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Mental Health Coming off Invega (paliperidone) injections, v 5.0

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Fanzy said:
you don't go to the private clinic?
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the psych is from a private clinic but they can't really hospitalize me there because of legal issues (People here can't be hospitalized outside of their home province for some reason)

n3ophy7e said:
Oh.....
Well....
Sorry to hear that. That is a bit of a disappointment for you. Will you continue seeing the new psych? Was she good otherwise?


How much longer are you on commitment for John? Sorry I couldn't see if you already said before.
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At the very least the new psych acknowledged the possibility of some hormonal problems rather than just saying "oh that's just your disease acting up, take meds schizo boy"

if anything she's prescribed me more exams to do (some can be useful like the prolactin and thyroid checks which Xeplion has very likely fucked with, then there are others like electromyography and ECG which I just don't see the point of but I'll do them anyway)

oh and also she said that the idea of wanting to do a paliperidone blood check is just stupid because it would cost a serious ton of money but also they would never accept to do it on someone who's """"already"""" two months off


If by miracle those exams will all come up clean (I'm 1000% sure they won't) she'll prescribe me some anti-depressants at which point I can decide if I want to take them or be like "fuck it I'll take st john wort instead" depending on whether the ADs I'm going to get can be potentially harmful or not


Worst case scenario all I'm doing is wasting a lot of time, but wasting a lot of time seems to be the best antidote to fight our current condition anyway so I'm really okay with that for now
 
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EsseWasGreat said:
the psych is from a private clinic but they can't really hospitalize me there because of legal issues (People here can't be hospitalized outside of their home province for some reason)



At the very least the new psych acknowledged the possibility of some hormonal problems rather than just saying "oh that's just your disease acting up, take meds schizo boy"

if anything she's prescribed me more exams to do (some can be useful like the prolactin and thyroid checks which Xeplion has very likely fucked with, then there are others like electromyography and ECG which I just don't see the point of but I'll do them anyway)

oh and also she said that the idea of wanting to do a paliperidone blood check is just stupid because it would cost a serious ton of money but also they would never accept to do it on someone who's """"already"""" two months off


If by miracle those exams will all come up clean (I'm 1000% sure they won't) she'll prescribe me some anti-depressants at which point I can decide if I want to take them or be like "fuck it I'll take st john wort instead" depending on whether the ADs I'm going to get can be potentially harmful or not


Worst case scenario all I'm doing is wasting a lot of time, but wasting a lot of time seems to be the best antidote to fight our current condition anyway so I'm really okay with that for now
Click to expand...
Well it certainly wasn't all in vain then. Good on you for remaining optimistic about it. Let us know how the examinations go if you like.
 
EsseWasGreat said:
the psych is from a private clinic but they can't really hospitalize me there because of legal issues (People here can't be hospitalized outside of their home province for some reason)



At the very least the new psych acknowledged the possibility of some hormonal problems rather than just saying "oh that's just your disease acting up, take meds schizo boy"

if anything she's prescribed me more exams to do (some can be useful like the prolactin and thyroid checks which Xeplion has very likely fucked with, then there are others like electromyography and ECG which I just don't see the point of but I'll do them anyway)

oh and also she said that the idea of wanting to do a paliperidone blood check is just stupid because it would cost a serious ton of money but also they would never accept to do it on someone who's """"already"""" two months off


If by miracle those exams will all come up clean (I'm 1000% sure they won't) she'll prescribe me some anti-depressants at which point I can decide if I want to take them or be like "fuck it I'll take st john wort instead" depending on whether the ADs I'm going to get can be potentially harmful or not


Worst case scenario all I'm doing is wasting a lot of time, but wasting a lot of time seems to be the best antidote to fight our current condition anyway so I'm really okay with that for now
Click to expand...
I would really like you to ask the private clinic that gave you an appointment if this intravenous injection really will have freed you
 
Nina2021 said:
I think I will not recover. I am very bad at month 6. All of you can watch tv or entertain yourself at this point somehow in me there is no improvement. It is so unfair, why me?, I didn't know this was such a bad drug otherwise I would have stopped earlier.

Still I haven't heard from you how to convince my family that invenga is bad and did this to me. I don't talk to some of them but this is just a prove to them that I have psychosis to invenga.

I still spend all day in bed looking at the ceiling. I don't know how am I going to hold a hole year. It is just 6 months.
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I still can't watch tv 11.6 months off, but I can watch some content rarely on it. Entertainment is hard to get and its mostly canceled by anhedonia. But I could ocupy myself more easily at 8-9 months off because of better focus.
 
Fanzy said:
I would really like you to ask the private clinic that gave you an appointment if this intravenous injection really will have freed you
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according to them it would have only worked if you like, only just got injected or are like within the first week off

but logically speaking it wouldn't have worked anyway if the injection just sits in your arm slowly releasing itself every day (if I'm not mistaken, that's what I've found out by mostly reading this thread and the instructions on drugs websites)
 
has anyone experienced this while coming of palperidone (invega). That for a few days your thoughts start to become clear, your emotions return slowly and you can hold a conversation to suddenly your brain fog returns?
 
EsseWasGreat said:
according to them it would have only worked if you like, only just got injected or are like within the first week off

but logically speaking it wouldn't have worked anyway if the injection just sits in your arm slowly releasing itself every day (if I'm not mistaken, that's what I've found out by mostly reading this thread and the instructions on drugs websites)
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I'm trying to wrap my head around how it would work...the only way I know of to clear the body of a toxin is by dialysis, literally running all your blood through a machine to filter it all and put it back in to your body.
 
was1011 said:
has anyone experienced this while coming of palperidone (invega). That for a few days your thoughts start to become clear, your emotions return slowly and you can hold a conversation to suddenly your brain fog returns?
Click to expand...
My recovery was always been very slow and linear.
 
n3ophy7e said:
Oh.....
Well....
Sorry to hear that. That is a bit of a disappointment for you. Will you continue seeing the new psych? Was she good otherwise?


How much longer are you on commitment for John? Sorry I couldn't see if you already said before.
Click to expand...
My next commitment hearing is in November. I'm not 100% sure if I'll be able to get off.
 
I feel small amounts of joy on 39mg. I hit a home run playing baseball with my gfs son and I was excited. I take my friends vyvanse and feel more alert and awake. But before Invega it would make me tweeky. Now it just makes me feel slightly more awake. I never feel fully awake. More than anything the cognitive has improved since I lowered way down to 39mg. I could almost manage with this dose as a long term thing but I just want to feel normal again so I switched to pills and I’m not taking them.

I do have seroquel that I can take if I ever need to and plan to use it as needed.

I’m just going on my own treatment plan and lying to the doctor. I’m done with their recommendations. Too many bad experiences trusting them.
 
6 months and 10 days off I feel very bad. I wish I was like those who take more than 6 and recover easily. But I see no recovery in my case. Today I had lots of anxiety and had to take a Valium. Moreover it is raining so I didn't go for the 3 km walk. It is extenuating being all day in bed without sleeping. The watch marked 1:30 at night. The somnífers work less and less. And nobody believes I am so bad because of Xeplion. I wish someone could help me.
 
rmakoutz1 said:
I feel small amounts of joy on 39mg. I hit a home run playing baseball with my gfs son and I was excited. I take my friends vyvanse and feel more alert and awake. But before Invega it would make me tweeky. Now it just makes me feel slightly more awake. I never feel fully awake. More than anything the cognitive has improved since I lowered way down to 39mg. I could almost manage with this dose as a long term thing but I just want to feel normal again so I switched to pills and I’m not taking them.

I do have seroquel that I can take if I ever need to and plan to use it as needed.

I’m just going on my own treatment plan and lying to the doctor. I’m done with their recommendations. Too many bad experiences trusting them.
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Lol same here. Im just lying to my parents and doctor that im taking the drug seroquel. They think i am but i switched the pills for zinc vitamins. Yeah im thinking if i get paychosis again to take the meds for a little while then stop taking them.
 
I am doing cold showers (9C temperature) for 2 weeks now, and they have some small effect on anhedonia. I'm also doing Wim Hof breathing method (ps: you must sit, do not lay).
 
Gdvffh said:
Lol same here. Im just lying to my parents and doctor that im taking the drug seroquel. They think i am but i switched the pills for zinc vitamins. Yeah im thinking if i get paychosis again to take the meds for a little while then stop taking them.
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I recommend keep lying. I’m now addicted to seroquel. I cant sleep without it and I need like 10-12 hours of sleep with it. Don’t take it or your sleep will be messed up forever.
 
rmakoutz1 said:
I recommend keep lying. I’m now addicted to seroquel. I cant sleep without it and I need like 10-12 hours of sleep with it. Don’t take it or your sleep will be messed up forever.
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Hey @rmakoutz1, I know you mean well but please refrain from telling people "don't take it" in regards to psych meds, with the exception of Invega LAIs. As the poster stated and as has been proven by at least anecdotal evidence, taking an anti-psychotic on a short term as needed basis is ideal and less harmful to someone not wanting to take them long term especially if they find themselves in a psychotic state. Seroquel seems to be able to knock a psychosis down relatively quickly and absolutely will not "mess up" someone's sleep "forever" if only taken on a short term basis. Roughly 20 years ago I took Seroquel for about a week and had the same fatigue you speak of and it did not ruin my sleep forever.
 
n3ophy7e said:
This thread is for the discussion of recovery from paliperidone injections including Invega Sustenna, Xeplion and Invega Trinza.
Topics of discussion include side effects, length of recovery time, ways to reduce recovery time and/or ease unwanted side effects, discussion of court-ordered treatment, etc.
Please note that this thread is designed for people to vent about their situation and to offer support to each other. When posting, please adhere to the Bluelight User Agreement and the Mental Health forum posting guidelines at all times. This thread is closely monitored by the moderators and any disrespectful or disruptive behaviour will not be tolerated.

This thread is continuing on from the version 4 thread which can be found here:
Coming Off Invega Sustenna (Paliperidone) v4

And the one before that can be found here:
Invega thread v3
Click to expand...
INVEGA SUSTENNA VS ABILIFY MAINTENA?

If you had the choice to take Invega shot 50MG it Abilify 400MG then 300MG loading doses which would it be & why/why not?
 
I went to the old psych today and she insists that all of my symptoms are just the negative symptoms of schizophrenia (I was perfectly fine before the shots) rather than it being the injection's fault, as predicted

But I did make her tell me what kind of shots she gave me this time: it was two shots of Xeplion, both 100mg and one month apart (instead of one week), equivalent of 156mg x2 of Invega I guess

She also allowed me to slowly taper off the delorazepam which I was taking for sleep but I don't really want to be reliant on anything else for now so I'll try to slowly take that away


I know I do kinda sound optimistic but truth of the matter is that even at only two months off I'm constantly shitting my pants in fear of not being able to fully recover, despite having made some steps in the right direction compared to the first month.

The wait is just that terrible combined with the fear of the unknown of whether recovery will go further or no, considering all the other aspects and symptoms that are still just as completely fucked as they were day-1 with very little reference levels to gauge whether there's actual improvements or if it's just an impression. it doesn't help when every doc keeps saying the same thing about the injection having nothing to do with my issues, it feels like I'm fighting the whole world, not even just Xeplion or Invega or whatever...

Thank goodness for those friends who occasionally help me distract from all this
 
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