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Mental Health Coming off Invega Sustenna (Paliperidone) v3

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It's good to hear that rebelhassan recovered so well! He and I are on the same timeline and had the same type of hopelesness.

I'm 12 month off. Today I'm sipping some wine and I actually feel the effects quite nicely. For a while on invega you can drink and expect nothing to happen, which is quite a depressing feeling.

I am getting into the Christmas spirit. Something that last year, on the full effects of invega, seemed quite impossible.

Things improve exponentially month to month after month 9, as long as you stay off of all other medication. I feel like this is also the time that actual schizophrenics may relapse into psychosis. However, not everyone whom the psych insists must stay on medication indefinitely are actually schizophrenic. I have a lot of self consciousness due to my psychosis and what the psych tried to tell me , which is that I would never be normal again. She was wrong. Fortunately, I am even rekindling my old friendships. Keep hope.

Recovery after schizophrenia is absolutely possible. For us lucky few that only had a temporary madness, after that madness comes wisdom. Good luck all. Do not kill yourself.
 
Rebelhassan said:
I had 4 shots
Just keep at it, set a routine and eat healthy!
Click to expand...
What was the dose of the shots 150mg, 100mg...? In the beginning you knew the blank mind, lack of memory, no strength etc...What was your effects the first months after the injections? Thank you for your testimony it gives me hope
 
I've been on invega for a year...after feeling the side effects for so long I asked my doctor to take me off of it. It has been 30 days since my last injection so now I'm one day off invega. The doctor suggested I try Abilify and not to go off antipsychotics altogether because she believes it will only be a matter of time before I have delusions again..but I want to come off antipsychotics anyway. What do you guys think?

She also said invega gets out of your system within weeks. She said hardcore psychotic people and people with bad Schitzophrenia go down hill quickly within two weeks of not having the shot. From what I've read on this forum this is not true. So I don't know what to believe anymore.

I told her I was too messed up to work in this condition (being on the shot)(makes me want to lay in bed all day and I get irritable if I travel away from the house for long periods) She didn't believe me. She said "Why don't you go try and get a job at the temp agency." "Its better than nothing" I have a college degree and I should fuk off and make $8 an hour??? She also said, "I have trouble getting going but I still come to work"...stuff like that. Im like, this lady has no idea what I'm going through and might as well just call me a piece of shit while she is at it. This is a Veterans Affairs psychiatrist by the way. So I'm stuck with doctors who don't understand what its like being me on this terrible drug. Before the shots I wasn't this way. I was crazy, but motivated to accomplish big things in life. After the shots I feel I cannot accomplish anything and live everyday with crushing depression and fatigue. I simply cannot pick myself up anymore. It has taken all my mental and physical strength from me.

Mental health nurse said I can expect two weeks worth of withdraws but didn't tell me what to expect. Today I'm experiencing some withdraw symptoms like brain fog or confusion and restlessness or agitation. I need to get to the point where I'm not trying to find somewhere to close my eyes and veg out each day. I need to work bad. That's all I want is to be able to get up and go to work. I'm wondering how much longer this extreme tiredness is going to last. I'm really scared. Doctors don't understand what I'm going through. I can't find help...this is crazy.
 
I was taken off invega and put on abilify almost 4 months ago and there’s no difference whatsoever so far so it’s up to you it depends wether you want to risk becoming unwell again and have to start from the beginning but hopefully all these symptoms will go I hope you pull through I know what it’s like to not want to get out of bed I force myself to do everything just hang in there pal :)
 
I was put on Infuckingvega and it had a nasty effect on me. Besides making me a zombie i also got horrible kidney pain that made it felt like Mike Tyson rabbit punched me.

Abilify is better by mines but still causes problems for me
 
Invegarecovery said:
If anybody wants to not take invega by force then email [email protected] and we'll meet up a place because
I'm a very good lawyer for that. I'll do that for free because this medication ruins people's life
Click to expand...
I need help . I want to go back to risperdal but my doctor keeps pushing new injection medication on me . He told me I won't need to take it anymore when an my probation is over. But everyone at the mental health Center (staff members nurses) are always trying to convince me to keep taking this injection. I feel like I'm being used as a test dummy.
 
Jonnyhalo said:
Hey guys I have a question.... so I have been off invega a year and 3 months, I had a meth induced psychosis and the doc diagnosed me schizophrenic.... now sense being off the med I havent had auditory or visual hallucination... is there a away to reverse the diagnosis sense it was drug induced and take it off my medical record.. now google says medical records are kept 5 to 10 years.. but I'm 30 and want to enlist... I dont want this shit to hang over me
Click to expand...
Ischizophrenia.Im enlisting in the National Guard I'm 29 and have been diagnosed with paranoid schizophrenia. But my recruiter told me if I get a "Doctors release" (a note saying I'm cured by the doctor) I can enlist in the Army National Guard. I never heard voices or seen things so they wrongly diagnosed me with paranoid schizophrenia just because I had anger issues.
 
Rodney818 said:
Yess
Thank you..
The psychiatrist is a nut
My partner is doing amazing with great discipline
She goes to the gym
Eats healthy
She’s very organized
Likes to read study and learn things
She has great habits
This was with even at 78mg
This is really why we didn’t need it
Her psychiatrist is a quack!
She doesn’t even care to ask how she is doing
Or the positive things that are going with her in her life
She’s like so negative and just wants her to be on the shot...
We even asked if we can get a 39mg shot to help detox
But she wasn’t about it
That’s why we are quitting cold turkey now from 78mg which is still pretty low...
We have faith that she is going to do better without it...
Our big concern is that her “schizophrenia “
Will come back
But we feel like she was misdiagnosed...
So here we are
Currently really stresses and a mess from the withdrawals of taking care of her
The biggest struggles would be
Severe akathasia Dystonia,depression and when akathasia goes unmanaged to psychosis
She’s also experiencing immense sensitivity in her body
She’s sensitive to sound and touch and energy..
We don’t know if this is what they call dopamine sensitivity due to dopamine flooding her brain since the cold turkey..
We take a Benadryl though and it helps a lot with it
All the medicines we have ,have been helping tremendously with the withdrawals..
Anyways
Anybody going through something similar?
Does anybody know a forum of people coming off successfully?
We need inspiration and motivation
Our story is pretty motivating in the sense that she was doing amazing on 78mg
Which is really low
The biggest crap is the extrapyramidal side effects...
Click to expand...

I have to take the shot because Its part of my court ordered probation. They wrongly diagnosed me paranoid schizophrenia just because I said I don't like Jewish doctors and had a anger tantrum at a therapy session. 2 years ago this happened and they sent a letter to the court saying I need to take the injection. Good news is my probation is almost over so I will stop taking the injection and will go back to risperdal.
I have experienced my doctor before I needed the injection he was always trying to push it on me, he didn't seem to want to let me have any other option but the injection.
So I am positive these scumbag doctor's are getting paid by big pharma to prescribe these injections.
They are using the US as test dummies for new injection medication. Because every time a new one come out my doctor tries pushing it on me.
It's starting to piss me off I now might have to get a lawyer if they don't let me go back to taking Risperdal.
 
Hey guys I havnt posted in this forum yet but I been talking to people from it.
It's been a little over 5 months for me with no improvement. Dont mean to be a downer, but that's just the truth. I'm 19 and super healthy besides the symptoms I've had from this drug.
I was shot up with one 256mg, and another 100mg.
It's made me lose a lot of muscle mass though, erections, memory, and all social function. I've gone to the gym almost everyday since August too with no change in anything. Although my testosterone has started going up these past two months and is now at about 400ng/ml, so it could be that taking it's time. (Really hoping so)
I've had a CT scan with nothing suspicious,
Normal blood tests, except low testosterone for my age, and gone to multiple doctors and being told to give it time.
I believe this trash is still in my system though because if I take a shitload of l-dopa it doesn't make me feel very different, so I attribute that to my dopamine pathways still being blocked.
Keep in mind I've tried just about every supplement there is to try out there. But so far nothing.
My best advice is to stay as healthy as possible, and take st.johns wort @900mg everyday, and listen to music. not that it has worked for me but it makes the most sense pharmacologically. I will be trying mushrooms probably tomorrow to see if the intense agonist reverses the antagonism of invega. Anyone can message me If they need advice on the best options on how to get this out of your body, as even though nothing is too different for me, I have researched this in depth.
 
Highsky said:
Hey guys I havnt posted in this forum yet but I been talking to people from it.
It's been a little over 5 months for me with no improvement. Dont mean to be a downer, but that's just the truth. I'm 19 and super healthy besides the symptoms I've had from this drug.
I was shot up with one 256mg, and another 100mg.
It's made me lose a lot of muscle mass though, erections, memory, and all social function. I've gone to the gym almost everyday since August too with no change in anything. Although my testosterone has started going up these past two months and is now at about 400ng/ml, so it could be that taking it's time. (Really hoping so)
I've had a CT scan with nothing suspicious,
Normal blood tests, except low testosterone for my age, and gone to multiple doctors and being told to give it time.
I believe this trash is still in my system though because if I take a shitload of l-dopa it doesn't make me feel very different, so I attribute that to my dopamine pathways still being blocked.
Keep in mind I've tried just about every supplement there is to try out there. But so far nothing.
My best advice is to stay as healthy as possible, and take st.johns wort @900mg everyday, and listen to music. not that it has worked for me but it makes the most sense pharmacologically. I will be trying mushrooms probably tomorrow to see if the intense agonist reverses the antagonism of invega. Anyone can message me If they need advice on the best options on how to get this out of your body, as even though nothing is too different for me, I have researched this in depth.
Click to expand...
Do you ever think these injections are not really given to us for the reasons the doctor has listed?.
We're these injections pushed onto you ?.
I have a feeling these injections are given to us as a punishment mechanism because the doctor believes we can't be trusted with pills..
Or because the doctor believes we are using drugs recreationally .
I say this because everyone I know who's on the injection are just like me , they don't want to give blood drawn for testing .They don't want to take pills or have not taken their pills and the doctor finds out. I truly believe we are test dummies for this injection shot.
I hope to go back on Risperdal once my probation is over . I'm taking this as part of my probation.
 
Isnortice91 said:
Do you ever think these injections are not really given to us for the reasons the doctor has listed?.
We're these injections pushed onto you ?.
I have a feeling these injections are given to us as a punishment mechanism because the doctor believes we can't be trusted with pills..
Or because the doctor believes we are using drugs recreationally .
I say this because everyone I know who's on the injection are just like me , they don't want to give blood drawn for testing .They don't want to take pills or have not taken their pills and the doctor finds out. I truly believe we are test dummies for this injection shot.
I hope to go back on Risperdal once my probation is over . I'm taking this as part of my probation.
Click to expand...
Honestly me and the doc that did this to me in the hospital had beef(problems) lol, And I had actually already been stabilized, so I was acting pretty normal, but the said the shot would let me go home sooner, and of course nobody wants to stay in a mental hospital,so it really makes me wonder if he had it out for me or something. Regardless medication has to be tested on people in one way or another since nobody really would willingly sign up for it :/ so theres a definitely a possibility you could be right.
It definitely WAS NOT about medication compliance for me.
But to be completely honest paliperidone(invega) is exactly the same as risperdal because risperdal metabolizes into risperidone9Oh(paliperidone) so it has already been tested as the original drug.
 
I wont reccomend going off your medication though if you are schizophrenic or have some other type of psychotic disorder. Just dont stay on a cocktail of medication when one thing keeps you from going psychotic. The fewer the better.
It's slightly different for me because I had a mental breakdown from severe stress, and was delusional, without any of the other symptoms such as hallucinations, or talking to myself or hearing voices.
 
If anyone's found anything that has helped them, or have gotten better after a certain period of time, hmu, I could use anything possitive
 
Fuck Vega injection. I'm forced to take this as part of my probation. Eating food doesn't feel fun anymore, nothing feels fun.
The only thing that makes me happy is crystal meth.
 
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