Opioids When Doctors Can't Grasp the Idea that you NEED More than The "Daily Max. Dose"

[Keif' Richards]

@Keif' Richards thanks for your reply I’ve thought about asking my oncologist to prescribe me methadone pills for pain management since the nearest clinic is an hour away and I’m too weak to drive most days. I fucked up telling her I was once addicted to opiates I should have kept my mouth shut but I had been off them for 10+ years and really at this point who cares if I get addicted to them again? Hell it got so bad I started using Fent off the streets trying to control my pain and honestly it’s the only thing that gives me any quality of life so I figured why not and im using small amounts almost daily with some T breaks and since then I’ve been a lot more active, felt a lot better and have had some pretty decent days. A lot of people with my stage cancer and prognosis are on extremely high doses of opiates to control their pain and rightfully so it just happens I found the one doctor who has zero compassion and looks at me like I’m just a junky wanting a fix not someone dying of cancer. Hopefully when the time comes for me to go on hospice the decisions will be out of her hands.

Yea, that's pretty fucked up. It has generally been the case throughout recorded medical history, be it in times of prohibition or not, that cancer implies you're entitled to whatever pain medication is required to make your life not-miserable. It's really bullshit. So, I have to ask the tough question, are you actually terminal at this point? You shouldn't have to go to a Methadone clinic to get pain medication.

You might be unaware, but there has been a massive, recent crackdown on the prescription of Opioids in Kentucky. For one reason or another, they are really pissed off at certain docs and their prescription practices. I don't know if it's an isolated incident or if it's truly statewide, but I'm not entirely surprised to see this. You should check out our Drugs in the Media sub-forum, as we have the story posted there.

The fucked up thing? You tell your doctor you once had a problem with Opioids so he fucks you over. The truth is, if you went public saying exactly what's going on, being that you're a confirmed cancer patient and the only way you can manage your pain is by buying Fentanyl off the street, it would rattle the fucking cages quite a bit. America is known to cannibalize its more vulnerable, in this case, addicts and in modern times, actual, legitimate pain patients. BUT... we still have some kind of soft spot for people with Cancer.

I would recommend making some fucking noise. Pick up the phone. Send e-mails. Talk to licensing boards. If you stay silent and resolve yourself to a life of street Opioids, you will end your life in misery, not to mention the fact that you could help many others in your position.

I'll pledge my help to you if you want it. I once got a counselor at a rehab's license fully revoked. Granted, he had been cited twice already for similar behavior. I got the nurses put on probation, requiring an observing nurse to handle the distribution of medication at said rehab. I did all of this simply because I hated them both. Our combined hatred can make a ruckus for these assholes.

 

[LucidSDreamr]

In your situation of having your doctor suspect ornknow that you are an addict...your best bet is methadone or bupe for addicts. Youbwill get very large doses surpassing the analgesia of what your doctor gives u.

Your doctor is cool for giving you anything at all the dea could throw him in prison for decades whenever they feel like it with no cause.

Especially Ina southern state like Kentucky it's a miracle you are getting anything being a known addict. I know your pain is very real and you deserve pain drugs regardless of being an addict.

It's very fucked right now for pain patients.

I would start all over again with new doctors possibly. I have a system of criteria for doctor selection and approach to them that is very successful even in these days. I could walk you through. But I'm only needing low doses like 15 mg methadone for pain per day or 30 to 40 hydrocodone mg...so it's easier to get that.

I have been able to get really heavy shit during has flares from my doctor too but I save that for once every few years

 

[GetMeOutOfThisCRAP]

I both do and don't mean in term of required analgesia. So because of my history (a decade ago I almost died of extremely serious acute pancreatitis - caused by a combination of alcoholism and bulimia - and I still have constant pain mostly due to have three large pseudocysts on my pancreas, one larger than a tennis ball...they gave me IV morphine 6 x day for 12 weeks in hospital then oral Oxy at home after, I got addicted to it) my doctor has flat-out said I will never be prescribed any of the strong opioids again (unless as an inpatient).
At first I was only given codeine but after I confessed to him I was using HEROIN because I was in so much pain and I felt like I had no other options, he put me on Tramadol...which helped slightly...and then Dihydrocodeine.
He has me on the max. dose of DHC (240mg/day) and turns a blind eye to the fact that I always call for a repeat script 3-7 days before my 14-day script is actually due....but I've told him that I need to take 12 pills a day (360mg) JUST to not be sick. I'm still in serious pain at that dose, but at least I'm not also in withdrawal....and that 16 pills (480mg) is the minimum I need to tolerate my pain. Not to be pain-free, just to be able to live a normal life and function at basic tasks.
He just keeps repeating about 8 a day being the max dose and I've explained every way I can that I 100% COMPREHAND THAT FACT BUT FOR MY DEPENDENCY AND PAIN IT ISN'T ENOUGH but he doesn't seem to get it.

What can I do if he won't increase my DHC OR put me on a stronger med? I understand my history, but I thought I could at least like get a low-dose Fent patch for background pain. I've also told him he can have my parents hold whatever opioid he prescribes and give it to me when it's due. Or that I will pick up daily at a pharmacy (like when you get put on methadone).

I've even been considering going to the methadone clinic just to get methadone for pain (Obv I'd lie and tell them it was for opiate addiction) or even going back on Heroin, but it all seems so ridiculous.
My pain isn't even an "invisible" pain; scans show the enormous cysts, pancreatic damage, etc and I have everything on hospital records.

I'm getting seriously desperate.

I'm sorry this is where sometimes American doctors are too narcissistic and assume they should have full control over someone else's pain. Its too late now, but such a tricky topic and I wish heroin was something you COULD disclose to a doctor (meant to be on your team) and have it not instantly swatted down as JUNKIE JUNKIE. Its just not fair.. heroin is unfathomably common. More common than most drugs out there.. at some points there is a heroin cult following like marijuana. In 2021... its time to acknowledge that heroin is not done by 200 ppl in the USA. Its everywhere.

 

[Balissa]

Yea, that's pretty fucked up. It has generally been the case throughout recorded medical history, be it in times of prohibition or not, that cancer implies you're entitled to whatever pain medication is required to make your life not-miserable. It's really bullshit. So, I have to ask the tough question, are you actually terminal at this point? You shouldn't have to go to a Methadone clinic to get pain medication.

You might be unaware, but there has been a massive, recent crackdown on the prescription of Opioids in Kentucky. For one reason or another, they are really pissed off at certain docs and their prescription practices. I don't know if it's an isolated incident or if it's truly statewide, but I'm not entirely surprised to see this. You should check out our Drugs in the Media sub-forum, as we have the story posted there.

The fucked up thing? You tell your doctor you once had a problem with Opioids so he fucks you over. The truth is, if you went public saying exactly what's going on, being that you're a confirmed cancer patient and the only way you can manage your pain is by buying Fentanyl off the street, it would rattle the fucking cages quite a bit. America is known to cannibalize its more vulnerable, in this case, addicts and in modern times, actual, legitimate pain patients. BUT... we still have some kind of soft spot for people with Cancer.

I would recommend making some fucking noise. Pick up the phone. Send e-mails. Talk to licensing boards. If you stay silent and resolve yourself to a life of street Opioids, you will end your life in misery, not to mention the fact that you could help many others in your position.

I'll pledge my help to you if you want it. I once got a counselor at a rehab's license fully revoked. Granted, he had been cited twice already for similar behavior. I got the nurses put on probation, requiring an observing nurse to handle the distribution of medication at said rehab. I did all of this simply because I hated them both. Our combined hatred can make a ruckus for these assholes.

I’m really to make a fucking scene even if I don’t help me it may help others in the future like you said.. I am considered terminal at this point I’ve lived with it almost a year and it’s truly a blessing I’ve made it this long only 5% of people make it too the year mark and only 1% of people make it to the 5 year mark. It’s super aggressive and extremely lethal not to mention the second most painful cancer and second deadliest only asbestos related lung cancer has it beat. I’ve contacted palliative care in my area for pain management they’re actually coming to my house Monday morning for a consult. I’ve also learned the hospital had patient advocates I can get in touch with. I think the reason my doctor is refusing to give me anything has something to do with me calling HR and the manager of the oncology unit requesting to switch doctors so many times. My main complaint with her is her ineffectiveness she won’t take my calls and will not msg me back when I have questions. Not to mention how she told me I had cancer, she came in the room and said I’m so sorry and started crying and just kept saying I’m so sorry. I’m not an emotional person I like facts and statistics and a course of action. Seeing your oncologist crying brought out my emotions no doubt I gave up right then and there, thinking dying from this was inevitable. I went in February for a gallbladder surgery and my GI doctor came in the room and said you need to keep your follow up appointment you have cancer and just left the room. I went too my follow up with my GI and she did test after test and 4 different surgeries to change a stent but never mentioned cancer and when I brought it up she just kept saying we’re running tests. I didn’t hear from her until September she called and said I had pancreatic cancer and she was referring me to an oncologist. This was 7 months later and my oncologist said the time they got me to her my cancer went from stage 2 to stage 4. So my oncologist sent me to a specialist at UK hospital for a surgery consultation and by the time the got me to him it was too advanced to do the surgery. He was so fucking mad he called the hospital administrator the head honcho and ripped their ass saying even a month earlier he could have saved me and he told me I didn’t need another doctor I needed an attorney. So between a pending lawsuit for medical malpractice and a doctor pissed I requested any other oncologist in the hospital which was denied because they won’t switch in the middle of treatment I’m truly fucked. I’m ready to go to anyone who will listen and get shit done. I’m not bragging when I say this but my dad is really well connected he’s in the masons and the Shriners and has donated a ton of money to the Shriners hospital and his brother is a well known attorney (and a ruthless dirty motherfucker) he was once a state representative and even run for senate. But she looks at me as some poor uneducated junky she can just dismiss. The class bias in Kentucky is unbelievable. I have never asked them to use their connections for anything other than getting me out of legal trouble but Im ready to give my uncle a call and see what he can do if anything. I’ve also msg the people from the Pancreatic Cancer Society too see if there is anything they can do to make some changes. It’s not about me getting adequate pain control anymore it’s about making changes how doctors let people die or go from being stage 2 and being able to beat this shit to stage 4 with no options left because my results sit on their desk for 7 months. It’s about doctors ignoring patients msgs asking for help and being completely ineffective. Im on a mission to make some changes. I trike believe if I was at any other hospital this wouldn’t have happened but it’s the only hospital within an hour drive. Sorry for the rant I’m just so mad over the lack of treatment and lack of respect and compassion.

 

[Balissa]

@Keif' Richards i would love you help thank you and know I appreciate the fuck out of you man

 

[Balissa]

There is a shot I need after every chemo treatment called Udenyca and it causes your white blood cells to go through the roof to fight infection but how it works is by causing your bone marrow to grow and expand and it makes every bone in your body feel like it’s breaking. After the shot for 3 days I can’t walk I lay in the bed in agony I’ve actually prayed for God just to go ahead and take me because I’ve never felt pain like that. I’ve had 26 ( yes 26) broken bones due to 3 really bad car wrecks and an ex husband who loved to beat me so I know pain I’ve had my sternum and 7 ribs broken at once when I got hit by a drunk driver. I was in a corvette and it just went to pieces all around me my head busted out the windshield the steering column had me wedged in I had to be cut out it also broke my hip broken and fractured my skull and those we’re probably the worst breaks. I’ve had a pot of boiling water thrown on my stomach and legs. I had 3 kids all natural no drugs at all. So I know pain. But when I take this shot it feels like every bone in my body is broken my hand and feet drawl up and I get cramps in my neck and throat. My skin feels like it’s covered in acid. All I can do is lay and try not too move. But the shot keeps me from being sick and catching anything it keeps me from dying of a cold. I didn’t take it last round because of the pain and I’ve been sick for 2 weeks with what feels like the worst flu I’ve ever had. So tomorrow I’ve got a round of chemo for 8 hours and I wear the chemo bag home pumping 5500mg of Florinox for 48 hours strait. I get the bag off Saturday and I’m supposed to get the Udenyca shot Sunday so I have to choose between 3 days of being in unexplainable pain or being sick for the next 2 or 3 weeks and having my immune system so low a cold could take me out. I really don’t know what to do besides going Saturday and buying fentanyl so I can get through those 3 days without considering suicide and I don’t say that lightly I’ve considered it every time I have to take that shot. I think if I didn’t have my family I would have already killed myself.

 

[Keif' Richards]

I'm at work right now, I just got done and I'm waiting for my bus to bring me back home, but I'll be doing some digging and try to come up with a plan of action. As awesome as revenge is sometimes, that's not what we're doing here, it's just a happy collateral damage along the way. If everything you've told us here is true, and I don't doubt it by the way, then I believe you've bee n completely mistreated. The fact that your Cancer got that much worse in the period of time in which you could have been saved is a travesty in my opinion.

I will let you know what I come up with either today or tomorrow. You have my word @Balissa that we will do everything possible to try to get you to a better place. This is all time that you should be spending with family, not racked with pain 24 hours a day. The problem with doctors is, when they're caught in bullshit/lies/malpractice/negligence, they're strategy is almost always to double down on their behavior and go all or nothing. They don't typically do an about face and say "I'm so sorry, but I was mistaken and it has cost you dearly, how can I make this better?" No, they're more likely to call you a junkie and check to see if your cancer paperwork is some kind of forgery designed to get you Morphine.

If there is anything at all on this planet that can help get you more comfortable, we're going to find it. I'll be back to here shortly, but I promise I have you in the back of my mind and I'm thinking of all the possibilites.

 

[OpiateKiller]

The problem that lies here in the fact is that the human body's ability to produce a tolerance to drugs in my eyes, is infinite.

Some people can lliterally shoot gram after gram of heroin, and not die. Some people can snort an 7 grams of cocaine in a night, and be fine.

Some people can eat 10 xanax bars, or 10 valiums, and not even be remotely impacted.

Tolerance is never ending, so when you get prescribed a med, the body is going to adjust, and eventually plateau. Just like with everything in life, it's gonna plateau and the good effects are going to diminish rapidly.

Honestly, if there was no prescribing limits, I would increase my patients pain medicine dose every month. Because that is the reality.

Purdue had that part right with OxyContin, the only way for the drug to continue to work and be effective... is if you increase the dose.

The problem is, that if you try to stop, or you realize you're in too deep when you increase the dose, you are that much more fucked trying to climb out of the addiction you created.

 

[Balissa]

I'm at work right now, I just got done and I'm waiting for my bus to bring me back home, but I'll be doing some digging and try to come up with a plan of action. As awesome as revenge is sometimes, that's not what we're doing here, it's just a happy collateral damage along the way. If everything you've told us here is true, and I don't doubt it by the way, then I believe you've bee n completely mistreated. The fact that your Cancer got that much worse in the period of time in which you could have been saved is a travesty in my opinion.

I will let you know what I come up with either today or tomorrow. You have my word @Balissa that we will do everything possible to try to get you to a better place. This is all time that you should be spending with family, not racked with pain 24 hours a day. The problem with doctors is, when they're caught in bullshit/lies/malpractice/negligence, they're strategy is almost always to double down on their behavior and go all or nothing. They don't typically do an about face and say "I'm so sorry, but I was mistaken and it has cost you dearly, how can I make this better?" No, they're more likely to call you a junkie and check to see if your cancer paperwork is some kind of forgery designed to get you Morphine.

If there is anything at all on this planet that can help get you more comfortable, we're going to find it. I'll be back to here shortly, but I promise I have you in the back of my mind and I'm thinking of all the possibilites.

I quit chemo today.. I haven’t ate in 3 days or held down water or medicine in 2.. I was hooked up to chemo in pain I’ve had pancreatitis I know that’s what it is.. I was crying my eyes out hurting. My mom got the Dr and I asked her to please help me she said I can’t give you anything else you’re on oxy and morphine I said you took me off morphine months ago. She said you shouldn’t have pain I’m not giving you anything else. I said can we do a CT to see if I have pancreatitis or the pseudo cyst has burst. She said no your just addicted to these meds. I said lady you can’t tell me I don’t have pain I said have you ever had pancreatic cancer, pancreatitis or done chemo. No, but I have patients who are okay on their meds. Are the terminal, is it metastatic? Even if I was the biggest junky in the world I still deserve to die with a little dignity and pain control. I told that nurse to unhook me now I’m leaving and im not coming back. I also to Dr Salem she was absolutely the most incompetent, ineffective bitch and she has no fucking business being a doctor. It sucks but since she cut me off im seriously going tomorrow to buy fentanyl. It’s not what I wanted but I can’t go through this pain. I appreciate all your help man just talking to you keeps me off the edge

 

[Balissa]

The problem that lies here in the fact is that the human body's ability to produce a tolerance to drugs in my eyes, is infinite.

Some people can lliterally shoot gram after gram of heroin, and not die. Some people can snort an 7 grams of cocaine in a night, and be fine.

Some people can eat 10 xanax bars, or 10 valiums, and not even be remotely impacted.

Tolerance is never ending, so when you get prescribed a med, the body is going to adjust, and eventually plateau. Just like with everything in life, it's gonna plateau and the good effects are going to diminish rapidly.

Honestly, if there was no prescribing limits, I would increase my patients pain medicine dose every month. Because that is the reality.

Purdue had that part right with OxyContin, the only way for the drug to continue to work and be effective... is if you increase the dose.

The problem is, that if you try to stop, or you realize you're in too deep when you increase the dose, you are that much more fucked trying to climb out of the addiction you created.

Yeah 10mg of oxy just ain’t doing it

 

[G_Chem]

I remember discussing with my doctor the long term neurotoxic results of chemo, particularly on the brain and his first response was “why does it matter?” These fucking doctors can be cruel sometimes, especially cancer docs. I can completely understand your desire to quit chemo, especially with the odds and the way they were treating you it’s wise to just get comfortable in your own way.

I’ve talked about this before but I knew I had cancer for awhile and when I finally started getting it addressed realized I needed pain management after 10yrs of no heroin. The Suboxone wasn’t cutting it for the pain. So I had to source my own opiates.. Even with cancer I had to treat my own pain in this current opioid fearing culture.

I wish you the best, I can only relate so much as I had a better “flavor” of cancer than most, according to the data I might be mostly in the clear but that said I still understand just how nasty chemo is and feel for you with everything you’ve been through in that regard.

-GC

 

[LucidSDreamr]

I’m really to make a fucking scene even if I don’t help me it may help others in the future like you said.. I am considered terminal at this point I’ve lived with it almost a year and it’s truly a blessing I’ve made it this long only 5% of people make it too the year mark and only 1% of people make it to the 5 year mark. It’s super aggressive and extremely lethal not to mention the second most painful cancer and second deadliest only asbestos related lung cancer has it beat. I’ve contacted palliative care in my area for pain management they’re actually coming to my house Monday morning for a consult. I’ve also learned the hospital had patient advocates I can get in touch with. I think the reason my doctor is refusing to give me anything has something to do with me calling HR and the manager of the oncology unit requesting to switch doctors so many times. My main complaint with her is her ineffectiveness she won’t take my calls and will not msg me back when I have questions. Not to mention how she told me I had cancer, she came in the room and said I’m so sorry and started crying and just kept saying I’m so sorry. I’m not an emotional person I like facts and statistics and a course of action. Seeing your oncologist crying brought out my emotions no doubt I gave up right then and there, thinking dying from this was inevitable. I went in February for a gallbladder surgery and my GI doctor came in the room and said you need to keep your follow up appointment you have cancer and just left the room. I went too my follow up with my GI and she did test after test and 4 different surgeries to change a stent but never mentioned cancer and when I brought it up she just kept saying we’re running tests. I didn’t hear from her until September she called and said I had pancreatic cancer and she was referring me to an oncologist. This was 7 months later and my oncologist said the time they got me to her my cancer went from stage 2 to stage 4. So my oncologist sent me to a specialist at UK hospital for a surgery consultation and by the time the got me to him it was too advanced to do the surgery. He was so fucking mad he called the hospital administrator the head honcho and ripped their ass saying even a month earlier he could have saved me and he told me I didn’t need another doctor I needed an attorney. So between a pending lawsuit for medical malpractice and a doctor pissed I requested any other oncologist in the hospital which was denied because they won’t switch in the middle of treatment I’m truly fucked. I’m ready to go to anyone who will listen and get shit done. I’m not bragging when I say this but my dad is really well connected he’s in the masons and the Shriners and has donated a ton of money to the Shriners hospital and his brother is a well known attorney (and a ruthless dirty motherfucker) he was once a state representative and even run for senate. But she looks at me as some poor uneducated junky she can just dismiss. The class bias in Kentucky is unbelievable. I have never asked them to use their connections for anything other than getting me out of legal trouble but Im ready to give my uncle a call and see what he can do if anything. I’ve also msg the people from the Pancreatic Cancer Society too see if there is anything they can do to make some changes. It’s not about me getting adequate pain control anymore it’s about making changes how doctors let people die or go from being stage 2 and being able to beat this shit to stage 4 with no options left because my results sit on their desk for 7 months. It’s about doctors ignoring patients msgs asking for help and being completely ineffective. Im on a mission to make some changes. I trike believe if I was at any other hospital this wouldn’t have happened but it’s the only hospital within an hour drive. Sorry for the rant I’m just so mad over the lack of treatment and lack of respect and compassion.

It's stories like these that do kind of validate republican arguments against socialized Healthcare for us Americans.

What nightmare of waiting and hoops together care for a serious disease.

In the US if you have insurance it's and mive In a big city its pretty easy to get specialist care fast....the problem happens when you lose your job and insurance from being too sick...youre dead then...you won't get any treatment

 

[LucidSDreamr]

I remember discussing with my doctor the long term neurotoxic results of chemo, particularly on the brain and his first response was “why does it matter?” These fucking doctors can be cruel sometimes, especially cancer docs. I can completely understand your desire to quit chemo, especially with the odds and the way they were treating you it’s wise to just get comfortable in your own way.

I’ve talked about this before but I knew I had cancer for awhile and when I finally started getting it addressed realized I needed pain management after 10yrs of no heroin. The Suboxone wasn’t cutting it for the pain. So I had to source my own opiates.. Even with cancer I had to treat my own pain in this current opioid fearing culture.

I wish you the best, I can only relate so much as I had a better “flavor” of cancer than most, according to the data I might be mostly in the clear but that said I still understand just how nasty chemo is and feel for you with everything you’ve been through in that regard.

-GC

That's fucking terrifying to me. A cancer patient couldn't get opioids?

Tell me. Where do I need to move to get pain care? This is some scary fucking world we live in.

I get low dose opioids but it's all I need. If I had a health problem that required heavy shit it would be straight to fent most likely.

This is not a safe country to live in for anyone that plans on aging

 

[Robby D]

@Keif' Richards thanks for your reply I’ve thought about asking my oncologist to prescribe me methadone pills for pain management since the nearest clinic is an hour away and I’m too weak to drive most days. I fucked up telling her I was once addicted to opiates I should have kept my mouth shut but I had been off them for 10+ years and really at this point who cares if I get addicted to them again? Hell it got so bad I started using Fent off the streets trying to control my pain and honestly it’s the only thing that gives me any quality of life so I figured why not and im using small amounts almost daily with some T breaks and since then I’ve been a lot more active, felt a lot better and have had some pretty decent days. A lot of people with my stage cancer and prognosis are on extremely high doses of opiates to control their pain and rightfully so it just happens I found the one doctor who has zero compassion and looks at me like I’m just a junky wanting a fix not someone dying of cancer. Hopefully when the time comes for me to go on hospice the decisions will be out of her hands.

I’m sorry you have to deal with that!!

 

[king of nod]

I’m really to make a fucking scene even if I don’t help me it may help others in the future like you said.. I am considered terminal at this point I’ve lived with it almost a year and it’s truly a blessing I’ve made it this long only 5% of people make it too the year mark and only 1% of people make it to the 5 year mark. It’s super aggressive and extremely lethal not to mention the second most painful cancer and second deadliest only asbestos related lung cancer has it beat. I’ve contacted palliative care in my area for pain management they’re actually coming to my house Monday morning for a consult. I’ve also learned the hospital had patient advocates I can get in touch with. I think the reason my doctor is refusing to give me anything has something to do with me calling HR and the manager of the oncology unit requesting to switch doctors so many times. My main complaint with her is her ineffectiveness she won’t take my calls and will not msg me back when I have questions. Not to mention how she told me I had cancer, she came in the room and said I’m so sorry and started crying and just kept saying I’m so sorry. I’m not an emotional person I like facts and statistics and a course of action. Seeing your oncologist crying brought out my emotions no doubt I gave up right then and there, thinking dying from this was inevitable. I went in February for a gallbladder surgery and my GI doctor came in the room and said you need to keep your follow up appointment you have cancer and just left the room. I went too my follow up with my GI and she did test after test and 4 different surgeries to change a stent but never mentioned cancer and when I brought it up she just kept saying we’re running tests. I didn’t hear from her until September she called and said I had pancreatic cancer and she was referring me to an oncologist. This was 7 months later and my oncologist said the time they got me to her my cancer went from stage 2 to stage 4. So my oncologist sent me to a specialist at UK hospital for a surgery consultation and by the time the got me to him it was too advanced to do the surgery. He was so fucking mad he called the hospital administrator the head honcho and ripped their ass saying even a month earlier he could have saved me and he told me I didn’t need another doctor I needed an attorney. So between a pending lawsuit for medical malpractice and a doctor pissed I requested any other oncologist in the hospital which was denied because they won’t switch in the middle of treatment I’m truly fucked. I’m ready to go to anyone who will listen and get shit done. I’m not bragging when I say this but my dad is really well connected he’s in the masons and the Shriners and has donated a ton of money to the Shriners hospital and his brother is a well known attorney (and a ruthless dirty motherfucker) he was once a state representative and even run for senate. But she looks at me as some poor uneducated junky she can just dismiss. The class bias in Kentucky is unbelievable. I have never asked them to use their connections for anything other than getting me out of legal trouble but Im ready to give my uncle a call and see what he can do if anything. I’ve also msg the people from the Pancreatic Cancer Society too see if there is anything they can do to make some changes. It’s not about me getting adequate pain control anymore it’s about making changes how doctors let people die or go from being stage 2 and being able to beat this shit to stage 4 with no options left because my results sit on their desk for 7 months. It’s about doctors ignoring patients msgs asking for help and being completely ineffective. Im on a mission to make some changes. I trike believe if I was at any other hospital this wouldn’t have happened but it’s the only hospital within an hour drive. Sorry for the rant I’m just so mad over the lack of treatment and lack of respect and compassion.

Use whatever connects you got, whatta you have lose, go for the throat. You got my prayers darling. Much love.

 

[axe battler]

God @Balissa that sounds fucking infuriating! I'm pissed off for you. I think you should try and get that fucking foul shite of a doctor struck off. If it were me I would do everything in my power to destroy the fucker. I really hope you can get some help elsewhere, you deserve way more than you have been getting.

 

[Balissa]

It got so bad I actually went to my dad and asked for money for Fent he give it too me and I brought it home and showed him how I will take it I put a little in a spoon with water and swallowed it and after 15 minutes I wasn’t shaking from the pain he actually started too cry because I had some relief it’s ridiculous hospice came out Monday and said they were going to call in some hydromorphone but it’s still not at the pharmacy this is crazy I’m starting to swell really bad and my eyesight is going I don’t think I have too much longer I shouldn’t have to be scoring off the streets to not die in agony

 

[Xorkoth]

God your doctor sounds like a fucking asshole... not doing a good job or answering your calls, and then you complain, and they withhold pain medication for you despite being in stage 4 pancreatic cancer?? They should lose their license over that shit. Unbelievable petty and perverse...

Fuck, what a fucker

I hope you find the relief you need. What fucked up place are we in where someone at the end of their life can't even get adequate pain relief? Who cares if you get addicted? Who cares if you were before? I don't understand why someone would moralize on this like that. Disgusting...

 

[LucidSDreamr]

It got so bad I actually went to my dad and asked for money for Fent he give it too me and I brought it home and showed him how I will take it I put a little in a spoon with water and swallowed it and after 15 minutes I wasn’t shaking from the pain he actually started too cry because I had some relief it’s ridiculous hospice came out Monday and said they were going to call in some hydromorphone but it’s still not at the pharmacy this is crazy I’m starting to swell really bad and my eyesight is going I don’t think I have too much longer I shouldn’t have to be scoring off the streets to not die in agony

Sorry to hear this.are you in England or Kentucky? Absolutely terrifying that dying "sober" of cancer is the best our government can come up with to stop the flood of fent from Mexico.

What I'm even angrier at though is all the selfish pieces of shit that have no foresight or don't care about anything until it happens to them that don't care about this issue....and that attitude bleeds into everything else they view through that lens incapable of empathy. It doesn't even have to be empathy it can be selfish because this will happen to them too...they are just too fucking stupid to think 1 day ahead.

The one thing that happens to everyone is that we die...often in pain. I don't fuking get how America thinks this is ok.

 

[Keif' Richards]

The medical field portrays itself as a polished machine. As humans we grasp at straws, then we pay doctors to do the same and that is exactly what they do.

It is totally outrageous and not at all indicated medically,but the point stands. The Methadone clinic is a means to practically unlimited Opioids.

Once you get take home medication you can split your dose into thirds and dose the medication as intended for pain.