Misc seizures!? who's had them?

[Jabberwocky]

so, not sure how many of you actually follow my post, blog, whatever.. but last year on Oct 12th I what I consider my first seizure and was rushed to the hospital. turns out, I actually had a brain tumor/cancer and that led to a serious surgery to remove an 8 inch tumor and now only 4 inches but still in the brain (cancer really not a major player anymore). this is what they call a level 2 type tumor/cancer.

anyway, the more I think about it, the more I think that I had many seizures throughout my using days. It makes me think that maybe that last seizure I took had nothing to do w/ the tumor/cancer but I was in the middle of a benzo/dope disaster and life was messy at the time. since that day I have had other seizures but have been using as well after. they have me now on a medication called Levatiracetam at 750MG/day twice daily to prevent seizures. even since starting the script I have had another seizure or so but this is while using still.

since becoming "clean" and only taking bupe, I havent had any problems at all. I am wondering if it was more the benzo/dope problem causing these seizures than the actually tumor/cancer problem? then again, both of them working as a team is probably the actual reason.

but wondering how many of you out there had seizures due to drug use? withdrawal? etc.. all this for my own knowledge.

 

[shroomster]

Epilepsy's onset is often later in life, in late teens or early adulthood.

 

[Mr.Scagnattie]

I've gotten them during rough detoxes before. Usually after like the first week or so of acute withdrawal after getting zero sleep and being incredibly sick with a skyrocketing blood pressure. The last time I was in detox I got one. Not fun.

 

[gm777]

I actually had 3 in 2 weeks time while tryin to kick a huge benzo/opiate habit cold turkey. Woke up in my driveway on the las one with the whole neighborhood watching in terror along with my ex wife.

 

[Jabberwocky]

I actually had 3 in 2 weeks time while tryin to kick a huge benzo/opiate habit cold turkey. Woke up in my driveway on the las one with the whole neighborhood watching in terror along with my ex wife.

dude, this is exactly what happen to me here and I have come to find out about the cancer/tumor, too. imagine? fucking whacky. I almost want to say I am thankful for the seizure for whatever reason it hit me because I was able to get into surgery and get help.. but the before and after that surgery LED TO A TON OF DOPE/XANNY! I was at the point I was scared for my life so why not just get so whacked out daily I can barely remember shit. they also had me on some other meds too but I forget now. those were some whacked out times and it was only Oct 2012.

 

[188thStreet]

I would think an 8 inch tumor wouldn't even fit in ur skull but idk. I've had a couple seizures. All of them were from doing way too much 2c-p. The first time it happened the whole world was replaced by fractals and then I was on the floor. I had no memory of what happened but my friends told me. They said they thought I was gonna die cuz there was blood comin' out of my mouth. Turns out when I was having a seizure I bit down on my tongue really hard and that's where the blood came from.

 

[Mr.Scagnattie]

^^^

They should have put something in your mouth. That tends to happen a lot when people seize.

 

[benzoman12345]

I've fuckin had em, never again.

 

[Jabberwocky]

I would think an 8 inch tumor wouldn't even fit in ur skull but idk. I've had a couple seizures. All of them were from doing way too much 2c-p. The first time it happened the whole world was replaced by fractals and then I was on the floor. I had no memory of what happened but my friends told me. They said they thought I was gonna die cuz there was blood comin' out of my mouth. Turns out when I was having a seizure I bit down on my tongue really hard and that's where the blood came from.

it def would do; you do realize a tumor is not just a straight line, right? also, measure your head and then get back to me, ha.

anytime there is a seizure you tend to bite your tongue; happens often and is common.

just blows my mind I THINK this seizure had more to do w/ drugs than w/ the tumor/cancer but thankful it happened because it would have been much worse if I lived with this longer and longer; it was already in my brain for close to 6 years; its just a very slow growing tumor which I assume not many people know about on this site based on that "8 inch tumor dont fit in head" thing. ha.

 

[Mr.Scagnattie]

^^^

You're pretty young to have a brain tumor, aren't you? Or is it just random as far as age goes?

That really sucks man. It must be rough going through cancer treatment.

I wish you the best of luck. It working out so far?

 

[RTrain]

^^^

They should have put something in your mouth. That tends to happen a lot when people seize.

Thats not a good idea, you just risk them choking on whatever you stick in there. If they go down try to put them in the recovery position, on the left side(right is fine if its easier , but left is better due to anatomical position of the stomach. Move anything they could hurt themselves on and try to assist them to the ground if its safe. Don't let them lie on their back or they will aspirate their saliva or possibly vomit if they throw up because they will gag on their tongue, which will also occlude their airway if they are supine. They might bite their tongue, but they won't bit it off, thats an old myth(so is the swallwoing the tongue thing, but it can fall back into the throat because of lack of muscle tone, thus causing an airway blockage). If they are sitting try to keep them upright. Oh and call 911, because even if its a person who seizes regularly it might still could be life threatening. If someone seizes for over 5 minutes or more than once in a 5 minute span then they should be going to the ER, that is not a standard epileptic seizure.

 

[Jabberwocky]

^^^

You're pretty young to have a brain tumor, aren't you? Or is it just random as far as age goes?

That really sucks man. It must be rough going through cancer treatment.

I wish you the best of luck. It working out so far?

young, man. as far as reasoning goes, its unknown. there has been NO RECORD in my family and of course I am first to step up to that plate. I asked the Dr. multiple times it it could have had to do w/ drug abuse and he's unsure, but says I've had this tumor for the last 6-7 years, so that wasnt the early drug days, which involved more "party" drugs and some opiates. it was the later years the dope took over and ruined my life.

so yea, totally young but yet somehow came up w/ it. but luckily enough to have an early stage, low growing tumor which SHOULD NOT be a LIFE problem. I did have brain surgery and as said before, and 8 inch tumor was taken down to 4 inches because they could not remove the entire tumor. also, there were once cancerous cells but now not so much since chemo (I am not on your typical chemo but a pill form because its such a low grade tumor).

dude it just makes me think if this WOULD have EVER HAPPENED if I wasnt on drugs throughout most of my life. during those years I partied w/ E, K, G, Crystal, Coke and opiate and benzos. I was doing one of these drugs daily. I almost believe I didnt even have a true addiction aside from ALL DRUGS at this point. I could go days w/o an opiate but I would be doing K or G in between and then at the time I'd throw down an Oxy GREEN 80 (was many, many years ago) and feel great. It's whacky thinking of the cycle I was once on; I even did steroids back in the day at one point while going to the gym and working out. I've done EVERY FUCKING DRUG POSSIBLE, so it makes me think if this could be the reason but my Dr. says its completely unkown.

so far, so good. everything has gone my mine. it's only a stage 2 and as I said before I do not go through your regular type of chemo but just chemo pills 5 days out of the month. but those 5 days are fucking hell. usually, when on dope, those 5 days werent so bad, but since turning clean those 5 days truly fucked up my stomach and everything else included. the dope made it easier but almost made it less potent accord to the Dr; although. EVERYTHING HAS GONE MY WAY HE SAYS! he did stop the medication once I came forward admitting I was an addict and waited for me to get on the bupe and get clean before the treatment continued, so using was no longer an option. this cancer treatment is the main goal here.

I feel, look and do absolutely find. my short term memory has been heavily affect; other than that, and the huge whole in my head if I were to shave my head, nothing has changed. I am lucky in many ways, thankfully.

 

[liftedgift]

Wow, glad things are improving for you Boston. You had it for 6-7 years huh? There was no pain or anything before the first seizure? Crazy how cancer develops, it really could be anything. Impossible to tell if its from drug use or if its just random.

I've never had a seizure but witnessed plenty of friends have them. They can be pretty disturbing.

 

[Jabberwocky]

never any pain or problems as far as I know; then again, I was on alot of pain killers for a long time. ha. but as I said before, I was SOBER (DEAD SOBER) for 5 years at one point (that was between jail and parole) and didnt put a single thing in me and felt fine throughout those years. so its weird to say that I had it for at least 6 or so years cause if I went back 6 years to the date they told me about it I was absolutely clean; then again, before that I did a LOAD of drugs, not just one but ALL drugs ALWAYS! so its tough to really say and cant really pin point where/why this came about.

I am actually happy I took the seizure because it make this tumor/cancer treatable and thus far all has been good. it also helped w/ my sobriety and keeping things on the sober path (well, somewhat sober, no opiates but still dabble w/ weed and benxo script).

 

[Anoymator]

Thats not a good idea, you just risk them choking on whatever you stick in there. If they go down try to put them in the recovery position, on the left side(right is fine if its easier , but left is better due to anatomical position of the stomach. Move anything they could hurt themselves on and try to assist them to the ground if its safe. Don't let them lie on their back or they will aspirate their saliva or possibly vomit if they throw up because they will gag on their tongue, which will also occlude their airway if they are supine. They might bite their tongue, but they won't bit it off, thats an old myth(so is the swallwoing the tongue thing, but it can fall back into the throat because of lack of muscle tone, thus causing an airway blockage). If they are sitting try to keep them upright. Oh and call 911, because even if its a person who seizes regularly it might still could be life threatening. If someone seizes for over 5 minutes or more than once in a 5 minute span then they should be going to the ER, that is not a standard epileptic seizure.

This x1000.

People please, don't go by what you see in movies. Never do anything to someone seizing (including putting a stick between their teeth or restraining them) other than try to put them on their left side and clear the area so that they do not hit themselves against objects. If you see their tongue fallback, then rapidly put two fingers inside their mouths to pull it from their airway and make sure they are on their left side. The tongue blocking the airway will happen during the phase of the seizure where their muscles relax and they may stop breathing too or very slow breathing, so consider giving assisted mouth-to-mouth breathing when the seizure enters the relaxing stage.

I have given assisted breathing (mouth-to-mouth) to a person who had a seizure and stopped breathing or at least wasn't breathing enough (coudl not tell). As soon as I gave the mouth-to-mouth breathing, the person woke up and didn't remember anything and made it look like everything was alright (it wasn't). I also think I have had a couple of drug-induced seizures but not with tramadol bizarrely despite my (ab)use.

 

[Jabberwocky]

This x1000.

People please, don't go by what you see in movies. Never do anything to someone seizing (including putting a stick between their teeth or restraining them) other than try to put them on their left side and clear the area so that they do not hit themselves against objects. If you see their tongue fallback, then rapidly put two fingers inside their mouths to pull it from their airway and make sure they are on their left side. The tongue blocking the airway will happen during the phase of the seizure where their muscles relax and they may stop breathing too or very slow breathing, so consider giving assisted mouth-to-mouth breathing when the seizure enters the relaxing stage.

I have given assisted breathing (mouth-to-mouth) to a person who had a seizure and stopped breathing or at least wasn't breathing enough (coudl not tell). As soon as I gave the mouth-to-mouth breathing, the person woke up and didn't remember anything and made it look like everything was alright (it wasn't). I also think I have had a couple of drug-induced seizures but not with tramadol bizarrely despite my (ab)use.

this is exactly what to do right here. most of the time my seizures where in my sleep which would wake me and I would walk around the house like a beast not having a clue as to what is actually happening. luckily I had a GF at the time who was a nurse and helped tremendously. I feel bad that I left her after all she has done but it's just part of me getting clean. during these seizures I was always asked to sit down, try to stay still, breath, pay attention, blah blah. for those of us who had them, we know.. but it's a fucking scary ass thing. you are legit LOST IN SPACE!

I am happy to be on such a high dosage of seizure meds and have been GOOD since but just thinking back scares the SHIT out of me. I somehow can remember toward the end of the seizures walking around my apartment in a daze just barely being able to stand up and not wanting to sit down as my GF would just cry and cry and my neighbors from downstairs would come up and try to help but I wouldnt listen and was LOST. then finally I would come to and would go to ER from there. all depends on how bad the seizure was. it got to the point where some seizures I wouldnt even go to the ER after and just chill the fuck out and relax.

just keep them damn drugs away; although, they say benzos MAY CAUSE seizures most and that is something I still dabble. pretty smart of me, huh? god, I am a complete moron.

 

[Mr.Scagnattie]

young, man. as far as reasoning goes, its unknown. there has been NO RECORD in my family and of course I am first to step up to that plate. I asked the Dr. multiple times it it could have had to do w/ drug abuse and he's unsure, but says I've had this tumor for the last 6-7 years, so that wasnt the early drug days, which involved more "party" drugs and some opiates. it was the later years the dope took over and ruined my life.

so yea, totally young but yet somehow came up w/ it. but luckily enough to have an early stage, low growing tumor which SHOULD NOT be a LIFE problem. I did have brain surgery and as said before, and 8 inch tumor was taken down to 4 inches because they could not remove the entire tumor. also, there were once cancerous cells but now not so much since chemo (I am not on your typical chemo but a pill form because its such a low grade tumor).

dude it just makes me think if this WOULD have EVER HAPPENED if I wasnt on drugs throughout most of my life. during those years I partied w/ E, K, G, Crystal, Coke and opiate and benzos. I was doing one of these drugs daily. I almost believe I didnt even have a true addiction aside from ALL DRUGS at this point. I could go days w/o an opiate but I would be doing K or G in between and then at the time I'd throw down an Oxy GREEN 80 (was many, many years ago) and feel great. It's whacky thinking of the cycle I was once on; I even did steroids back in the day at one point while going to the gym and working out. I've done EVERY FUCKING DRUG POSSIBLE, so it makes me think if this could be the reason but my Dr. says its completely unkown.

so far, so good. everything has gone my mine. it's only a stage 2 and as I said before I do not go through your regular type of chemo but just chemo pills 5 days out of the month. but those 5 days are fucking hell. usually, when on dope, those 5 days werent so bad, but since turning clean those 5 days truly fucked up my stomach and everything else included. the dope made it easier but almost made it less potent accord to the Dr; although. EVERYTHING HAS GONE MY WAY HE SAYS! he did stop the medication once I came forward admitting I was an addict and waited for me to get on the bupe and get clean before the treatment continued, so using was no longer an option. this cancer treatment is the main goal here.

I feel, look and do absolutely find. my short term memory has been heavily affect; other than that, and the huge whole in my head if I were to shave my head, nothing has changed. I am lucky in many ways, thankfully.

Crazy, man. I had a friend many years ago who had brain cancer. He was in his 40's. It can get pretty rough.

 

[Jabberwocky]

its crazy but I am getting through and I am thankful for it all. I am PRETTY sure this tumor/cancer has helped me get off the dope and helped me follow a different path in life. it helped me get away from certain people, places and things, as we all know. it made me a lot closer w/ the family as of late and those who "care". it also woke up me and made me realize life is NOT something I should take for granted and pumping myself daily w/ dope and other drugs was only shortening my life (not like the addy, xanny or weed I smoke know helps).

like I said before, when this news first hit me I TANKED and WANTED DEAD! they said it COULD BE STAGE 3; so right away I thought "fuck it, I am going out w/ a bang". after the surgery and whatnot the Dr. said it's easily a stage 2 and very treatable and has only gotten better since. but even after surgery I still used HARD! I have known of this tumor since Oct 13/14th 2012 and only stopped using this past Aug 2013. From Oct 2012 to Aug 2013 was ONE of the BIGGEST RUNS IVE EVER BEEN ON! I am talking 1-3G's a day of dope and 2-4MG a day of xanny; wont even get into speedballs and everything/anything else I could down. I wanted life to end because I thought it was meant to be that way; I've said it before in other posts but I've nodded out at kitchen tables, GF's parents couch, during best friends wedding, lost out to being a God Father of my best friends child cuz I couldnt keep clean, etc. I lost A LOT this past year but I am slowly gaining it all back and then some as I DO MY BEST to stay away from what was once killing me.. which wasnt even the drug itself, but ME, MYSELF! I was the one who wanted to be put out.. but I have changed and I an thankful for that.

 

[Mr.Scagnattie]

Do your cancer doctors know about the suboxone and everything?

 

[Jabberwocky]

yea, they are the one who set me up w/ it all. they are the one's who are saving my life right now and got me into the right treatment center at MGH (one of best hospitals in the country) and they oversee all my dosing, testing, etc. I completely eliminated my other doctors and have only been going through my MGH doc's who know my life/record/everything best. after all, once my OD occurred I went through MGH and was brought back to life, sent to an MGH psych ward for a suicide attempt (it wasnt), met w/ multiple doctors who help those w/ addiction, started my subox at a VERY HIGH DOSE (above what they said is standard) due to my killer addiction (24MG) and then dropped to 16MG a week later. since then they have been in no rush to drop me more but I have been doing it myself. I tell my doc. straight up EVERYTHING. I even showed him this board and my blog. VERY straight forward right now w/ my doc. and my life since my life DEPENDS ON HIM! he's fine w/ the weed, OK w/ the benzo WHEN TAKEN AT RIGHT TIME AND RIGHT DOSAGE and thats about it. guy has been helping me save/change my life. he's my Dr. but he also has been a psychologist in the past so I use him as both; he says he does it w/ no one else but me because he "sees something". sure, that can be complete bullshit but I trust those working for place like MGH and me being under a microscope, so I am cool w/ what is happening w/ me now. I do want to be off the bupe within a year tho and he understands that but he doesnt want me rushing off and going back to the dope while I go through this cancer treatment; which is why he keeps me on a high dosage.