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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

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@ Shroomy - nothing beats the sound of analogue gear particularly guitar pedals, my guitarist/ friend is a collector though I have transitioned him to digital recording now which is great with our busy lives. I'm his boss at work but we have our families so it's hard to find the time to record together so instead we email each other lil mp3 format files and we'll build songs like that. So he may write a complete song (guitars, bass and drums) and I'll lay vocals or he may just send riffs that I'll edit and write drums for and create compositions from there! Once we're happy enough we will then go on to a professional studio with our demos and do it all again!!! Tis the year we will record our ("come- back to the music scene") album! We've got to do it, it's mostly for ourselves and our friends to enjoy....we're too old to tour and perform back to backs etc, but maybe I can be convinced. Oh and every man, woman and dog are in a band these days so you must be aggressive with your marketing etc and to me it's all a young mans game. I'm pleased to hear you are playing again Shroomy, a muso needs their music like life needs water, it's what sustains us.

@Rtp, I'm still yet to detail my recent/current suboxone experience which I plan to do when I'm not typing on a phone quietly hiding from sleeping wife and son this Sunday morning...but the transition from oxy to suboxone was seamless....6mgs yesterday, 12mgs today but took 10mgs this morning and maybe the other 2mgs later to see if it helps my pain at all. Like I've said and you have too RTP - so far my pain isn't worse than all the oxycodone I became tolerant to was so we'll see how it goes I suppose.

So how are the rest of my pain pals atm? Glad you're going ok Closeau and well done on tapering man, great to hear you're settling into a new place!
 
Hey gang, I'm here.

Its been a few few bad weeks; I took myself off the oxymorphone because I wasn't getting good results without insufflating it, which I can't keep doing. But I finished yesterday and don't start back on morphine until Monday. I have my Oxycodone IRs, but they really don't work as well. I never realized the half life of oxymorphone, and I'm noticing it as it leaves my system.

I did did meet with the new surgeon who is going to put the spinal cord stimulator in: getting my last MRI tomorrow; hopefully get implanted over Feb vacation.

I def hear you guys; we understand each other. You know that I've been on the couch all day and don't judge me. This was the first few alone hours I've had in 2 weeks. I fell at Laser Tag last weekend and hurt my back, and gave myself a HORRIBLE rug burn on my palm. It was my first time; we took my daughter and her friend (8 year olds), and my husband and I were more excited than anyone. I should've taken it easy, but I never do things like that, and I got over excited!

Anyhow, I tripped and fell in the first ten minutes, and this teenage kid is still tagging me, and I'm yelling, "Old lady down!"

Hope I gave someone a laugh.
;)
 
Thanks SKR. Thats rad youre a musician. Me too. Even thought ive been in a rutt and havent played in awhile guitar. Ive lately been making beats on my keyboard and writing lyrics to them. Kinda more rappibg and i have few songs i sing. I have to break out of my guitar rutt and go to my Beatles or Tool. Thats really cool yall do that. Id love to hear it. My goal is by this time next year ill be in Colorado and by my daughter and get my medical card. They have 3 recording studios there and i wanna have 4-5 songs ready to record a demo. But i have no drummer snd i dont play although i wish i did and prob gonna go get drum bass machine. I cant really plug in here where i moved to but maybe down the road. I have a stereo i play along with. My last 2 songs i learned were something by beatles and stinkfest by tool. Ill go back over them. Solo is a ittle tricky in something. Anyway, just wanted to tell you about that. Coulda PM you but appreciate your motivating words. I need these pain meds to loosen their grip on my mind. Im def moving on i feel. Im lucky i can which means im healing from June surgery. It doesnt hurt nearly as bad and i know now since my move i can work hard so its time. My tolerance is or was thru the roof so even slow taper i feel the effects when i drop. Anyway, keep rockin dude. Thats really awesome.
 
Gunny said:
Was blown up by an IED in Iraq 2004 and even after ALL this time the pain i suffer from (TBI and severe Cervical Spine Pain & of course PTSD) has been off the charts!!!

Finally found the best damn Doc who has seen every combat wound known to man, Retired from the Navy to start his own civilian practice and still uses a majority of the treatments he used at Walter Reed to treat these matters. One of them is Ketamine Infusion! I have gone thru 2 sessions of low dose therapy (which was seriously wild and beyond anything Ive experienced) HOWEVER- just had the HIGH DOSE experience for a 6 hour time period that TRULY blew my mind away and I wish there was some way to record the things i saw (and thought were real) so tat i could explain them. It was the most out of body and mind time i EVER EVER had and actually got scared so much I tried fighting in my dream state- but this is why they have me strapped onto the gurney so that i don't hurt myself (or others i guess.

Wish there was someone i could talk to who has gone thru the same unreal trip like i Have to treat their Chronic Pain using Ketamine Infusion therapy!
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Hey Gunny

First off thank your for your service. I suffered some pretty severe injuries in the military including 2 TBI's. I have some lower spine issues and hip and SI Joint injuries. Just had one of the rods removed from my leg . I am sure you were not able to get any help from the VA when it comes to pain Meds having PTSD as I wasn't either. I had to go to an outside doctor to get my pain meds and I have always been interested in the ketamine therapy as I am a CPP. Was just curious how you found that Doctor Who performs that kind of pain management has the organization I go to for pain management is a pretty large organization and I don't know if they do it there. The problem is I'm in Florida and they are very strict with chronic pain patients. Even though I have the records and MRIs and CT scans to prove it. How are you able to get that doctor did you find him on your own or was it through a referral from the VA? I am just still in a lot of pain and what I am prescribed is not helping me so I'm looking for anything that can help. I am prescribed OxyContin 10 mg extended release and OxyCodone 5 mg IR which really which does nothing for me and it is not prescribed through the VA because of my PTSD meds.
 
Hi, guys. First time here in a long while and I'm bringing complaints...yay.

I just need to vent without judgment.

I have severe fibromyalgia and suspected EDS type III. I'm pretty sure I had a hip subluxation over the weekend. I've been in excruciating pain. Pain that made me want to kill myself just so it would stop hurting. It's horrible. I'm a little better now, it's holding firm at a 7, but I still feel really shitty.

Usually, I use medical marijuana to deal with my pain. it works beautifully and I love it. I ran out, and I couldn't get an appointment with the dispensary until Tuesday of this week--so I just have to wait. And suffer. So I called my doctor for help, and she prescribed me emergency tramadol and a muscle relaxer, the name of which I can't remember.

I hate the tramadol.

I hate being in excruciating pain more, though.

So I'm sitting here, not quite high (and I've taken more than I probably should have; I'm supposed to take one at a time every six hours and I've been doing two at a time every four), trying to stay awake in case I have a seizure. Like, I don't feel sick or like I overdid it? I can breathe fine, I'm not nauseated, I'm not dizzy. But like I said, monitoring myself carefully.

I've been lashing out and snapping at people all day. My anorexia relapsed hard over the past couple of days. I'm angry and depressed, although I'm not feeling suicidal, which is good. I desperately want a cigarette, despite the fact that I quit. And my hip is still killing me. And I have to wait until the day after tomorrow before I get relief.

We're talking pain that wakes me up every four hours on the dot, which is why I'm taking the tramadol every four hours.

I hate this, but it's all my own stupid fault for continuing to take the tramadol when I should probably just be taking the muscle relaxer. But I'm so unhappy I find myself hoping that I'll get buzzed off the tramadol. Which isn't happening much.

My body is trying to kill me and I'm extremely salty about it.

Thanks for reading if you got this far. <3
 
"any1 tried LSA? its the best Psychedelic with painkilling abilties In my opinion plus the euphoria is incredible!" ~=DMracid

I did an extraction on HBW seeds w/ 75% ethanol (Bacardi 151) way back.
My pain was nowhere near what it is now, even had days I was somewhat pain-free if I was careful.

Well, my experiences were always rough. Stomach pain, low back pain, teeth grinding, and weird thought loops~ "Hey, let's go for a walk guys!" "Dude, we just came in from a walk...WTF man?"
Not something I would recomend for anyone who is in any kind of serious pain. Not saying it doesn't work, just not for me.

That does bring some thoughts out about psychedelics and pain management.
Mescaline has worked wonders for me in the past...A tricky 1 though, as it can cause vomiting, body temp fluctuations, and other strangness in the body, sometimes pain too like stiff back or tingly limbs.
For ME it is incredible. I feel the best ever physically on that psychaD.

As far as I've explored, MDMA is gold for those suffering long term pain, or disease. It seems to work well for just about everyone dealing w/ PM. It has the power to make you feel like a real person again, even if for a few hours. Gets really introspective as to the emotional baggage chronic pain drags around w/ it.
The depression, just gone, and gives a nice long effect after the roll. I feel emotionally better, and deal w/ my issues for about 2 weeks after dosing (afterglow kicks ass).

I'm very interested in how psychedelics can be used for pain.
I been in such horrific pain for the last 2-3yrs, I'm now find myself afraid of making anything worse...If I did stumble across some MDMA I would not hesitate to use it; though careful prep would be thorough, and necessary.

Psychedelic substances require respect, even more so if in chronic pain. What works for me can split another's wig...

Anyone else have good results w/ psychedelics and PM?
 
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Heya LavMew,

I'm sorry to hear how much pain you're in.

I can understand a little as I've told my PM at times that it wouldn't hurt anymore if someone was sawing my leg off!!

Tram is a weak opiate, are you accustomed to this class of meds or just the med mj?

Are you taking any sort of antidepressant? That could complicate things.

Tuesday, tomorrow you're talking of to get your MM right? No wonder you're not being happy & nice when you don't have your regular pain relief. Could a physio help you?

Didn't know about the anorexia before, but I know I can't eat when im in severe pain. Feel for you sweetie, just think "this too shall pass, this too shall pass", you'll be ok & Tuesdays not far away now.

Rtp ❤️
 
Hasn't been any movement on this thread the past 24hrs! Hope that. Means all getting along ok.

I often get numb hands, but today's driven me crazy with a right hand that won't come back to life!

Hope you're all doin ok❤️

Rtp
 
Suicidalnod, that really sucks for you with all that pain. Dam!! As far as phycadelics helping chronic pain i would think i depended on the substance but im on some today and ivfeel less pain than normal so i guess for me it does help. I feel really laid back and confy. You would think id be freaking out it this new place i just moved into. Sharing a house and the son gave me some lsd so i took half hit. Its very pleasant. Im gonna try to keep it that way. Ive never had ketamine in my life. My pain dr mentioned a med today but forgot it. Supposed to bevlike a stimulat pain med. shit sounds good to me. Shoulda wrote it down. Anyway, im sorry about your pain. Keep in touch with us on this thread let us know how you are. Peace
 
Hey Pain Peeps!

Good to "see" some of you posting again. We've missed you! AnnaB, Lavender...SO empathize with your increase in pain. Anna, at least you were having some fun when you were injured! That's not much comfort at this point, but SO important to find JOY amongst the ruins of chronic pain.

To Gunny and MITD...My respect and gratitude for your military service. I send my heartfelt empathy for your injuries ad continued pain. I wish I could offer commentary on your questions, but I'm not familiar with Ketamine. I'm fairly GREEN with most drugs outside the more common pain meds. I too am searching for answers through PM. I'm not finding them.

I'm currently struggling with ongoing GI issues, which were not resolved w/hospitalization last October. I'm now told the partial obstruction was in my small bowel, not the colon flexure that I knew about. The GI says I have a hiatal hernia and the lining of my colon is ANGRY from chronic use of Senna. Who knew? How else would I move my bowels without softeners/stimulants? I thought Senna was reasonably safe...WRONG!

Just more shit (pun intended) to add to my MISERY. I know I need to travel 6 hours away to an endometriosis specialist/surgeon. I am SO AFRAID of more surgery...more so than death. The surgery would no doubt be extensive, with probable resecting/removal of intestines. I just can't do this AGAIN. I said I'd die first. I may have to.

SHOUT OUT to David Bowie...I had his poster on my bedroom wall as a kid...still loved so many of his songs from that era!

Hope everyone has a "good" evening. Take care, my cyber siblings!
 
Jeez Dixi, good luck!! If they told me more surgery on my belly i would go into shutdown mode. I dont think i could go thru that again. But sometimes we have no choice and thats when life really sucks. Please hang in there and let us know if we can help. You know how to find me. Please take care
 
Hi guys,

My husband has 2 really painful back conditions; scoliosis and scheuermann's kyphosis. He was told from a young age surgery was out the question and that pharmacological and physiotherapy treatments were the only options. He started off taking low doses of paracetamol and codeine, then stronger doses of codeine and has been on Tramadol for a couple of years now and now his tolerance is high and it doesn't stop all the pain.

He is reluctant to go to the GP as he is scared that he will get prescribed stronger and stronger opiates as his tolerance grows: he already hates the fact that he is dependent on Tramadol and the withdrawal he suffers if he misses a dose is awful. He tried coming off it and after 3 days I begged him to take it as he was in so much pain from his back and the withdrawal.

The seizure risk scares me too as on occasion he has taken up to 600mg when the pain is bad (despite my efforts to dissuade him).

I guess what I want to know is if there are any alternative non opiate based painkillers or if he does go up that path is it a bad path to take?
 
I have rotational issues and arthritis in my joins, the rotational issues alone making walking up and down steps painful as heck, went to a specialist, he said that I need a major operation on my knees but I am currently not a candidate before I am overweight and this type of operation takes it tolls on athletic people. The specialist recommended I talk to my Gp about pain meds. At first my gp said Try paracetamol, this didn't do anything, he then put me on tramadol which worked for a while but the pain has worsened

I guess my fear is that he will remove me from Tramadol to something less effective like ibuprofen, how likely would that happen here in the UK? Would they be likely to put me on some kind of stronger opiate?
 
To both the above posters, if trams no longer helpful IME the next step was tapentadol. Similar to tramadol but a more medium strength opioid.

There is always a chance you'll b taken off stronger meds, but that depends on yours r'ship with your PM.

Rtp
 
Thats the puzzle for both patients and Drs. What and how much to give. ANY opiate will create tolerance and the need of more to have same effect. Ive been thru this shit for years. I hate your dad is in pain. Back pain is the wrorst. I would prob tell you Dr and take a higher dose. I know that seems like just delaying when this dose becomes tolerance. Pretty soon you and your dad might relize you want no opiates and do different tenq for back pain. But if if hurts him that bad he needs some oxy or something. That will help for awhile but its a cycle. Idk really. If hes on Tramadol thats when to get off cause that stuff is weak but even that and codiene will give misery of a missed dose. Im in process of getting off mine and its been a process. Im used to taking 6 dilaudids a day and now i dont take my 4 am dose and i wake up in pain and shakes. Sucks. I guess i wuld investigate eastern medicine or some activities if any he can do. I know a bud of mine goes to eastern medicine for back problems and hes had 3 sessions with him and he said he feels so good and hardly no back pain. Accupuncuture and stuff. Do that before you guys fall down the opiate hole. I wish all wives were as concearned and involved. If he becomes not dependent but addicted to anything stronger you bith will go thru it. I think anybody in pain takes meds and they take away pain,BAM, youre hooked right there with no need to get high on them. Then after a week youre physically addicted. Not to mention if you happen to take higher dose and it works on pain and you feel euphoris, forget it. So yeah, i would reccomened acupunture and other eastern medicine. Im going myself next week. Thats all i got. Good luck Miss Tecal and husband
 
Hey there Miss Tecal and ladycodeine...WELCOME to this "club" no one wants to join. We have many "members" here who deal with chronic pain through various methods and modalities. We share. We vent. We laugh and we cry.

Miss T, back pain is such a common issue, yet complex to treat. Often times, meds alone are not the answer, but an adjunct to exercise, PT, tens, meditation and distraction. There are days when you just grind your teeth, trying to survive the day. The lesser amount of pain meds he can function with IMO the better off he'll be. That much Tramadol is dangerous, as you know. Believe me, I understand his pain and can relate. Does he have access to a gym or facility with a resistance pool? The non-weight bearing movement in a pool works wonders for the joints and the muscles. Moist heat packs/pads comfort my neck and back, but some prefer ice. HOT showers as I stretch my spine bring temporary relief. NOTHING will stop all of the pain, ever, unfortunately. "Comfort" though fleeting is sometimes the best we can hope for.

ladycodeine, I suffer with severe arthritis too. My joints and bone density have deteriorated for years since I went through treatments for Stage 4 Endometriosis. The Lupron savaged my bones, yet did nothing to even slow the progression of disease. I can totally relate to your knee pain. There is nothing I've found to completely alleviate the pain, but Synvisc One injections have been a miracle for my continued mobility. My ortho has recommended TKR and right THR for years, but I'm too afraid. The hyaluronic (sic) gel serves as a cushion where the cartilage has disintegrated. As I said above ^^ to Miss T, I swim daily, as weight bearing exercise is a big no-no for my skull, spine and joints.

Toradol is an anti-inflammatory that works wonders for me, but it can't be taken long term. I received it through IV when I was hospitalized recently. If only I could take it forever...:\ Diclofenac is a good one, too, but beware of tummy issues. Arthrotec has a coating to protect your GI. Have you talked to your doctor about possibly Mobic or Celebrex?

I have more wrong than right, health wise. It's a struggle on the best days and those don't come often. My GI/pelvic issues are front and center right now. I may be facing more surgery. I am overwhelmed by fear of the worst right now.

I'm in a bad place emotionally, so not posting much. However, if any of you need support, I'm here for you. :)

closeau, good to see you! Hope the move is in the rearview mirror for you and you can focus on your new start.
 
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ladycodeine said:
I have rotational issues and arthritis in my joins, the rotational issues alone making walking up and down steps painful as heck, went to a specialist, he said that I need a major operation on my knees but I am currently not a candidate before I am overweight and this type of operation takes it tolls on athletic people. The specialist recommended I talk to my Gp about pain meds. At first my gp said Try paracetamol, this didn't do anything, he then put me on tramadol which worked for a while but the pain has worsened

I guess my fear is that he will remove me from Tramadol to something less effective like ibuprofen, how likely would that happen here in the UK? Would they be likely to put me on some kind of stronger opiate?
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It seems like ur dr is trying to find the weakest opioid possible that will work for ur pain like all drs do. He's probably gonna move u up to whatever's next on the list, hydro maybe. I could be totally wrong but a lot if us had to go through the same thing until we finally found something that worked, it's a process but well worth it once u find the med that works best for u. I live in the states so it's a little bit different here. No one will know for sure what ur dr is gonna do but I'd bet that he was just gonna move u to the next opiate on the list depending on ur history. Good luck and god bless!
 
Thanks for your replies guys. Dixichik - he did use a gym at one point which did seem to improve his pain somewhat but he has a very full on job and we recently had a baby so unfortunately he stopped going as he didn't have the energy or time. I will try and persuade him to restart though as it is a really good idea. He also uses meditation when he can - but found TENS gave little relief. I just hope that the pain doesn't get any worse as he is just about managing and is able to work currently but I don't know how his condition will progress over time. It's a difficult one because I love the relief that the tramadol gives him at times but we have already had one car accident due to the fact he had missed a dose - luckily it wasn't serious and no-one was hurt.

I broke my back 10 years ago and it was missed by my GP and I was dismissed with ibruprofen and told it was a strain; I walked around in agony for an unbelievable 6 weeks before I was sent for scans and I believe that caused more permanent damage as it hasn't been right since. I took dihydrocodeine for that which I think only worked because it knocked me out and couldn't feel when I was asleep. GP dished it out to me like smarties but I stopped taking it when I realized I was taking it to block out psychological pain and I had saved up a large enough stash to do something silly with. Fortunately the pain kinda eased off so rarely took anything for it but being pregnant and now lifting and carrying a little one it is starting to rear it's ugly head again, I'm gonna try some yoga/pilates and see if that helps.


I'm so sorry you guys are all hurting - both physically and emotionally. Chronic pain takes such a toll on life and I wish there was an answer.
 
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