Fluffanudda
Greenlighter
- Joined
- Jul 10, 2014
- Messages
- 1
I could not find the correct thread to discuss PAWS, and I am also new here. So I really didn't know where this should be placed.
I won't go into my war story, but after 2 Suboxone withdrawals I was left with crippling PAWS. I felt nothing, no hope, no energy, no passion and my body felt like it weighed a ton. I dreaded everyday and everything. How sad when I had three beautiful children to raise. I could NOT muster up any energy, drive or purpose. I tried everything. Amino acids, Tyrosine, all the recommended supplements vitamins and herbs, water, water, water, diet change, exercise, extra sunlight, multiple changes in antidepressants and I "gave time, time" 13 months of it. I am convinced PAWS brings so many of us back out.
Finally I switched my psychiatrist, to one I had gone to years go, but I could not afford to stay with him. He had a spa/practice, but he also was willing to think outside the box when necessary.
I'm sure many of us are familiar with or heard of MTHFR, some call it trendy and it is fairly new, but in my case this new trend in testing saves my a**. I had a saliva test done that showed I had an error or stronger word, morphism of my gene. Mine was called C677T. What does that mean? Well 1st, they are finding this gene copying error extremely common amongst addicts and alcoholics, as well as people with treatment resistant depression, anxiety etc. Myself and people diagnosed with the same do not metabolize folic Acid, our body does not go through the methylation process for us to absorb this form of vit-b. What does this mean to us who suffer from any of the above ailments, well it means we do not have a level playing field. The absorption of Folic Acid is 100% necessary for ALL of our antidepressant neurotransmitters being produced. If not, we run very, very low. That's why "some" antidepressants wont work, we don't have enough to start with. And as a mother with this defect, my child was born with a learning disability, why? we all know how important folic acid is during pregnancy. I was taking it but my body did not utilize it at all. This is also common of children born to Moms with C677T. Why it's not a standard pre-natal test yet, I have no idea.
I think you can see where I am going with this in re: to PAWS or anyone who suffers/endures treatment resistant depression. You can not just take extra otc Folic Acid, it does not help. I was put on 15 mg of Deplin, that is methylated Folic Acid, we do not go through this process and the Deplin does the work for us. It is considered a medical food. It is almost always used alongside an antidepressant and they are finding it as powerful as one that works.
So for us who are suffering PAWS for ridiculous periods of time, I ask you get tested or if your doctor is willing to prescribe Deplin without the testing, give it a two week trial. You will clearly know if it is working or not. Find a psychiatrist who doesn't shun this test and Deplin, there are many who do, I don't know why? May be they want us to just keep coming in, because if it is working, we see them much less. Keep in mind there is a state of over methylation that can cause anxiety, discuss this with your doctor. Usually common if you don't have the gene error or on to high a dose of Deplin.
If you are positive for this there is a lot of reading you can do, it does affect our health in other ways, we build toxins faster and easier than others, and some other things but nothing diet and lifestyle cant change.
After being on the Deplin for 9 days, my energy slowly started to come back and my thought's began to feel hopeful and positive again. That day I clearly remember not dreading to get out of bed and start my day.
I really feel we need a level playing ground if we are to get better, the PAWS I feel just has a better chance at me without the appropriate amount of neurotransmitters. He also prescribed high dose QUALITY fish oil, I take it 4xdaily, that's to keep our neuro highway healthy and lubricated. But yes, water, water, water does remain part of my regimen. Please understand it took time, it wasn't a euphoric feeling like taking an oxy after a week of withdrwal. But is was clearly noticeable and worth the doctor visit that seemed impossible to even get to because of the PAWS.
It may not be for everyone, but if it helps one person, I am grateful.
Thank you and peace to all
I won't go into my war story, but after 2 Suboxone withdrawals I was left with crippling PAWS. I felt nothing, no hope, no energy, no passion and my body felt like it weighed a ton. I dreaded everyday and everything. How sad when I had three beautiful children to raise. I could NOT muster up any energy, drive or purpose. I tried everything. Amino acids, Tyrosine, all the recommended supplements vitamins and herbs, water, water, water, diet change, exercise, extra sunlight, multiple changes in antidepressants and I "gave time, time" 13 months of it. I am convinced PAWS brings so many of us back out.
Finally I switched my psychiatrist, to one I had gone to years go, but I could not afford to stay with him. He had a spa/practice, but he also was willing to think outside the box when necessary.
I'm sure many of us are familiar with or heard of MTHFR, some call it trendy and it is fairly new, but in my case this new trend in testing saves my a**. I had a saliva test done that showed I had an error or stronger word, morphism of my gene. Mine was called C677T. What does that mean? Well 1st, they are finding this gene copying error extremely common amongst addicts and alcoholics, as well as people with treatment resistant depression, anxiety etc. Myself and people diagnosed with the same do not metabolize folic Acid, our body does not go through the methylation process for us to absorb this form of vit-b. What does this mean to us who suffer from any of the above ailments, well it means we do not have a level playing field. The absorption of Folic Acid is 100% necessary for ALL of our antidepressant neurotransmitters being produced. If not, we run very, very low. That's why "some" antidepressants wont work, we don't have enough to start with. And as a mother with this defect, my child was born with a learning disability, why? we all know how important folic acid is during pregnancy. I was taking it but my body did not utilize it at all. This is also common of children born to Moms with C677T. Why it's not a standard pre-natal test yet, I have no idea.
I think you can see where I am going with this in re: to PAWS or anyone who suffers/endures treatment resistant depression. You can not just take extra otc Folic Acid, it does not help. I was put on 15 mg of Deplin, that is methylated Folic Acid, we do not go through this process and the Deplin does the work for us. It is considered a medical food. It is almost always used alongside an antidepressant and they are finding it as powerful as one that works.
So for us who are suffering PAWS for ridiculous periods of time, I ask you get tested or if your doctor is willing to prescribe Deplin without the testing, give it a two week trial. You will clearly know if it is working or not. Find a psychiatrist who doesn't shun this test and Deplin, there are many who do, I don't know why? May be they want us to just keep coming in, because if it is working, we see them much less. Keep in mind there is a state of over methylation that can cause anxiety, discuss this with your doctor. Usually common if you don't have the gene error or on to high a dose of Deplin.
If you are positive for this there is a lot of reading you can do, it does affect our health in other ways, we build toxins faster and easier than others, and some other things but nothing diet and lifestyle cant change.
After being on the Deplin for 9 days, my energy slowly started to come back and my thought's began to feel hopeful and positive again. That day I clearly remember not dreading to get out of bed and start my day.
I really feel we need a level playing ground if we are to get better, the PAWS I feel just has a better chance at me without the appropriate amount of neurotransmitters. He also prescribed high dose QUALITY fish oil, I take it 4xdaily, that's to keep our neuro highway healthy and lubricated. But yes, water, water, water does remain part of my regimen. Please understand it took time, it wasn't a euphoric feeling like taking an oxy after a week of withdrwal. But is was clearly noticeable and worth the doctor visit that seemed impossible to even get to because of the PAWS.
It may not be for everyone, but if it helps one person, I am grateful.
Thank you and peace to all
