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Tangerines2000

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Joined
Nov 15, 2012
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Hello all. Although my main reason for being here is to learn, I am a chronic pain sufferer.

All discs in my back, save one is herniated. (Lonely little C7) ;) I have spinal stenosis both cervical and lumbar and also Fibromyalgia, DDD and spondylosis.

I am currently on muscle relaxers (Skelaxin, x 3 which works better for me than Flexeril), Oxycodone 7.5/500 x 4 Ativan for sleep and Cymbalta (for the Fibro)

I have an amazing spouse of 26 years who is my rock and so understanding and helpful. I don't know how other people without this kind of support deal with pain as severe as this. I don't think I could.

I received each one of my confirmed diagnosis early this year and am basically home bound now and it's been a radical adjustment after half a century of a very active lifestyle in sunny S. Florida.


There's so much more but I think that's enough information for you to know who I am and where I'm coming from. :)
 
Thank you for the welcome, Captain. Feels good!
I've been immersed in the mega pain threads since posting this.

It's wonderful to see I will meet people here who understand what we chronic pain people deal with 24/7.
 
Tangerines2000 said:
Thank you for the welcome, Captain. Feels good!
I've been immersed in the mega pain threads since posting this.

It's wonderful to see I will meet people here who understand what we chronic pain people deal with 24/7.
Click to expand...

Definitely!

I have chronic tendinitis in my right arm (righting arm too :|) and I know people close to me who have back/neck pain. It makes me sad that people have to jump through so many hoops just to get pain killers.
 
Ugh! That sounds painful. My PCP prescribes my meds even though I'm seeing four different specialists. My neuro actually shook his head when he saw my MRIs and x-rays and asked "What DID you do to yourself?"

I hope you have found some relief from your pain.

Mine is diminished but still a constant companion. But I'm grateful for whatever relief I can find.

Be well, Captain.
 
I know what you mean!! I've been saying for months now my back is killin' and no one believed me for nothing. I told my doc," look Dr.,I'm having some real pain and i want something done...nothing...FOR MONTHS!!! So,after about a year,he told me to get an MRI,ok....blam,spinal stenosis,DDD, and tons of OA. Dammit,I hate when dr's dont hear a word you say! Now,it does not help that i live in a area knowen for drug seeking and I'm covererd in tattoos. That shouldent matter but,it does.
 
Hi Tangerines, I'm a chronic pain person too, good to meet you, I just joined the forum very recently after reading the megathread as well. Seeing everyone's posts kinda feels both good and bad: am glad to know others are going through the same crap, and sad cause others are dealing with the same crap. I''m relatively young, have three cervical disks herniated/pressing on nerve roots and spinal cord, a wrecked shoulder, lower back spondylosis, both hips need replacement, chronic gut and kidney issues, and severe OA pretty much everywhere. Know just what everyone's talking about when it comes to fighting drs to get them to take a complaint seriously, all the hoops have to go through, and like rockaskin said, though it shouldn't matter tatts or just looking funky tends to make docs think you're a drug seeker. I'm a published novelist but I never even mention writing to drs anymore cause they just think "Ohh, you're some kind of artsy flake, you must be BSing me." Almost happy when the test results come back bad cause at least then get the brief satisfaction of telling the doc "See, I told you so!"

Anyway didn't mean to make this about me, am having a rough day and wanted to vent, good to meet you Tangerines, and cos this is a drug forum, am on a fentanyl duragesic, oxycodones, and gabapentin.
 
Thanks all! I know exactly what you mean about being guiltily relieved yet so very sad to know so many others are in such unrelenting pain.

My PCP took about three months to really take me seriously about the amount of pain I was in and I am by no means young so it must be an even greater problem to be young and not be immediately labeled or suspected a seeker.

I kept getting shuffled from neuro to rheumy to pm and the pm was
the worst doc I've ever dealt with. He was a real jerk. Offered to give me nine epis, three every two weeks. My copay for each shot was going to be $800 each and he was doubtful the treatment would address more than a minor amount of my pain. Needless to say, if I do need to add a pm to the other specialists, it won't be that one.

I've run the gamut from PT twice to biofeedback to accupressure and acupuncture. Many mris, xrays and more than 60 blood tests this year alone.

I've been seeing the CRNP @ my PCP's office the past few visits and I absolutely love her! She listens and asks if I would like to try this or that. She.gjves me choices and treats me as if I am a person as well as a patient.

I'm scheduled for a brain mri and a sleep study early next year as I have some balance problems and she wants to make sure they stem from the fibro rather than just assume that they do.

My wish for all of us is, of course, cessation of pain but if not that then my fondest hope is that everyone finds a doc as helpful as mine.
 
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