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Constant pain what do I do now, basic story.

mr peabody said:
Dearest PO,
I'd no idea you suffer from migraines. In case you've not heard, Sumatriptan is miraculous for that.
Kindest regards,
pb♥
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Thank you my dear, sweet @mr peabody for the suggestion
I have tried that. I have tried everything really.
except magick mushrooms.
These migraines got knocked out of control when I was head injured from someone hitting me at high speed on the freeway.
The MS Contin works good for me honestly. I am just going to stick with that.
My old fashioned, good old doctor got it right!

and yes @Captain.Heroin it was a dumb idea and I intuitively knew that.
pressure from family and a good sales pitch from this “specialist “.
The brochure the doctor gave me said nothing about these major side effects!
and I had 40 of those injections all over my face, head, and neck! UGH! Feeling every last one of them too!!
It was not until I woke up in the night feeling like someone had hit me with a baseball bat in the back of the head that I saw the list of horrific side effects.
I was going down the list saying “check”, “check”, “check”.

Do NOT have the Botox injections.

Prednisone was also horrible for me.
I am sure happy to hear it is working for you though @mr peabody 👍

@bluemonkey I sure am sad to hear about the cerebral palsy! ☹️
I am pretty sure that is an automatic qualifying condition for disability benefits.
Disability benefits come with Medicare. All the doctors are liking Medicare now days.
Have you tried to get disability benefits?
I am going to look that up for you.
be back.
 
bluemonkey said:
I was born too soon and have cerebral palsy. The hip issue is a side effect of that. In California you have to physically go in for refills which is why I’m seriously thinking of just saying bugger it and going on methadone
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Getting SSDI or SSI for Cerebral Palsy as an Adult
Adults with cerebral palsy may be eligible for Social Security Disability Insurance (SSDI, which is only for those who paid taxes into the Social Security system, or in some cases for those whose spouses paid into the system) or Supplemental Security Income (SSI, which is for low-income people). To qualify, an adult’s cerebral palsy has to seriously limit activities like walking or talking. The SSA details, in an official disability listing, how significant the impairments caused by cerebral palsy must be for it to qualify as a disability that prevents an adult from working.

If your cerebral palsy does not meet the SSA’s official listing for cerebral palsy, you still might be able to get disability benefits based on a medical-vocational allowance if you can show that your cerebral palsy reduces your capacity to work so much that there are no jobs you can do, considering your education, your prior job experience, and your age
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You are having to use a wheelchair @bluemonkey so yes, your cerebral palsy is significantly effecting your ability to walk.

I am just furious that you would be left without help!
You obviously require medication and pain control for this condition!

Do not give up my friend.

I just hate to think of you having to go down to the methadone clinic everyday! That is a joke!
There has got to be a doctor out there who will help you.
I would try the suboxone doctors because addiction patients usually have medicaid or no insurance.
I am sure when you showed up with cerebral palsy in your wheelchair they would quickly prescribe you pain control!

I found help by showing up at the emergency room writhing in pain and they had me talk to the patient advocate.
I was literally freaking out on the floor of her office, begging her for help and she got me an appointment with the doctor I see now.
He has helped me for ten years now! Been a great doctor!

The hospital would be a good idea for you actually. They know all the doctors/ insurance/ benefit help etc.
Show up there in pain and tell them you need a patient advocate!
 
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xxsicknessxx said:
The thing that's becoming to much though is when I cough and I smoke weed so I do cough a lot or a sneeze my entire body hurts its just I don't want to think this is from the car accident I mean any would I be in pain a year half later? I don't understand.
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I was also in a car accident and I was very confused about the pain not going away also.
I did not understand either.
I had no idea about “chronic pain” but I sure do now.

Let us hope and pray that your pain will clear up but if it has been a year and a half and you are still in pain, you are most likely stuck in the chronic pain category. ☹

You are not alone. Read through your thread as there are many good suggestions for help.
I am so sorry.
❤
 
Here disability benefits come with Med-cal if you are under 65. If you have a parent who worked in California for 20+ years you can apply for SSA which will give you both medi-cal and Medicare once they retire but it can take 6-8 months to hear back on the decision. Mom just retired last month. My SSA application is in but I won’t have it until July or August. I have SSI which only comes with medi-cal.
I don’t want suboxne if I can avoid it. I have done withdrawal twice and the idea of living through that on purpose for 24 hours just so I can take another medicine... no thanks. Might as well just be sick for another 5 days and be done with it.
Yes I have legitimate hip pain that has been getting worse but I also run out of medicine early because of the new CA regulation about how much medicine a primary care doctor can give you per day. I used to get twice as much as I do now so I run out two weeks early now. Currently I have 2 pills left and 2 weeks until I am supposed to out. So I am waiting my time out and then I will take my left over medicine and see if the ER will help with refilling it since I don’t have other options right now. But I am planning to schedule an appointment with the methadone clinic for the next day in case they won’t. I haven’t been in any ER since September of 2018 so I’m hoping that if I go in with my dated bottle and act like I have no clue why I feel like I am on a slow tour of Hell they will be nice.
 
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^^You do realize those regulations are coming up more and more because people like yourself run out and then try to go into the ER for an early refill. That will scream addict to them and your more likely to lose your script than get a refill. You think your the first person to try that?

To use the ER to get more pain meds you gotta be creative, like one guy I knew who shot himself in the foot while in withdrawal. He got his pain meds but yea...

Gotta wait it out unfortunately..

-GC
 
G_Chem said:
^^You do realize those regulations are coming up more and more because people like yourself run out and then try to go into the ER for an early refill. That will scream addict to them and your more likely to lose your script than get a refill. You think your the first person to try that?

To use the ER to get more pain meds you gotta be creative, like one guy I knew who shot himself in the foot while in withdrawal. He got his pain meds but yea...

Gotta wait it out unfortunately..

-GC
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I agree.
you have to wait it out.
sucks I know.

I got me some Kratom and am going to try that mixed with a small dose of my pain medication for those days when you are without.
I have researched it pretty good and all the experienced people here assure me it will work well.

order up some kratom @bluemonkey

I think the methadone is a bad idea. I am sorry you are feeling that desperate.
I have been there.
 
I worked in an ER in a large metro area with a lot of methamphetamine and heroin addiction. They literally created a blanket rule to not provide refills for people in this exact situation. Idk if that is technically legal or not and obviously it wasnt announced to patients, but behind the scenes the docs all talked about it. They almost seemed to enjoy denying people.

Idk where you're at OP (and dont want to) but that's been my experience. I double what G-chem said.

I have a few chronic pain conditions and through a series of incredibly fucked up events wound up on medicaid. The barriers to treatment I am experiencing are incredibly upsetting. I understand that aspect. Fortunately I'll be back to private insurance very soon.

I'm sorry you are suffering
 
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G_Chem said:
^^^Try DMT my friend. I too get nasty, near cluster level migraines that used to last days.

Diet changes were the biggest factor in getting them under control but in the off chance I do get one these days a small barely perceptible hit of DMT can really take it out. And usually it goes for good, or until the next one of course.

Truly give it a try, you won’t be disappointed.

-GC
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If only it were obtainable to me these days...
My wife suffers from severe migraines and endometriosis. She has gone through so many medications. She's finding some relief with a newer one called aimovig. Monthly self injection.
 
well, I will be being honest about it unless you have other ideas? It’s not my fault that I am switching my medi-cal counties because of no longer being a student and able to use mom’s address. Also my thought was going in the morning so that they can call my dr if they want.

right now I’m maintaining on Kratom every 3 hours and loperamide. But it’s barely working for withdrawal much less pain.
My thought was waiting the 2 weeks out until I am supposed to be out and maybe a bit longer then do it.

my normal routine is waiting the last two weeks until I am supposed to be out of medicine and then going to my primary dr. The trouble this time is 2 fold: A. As of January 1: I no longer have my mom’s insurance since she retired and B. I am no longer a student officially so I’m having to switch managed Medi-cal counties from Santa Barbara to Riverside

it will be at least 45 days before I have a primary care doctor again. Thanks to the government being slow about the transition and that is not my fault. Being out a bit early yes okay I will own that even though it’s not fair but the 2 month gap or month and a half is not on me.

so, to be clear my thought was Not to try getting early medicine from anywhere but trying the ER because I don’t have a primary care doctor when the time is up. I have lived here 2 years and have only been to the ER once in all that time.

From 2 past experiences it seems like timing and having or not having other options is key. First experience: 5 days before my medicine is due my dental cap came off while flossing. Thus catapulting me into a world of pain for which the 1-10 scale felt wholly inadequate. Since it happened near midnight I went to the ER hoping that they could glue it back in. The dr literally asked me if I did it on purpose because I was out of pain medicine early ( there’s a California database they can check) and no I didn’t because I wasn’t out early! Seems like if you go in early you can be as creative as you want and still get nothing.
Experience 2: a few years before the first one, I was admitted through the ER ( being away from home at college sucks because you have few options except ER) for a partial bowel obstruction. Given the situation they weren’t going to give me any pain medicine until I admitted to being dependent on it. They asked how much I take at home and gave me that much in the hospital with no problem or huge fuss over it ( although even then they asked if I still had some at home and I did). The lesson never ever go in before day 31 for anything if you can avoid it. But I’m hopeful that that is different than going after day 31 because I have no other options currently.
 
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I wonder how many people with an opiate problem have chronic pain. It was in hospital where I got the taste of IV morphine, with a button to release it every 2 mins if I wanted. It was super nice on top of takin the pain away. Between pregablin and oxycodone I can keep the pain at bay, but the docs are forever wantin to reduce it.
 
At this point, I think I’m at the all but problem point. I’m finishing graduate school with a B average. I manage church and other social obligations fine. The medical community doesn’t know I run out early. That said, it would easy enough to just tell the methadone clinic what they want to hear. My dad is a retired rehab counselor and he agrees with me about where I am on the problem continuum. However, he said he would fully support me and just go along with me if I did go to methadone. Also, without Kratom I think I would have a big problem. And dad gets that score too. It’s scary for me to the point of panic attacks when I hear news about potential bans. I had to remove my email from the AKA newsletter email list
 
most of the time i'm not consciously aware that i have metal at least in two different parts of my body if I'm remembering correctly. Haha. Rough and tumble lifestyle = bound to get a few injuries.
 
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