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New...HI!

malyn

Greenlighter
Joined
May 2, 2014
Messages
6
Location
Michigan
I've never taken part in a forum before, or anything related to medications, addictions, etc..but for the past two/half years I've been overwhelmed with a huge knowledge regarding prescription medications, dosages, uses, addiction potential, side effects, plus becoming close to many different types of doctors, with their knowledge, and just plain out " is the damn drug any good" ...


Let me start off saying I'm under forty years old And was diagnosed w bone cancer in 2012 and this past February 2014 with a cancerous tumor being found in my spleen during another surgery, " lucky me" ..lol..actually I was lucky if I wasn't having the surgery I was, no one knew I had a 5.3 cm size tumor attached between my spleen and stomach resulting in removal of my spleen, lymph nodes, and a gastric bypass to my stomach as a bonus I guess. Owing weight is great but not how I'm losing it due to the surgery and side effects But since 2011 thats when the Drs started prescribing pain meds for me, I think I have been on about everything and anything since..plus a time in my early twenties when I was in a bad accident...


In the last three months I've gone from taking 100mcg fentanyl patch every 48 hrs, fentora 800mcg tablets ( fentanyl citrate again) 4x daily, subsys 1200mcg ( fentanyl citrate liquid spray) every 6 hrs 4x a day, plus Xanax 2 mg three times a day, to dillis 8 mg take 2 4 x day, hydromorphone liquid form, oxycodone 40 mg 2- 4x a day, abstrol 800mcg ( fentanyl citrate dissolvable buccal tablet under the tongue ) 4x a day, and now currently my meds are...


Actiq fentanyl lollies 1200 much 4 x a day, clonazepam .5 4x a day, plus my fent patch went up to 150mcg every 48 hrs...I can fairly say the actiq fent pops for myself suck.. lol ...literally, And with the stomach surgery I had the absorption rate for me is like at 20% at best, of the med, placing me in a semi withdrawal state since I was prescribed them, they have mild pain management effect for myself due to this plus they give me mouth sores on my gums and I brush after each dose due to the 2 teaspoons of sugar in each small pop, that's a lot for my teeth lol...the actiq was to replace the very " shitty" abstrol fent tablets which did nothing for me....and actually felt like I was just taking a sugar pill, no effect...
So I'm now in a waiting game, for a week I've been waiting for my pharmacy to obtain my new medication to replace the lollies actiq, with the new fentanyl nasal spray Lazanda ...I'm excited since the absorption rate is 89% taken nasal or intranasal according to package inset and wiki....as source ..this us how much actual fentanyl you get depending on delivery method of use...


92% (transdermal)
89% (intranasal)
50% (buccal)
33% (ingestion)


Lazanda is being called the new " coke", even by my PM doctor he laughs... because most Drs and reference try to state that snorting medication is a road of misusing a medication leading to abuse, yet here comes Lazanda a nasal spray white powder you take intranasal, instead of snorting just spray lol......so legalized coke...? Lol..
I honestly don't care, I just want my breakthrough pain relieved or gone would be great and these withdrawal symptoms to disappear...I was on subsys ( I LOVED this medication) but here where I am the doctors are running scared of prescribing it, even to cancer patients due to some recent law suits and issues with the drug..I'm smack in the middle of it all, lovely....it was literally a miracle drug for myself, I could take my regular dose 1200mcg 4x a day and function, enjoy my family, and have very little to no pain. I am/ was very upset over being taken off it but my PM Dr feels that the Lazanda will surpass the subsys in helping me.

I'm here on this forum to learn or help others with my knowledge and experiences taking a shit load of meds and living with chronic pain, plus feeling like a guinea pig to trying these newly released drugs, such as actiq, Lazanda, opana , and the new zohydro..I've tried em so I feel I can help people if they need it.


First I hope this new medication helps myself...for along time I felt like even though I needed these medications, and had a reason for my pain and a need to have it relieved I felt like a druggie, or addict, but I'm not..I am physically dependent on opiates and can relate to a person who takes them and has a need for them and also suffering withdrawals due to not having them..I hope to make some new friends too ...who I don't have to explain to the question I get asked " why do u need all those medications or refer to me as a drug addict..I just want acceptance for a situation I can't control right now, friends who can help and understand


thanks, that's me....or a small part of who I am, i want people to know that. I am not drugs, but I am dependent on them to survive..god bless and good luck to all suffering too..
 
Welcome to Bluelight! :) I am sorry to hear about the cancer, surgeries, and pain <3

I am currently in pain too, although I have been opiate/opioid free for 200 days now. :)

Feel free to ask me any questions you might have about the forum - I would be more than happy to help.
 
If I can ask, how did you do it, I wish I could be that way..it would maybe make me feel better.? The medications have lots of side effects I hate but pain relief I like so I'm kinda caught in between..? Thank you...
 
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