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Mental Health Coming off Invega (paliperidone) injections, v 5.0

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Has anyone experienced a natural weight loss after invega sustenna?
Like naturally losing weight without any diet or exercise after the drug has left your body
 
Worked out hard for the past three days eating very minimal amounts of food. No weight loss. I think it’s the ziprasidone screwing up my metabolism. This is sad, I switched to Ziprasidone from Invega Sustenna in hopes to get my period back and lose weight. This sucks so badly.
 
HelpMeInvega said:
Worked out hard for the past three days eating very minimal amounts of food. No weight loss. I think it’s the ziprasidone screwing up my metabolism. This is sad, I switched to Ziprasidone from Invega Sustenna in hopes to get my period back and lose weight. This sucks so badly.
Click to expand...
how long ago did you leave invega?
 
Hi guys I'm new here. I've been following these posts for a while now & decided to finally post.
I'm 54 days off invega. I had a loading dose of 150mg then the 100mg a week later then a 75mg shot then I convinced my psychiatrist to let me go on tablets 3mg I took one the first night then stopped.
I was on a community treatment order which I should have never been on in the first place so I went through Supreme court & am now off it.

I think I've had some of the more rare side effects.
I can't feel hunger or tiredness. It's scary. I have bad anhedonia & had really bad restlessness which has gotten a little bit better now. I feel like a robot. It’s like a switch has been turned off in my brain & I can’t process hunger or fullness…I may aswell not eat because I don’t feel anything when I do & I never feel hungry or full. Falling asleep at night is hard because I don't feel tired I just have to lay there & wait until I fall asleep somehow. Even though I don't feel tired it's a different feeling to insomnia.
For a few weeks after my dose of 75mg I couldn't concentrate on tv or listen to music or read at all I had really bad restlessness & all I could do was spend my time googling ways to try & kill myself. I tried hanging myself on a doorknob many times it didn't work & I seriously considered overdosing on panadol.

Now I still have really bad anhedonia & I still can barely concentrate or watch tv or listen to music but atleast I can now watch a little bit off tv if I just lay on the couch & stare at the tv.

I don't know what happened because for the first few weeks after the loading doses I wasn't that bad at all. I could wake up early around 7-7:30am & feel fine. I'd have quite a bit of energy during the day. I felt tiredness but it wasn't until 8:30 - 9pm which I thought was annoying at the time because I could no longer stay up late but I'd give anything now to have that back.
I did have anhedonia but I could still watch tv & get some enjoyment out of it even listen to music & exercise. I could still feel some effects of coffee. I felt hunger I was too hungry all the time. I put on weight which I was hating & my hair was thinning out & started looking horrible. But I would give anything now to go back to the way I was the first few weeks.

It was about a week after the 75mg dose that things got scarily bad. I'm now doing ever so slightly better but the fact that I can't feel hunger or tiredness is absolute hell & I don't even know how I'm making it through each day. I'm greatful to be off invega now I just wish I never had to have the 75mg shot because for some reason it got so much worse after that. Of course I want to be back to myself before invega because I loved myself & my life so much. But even if I could just go back to the way I was the first few weeks I'd be happy.

It's so hard keeping hope that this will end & I'll start feeling good again especially when I've got the rarer side effects. I'd give anything to feel tired & hungry again.
I had my hopes set that I would start to see some improvement by day 50 but I haven't yet.

I had my prolactin levels tested & they're 2171. I had my first appointment with an endocrinologist I really wanted her to put me on Dostinex (Cabergoline). I have another appointment on 8 March I have to get my levels tested again & some other hormones. I'm really hoping after that she'll give me a script for it.

I don't know why but for some reason I have my hopes set on Dostinex (Cabergoline) being able to help me because it's a dopamine agonist. Or it will atleast hopefully bring my period back & lower my prolactin levels. I searched on the forum here for any posts on Cabergoline & found a few comments/posts. It seems I'm not the only one who thinks it might help. Has anyone here tried it or know of anyone that has tried it?
 
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Also I've put on about 13kg since being on invega. But funnily enough I've put on quite a bit of that weight since stopping. I have started eating dairy again which I think is playing a big part of it but I thought I'd atleast stop putting on weight once stopping invega even if I couldn't start losing it just yet
 
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lau_rahxo said:
Also I've put on about 13kg since being on invega. But funnily enough I've put on quite a bit of that weight since stopping. I have started eating dairy again which I think is playing a big part of it but I thought I'd atleast stop putting on weight once stopping invega even if I couldn't start losing it just yet
Click to expand...
Hey there, welcome to blue light!
I’m sorry to hear about your struggle, but we’re all going through similar stuff.
Regarding weight gain, I noticed that I steadily gained about 2 pounds per week after the shots for 4 months. Apparently the shots last for 4 months in the body. So losing weight in the first 4 months after the shots is not possible, although you could try rigorous exercising and dieting to not gain as much.
Most people start losing weight at month 6, so you have to be super patient with losing the weight.
I gained about 40 pounds and am still struggling to lose it.
The symptoms you’re experiencing will gradually disappear with time. Just trust process and wait it out. Distract yourself with tv, video games, work, friends, entertainment, anything to keep your mind off invega.
I know it’s hard, I’ve been through this experience twice, but just remember that you will get better in time, which is approximately 12-13 months for most.
 
lau_rahxo said:
Hi guys I'm new here. I've been following these posts for a while now & decided to finally post.
I'm 54 days off invega. I had a loading dose of 150mg then the 100mg a week later then a 75mg shot then I convinced my psychiatrist to let me go on tablets 3mg I took one the first night then stopped.
I was on a community treatment order which I should have never been on in the first place so I went through Supreme court & am now off it.

I think I've had some of the more rare side effects.
I can't feel hunger or tiredness. It's scary. I have bad anhedonia & had really bad restlessness which has gotten a little bit better now. I feel like a robot. It’s like a switch has been turned off in my brain & I can’t process hunger or fullness…I may aswell not eat because I don’t feel anything when I do & I never feel hungry or full. Falling asleep at night is hard because I don't feel tired I just have to lay there & wait until I fall asleep somehow. Even though I don't feel tired it's a different feeling to insomnia.
For a few weeks after my dose of 75mg I couldn't concentrate on tv or listen to music or read at all I had really bad restlessness & all I could do was spend my time googling ways to try & kill myself. I tried hanging myself on a doorknob many times it didn't work & I seriously considered overdosing on panadol.

Now I still have really bad anhedonia & I still can barely concentrate or watch tv or listen to music but atleast I can now watch a little bit off tv if I just lay on the couch & stare at the tv.

I don't know what happened because for the first few weeks after the loading doses I wasn't that bad at all. I could wake up early around 7-7:30am & feel fine. I'd have quite a bit of energy during the day. I felt tiredness but it wasn't until 8:30 - 9pm which I thought was annoying at the time because I could no longer stay up late but I'd give anything now to have that back.
I did have anhedonia but I could still watch tv & get some enjoyment out of it even listen to music & exercise. I could still feel some effects of coffee. I felt hunger I was too hungry all the time. I put on weight which I was hating & my hair was thinning out & started looking horrible. But I would give anything now to go back to the way I was the first few weeks.

It was about a week after the 75mg dose that things got scarily bad. I'm now doing ever so slightly better but the fact that I can't feel hunger or tiredness is absolute hell & I don't even know how I'm making it through each day. I'm greatful to be off invega now I just wish I never had to have the 75mg shot because for some reason it got so much worse after that. Of course I want to be back to myself before invega because I loved myself & my life so much. But even if I could just go back to the way I was the first few weeks I'd be happy.

It's so hard keeping hope that this will end & I'll start feeling good again especially when I've got the rarer side effects. I'd give anything to feel tired & hungry again.
I had my hopes set that I would start to see some improvement by day 50 but I haven't yet.

I had my prolactin levels tested & they're 2171. I had my first appointment with an endocrinologist I really wanted her to put me on Dostinex (Cabergoline). I have another appointment on 8 March I have to get my levels tested again & some other hormones. I'm really hoping after that she'll give me a script for it.

I don't know why but for some reason I have my hopes set on Dostinex (Cabergoline) being able to help me because it's a dopamine agonist. Or it will atleast hopefully bring my period back & lower my prolactin levels. I searched on the forum here for any posts on Cabergoline & found a few comments/posts. It seems I'm not the only one who thinks it might help. Has anyone here tried it or know of anyone that has tried it?
Click to expand...
Regarding dostinex, I tried asking my endocrinologist for it as well, but she refused to give it to me because she said the prolactin levels would eventually lower with time since I’ve stopped the medication. Dostinex is for patients that have chronically low dopamine levels, which is not medication induced. I was really upset that my doctor denied giving it to me, but she was right, at about month 9 my prolactin levels were back to normal without medication.
You could definitely try asking your endocrinologist, but mentioning that the low dopamine levels is caused by medication you’re no longer taking might change their mind.
 
Afernandes1 said:
Regarding dostinex, I tried asking my endocrinologist for it as well, but she refused to give it to me because she said the prolactin levels would eventually lower with time since I’ve stopped the medication. Dostinex is for patients that have chronically low dopamine levels, which is not medication induced. I was really upset that my doctor denied giving it to me, but she was right, at about month 9 my prolactin levels were back to normal without medication.
You could definitely try asking your endocrinologist, but mentioning that the low dopamine levels is caused by medication you’re no longer taking might change their mind.
Click to expand...

Mine also refused for now she told me to get my prolactin levels & other hormones tested again at the end of the month to see if my prolactin levels were lowering at all. I told her I really wanted to try Dostinex & asked if she will consider giving me a script next appointment after tests she said she will consider it but I know that's only because I was so insistent. She knows it's due to medication she even checked the half life of invega during our appointment. I'm going to push for it because it will also help get my period back which I haven't had for months. I'm hoping she'll write me a script I'll be really disappointed if she doesn't & it will be my last appointment with her. Just incase I've actually ordered some generic Cabergoline online from a steriods website. I'm hoping it's not a scam though but I'll just have to wait & see if it arrives.
 
Today I went for an hour & half walk up the bush. It's my first walk since invega. I was only able to listen to 4 songs on repeat & I still have severe anhedonia. But I'm proud of myself & I want to go for walks almost every day. I read in one of the recent comments someone said it takes until about 6 months off invega to lose weight but I really want to see if I can lose the weight even if it's only been 55 days or atleast keep anymore off
 
Afernandes1 said:
Hey there, welcome to blue light!
I’m sorry to hear about your struggle, but we’re all going through similar stuff.
Regarding weight gain, I noticed that I steadily gained about 2 pounds per week after the shots for 4 months. Apparently the shots last for 4 months in the body. So losing weight in the first 4 months after the shots is not possible, although you could try rigorous exercising and dieting to not gain as much.
Most people start losing weight at month 6, so you have to be super patient with losing the weight.
I gained about 40 pounds and am still struggling to lose it.
The symptoms you’re experiencing will gradually disappear with time. Just trust process and wait it out. Distract yourself with tv, video games, work, friends, entertainment, anything to keep your mind off invega.
I know it’s hard, I’ve been through this experience twice, but just remember that you will get better in time, which is approximately 12-13 months for most.
Click to expand...
Hi how many injections did you have both times?
 
It says Invega Sustenna takes 126 days to leave your system completely. That’s 4 months. So hopefully I’ll be able to run faster and lose weight around the four month mark. Unless ziprasidone is the culprit for not letting me lose weight and affecting my running. But a side effect of Invega sustenna is slow movements, and not ziprasidone so we’ll see. My prolactin level is still high though so that could be the culprit. I want my libido back.
 
Hi everyone, I’m 6 months off now but I still can’t feel anything at all, no emotions, no feelings, no sensations, no sense of time and space, it’s a real nightmare everyday. I dream in a strange way and I can’t even perceive people, their character, what they feel, how they are. I have 0 personality and life has no meaning for me anymore, I also feel stupid as I can’t even read a book or understand tv. I would like to die it’s not a normal life, what I’m living for?
 
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