mg of Strattera this whole time. I did find it was worsening the anhedonia. I stopped it and was fine in a day or two. I was taking it for months. You don't get PSSD from a couple pills of Strattera. I am only 3 months into recovery and somewhat able to enjoy TV, writing is coming back, not creative but otherwise (I had some cognitive side effects that were quite scary initially, felt like I couldn't think). I'm trying to take a couple courses which is still a shitshow with the Invega, but these won't go towards my GPA so I am able to stimulate my brain and experiment with stuff that works. I try to get out pretty regularly to do some different things, go for walks. I believe @Trueart2 is currently working, correct me if I'm wrong.

I also had drooling and stiffening of the arms but that has resolved. The thing about anhedonia is that it can be multifactorial. If you are depressed about the Invega, that can worsen anhedonia and project the false image of a stalled recovery. I'm currently facing this invalidation with my psychiatrist, so I hate to echo it, but there are negative symptoms. It helps to stimulate your brain; I have also been exercising, not as consistently as I could be, but I think this all helps. This drug is terrible. I bawled my eyes out a couple days ago over how I feel, felt better after. Sometimes you have to take things a day at a time, but I also think it legitimately helps if you push a little past the lack of feeling. One cannot always go by how they feel. With time it gets easier. I finished a novel, in the beginning I was barely comprehending chunks of it but by the end I was able to visualize it pretty well and getting invested in the story.

Hey @dopamineClippedAngel
I think it’s awesome that you’ve got through a novel and became invested in the story and was able to visualize it well by the end of it, reading is great brain exercise and I think you’re doing awesome considering you’re 3 months in, keep moving forward, you have absolutely got this

The forum definitely seems to be more toxic than it is helpful, when I was scrolling through the many volumes of this thread before joining BL, had I seen the current state of this forum I more than likely would have avoided this space. It’s disheartening to see certain individuals turn this place into a dump and while it’s not a crime to be an inconsiderate asshole that spreads misinformation that could potentially harm others, it would be nice if the moderators would weed some people out of here.

I agree and support everything you’ve said here and I appreciate the mention.
Several users have reported suicidal ideation but it eventually stopped so taking your life is very unwise like you’ve said.
Anyone who is suicidal and has a plan needs to treat that as the emergency that it is, there are people who care about you and hotlines that can help. Therapy if accessible to you can also help. Please be proactive about your health and reach out.
After losing quite a few people in my life to suicide and having an ex partner who used suicide threats as a form of abuse, it is very triggering to say the least so while it’s okay to not be okay and express yourself, it is not okay to ask people to wish you luck in taking your life away or use this space to bond with other people who are also suicidal and claim to have a plan of their own.

I absolutely agree this drug is terrible and unfortunately these are the best treatments available. As hard as it is for some of us to believe, these drugs can and have worked great for some people, obviously not us who have and are suffering because of them but they can improve the quality of life of some people who need medication to manage their mental health.
Once the drug is out of your system and your brain sorts itself out, you will be okay. There’s a chance there’s still an amount of invega in my system… idk. If so it’s definitely not enough to have me messed up like it did to start with. Give it time.

 

[demileigh]

I also decided to give my self one year but everyday when I wake up, all I do is staring at wall and the fact is at month 5 you were already recovering so fast but look at me, I can’t even focus I have so much problems I can’t even enjoy single thing, how am I supposed to cope when I can’t enjoy or at least relax for a while, I’m so fucked girl all I’m saying is almost everyone had improvements when they reach month 5 but I still dealing with all problems I had from first month, I don’t wanna give up but life is really hard at this point for me and I can’t even imagine waiting 6 more months like this , if I had little bit of enjoyment or something to cope with it I would stay as long as I could but trust me some of us have severe symptoms that may never be gone

Hey darl, don’t compare where you’re at to where others were at in their recovery journey, it’s not healthy for you.
One person might say their emotions was the first thing to come back while another might say it was the last so comparing isn’t sensible.
As time goes on you will be able to enjoy things again so give it time. It took me ages to be able to enjoy watching tv again and actually be able to follow what was even happening without zoning out or becoming bored fast even though it was something I’d usually be interested in.
I understand how severe the symptoms feel and believe me, they are not permanent.