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Mental Health Coming off Invega Sustenna (Paliperidone) v3

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EvilAzizi said:
Nice song. I like how you mention the anhedonia in there, because it can be such a hard thing to talk about. Not being able to feel emotions is terrible. I am experiencing the same thing as you when you mentioned the suicidal part. Anhedonia can MAKE you suicidal, but it is hard to feel suicidal because the lack of emotions.



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This is just further proof that we are not alone.

I sometimes wonder what happened to these people, especially the person in the last link; if they ever got relief. The question was posted 6 years ago.
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That is me in the first link. I am still suffering from no emotions and anhedonia. I stopped invega 6 months ago with no improvement at all. I feel like these side effects are permanent.
 
Invegaruinedme said:
That is me in the first link. I am still suffering from no emotions and anhedonia. I stopped invega 6 months ago with no improvement at all. I feel like these side effects are permanent.
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People have reported no changes at all up until the 10 month mark sometimes. Have faith you will get through it. What was your dose and how many shots did you have?
 
Most of the side effects aren't permanent. But what could be permanent is you not feeling that joy and excitement in life anymore. At least that's the side effect I still had when I left the medicine for about a year (I'm back on it).
 
Anyone know if Buspar will work for me when it come to the depression and motivation issues. Buspar is a dopamine and serotonin agonist so it theory it should work against the effects of Invega turning those receptors off. I would really appreciate any feedback you all might have.
 
Hopefuldopeful said:
Anyone know if Buspar will work for me when it come to the depression and motivation issues. Buspar is a dopamine and serotonin agonist so it theory it should work against the effects of Invega turning those receptors off. I would really appreciate any feedback you all might have.
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I don't think it will work it will just mess up you withdrawing from the invega. It's better to withdraw without any other medications and give rest to your brain (no caffeine and other stimulants)
 
Hello, I am new to posting on this forum. I have read the Invega threads on this forum. I am 2.5 months from my last shot, and I improved for a month from my last shot and then have not improved since then. I received three shots at 234, 156, and 234. I am expecting to have to wait around 11 months to heal. I feel anhedonia, fatigue, muscle weakness, and have gained weight since starting Invega. The recovery stories from this forum give me hope. I also have a suggestion for those that haven’t recovered from Invega after 1 yr or so, to go see a Dr., and get blood work and a urine test done to make sure Invega hasn’t caused some other health problem that you may need medication to recover from (if you haven’t done so already).
 
Hey ya all.
:)
I have just past 3 years off invega injections all I can say it is one huge bad nightmare you go though and I still to this day haven't fully recovered but my son will be born in about 3 weeks time so this will be a game changer for me that's for sure. :)

I hope all you guys are doing well.
 
Hello all! Great news for me, today is the FIRST day where I didn’t wake up with absolute depression nor did I feel the need the sleep in as I usually do. I was also very motivated to clean last night and I went on sort of a spree as I’d usually do before invega. I four or five shots about 4 months ago, and I really feel like I’m past the worst. It just feels like I’m more clear headed and my senses are finally back. Smoking has been helping me get back and it’s been helping the minor depression now as well. Thank God I am getting through this, I thought I was going to be stuck in Hell up until 8 full months but I’ve been feeling great almost suddenly as of yesterday. Wanting to take care of myself more has increased. I’ve been working almost full time with a high paying job and this has allowed me to spend money on personal care products. Washing my face in the morning like I used to do. Whitening and brushing my teeth, etc. My sex life really isn’t that bad. I can get pretty hard and I’ve been masturbating at least once a day for about 2 weeks. So hopefully I’ll see more improvement in that area. My girlfriend has noticed a positive change in my mood and my conversational skills are much better. It’s as if it happened within a day. Like just 3 or 4 days ago I felt screwed. Now much better.
 
That’s good to know that I might be able to expect some improvement in the early months. Thanks for the inspiration.
 
Hello everyone. Not sure if this is allowed, but I think I will give it a shot. Basically, I have a question. Backstory: Ever since I took invega, I cannot get blood flow down to my vagina ( I cannot feel sexual arousal at all, and cannot orgasm, basically there is no "throbbing" down there when exposed to sexual material) Has anyone else had this experience? I have been off of invega for 6 months now, and still no improvements. Yes, I mentioned that I have no emotions or feelings either from it. What exactly is it that has caused this? Does it block dopamine and serotonin receptors? Is this permanent blockage? Also, is there any known way to heal this "sexual dysfunction" caused by invega? And if known, is there a reason why invega causes this sexual dysfunction? Any info is appreciated. Also, I have quit invega, so why hasnt there been any improvement yet? What exactly does it do to the brain, that causes this prolonged suffering? There has got to be some sort of scientific explanation for al of this. If I contacted the creators or company of invega, would they even be able to give answers???? So many questions plague my mind, but this stuff is really bothering me. Thank you for any response. I hope you all had a great new year, despite the suffering that we have to endure.
 
For those that have recovered, how does recovery work? Is it all of a sudden or does it happen gradually? Also, did you experience certain partial recoveries at various time frames, before your complete recovery?
 
Rick5639 said:
For those that have recovered, how does recovery work? Is it all of a sudden or does it happen gradually? Also, did you experience certain partial recoveries at various time frames, before your complete recovery?
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Slowly over winding and hilly roads. It can happen suddenly as well as gradually. You'll notice the biggest improvements over the gradual parts, though. Partial recoveries: there were a few for me. Maybe two that I recall clearly. Seemed like I had all my psychic abilities and such back for what ended up being less than 24 hours accrued time on each separate event.
 
Rick5639 said:
Hello, I am new to posting on this forum. I have read the Invega threads on this forum. I am 2.5 months from my last shot, and I improved for a month from my last shot and then have not improved since then. I received three shots at 234, 156, and 234. I am expecting to have to wait around 11 months to heal. I feel anhedonia, fatigue, muscle weakness, and have gained weight since starting Invega. The recovery stories from this forum give me hope. I also have a suggestion for those that haven’t recovered from Invega after 1 yr or so, to go see a Dr., and get blood work and a urine test done to make sure Invega hasn’t caused some other health problem that you may need medication to recover from (if you haven’t done so already).
Click to expand...
Recovery happens gradually.
I recieved three injections aswell, 117, 117, and 234.
My last injection was 10.5 months ago.
I started noticing major improvements around 8-9 months off.
I'm back to around 80% of my pre-invega self.
I would expect you will have a similar recovery timeline to me but just a little longer since you had higher doses.
Remember exercise and eating healthy is incredibly important.
Good luck!
 
I truly don’t understand how I am still in this hellhole with no improvement. It’s been over a YEAR AND 6 MONTHS Discontinued with 5 injections. I don’t know what to say at this point. It seems permanent and if so. My time here on earth will be coming to an end. I’m sick and tired of talking about this which is why I’ve went incognito. Like wtf if I’m Gods child how is he gonna allow this to happen to me. My entire life has been put on hold bc of this.
 
I’m trying this remedy that Yeshuah(Donnie) recommenced. I haven’t felt a difference yet but I’m really losing hope at this point. It was 2018 when I started to feel this way we are in 2020 now.
 
lifeline said:
I truly don’t understand how I am still in this hellhole with no improvement. It’s been over a YEAR AND 6 MONTHS Discontinued with 5 injections. I don’t know what to say at this point. It seems permanent and if so. My time here on earth will be coming to an end. I’m sick and tired of talking about this which is why I’ve went incognito. Like wtf if I’m Gods child how is he gonna allow this to happen to me. My entire life has been put on hold bc of this.
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I truly feel your pain mate i'm in the same vote - I haven't had improvements for at least 2 years (mentally) lots of things still not the same as preinvega, But at least I can walk, talk, sleep fairly well and work full time. For some reason I cannot get the feeling of full when I eat a huge meal? I dont know why its so weird. I still feel tired most of the time and energy is not the same as before. But you learn from your mistakes mate. I will not trust a doctor again in my life. I could of knocked my self off but I thought whats the point of hurting others - when you can accept it and just move on whats done is done nothing you can do to change the past - If I was you mate think of way to work around this problem it might sounds impossible at this point but def give it a go. Trust me mate I was in the same vote as you and I just accepted this is the way things is now and I really dont think much about it anymore I hope things might change in the future you never know what the tide might be stay safe. :)
 
If anyone is dealing with muscle stiffness or rigidity or gait problems please message me or post I’m actively trying to find a solution and it would be good to work together
 
earwiggs said:
If anyone is dealing with muscle stiffness or rigidity or gait problems please message me or post I’m actively trying to find a solution and it would be good to work together
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There seem to be a number of long-acting AP's that cause these problems. I suffered from muscle rigidity and/or stiffness from Vraylar. The Vraylar website says to get help from the ER right away, but my doctor said nothing about this. In my experience, the muscle rigidity has mostly gone away to the point where I can walk up hills again and stretch my back if I need to. Vraylar's active components are different though. The muscle rigidity mostly doesn't last while the medication is in it's state of efficacy. (it takes several months for Vraylar to begin working whereas Invega Sustenna begins working right away. Afterwards, Vraylar goes through it's period of efficacy where the active metabolite takes over most of the function until withdrawal begins; in which case, symptoms from initial entry into the system are reintroduced until the medication is mostly eliminated.)

I'm sorry you have to deal with this. I know what it's like. Exercise, that would normally push the medication out faster, becomes almost impossible to do.

Ammarishot said:
When do you start feeling music again?
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That's a hard one to answer. Even a gifted psychic medium couldn't tell you exactly when. It was approximately 2 years before I really felt much of anything anymore after my last dose of Invega Sustenna. But soon after that long period I began feeling perhaps a bit too much for a while.
 
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