Legitimate Pain Management Stories
Hello everybody,
I know there's a lot of discussion on the forum regarding opioids and their use in pain management, and I thought it could be beneficial to start a thread sharing stories from legitimate pain management patients to share their concerns, histories, experiences, and receive support from other members with similar situations.
Personally, I am in the process of getting into a more "typical" pain management program. I have scoliosis that has gotten significantly worse in the past two years, to the point where I absolutely cannot sit in a chair for more than 1.5 hours without feeling as if somebody was putting bricks on top of my lumbar spinal segment. I can no longer focus, think clearly, work well, or even socialize appropriately as I feel desperate to get home at the end of the day so I can lay down for a while, do more stretching, and just relax (physically and mentally).
In addition, I also have psoriasis and psoriatic arthritis that exacerbates these issues. I've been on Stelara, a biological immunosuppressant injection that has been able to clear up my skin pretty well, but hasn't helped much with joint pain due to inflammation. Lastly, I also had a very severe episode of anorexia nervosa 3 years ago that caused me to drop down to 75 pounds and almost die. During the time, as many doctors have now told me, they believe my scoliosis and joint issues were made worse due to grinding between the structures from losing so much tissue, muscle, and fat between them in such a short period.
As a result of all these problems, I've been on an increasingly large amount of psychiatric meds for depression, anxiety, and insomnia that I believe could be offset by proper pain management. I can't sleep without ambien every night, and I take valium to help muscle pain due to tension and stress (primarily caused by secondary issues resulting from the back pain and spine issues.) I know I should've acted upon the scoliosis much earlier considering it was diagnosed when I was 12, but never did.
At this point, all I want is a doctor who will be able to tell me how severe my spinal issues are, what my treatment options are, and would be willing to really listen and use integrative eastern & western medicine to help me. I've been getting oxycodone from a close friend who gets way more than she needs, but I hate feeling like I'm self-medicating (which, by definition, I am.) I am nervous about going into a doctor and finding out they'd want to do surgery instead of anything else, or that they will not adequately treat my pain due to the taboo reputation pain meds have taken on.
I am not just a drug seeker looking for a way to get meds, I truly feel that I need them and that if I don't start getting proper pain mgmt treatment soon, I'll end up abusing something like alcohol pretty badly. There was a period when I would drink a bottle of wine every night because of the back pain, but I was thankfully able to quit on my own.
So, sorry for the ultra-long post, and feel free to add your personal stories or support others going through difficult times here, as well. I know people can get very frustrated if they're forced to switch meds, taper before they're ready, etc, so having a supporting group of others who know the deal could be of use.
Take care & be well!