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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) v6

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^I wish someone would dig/cut out the pain in my thoracic region. I have dreams/nightmares about running frantically around asking people if they would help me and cut it out cos I can't reach it myself. It's fuct.

Love to chat with you all but I gotta run, good to hear from you stefx! Love to you all. I've been asked to see my Dr today about a blood test and some abnormalities - no surprise but haven't had this for a while. It'll be another mystery illness, meh whatever. Struggling a little with benzo WD these last few days....very confused and NO short term memory. Love you all ��
 
My friends pain is just a word like want if you realise that it should help with your pains
 
Dixie,

Can I ask, why the extra iron? Are you anemic? I remember when I was pregnant, I couldn't take the regular prenatal vitamins because all the iron made me so constipated! Or is there another way of getting iron into you? I so wish I could airlift you to an amazing hospital where they just TOOK CARE OF IT. You so don't deserve this.

Thanks for for sending me positive vibes. I woke up today and said, Nope, not going in today. I just hope my request gets approved.

How is everyone else doing? We had some new peeps stop by; any news? Come vent? SKR, was good to hear from you! That's not a good dream. Hope the doc gives you some good news with definitive answers.

Happy Hump Day.
 
Hi I have been in pain management for years(since I got my back broken in 2006..)was on tramadol after I was on lortab 7.5 from a different Dr., tramadol is not really an opiate but it does help a lot especially when u take 3 or 4 at a time to me that dose is as good as a lortab10. Then I got my disability and was able to go to a pain Dr on Medicaid(since I couldn't afford to even start going at a cost of 5 or 6 hundred for the first visit. However that Dr put me on morphine (ms contin 30mg) two a day and then he did raise it up to three a day but my problem is I do have alot of breakthrough pain and he wouldn't give any kind of ir medicine...I was also on lyrica for referred pain in the front of my ribs from a cut or damaged nerve in my back. The Dr kept refusing to change my meds except kept doubling the dose of lyrica until I got to 300 mg twice a day ( max dose)...he also started requiring me to get shots in my back ( which at first he said it wasn't required if they didn't help) plus you always have to have someone to drive u which is a difficult thing to do to go an hour away twice a month...so I started going to another Dr who put me on oxycodone 30mg (roxy) which did great except I like them too much (so does my bf) that is actually both our DOC so they never last more than a couple weeks and end up buying more whenever we can. That Dr got shut down by DEA so now I'm not in a pain Dr because I had to get a new primary Dr to get mea new mri done so I could get a referral to another well all that's done n I'm waiting for appointment to another..
So what I'm wondering is if anyone knows of a medicine that is comparable to roxy 30 because that works a lot better than morphine...I'm not sure what the Dr might write for what is wrong in my back..and I am getting tramadol again which dies help a little so I will make it to the appointment..thanks in advance....
 
Hey guys just an update i still had 4 50ug fentanyl patches at pharmacy collected em and am doing better but am still lethargic and weak and tired.. If i just had insurance they could have done an operation on me by now. But if you aint got cash? What'll you do?Peace pain bro's and sisters hope you all have painfreedays..
 
Kattmomma im sorry to hear about your back and especially the pain that you go through! Welcome!
you should discuss this with your dr and be open and honest about what you've used for pain and how much. What worked and what didnt. And if your not in pain dont use opioids just because... Your tolerance will just shoot up and when you really have pain nothing is going to work use is only for legit severe pain. Im not saying your not in pain but im just giving you some advice on opioid use in general. Always use the lowest possible effective dose. Some of us here know what it feels like to finish our meds in a couple of weeks due to being undermedicated ect..
I hope you find the answers you are looking for good luck and stay painless
 
:) Hey Peeps...Sure, Anna. I'm an open book! Yes, I am severely anemic, amongst my plethora of issues. Yay me!

I'm sorry you are hurting, my sweet, but glad you listened to your body and stayed home today. Be good to yourself with meds, warm beverages, a binky and something funny to watch.

SKR, how did your tests go? I know results take forever, it seems. No one needs to tell you, but thoracic pain is one of the most difficult to correct surgically, if at all. As bad as it hurts, failed surgery could amplify it! I definitely relate to the "cut it out!" thoughts, except I have them when I am awake. What are you taking for your pain, now?

I've spent the last month collecting, scanning, sending my records to surgeon in St. Louis (6 hours away). He specializes at their Center for Endometriosis. He has reviewed my surgical records from 22 years ago. He suggests I see a general surgeon for the bowel issues. I would never allow a "general surgeon" to open Pandora's box. He/she would not know how to handle what they WILL find. St. Louis surgeon should bring me in, do a laparoscopy to get a definitive dx. Hell, he knows first hand how this disease can infiltrate every organ of a woman's body.

kattmom...WELCOME to our humble home. Make yourself as comfortable as possible. Stay a while and talk with us, if you like. I'm sorry you are suffering. It sounds as though you've run the gambit of meds. Do you employ other modalities like heat/ice, exercise/stretching, TENS, biofeedback, distraction techniques, etc.? Others will come by with better suggestions, I'm sure.

Hope everyone gets over that HUMP today. If not, just BE the HUMP! =D
 
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=D Hey Stef...Just saw that you'd posted. I think maybe we were typing at the same time! I'm glad you're getting some relief, but enraged that you can't get the surgery you need. It's a crying fucking shame that you have to suffer at all, let alone because you don't have the means. It's INHUMANE that profit takes precedence in this crazy mixed up world. I thought you have disability insurance, sweetie. Will they not approve surgery? My heart aches for you.

I still think my pancreas is involved, with the left quadrant pain tearing into my back. Fuckers WILL NOT listen. I'm just tired of BEGGING for help. The St. Louis surgeon accepts my insurance, so why won't he take my case? He has access to fellow surgeons, whether bowel or otherwise, so should be capable of "fixing" whatever he finds through diagnostic lap. I am one of MANY who suffer with endometriosis with no hope of ever being "cured". I guess because I look fine (with caulk and paint) they think I am what I ain't. Maybe if I were bleeding out or something?

Are there any social services that could advocate for your surgery, steph?
 
Thank you for the warm welcome stef n Dixie. I have tried the heat/ice, propping w pillows under n behind my back. It pops all the time when I'm sitting down, bending, standing still, it has room for vertebra to move up n down because of the big black hole where t-8 was. I used to be very active as a horse trainer (Tennessee Walkers) and active in horse shows with them. That was great when I could do that n ride my own horse. Now I don't have a horse coz I haven't ridden since the back surgery kinda scared to because I used to love to ride the crazy ones that could n would throw you in a showring. But the danger of metal rods n screws coming out of my back and/or cutting spinal cord in half n paralyzing me is too scary so that's why I don't have any horses now...they would not have any life imo. Without the joys of exploring the world as your best friend...well enough about that subject its too depressing ...that's life...ahhh...so anyway I found out today that my referral STILL HAS NOT BEEN SENT TO PAIN DR WITH MRI REPORT.....OH that makes me so mad it was supposed to have been done last week



How difficult is it for a nurse to send a fax with a recommendation for pain management to a Dr that specializes in PAIN management...damm it's only a freakin fax the she just has to get it sent..I talked to the pain clinic that I can go to on Medicaid...and they still have nothing on meat all....if I could find a family Dr that could-/would write pain meds I would be fine but that a not possible I believe except tramadol I do have a scrip for ninety a month ....which barely takes the edge off but it will keep the worst of the eds at bay...and on good days they can help but those days are few and far between. Well sorry guys for rambling on and venting a little but I feel more at home in this thread than other I have visited/posted in....it's clear that y'all understand and empathize or sympathize with me it's not JUST an addiction for the hell of it to get high because imho opinion I really don't get high I am either in pain or out of pain or somewhere in between....thanks to my ex ~he made sure I will think of him every day when I wake up in pain and go to sleep in pain....the only way I can get any sleep is with amitryptilline..ambien is better but drsaround here don't like giving to u coz it's controlled..but 150 mg amitrips works ok if not in severe pain or wds. Oh. Yeah. Did I mention I HATE wds...especially the restless leg n arms flailing about in the bed...which nothing stops that imho. Except opiates..again, thanks girls for welcoming me ...bye for now.
 
Thank you for the warm welcome stef n Dixie. I have tried the heat/ice, propping w pillows under n behind my back. It pops all the time when I'm sitting down, bending, standing still, it has room for vertebra to move up n down because of the big black hole where t-8 was. I used to be very active as a horse trainer (Tennessee Walkers) and active in horse shows with them. That was great when I could do that n ride my own horse. Now I don't have a horse coz I haven't ridden since the back surgery kinda scared to because I used to love to ride the crazy ones that could n would throw you in a showring. But the danger of metal rods n screws coming out of my back and/or cutting spinal cord in half n paralyzing me is too scary so that's why I don't have any horses now...they would not have any life imo. Without the joys of exploring the world as your best friend...well enough about that subject its too depressing ...that's life...ahhh...so anyway I found out today that my referral STILL HAS NOT BEEN SENT TO PAIN DR WITH MRI REPORT.....OH that makes me so mad it was supposed to have been done last week



How difficult is it for a nurse to send a fax with a recommendation for pain management to a Dr that specializes in PAIN management...damm it's only a freakin fax the she just has to get it sent..I talked to the pain clinic that I can go to on Medicaid...and they still have nothing on meat all....if I could find a family Dr that could-/would write pain meds I would be fine but that a not possible I believe except tramadol I do have a scrip for ninety a month ....which barely takes the edge off but it will keep the worst of the eds at bay...and on good days they can help but those days are few and far between. Well sorry guys for rambling on and venting a little but I feel more at home in this thread than other I have visited/posted in....it's clear that y'all understand and empathize or sympathize with me it's not JUST an addiction for the hell of it to get high because imho opinion I really don't get high I am either in pain or out of pain or somewhere in between....thanks to my ex ~he made sure I will think of him every day when I wake up in pain and go to sleep in pain....the only way I can get any sleep is with amitryptilline..ambien is better but drsaround here don't like giving to u coz it's controlled..but 150 mg amitrips works ok if not in severe pain or wds. Oh. Yeah. Did I mention I HATE wds...especially the restless leg n arms flailing about in the bed...which nothing stops that imho. Except opiates..again, thanks girls for welcoming me ...bye for now.
 
Welcome katmomma. Sounds like you have tns of shit going on. That nurse needsvto fax that shit!!! I would recommend dillaudid. I have had a lot of success withbit and i could be wrong but i dont think it jacks your tolerance up like oxy. At least for me. Ive been on 8mg for couple of years and their stil effective unlike oxyco. With oxy if ne on a huge amount now. Snywsy, welcome and good luck and keep us posted!!
 
Hello everyone, I have been away for a while. I am not doing so well. This hasn't been the best year for me so far. I am smoking weed like a space cadet lol. Constantly bonging and dabbing just to ease the stress and the overall suffering. I find it helps my digestive system to, and with the constipation associated with opiates. Also, it has been doing a good job of keeping me from abusing painkillers. I am down to 30mg of oxy a day (earlier this year it was #4, stopped that and was at around 80mg oxy for a while even still feeling like shit). So I have made some 'progress' I guess, but I don't know why I say that when I haven't really accomplished anything. I am wired up with so much energy, initiative and motivation when I am pain free on oxy or h but when I start tapering I become a bedridden zombie. It takes months and months and months to show improvement becauseAnd if I try to move down to 20mg I am completely wrecked with withdrawal symptoms. I have a lot of cravings for that serious stuff, but when that happens I try to just dab a lot of hash oil and mellow out. Seems to work but I know I'm gonna crack. I try to take less, but I end up taking more.

I'm looking forward to relapsing, all I really care about is being pain free so that I can function like an average guy in society. That's just not the case presently. I'm an empty shell. I'm scared though. Heroin is serious shit, and I honestly cannot live without it. Every time I stop using it, I have proven this to myself repetitively. I can manage it for a little while but months down the road I get really serious cravings once I've seen that things just don't work out for me. Life is short and I am the opposite of lazy so I hate seeing the pain slow me down. It just sucks because I was all about health, athletics, moderation before my injury. I never ever would have tried dope, and I remember trying oxy a couple times before I hurt my spine and not really seeing much in it. I think I've sniffed so many pills and dope at this point that my nose is noticeably fucked up. My work/career life is practically non-existent at this point and with my education it should not be this way. I am extremely stressed but I think once I'm properly medicated I'll be able to function just fine.

Cannabis has turned out to be useful for my mild/moderate depression (well I don't fucking know... I've never seen a psych or whatever... but a little weed makes me a different and more mellow person). I don't know what counts as major depressive disorder but I'm deep down inside under the various layers of attempted self treatment I am nothing but extreme suffering waiting to be released from this prison of a body. The benefits of weed are all cognitive and mild, it can't in any way touch the extreme torture of my chronic panic attacks, and spine pain. It doesn't worsen nor help that, but it can help change my perception of my problems and ease the depression. If I am having an explosive outburst of anger, weed can immediately chill me out to, so I understand that I'm using it to help my mood problems (but I also just plain love the green dragon and I see no problem with recreational use of it, anything to make me feel better right). I accept that I need powerful opiates to function. There's no shame in it if you are just taking what you need to be out of pain and I think there should be easier access for anyone who claims to be suffering. Often, like in my case, my spine is extremely fucked up at one very specific spot, but they did not see visible damage with MRI. And then they stopped trying to diagnose it. It's insane but I think it's cognitive tissue. Something is very very wrong and it was triggered by a sports injury. My doctor just said that with a lot of patients, they often can't see physically where the pain is coming from. I think in my case, it's a pinched nerve or some sort of nerve disorder that could be easily overlooked. I'm so lost in life for years I have searched for an answer and the doctors have none.

I was trying to smoke way too much weed for pain relief, but now I'm seeing weed for what it is to me: a stress reliever, antidepressant, and recreational drug. It's not really a habitual medicine unless I'm tapering my opiate dose which it is very very helpful for. Now that I've tapered though to a reasonable level I just want to start up again though because I know I'll have a wonderful summer. I'll be able to go for hikes with friends and play my guitar and practice yoga and maybe even hold a job. As soon as my spinal agony goes away, I function really well. Just like I used to, it just sucks that my body has been so shocked by years of unbearable stress that I have to take benzos now for chronic panic attacks. I'm less comfortable with the benzos than I am with the opiates.

Anyways, it is healthy to have the occasional internet rant. I'm sure that others who are disabled and suffering from all the countless problems that develop with chronic pain might relate to a thing or two. I think it's healthier to be properly medicated and free of physical agony, then to allow yourself to suffer just for the sake of being off drugs. At least for me, because the lack of physical ability really really gets to my head. Stress is the #1 killer I think. I have really bad mood swings (I'm beginning to think I might very well be bipolar), panic attacks, severe lethargy/burnout, depression, antisocial... all of this started after my injury. I was fired from my first career job I literally focussed an entire year of my life working my ass off to get. It was going so well, I had a nice house. I had a special magical little personal garden and I was a big self sustaining pothead. It was a wonderful time of my life but I quickly lost everything after my injury. I wish I could have predicted this in advance, I never would have exercised at all any more than a little stretching and jogging. NO high intensity workouts that I shiver even thinking about how hard I used to go. My life totally sucks and I honestly see no way out.

I am suffering so much. What's the point. I've been shunned by society and I have entirely lost my way. I'm one of the saddest human beings you'll ever meet.
 
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Hey everyone. Sorry. I know this has probably come up several times already. I just dont have the energy to go through the whole thread. Please forgive me.
My question is...especially with the huge opiate crack downs how does pain management work when you have a history of heroin and cocaine use?
I have only been clean 2 mos following my first OD. I decided that was enough and came back up north with my family. I also was hit by a car riding my bike a 2 mos ago and broke my femur. Have had chronic arthritis pain for years in my knee hip and back.
And now that Im not getting high. Notice alot of other pains throughout my body.
My primary has in the past recommended PM.
So I was just wondering how that process works if anyone knows.
I dont care about narc meds. Im just sick of being in pain. Not being able to walk and being stiff. Not to mention the frustration of down playing my pain because I feel like Im being looked at like a drug seeking pos all the time. So I dont evwn mention it.
Thanks
 
Stay up my brotha Shroomw. Im right there with ya. I wouldnt blame you for s dam thing. Im sorry youre suffering but its cool to know im not alone. Kudos to you for a straight in the eyes post. This site needs more of that!!! Hope you get some relief soon!!!
 
Yo pain group, I've not been myself lately so Ive not being contributing much here.

Thx for the inquiry re: the neurosurgeon Dixi,-, he has referred me to a new pain management group and also a psychiatrist.

Immediately he noticed my right arm has atrophied but thankfully doesn't think I'm a candidate for immediate surgery.

He suspects a Brachioplexus injury and has referred me to have a new type of MRI where you sit or stand.

we only have three of these machines in Australia at the moment, apparently they can identify more than 50% of neck fractures, nerve damage etc than the laying down MRIs.

The traffic accident commission here has to approve to pay for it, so I have a wait time of around four wks. I'm confident that it will be approved especially as the neurosurgeon has requested it and they approved and paid for my appointment with him.

Also my psychologist has now asked me if its okay to refer me on to a neuropsychologist that she knows,-she doesn't feel that she can help me further.

Additionally my main physician has also referred me to a psychiatrist who does teleconferencing which would really help with travel!

So I feel I'm just a rat on a wheel. Waiting for referrals, approvals, appts....

Attending then getting sent for additional tests, referred on again etc, driving me mad. Especially when the psych I've been seeing since last august has abandoned me like I'm too complex for her training & background.

Oh, then to add to all the bullshit I have been working with a specialised physiotherapist in a very large group of a Sports therapy center. we've developed a very good relationship and he knows my complete history. suddenly I had a phone call yesterday that his wife has had her baby now he'll be having a month off of work. I had no warning from him whatsoever. We'd talked about how this was a very complex and long-term arrangement!!

So my right hand remains numb & is pretty useless. Also the pain goes up to the inside of my elbow up to my shoulder, around my neck by the end of the day it is killing me!! my chronic pain is nothing compared to this and I'm just having to live with this and wait and wait and wait...

Rant over,

Love ya all ❤️

Rtp
 
RTP, I'm so sorry, but I'm excited that you might actually finally get some answers. Hope everyone gets out and enjoys some sun.
 
:\ Hey Y'all...Anna, did you get the SCS turned "on" yet? I'm hopeful you are getting relief. Yes, SUNSHINE would be good for us all, I'm sure. We've had tornadoes in the south for the past couple of days. It was gloomy and threatening rain today.

RTP...Can relate to the human pin ball effect with these doctors. I'm sorry it's happening to you, too.

I'm feeling so defeated by PAIN...I watched a program on MMJ oils that eased inflammation for a teenager with Crohns. It saved him from having his colon surgically removed. I have no access to MMJ oil, candies or edibles. I don't trust the online charlatans or miracle cures.

I can't get doctors to investigate further in order to "fix" my gut. I can't tolerate the big gun meds that PM prescribes. I don't know if the CBD:THC oils would ease pain, but it's a crying fucking shame that I don't have access.

Every day I awake to this pain-filled life, I have to convince myself it's worth fighting for. Truthfully, I'm done. I KNOW my husband of 35 years would be better off without me. Remember, folks...I've been on this fucking battlefield for longer than most of you have been alive. It hasn't gotten any better for me. It won't.

I don't wanna get high. I just wanna get UP, go to work, take care of my home and family.

BTW...Shit piles up, literally. As some of you know, I am the sole contact for my mom, who resides in a nursing home. I go down nightly to tuck her in. No, she never showed me or my 5 older siblings, that kind of love and devotion. We grew up in a nightmarishly abusive home. They have abandoned her. I cannot. I joke that I have to suit up in riot gear even now to visit her---Yea, it's that bad. I found my 90 year old mom in bed, covered in her own feces (including her hands/fingers) It was dried on, so I know it had been there a while.

I went ballistic, because the CNA was leaving her room as I entered. WHY was she left that way? Long story, but I made HELL rain down all the way to the state level. Of course, it's David against Goliath. Folks, I'm out of stones!

Sorry I got off in the ditch! Y'all don't mind me. :!
 
Hey Dixi. I guess thats one of the many reasons i respect you bc youve been going thru this a very long time and youre still here and thats inspiration!!!! I wish more than anything you could get better. That oil sounds good. I waish i had some maybe save my colon. I was confused to what it was so youll see in PM i sent yu

That shit with your mom is absolutley horrible!!! I spent a month in one of those dreaded places and i was on the good, temporary hall. Theyd fuck my meds up everyday and id ask for water and theyd say its broken or on other side f hall. Part of my pt was to walk around the place and 2 halls were so nasrt i got him to do laps aroung gym. They smelt like waste and everybodys bell was ringining and there would be fols sitting in their door yelling for help. One time i caught all the CNAs outside smoking meanwhile everybodys bell was ringing. My weekend nurse kicked ass cause she was a chronic pain patient so she got it. Were still friends and one of the maids and i would taklk. Nurses dont do shit except give meds. So it doesnt suprise me your mom was like that. Its just so cold. A little pee is one thing but covered in waste, im glad you raised hell. Youre also great for going despite your upbringing. Doesnt sound like your siblings arent giving you a choice. Ill pray for your mom and you as usual. Im telling you, i have a feeling things are gonna change for you soon. Maybe im nieve but thats how i feel. Get some peaceful rest?
 
Dear Dixi, you do battle on so well. I know I would go insane if there was nothing available to help my pain. That said,- I've come close even with meds.

Has no one on our cosy forum access to mmj oil?

A few PMs & private phone calls or email might help the lady out. Things do happen behind closed doors ;)


Rtp
 
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