brain trauma
Greenlighter
- Joined
- Feb 14, 2011
- Messages
- 2
Well, I've got lots of stuff wrong with me and my doctor told me to research various meds as fas as prices go from various pharmacies and i kinda stumbled onto this site.
One of my big problems is Dupuytren's contracture, a soft tissue disease in your hands which causes you to get knots in your palm and forces your hands closed/wont let you open them. It is not normally as painful as mine...nor is it supposed to start as soon as mine. Normally starts in late 50's to 60's and mine started when I was 25... My hand doc has never seen it in someone as young as me(now 29). Here's the kicker though...I'm a mechanic
This makes things with my hands exponentially worse.
My other problem is that I was in a very high speed car accident(i'm not a normal mechanic, i build hotrods and racecars) and somehow survived. I did major damage to my spine and brain causing nerve problems in my left big toe, left shin, and right hand(the Dupuytren's is in my left hand). All those body parts are numb 24/7 except when I move in certain ways then they feel like they are set on fire while being ripped off my body with a pair of pliers. All together a very unpleasant experience when I say... reach forward and turn up the volume on the car stereo with my arm straight and twist my wrist. That sets my thumb on fire. Or if I have my left leg straight and point my toes. That lights off that shin and big toe...and apparently I naturally do this in my sleep. I dont like to complain about it too much because it was my fault I wrecked going so fast so this is my punishment, but it does suck ALOT.
As far as medication goes, my hand doc had me on 2 Darvocet during the work day then 2-3 Lortab at night and that helped for a while. Then the whole nerve damage thing got me and I had to go to a specialist. He first started me on 10mg Methadone 4 times a day with Lortab every 4-6 as well and 2mg of clonopin(sp?) at night to help me sleep. The Methadone kinda helped pain wise but made me so sleepy/out of it during the day that people close to me didnt like being around me because my eyes would constantly be going in multiple directions while I was trying to keep them open. I changed from that to MS Contin 30mg ER 3 times a day and the same lortab every 4-6 and clonopin at night. That stuff seemed to do nothing so he upped it to 30mg 4 times, still nothing so he put me on MS Contin 60mg ER 3 times a day and the same lortab/clonopin. Still no relief and the only thing that happened from that was that in the month between doctor visits I think that I only used the bathroom 4 or 5 times and constantly felt awful because of it. Here in the past couple weeks he just put me on 10mg Opana IR well, its generic so its Oxymorphone I think. Still the same with the lortab/clonopin. He also is having me still take 2 of the MS Contin 60mg a day for the first to weeks then 1 for the next until I'm off of them.
I feel like this Opana stuff is working somewhat, but I think its gonna take more of it. Unfortunately the dosage I'm at now, 10mg IR is the only type of it that is available in generic and my insurance kinda sucks. I just met my $500 deductible with the $340 for 120 10mg generic opana.
My question for ya'll on the site is this, what all would you have me ask my doctor about medication wise that is strong enough to work but isnt insanely expensive at the pharmacy? My doc is a great guy and very intent on helping me get though this, but I'm sick of paying all kinds of money and only getting moderate relief and having to wait a month(insurance will only pay once a month visit) to get back in to see him while just having to deal with it in the mean time.
I dunno if this is the typical intro thread and I may put it in a different place too, but its what I had to say at midnight when I cant sleep to spite taking a dozen pills thoughout the day/night. Thanks for reading about my fun life and I appreciate any input.
One of my big problems is Dupuytren's contracture, a soft tissue disease in your hands which causes you to get knots in your palm and forces your hands closed/wont let you open them. It is not normally as painful as mine...nor is it supposed to start as soon as mine. Normally starts in late 50's to 60's and mine started when I was 25... My hand doc has never seen it in someone as young as me(now 29). Here's the kicker though...I'm a mechanic
This makes things with my hands exponentially worse.My other problem is that I was in a very high speed car accident(i'm not a normal mechanic, i build hotrods and racecars) and somehow survived. I did major damage to my spine and brain causing nerve problems in my left big toe, left shin, and right hand(the Dupuytren's is in my left hand). All those body parts are numb 24/7 except when I move in certain ways then they feel like they are set on fire while being ripped off my body with a pair of pliers. All together a very unpleasant experience when I say... reach forward and turn up the volume on the car stereo with my arm straight and twist my wrist. That sets my thumb on fire. Or if I have my left leg straight and point my toes. That lights off that shin and big toe...and apparently I naturally do this in my sleep. I dont like to complain about it too much because it was my fault I wrecked going so fast so this is my punishment, but it does suck ALOT.
As far as medication goes, my hand doc had me on 2 Darvocet during the work day then 2-3 Lortab at night and that helped for a while. Then the whole nerve damage thing got me and I had to go to a specialist. He first started me on 10mg Methadone 4 times a day with Lortab every 4-6 as well and 2mg of clonopin(sp?) at night to help me sleep. The Methadone kinda helped pain wise but made me so sleepy/out of it during the day that people close to me didnt like being around me because my eyes would constantly be going in multiple directions while I was trying to keep them open. I changed from that to MS Contin 30mg ER 3 times a day and the same lortab every 4-6 and clonopin at night. That stuff seemed to do nothing so he upped it to 30mg 4 times, still nothing so he put me on MS Contin 60mg ER 3 times a day and the same lortab/clonopin. Still no relief and the only thing that happened from that was that in the month between doctor visits I think that I only used the bathroom 4 or 5 times and constantly felt awful because of it. Here in the past couple weeks he just put me on 10mg Opana IR well, its generic so its Oxymorphone I think. Still the same with the lortab/clonopin. He also is having me still take 2 of the MS Contin 60mg a day for the first to weeks then 1 for the next until I'm off of them.
I feel like this Opana stuff is working somewhat, but I think its gonna take more of it. Unfortunately the dosage I'm at now, 10mg IR is the only type of it that is available in generic and my insurance kinda sucks. I just met my $500 deductible with the $340 for 120 10mg generic opana.
My question for ya'll on the site is this, what all would you have me ask my doctor about medication wise that is strong enough to work but isnt insanely expensive at the pharmacy? My doc is a great guy and very intent on helping me get though this, but I'm sick of paying all kinds of money and only getting moderate relief and having to wait a month(insurance will only pay once a month visit) to get back in to see him while just having to deal with it in the mean time.
I dunno if this is the typical intro thread and I may put it in a different place too, but its what I had to say at midnight when I cant sleep to spite taking a dozen pills thoughout the day/night. Thanks for reading about my fun life and I appreciate any input.
