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I'm moving into a nursing home -- wish me luck and send me flowers

MyDoorsAreOpen

Bluelight Crew
Joined
Aug 20, 2003
Messages
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I come here tonight with a gravely serious announcement to all my friends here at Bluelight: I'm moving into a nursing home Tuesday May 26. I knew I was gettin a bit crotchety, ol' grey mare just-a-aint what she used to be, and all that. Plus I've really had a hankering in my old bones for just one more glass of that sweet old Nutrasweet diabetic iced tea, just like they used to make when I was a lad in Tampa, visiting my grandma.

But I do confess I have an ulterior motive: my school's Geriatric Medicine Club, which I'm involved with, has a faculty adviser who's doing research on the quality of life in America's nursing homes, and I figured I'd help her out. I've worked in two, and I always wanted to know what it was like to be a resident and be treated like one. Now I've got my chance, for 11 days.

Then I'll be going to Starscape, to dance away my bedsores and spread PLUR and MRSA to the masses.

I'll be blogging the details of my adventure. Since I like to keep my online and real lives separate, I'll be reposting my entries here for you all to read, rather than providing a link to the original blog.

I'll answer any questions you have, or just send me a message and say hi. I'll have lots of time on my hands to do little but netsurf, and I'd be happy to let all of you know what you're all inevitably in for in a few decades, if no anti-aging pill gets invented.
 
can't we just google chunks of the entries to find your blog and thus your real identity? I wouldn't suggest that (no offense but I'd be more careful with my real identity).

Says the guy who posts pictures of himself with babies in his family :)
 
Geez your heading comes as a warning, I thought you had fallen ill and they were taking you in for better care!
A little milder would have done it, take mercy on our soul!
Good luck with your experience!
 
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That's a great idea MyDoors. I hope that your stay proves fruitful, and that your dedication does not extend to the use of Depends during your experiment.

I'll look forward, should you have the time and inclination, to reading whatever you might post here about your experience.
 
May 25-26

May 25, 2009
It's the night before checking into a nursing home, as part of a research project. I'm there to see what it feels like to live as a resident, with fake diagnoses of congestive heart failure (CHF) and chronic obstructive pulmonary disease (COPD). For someone about to step into a very different world, I'm surprisingly calm, and really lost for words. I guess I'm just fairly adventurous to begin with, and having worked in two nursing homes before, I have a sense of what I'm getting involved with. My only hope is that I establish the right relationship with the staff and my fellow residents. In my experience, this is what makes or breaks the experience of most people housed in long-term care.

All in all, I don't feel like what I'm about to do is really that big a deal. Being a somewhat private person who needs a bit of alone time every day, though, I could be singing a very different tune a few days from now.

May 26, 2009
11:00 The first thing I saw when I arrived at the home was a llama in the yard, which gave me an interesting first impression of the place. I was immediately identified when I arrived by Joanne, the head of Staff Development. There was no readily apparent reception desk to report to, since the building was undergoing renovation, and so a young man with a heavy bag wandering around confused could have only been one person, on this particular day.

Joanne and I started with a tour of the building, a one story sprawling place with wings radiating from the center like spokes on a wheel, probably for a combination of easy fire evacuation and easy befuddlement of the confused. The head of nursing confirmed the latter, saying that the old building, with a typical oblong shape, saw residents with dementia slipping out the door unnoticed rather regularly. In fact, while we were talking, a woman in a wheelchair came up to the magnetically locked automatic doors at the end of one wing, and politely asked someone to open it for her. I waited patiently for the head of nursing to redirect her, before being notified, much to my surprise, that I'd have to wear a tracking device, and would be treated in much the same fashion if I attempted to do as this woman did, during the course of my stay.

Joanne gave me a schedule for my days here, which will involve several important changes in my dietary needs and activities of daily living, simulating the changes in a nursing home resident's status over a lengthier stay.

Once I was shown to my room around noon, I was given very little time to unpack my backpack and set up my things (they literally meant two minutes!), before I was supposed to settle into character, abide by the restrictions of my diagnosis, and welcome a parade of workers into my room to aid with the check-in process. The certified nurse aids (CNAs) who brought me supplies I'd need to live, thankfully allowed me one more chance to urinate unassited. Then came the unit secretary with legal documents for me to read and sign. There were many notices detailing my rights and responsibilities as a patient, as well as notices of fees I could incur that were not covered by my rent at the nursing home. Most interesting of all was a page containing nothing but a statement of the daily room and board fee, comparable to that of a five star hotel. The floor nurse, who came next to take my vital signs and do a brief physical exam, told me that it's common for private insurance providers to pay eighty percent of this. The remaining twenty percent still struck me as a large daily expense for many retired people.

I had just enough time to plug in the power supplies of my laptop and my cell phone, in the one loose outlet behind my bedside table, before I was fitted with a chair alarm, and officially considered a "one assist": someone who is not authorized to stand without the help of one qualified worker. It was too cold in the building to have on nothing but a T-shirt, and so I reached up from my chair to grab a long-sleeved shirt I'd hung in my closet. The plugs hung very loosely in the wall sockets. It stuck me at that point that if they came out, it would be difficult, if not impossible, for me to replug them without help. Much the same with my clothes in the closet, which hung loosely on plastic hangers.

The social workers came by simply to introduce themselves. Then came a woman from physical therapy, to fit me with a walker. She fit perfectly a stereotype I now have of women working in physical therapy: young, smart, straight-laced, perky, and sporting an enormous rock on her finger. She tested my balance and coordination, with maneuvers that reminded me very much of a roadside sobriety test. She remarked that I technically would be perfectly fine to ambulate without a walker, but that she was giving me one anyway, because of my admitting diagnosis.

After that came lunch, which today was a turkey dinner. I was asked by one of the CNAs several times about food allergies, which I denied. I was quite impressed with the quality of the food. My roommate Joe entered the scene at this point. An elderly gentleman of very few words, I learned that he was here for rehabilitation following a hip replacement. It's his third short term stay at this facility, which gets his highest approval, including the food.

I was quite tired from the excitement and work involved in moving in, so I decided to take a nap. I grabbed the pillow from my bed where I could reach it, taking great care not to lift my rear from the chair, lest it let out a shrill alarm to the CNAs. I ended up leaning over my tray table and dozing, recalling many naps as a commuting student. It was not long until a CNA came to check on me, and asked me if I'd like to be transferred into bed. I agreed.

Joe's wife came and spent the afternoon in the room. She and Joe talked a bit, but not much. But it was at this point, when I tried to sleep, that I began to notice all the other sounds I was not used to sleeping through. Not having cable at home and not being much of a TV watcher, I am still finding it hard to get used to hearing daytime commercial TV playing constantly in the same room as me. The CNA found it odd to hear me refuse her offer to move the TV clicker closer to where I can reach it. Frankly, I don't miss TV, and doubt I would watch much of it, even if I was living in a nursing home for years. Nevertheless, when I awoke, the clicker was right were I could reach it. This staff goes the extra mile.

Also, the renovation continues unabated in the hallway. Men with noisy sanders and polishing machines are working on my very doorway. Murphy's Law says it had to be my room that needed noisy work the day I moved in.

I was awakened at 15:30 by the second shift CNAs, who were admonishing me for sleeping during the day, apparently something the residents are not allowed to do. Dazed by their sudden arrival, I got a very good taste of the mindset of a confused resident having the rules of the house enforced upon them by the lowliest of workers, who didn't enjoy telling me this any more than I wanted to hear it. I was offered the option of being assisted to my chair, which I wasn't really in a position to refuse. I was also told it was my shower night, and that I could take my shower either before or after dinner. I chose after. Pity that of the two showers I was scheduled for during my 11 day stay, one of them had to be given on the very first day. I apparently have not mastered the art of walking with a walker -- apparently one never walks backwards with one, or else the walker loses all of its safety advantage.

As of 17:00, I have not yet once used the call bell. The workers on the floor are not aware (by my choosing) that I used to work as a CNA, and have repeatedly taken the time to ensure that I know how to use the call bell, and that it's always placed within my reach. I'm used to being a very self-reliant person, and am reluctant to ring a bell to ask for help unless I absolutely need it. I simply remember the aggravation of dealing with residents who used the call bell liberally, and my sense of the Golden Rule makes me loathe to play that role. I remember telling myself, during my years working in nursing homes, that if I ever ended up as a resident, I'd do my best to be one of those quiet unobtrusive ones who barely ever bugged the workers. I guess that's an easy goal to meet when I'm not really physically in need of living here. I also lack all of the more common existential motivations for being an attention-seeking resident, such as loneliness, entitlement as a paying customer, or fear of death.
 
^ I'm a nursing home ninja, my friend. :)

I'm reminded of that old movie/TV gag where someone makes a reference to there being a suspected undercover Narc in a classroom, just to have the camera pan over to some painfully out-of-place 'student'. That's kinda how I feel here -- I'm about as 'pretend incognito' as a guy with a plastic pair of Groucho Marx glasses.
 
May 27 AM

May 27, 2009
Last night's dinner was small: grilled cheese with tomato soup and tater tots. I had forgotten that this is typical for nursing homes. The meals are served in the correct proportions for good digestion and metabolism, with breakfast and lunch being the largest. I have tried, and largely failed, to replicate this pattern of eating in my home life.

After dinner, Sara, the evening CNA, came by to take me to the shower room. She emphasized several times that I ought to wear a swim suit for this. She gave me a hospital gown to take with me when I told her I didn't bring any pajamas to change into. She then walked me down the hall with my walker. Both coming and going, I had the urge to walk faster than her, but I resisted this urge, because I could see she was harried, and I knew she was counting on me to be her easy resident. Just play along.

This brings me to the topic of the swimsuit. Technically, I had really no need for it, as I was deemed qualified to wash and dress myself. I was fully clothed when Sara drew the curtain and waited outside the shower room, and at no point did she or anyone else interrupt my shower. So what I ended up doing was transferring myself to the shower chair, a wheeled contraption made of PVC piping, covering my entire body with a big handful of shower goop, and putting on my swimsuit and hospital gown only after finishing up and drying off. As with the whole walking down the hall thing, I really didn't feel like arguing the finer points of the whole swimsuit issue. If it made Sara more comfortable knowing I was wearing one, so be it.

After that, I was asked a number of times if I needed anything else to eat or drink. I declined, not wanting to have to make the staff take me to the bathroom.

I spoke to my wife on the phone, and did quite a bit of netsurfing after that. When Sara inquired, I told her I'd like to be transferred into bed at the end of her shift. She came to do that at 22:30. I tried raising the head and knees of my hospital bed, so I could continue reading. I found this much more comfortable than I anticipated, and at once I understood why some hospital patients prefer to sleep with the bed in this position all the time.

I was asleep not even an hour, when the night nurse Deb came by with a nebulizer treatment for my lungs. This involves putting on a mask with a hose attached to a noisy machine, which pumps mist into my airways. Normally there's a drug in this mist which would dilate the bronchi of a resident with ailing lungs. Though I could have done without the machine noise, the feeling of the mist on my lips and nostrils was strangely hypnotic, and I reckon I dozed off a few times during the ten minute treatment period. Deb came back and congratulated me for being a "good sport" about the whole treatment business. She told me technically she was supposed to listen to my lungs and heart, and check for swelling and fluid in my legs, but that she was behind schedule. I reassured her that I'd had this abbreviated physical exam three times already, and that so far I felt OK. She bid me goodnight with a wink.

Note to self, wear my eye mask before attempting to sleep in any communal setting again. It never gets too terribly dark in any health care facility, I assume because this creates safety risks. Unfortunately, this comes at the cost of diminished sleep quality, since total darkness is ideal for quality sleep cycles. I think I'll wear the earplugs that the facility has so generously provided me with, too. The noise level is nothing like it is during the day, but it's not negligible. At least my roommate and neighbors are not people who sleep with their TVs on!

The other thing that makes sleeping a bit of a challenge is the bed alarm that I'm fitted with. This is a flat pad, a one foot wide blue strip that lays under my middle, which sets off an alarm if the pressure on it decreases below a certain threshold. Indeed it does prevent residents from sleepwalking, as I have observed on the job in the past. But it also restricts the positions I'm able to lay in. Several times it let out a shrill 'Meep!' when I wasn't laying on it just right. Fortunately the alarm was not linked to the call bell, as I've seen in some nursing homes, and the CNAs never came running to my room. But this technology could definitely use some improvement.

Hospital gowns, also known as 'johnnies', have one thing in common with robes and kimonos: all of these garments are a lot less comfortable to sleep in than they first seem, because the way they wrap around and fasten leads to them torquing in strange ways over the course of a night of tossing and turning.

8:00. After repeatedly waking up for brief moments during the night, the stirrings and goings-on in the facility have penetrated deep enough into my semi-conscious mind to make me aware that I am no longer welcome to sleep any longer. No one has said anything, but I'm picking up a strong vibe that the staff would really prefer I rose. I'm feeling surprisingly rested. The first shift CNA, Ashley, is in my room asking if I'd like to get set up to wash in the bathroom. She's a young woman with a thick lower lip and a thick local accent, who's married to a cop who patrols the nursing home frequently. I won't go so far as to say she's unintelligent or inflexible, but she has a definite air of "Keep this simple for me" about her. So I acquiesce when she asks me if I'll be wearing the same clothes as yesterday. And will be needing towels. And will need my bucket of facility-provided toiletries brought in for me. I'm listed as a "One assist setup" for self-care, meaning that I'm clear to wash myself behind a closed door, but need assistance ambulating to and from the bathroom, and assistance setting up the washing tools, if I needed.

Finding a place in the bathroom to put down all the things I was carrying in my walker basket proved a challenge. There is absolutely no counter space, and the top of the toilet proved not so ideal, because of the presence of safety bars and handholds placed around all the walls. It wasn't a big deal, because I'd showered the night before, and all I really needed to do was brush my teeth. I caught myself "cheating", that is, standing unassisted without a hand on my walker, while brushing my teeth. It struck me how much of a chore morning ablutions would be to someone who truly required a walker, and was not good at balancing (either his own body, or objects upon slender ledges, that is). My bed was made for me, and my chair alarm waiting for my buttocks, when I got done washing. Breakfast followed soon after.

Ironically, I had just opened up my laptop to write this blog entry, when Deborah, the head of activities, came in to talk to me about activities, and ensure I wasn't bored. I took her survey on activities I enjoy, indicating my love of Scrabble. She said I was in good company, and that if a Scrabble tournament took place during my stay, she'd be sure to include me. I let her give me her whole song and dance about activities offered onsite, and was rather impressed with the amount of culture available to residents, including frequent trips to Boston. I ended up assuring Deborah that I was far from bored.

In the middle of writing, a woman named Vi arrived with pots of coffee, which was exactly what I needed. I was yawning and having a bit of writer's block; I guess I didn't sleep as soundly as I thought I had.

Ashley came back to ambulate me at 11:00. Her mood was much improved. I understand -- the beginning hours of rousing, washing, and dressing residents is the most stressful part of any first shift CNA's job. She walked me outside, with a gait belt around my middle and my trusty walker in front of me, to have a look at the llamas. It was a nasty, cold, rainy spring day outside. I didn't have a long sleeve shirt on, and the llamas weren't feeling friendly, so we went back inside.

Ellen, one of the administrators, came by to make sure my first twenty four hours were going smoothly. We had a brief chat, and I reassured her everything so far was very manageable.

At noon, I met my first resident besides my roommate. Her name was Frances, and she was a retired teacher from Cambridge. She cruises the hallways continually in her wheelchair, is quite friendly, and obviously very intelligent. She was happy to hear me tell her that I'm married to a teacher, and I invited her to stop in if she ever was looking for someone to talk to.
 
May 27 PM

I was a pretend bad boy this afternoon. Due to my fabricated incident of disruptive behavior, I was deemed an imaginary harm to myself and others, and placed on two hours of poppycock line-of-sight observation at the nurse’s station. But for someone who hasn’t sat in the thinking chair for 25 years, it was all just too real.

The nurses were too busy with paperwork to pay me much mind, except when I’d say something goofy in the course of a conversation. I can’t say the same for the residents. I was quickly joined by a wheelchair-bound lady, whose clear speech belied her severe dementia, except when she became convinced I could understand her when she spoke Italian. My side of the conversation didn’t involve any foreign languages, but I ended up slipping into a mindset and mode of social interaction that’s vaguely reminiscent of switching over to another language: humoring and validating the Alzheimer’s patient. Like a language I haven’t spoken in awhile but an suddenly forced to use, it took a bit of effort at first, but I soon revived the old neural pathways.

First, there’s the realization that the person in front of you, “Gina” in this case, though she speaks in clear coherent sentences, does not see the give and take exchanges as comprising one cohesive whole. Therefore, her ability to answer a follow-up question to a response she’s just given, or even realize that what I’m asking builds on an earlier answer she gave, is dicey at best. I have to always be prepared to ask any question or make any comment in complete isolation from anything else we’ve said. Secondly, I’m best off asking questions that don’t require a lot of heavy thought or ponderous recall on Gina’s part. Questions that she would have had a certain, short, and ready answer to before the onset of her dementia are usually a safe bet: “What neighborhood in Brooklyn did you grow up in?”, “Are you married?”, “I bet your nonna made a mean marinara, huh?” Expect, and be prepared to run with, complete non-sequiturs: chuckle and say something enthusiastic. Don’t act visibly confused or ask her to repeat herself. It’s kind of like being a slick salesman, or a flirt-for-pay bar girl, dealing with a wealthy but highly eccentric client. The conversation may be taxing and odd, but I have a vested interest in not letting the other party know that. When at a loss for words, a gentle wisecrack never hurts (“Why Gina, I do believe you’re flirting with me!”). Gina doesn’t remember the conversation, but she does feel validated and paid attention to by someone friendly and jovial. I look up at the nurses and share a bemused look. And a good time is had by all.

I remember at this point why I enjoy talking to patients with dementia. Our culture is not one that embraces the notion of divine insanity – a concept I very much cotton to. Talking to someone with cognitive impairment is a potent reminder that lexical content and logical arguments are not the point of most human conversations. Most of the time, all that’s needed to have a fulfilling exchange is two people recognizing and acknowledging fellow travelers through this crazy maze called life, no matter what words come out of their mouths.

During my sham detention, I also made the acquaintance of two elderly residents who had just gotten engaged. She pushed his wheelchair with such loving care it almost broke my heart.

Several staff members also took the opportunity to make my acquaintance at this time, most notably “Cliff”, the social worker. He sat down with me to do a complete social history, including a rather scrupulous inventory of the people in my life, and the minor details of my activities of daily living at home. He also administered a dementia test to me, including questions about the day of the week, the President of the United States, and my mother’s maiden name. Cliff talked to me about his work as a nursing home social worker, which seemed to involve a lot of, for lack of a better word, diplomacy. The most surprising thing about my exchange was that a lot of typical cases he described sounded as challenging, if not more so, than any handled by a typical physician or detective. For example, he said it was very typical for an adult to simply drop off an ailing parent or grandparent, with whom they did not have a good relationship, and not want to have anything to do with him or her until it was time to write a check for funeral expenses. It was then Cliff’s job to track down people who would be willing to be outside liasons for this abandoned resident. He acts as an agent for residents for dealing with all sorts of professionals, from physical therapists to debt collectors.

Cliff was ever so diplomatic in the way he subtly admonished me for declining to attend a memorial service for residents who died in 2008. He also dropped a lot of hints I was spending too much time on the Internet for an authentic resident experience. He argued it was highly improbable an 80-year-old resident with even mild dementia to be netsurfing in 2009. I then said I’d read a book. He retorted that I wouldn’t likely be reading if I had dementia, because I wouldn’t be able to remember and follow a storyline. His point was, if I was sitting out at the nurse’s station, I really had two choices for an authentic nursing home experience: either attend whatever activities were offered, or let myself go stir-crazy, with absolutely nothing to do but talk to random passers-by. I assured Cliff that I was attending bingo and the performance of a visiting folk singer, but a ceremony for people I didn’t know seemed sort of pointless. I didn’t pass judgment on Cliff for passing judgment on my lifestyle choices at the home – that’s sort of his job. Other than that, he was very helpful and informative in letting me know his role in the workings of the home.

The rest of the afternoon and evening were rather uneventful. I read and wrote a lot in my room. Joe and I watched Judge Judy together. I talked with my wife on the phone, and told her I had a longtime fantasy of meeting Judge Judy, and eloquently and brusquely telling off that self-righteous, no-shades-of-grey-seeing lady, the way she always does to her plaintiffs and defendants. My wife said a person like me would never get selected to go on Judge Judy. In fact, my wife has balked at all of my dreams of appearing on daytime TV just to deliver a nationally broadcast wiseass remark.

I rang my call bell for the very first time at 18:30, requesting an extra cup of coffee, and ambulation to the bathroom. It was a good 15 minutes before anyone arrived, and the nurse who arrived wasn’t coming to answer my bell, and in fact didn’t even work on my unit. He was a friendly guy around my age, originally from Africa. We conversed briefly about my stay at the home, before he sent for a CNA to assist me. The CNA brought a gait belt to help move me, but forgot the coffee. This was a very good example of the shoe being on the other foot – I now know exactly what it feels like to be dependent on the use of a staff-resented call bell for my daily needs. I imagined that if I were feeling sick, scared, or lonely, that 15 minutes would have felt like eternity. The way the call bell system works in this facility, a resident has no way of knowing that his call bell is activated. The light outside the room isn’t visible from inside, and the tone only sounds at the nurse’s station. I was reminded of an elderly man with dementia on an earlier nursing home job of mine, who kept pressing his bell and saying, “Damn thing doesn’t work!”

I waited until 23:30, when the night CNA was on shift, to be transferred into bed. I stayed awake and read until the night nurse “Wanda” came by to give me my nebulizer lung treatment. She was new, unaware of my status as an experimental resident, and apparently also unaware of how to set up a fake nebulizer treatment. She filled the little tank on the mask so full of water that the treatment lasted an extra long time, and water remained at the end, enough to leak out and wet my papers on my bedside table. Still, Wanda was very helpful in juggling the plugs for the nebulizer machine and the power supply to my laptop. I reflected on the co-mingling of resident belongings and institutionally provided items like the nebulizer machine, and the difficulties that can cause. I imagine this boundary eventually blurs to a long term resident, especially one with dementia who requires a lot of machinery for life support. Eventually the resident may come to see this machinery as inherently his, or conversely, his own belongings from home as accoutrements of the facility.

Sleeping was difficult, for I found myself haunted by a lot of fearful thoughts. For the first time it truly hit me that I was in the thick of this whole institutional experience, and really had only just begun. Unresolved issues from my outside life still flowed through my mind, and I could not take solace in knowing I was in a safe and protective environment, because I knew I’d have pureed food waiting for me in the morning, and a bed alarm ready to go off whatever move I made. I’d also had way too much caffeine.
 
May 28

8:00. I woke to “Priscilla” the morning CNA, in a much better mood than the day before, helping my roommate get up and get dressed. This took a while, and I could feel the vibe of excitement from his side of the room. This was the day Joe was getting his staples out from his hip surgery. Priscilla told me that I was taken off bed and chair alarms today, and that I was upgraded to independent ambulation, albeit still with a walker, within my room. Just this small and seemingly insignificant improvement in my independence made all the difference in the world to me. I felt like a prisoner who’d been freed. The alarm disconnected, I made my own bed while laying in it, which made Priscilla quite a happy woman. I made my way to the bathroom by myself, at my leisure, once the transport van had whisked Joe away. I collected and carried only what I needed to wash, which also felt refreshing. I was glad I brought deodorant, because the home didn’t supply me with any, and after not showering the night before, I needed it.

When I emerged, my dreaded breakfast had arrived. My challenge for the day: to eat a diet of pureed food. I felt like a contestant on Fear Factor – I’ve always wished I were a more adventurous eater than I really am. I’ve never liked eggs – the hint of sulfur wafting up into my nasal cavity has been enough to make me retch, as long as I can remember. There, sitting in front of me, was a pile of finely ground scrambled eggs, with nothing on them. I was also served two bowls of oatmeal, and a bowl of pureed yellow-orange mystery fruit, with tiny bubbles still suspended in it, fresh from the blender. I peeled back the condensation-drenched cheap plastic covers slowly, only then realizing that I was given nothing to put on the eggs but salt and pepper. I decided it was time to swallow my pride, if I wanted to swallow any of this food; when the nurse came with my fake meds and asked me if I needed anything, I sent her for some packets of ketchup.

Even the ketchup and two servings of salt and pepper couldn’t hide that horrid institutional powdered egg taste, and the slimy pureed texture wasn’t alleviated by any of the other foods I tried to mix in the same mouthful. I managed to keep from gagging, but it took a lot of self-coaching to swallow each bite. What finally worked each time was ending each fully chewed bite with a big swig of black coffee, reciting the mantra “It’s just coffee, drink it down” in my head, and then necking it in one forceful gulp. Somehow I managed to finish it all. The dietary worker who collected my tray saw that I left not a morsel and congratulated me for my bravery, saying she worked with this food every day, and couldn’t bring herself to eat it. I was rather proud of myself, and very happy to feel full.

The first group of visitors I received, at 13:00, included the case manager “Kiki”, along with Cliff, once again. Her spiel to me had a lot to do with giving me a sense of the vast amount of paper documentation and business savvy required to do her job, especially for receiving reimbursement from Medicare, which most of the residents were on. Her story sounded like an absolute bureaucratic nightmare, and the Medicare reimbursement forms seemed ominously similar to long form IRS tax sheets, except even more complicated. I almost wanted to tell her I pitied her for having that job, since I don’t have a head for business or finance, but I decided this would be rather insensitive. Instead, I inquired about what role a physician played in her and Cliff carrying out the duties of their job. Signing orders seemed to be the basic gist of their answer. Cliff told me that some doctors were very businesslike and jaded, and often came to the nursing home to do little else but sign orders and other forms that they’d barely read. Overall, Kiki and Cliff gave me a very good taste of the dark side of managed care -- $600 spent on a patient, but only $100 reimbursed by the government, due to some disqualifying technicality or paperwork error. Recouping or finding ways to absorb expensive financial losses seemed to be the major thing about case management work that gave me the heebie-jeebies. I’d be on blood pressure medications in no time if that were a major part of my job, and I’ll keep this in mind when choosing a medical specialty. Like I said, I have no taste for the business side of healthcare.

The case manager asked a general battery of questions about the quality of my stay, and asked if I’d had any issues. I volunteered that I hadn’t slept until 2:00 the night before, but I’d brought a bit of Benadryl with me, should this be a recurrent problem. Kiki shook her finger at me, and informed me she’d have to tattle on me to the nurses as being noncompliant, for possessing medications not documented by the facility. I couldn’t tell whether she was kidding or serious. I hadn’t thought this would be a problem, since I signed a legal document authorizing me to self-medicate. In any event, I’m perfectly willing to turn over the six pills of Benadryl in my possession to the nurses, if they so desire. I wondered how frequently this situation arises with regular residents, especially ones who are cognitively impaired: the meds in their possession, for some reason unbeknownst to them, do not match those on their official record. Apparently this is quite a common problem, from other people I’ve spoken to.

At 14:15, I was visited by a group of three nursing students from the local community college, along with their mentor, an RN who does not work at our facility. They were coming to take my vital signs, and practice performing a neurological exam on me. The students, one man and two women, were all around my age, and fairly fun to talk to. The first test was a lot like the one Cliff gave me yesterday, but also involved some simple tasks of listening comprehension, copying a drawn figure, and doing some simple mental math. The student nurses, who are about to graduate and take their licensing exams, seemed unaware that I was not a real resident, which created an interesting dynamic. They thought I was remarkably lucid for a man with mild dementia, my lungs were surprisingly clear and strong for a man with COPD, and my gait and energy levels surprisingly good for a heart attack survivor. I kept up the ruse until the end, when the mentor remarked how odd it was that my spot on the medication cart contained naught but M&Ms. It was fun reviewing the cranial nerve checks, and I even showed the nursing students some of the shortcuts I knew for checking all 12 cranial nerves in a hurry.

Joe has returned with his wife from getting his staples removed, and is in good spirits. I am in good spirits as well, seeing as how my final pureed meal (meatloaf and potatoes) is far down my gullet, and I’m upgraded from pureed to ground food for dinner.
 
May 29

This day felt very busy and businesslike. I felt like there was never enough time to do something at a leisurely pace, before I was being interrupted and urged to turn my attention to something else. This is why I’m writing my entry a day late – by the time I had time to write, I simply had no motivation to do anything but relax and read magazines.

I was woken at 7:30, to the distinct feeling that I was rising a bit late for the norm, even though I’m not used to considering 7:30 “late morning”. The morning CNA, a middle aged woman I’d not dealt with before, had just finished getting my roommate ready to go, and woke me by announcing that the bathroom was free if I wanted to wash. I felt my face, and realized I’d need a shave. I’d brought a 69-cent single blade Bic razor with me, but no shaving cream. Using the apricot scented all-purpose shower goop that flows like synthetic milk and honey at any nursing home, I proceeded to swiftly scrape my face. Ouch! I’m used to using an electric razor, which I did not bring for the sake of traveling light.

Shaving male residents is one of those tasks that’s high-risk-low-return for caregivers. I’d done it many times as a CNA, and was happy to do it, especially because it quickly became conspicuous when I’d neglected to do it. Leaving male residents unshaven reflects poorly on a CNA’s caregiving skills, even though when you think about it, it’s entirely cosmetic. Breaking the skin is a real risk, since the caregiver can’t feel the pain in the skin he or she is shaving, and this presents a serious problem for diabetics and people with blood clotting problems, that can be anything but cosmetic. Therefore, it came as no surprise that no CNA ever asked me about shaving assistance during this stay, even though I was listed as someone who needed setup help with toiletries. Time just didn’t allow for it. If I were a long term resident who was neither nimble nor thick skinned, I would make sure I bought myself a good quality electric razor.

When I emerged, the CNA was there to hustle me to the dining room to eat, for the first time. No more eating in isolation in my room. As I had feared, I was running late from the very start. Breakfast was served at 7:30, and the CNA had failed to rouse me at 7:00, when she entered our room and announced her presence. This annoyed me. If I had known I was expected in the dining room at 7:30, I would have put off shaving, and might have considered setting an alarm. Although I have gone through phases of my life where I was definitely a morning person, now does not seem to be one of them. One feeling I’ve always subtly resented was being the last one to get up and get going wherever I am, and rising to find everyone else already up and ready to face the day, nonchalantly unsympathetic to my frustrated craving for more sleep. It was my own fault anyway. I knew today way my glorious debut in the dining hall, and could have easily inquired about what time breakfast was. I just wasn’t used to it, and never thought to do this.

The dining room staff were understanding. They all knew my name, even though I didn’t know any of theirs – I am definitely a celebrity around here. I was offered a thick terrycloth “clothing protector”, a phrase that I can’t say without rolling my eyes. I never thought I’d hear that expression again after I left my first nursing home job, and their lengthy lexicon of dignity-promoting doublespeak; the second nursing home I worked at, in big bad New York City, didn’t mince words and called a bib a bib. Apparently here, as on my first job, a diaper is called an “adult incontinence product” or a “brief”. (I don’t mind the latter, since it is, well, brief.) I’m starting to get the idea that practices at my first job were up to date with industry standards, and that the cutthroat and expensive nature of New York City, somewhat counterintuitively, favored a resistance to change from an earlier era. I still remember finding it odd and dated to be paged by my surname while working there.

I was seated at a table with three older gentlemen, who all turned out to be highly interesting people to talk to. I’ve enjoyed good food and good conversation with this same group every meal since. There was “Rex”, a former security guard from Acton, Massachusetts. He wore the thickest glasses I’d ever seen, was confined to a wheelchair, and definitely in the worst shape of the three. He didn’t say much, but was still mostly lucid, and easy to talk to. There was “Jack”, a retired elementary school teacher from Waltham. I could tell from the twinkle in his eye he had a way with kids, and was quite intelligent. He had a lot to say about education in America, and lamented the widespread decline of the community public school that was within walking distance of students, and served as a social hub for parents. He rolled his eyes when telling us that the school he taught at for 45 years had been sold to a developer for condominiums. Then there was “Mark”, a proud Armenian man with a thick white moustache and the demeanor of a scholarly gentleman. He had worked as a journalist, and had traveled a lot. He enjoyed telling me about the history of his people, both in the old country and in Massachusetts. When the conversation inevitably turned to politics and public policy, I found myself in very thoughtful and sensible company. All three were WWII veterans, with nothing glamorous to say about war. These men were a far cry from the stereotype of the old curmudgeon who clings stubbornly and without thinking to the ways of the past.

I had barely returned from breakfast, when a trio from Corporate Headquarters showed up at my door. In contrast to the last three people I’d interacted with, these two men and one woman were walking stereotypes, who would have fit in very well on the TV show The Office. Their interest in me had a lot to do with the good publicity I was capable of generating for their chain of nursing homes. Little they told or asked me stuck in memory a day later, but I do remember they smiled at all the right moments, and seemed eager to please, in a very slick, “make a good impression on our client” sort of way. This became crystal clear to me when the older man volunteered to personally remove the nutritional shake I was served unsolicited, and which I’d mentioned offhand I had no interest in. They even flattered my spiel about myself and my mission at the nursing home with a vague interest in hiring me after I was done with medical school, odd for not even really knowing me. The woman urged me, “out of our own selfish interest” (her exact words), to be a bit more demanding of the staff, so that I could help them identify any problems or weaknesses in the quality and delivery of care. As I expected they would, they strongly encouraged me to call them at headquarters right away if there were any difficulties, or anything I needed.

I reciprocated the plastic smile, and took them up on their offer to fix any problems, by treating them to a mildly impassioned rant about my frustration with their web filter. I told them I understood why they’d have an interest in preventing employee loafing by blocking Hotmail, as well as any websites that were not, well, G-rated. They diplomatically tried to frame the latter as a protected health information security issue (unconvincingly). I told them I was not only not an employee and not a hacker, but also an adult, capable of making his own decisions about what content was appropriate to view online. I let them know that Hotmail was my main e-mail source, and that I also would like to be able to listen to streaming audio, also blocked. True to their word, I later received several calls from IT. Yes to Hotmail, no to streaming audio sites – this hogs bandwidth and slows down the system. Quid pro quo, sort of: I’ll say good things about their facility to the press, within limits, if they’ll lay off the Internet censorship, within limits.

My next visitor was a student nurse, here to repeat the same neurological exam that her classmates did to me the day before. She had a flirtatious vibe about her, and seemed to want to prolong her time spent with me. I wondered if her mentor had wanted her to learn the neuro exam from me, knowing I was a medical student.

After lunch with the guys, remembering my promise to involve myself in more activities and get out of my room, I stayed in the dining room to attend a concert by a popular local folk singer. It was just a guy with a guitar and a harmonica, who sounded like I imagine Bob Dylan would sound if he could sing. He played a lot of old standards and his own arrangements of showtunes, and the residents really enjoyed him. I observed a faint pitter-pat throughout the room, and a slight squeaky rocking of wheelchairs, as residents tapped their toes, and there was a warm, almost churchlike drone as residents gently crooned along to songs any American knows. Music is truly as powerful and soothing to the mind as any drug, and I felt the residents were lucky to be regularly treated to such talent.

Not content to do the bare minimum in terms of activities, I also attended bingo. The caller was a young upstart, just recently graduated from high school, whom I later learned was the CEO’s son. He had powerful voice and a desire to major in philosophy, and he knew the typical bingo crowd and each of their idiosyncrasies quite well. He had an eloquent and subtly world-weary sense of humor that reminded me of a young George Carlin, as he reacted to the same tired puns and moments of resident confusion he’s undoubtedly treated to every time he calls bingo. I had been told the bingo crowd was quite a clique, and though they are undoubtedly loyal fans of the game, I found them at the same time welcoming to me as a newcomer. Their aptitude at keeping up with the game varied. There was the trickster who took chips off her neighbor’s board when she was not paying attention, the dotty old lady who could never keep track of what numbers had been called, and the sharp-tongued, loudmouthed Italian grandmother, among others. All told there were about ten players seated around the big table, with two cards each, all vying for worthless plastic tokens. I didn’t win any rounds, but I didn’t care – observing the seasoned social dynamic of a dedicated group of aging gamers was plenty fun enough. The game had the thinnest veneer of competitiveness, but it was clear that companionship amongst people who might not otherwise have anything else in common to bond over, was definitely the real prize to be won.

Other little things not particularly relevant to my immersion experience rounded out my day, such as some calls to friends, and a visit from the head of nursing, a very helpful and practical woman who’d heard from the nurses that I had some unexplained skin lesions. She invited me to her office, because her nursing specialty was dermatology, and diagnosed by lesions as psoriasis. It was also my shower day, and not needing a CNA to accompany me to the shower chair anymore, I felt like a Scottish rebel for wearing no swimsuit under my hospital gown.
 
May 30

I remember now how different the weekends feel at a nursing home. The place bustles a lot less, and staff is scarcer and busier. I was awoken at the proper time, but after my morning ablutions, no one was there to hustle me to the dining room. I soon joined the usual crew in discussing WWII over oatmeal, but something soon caught my attention as not quite right: it was the orange juice. It took a bit too long to flow from the cup into my lips, and traversed the interior of my mouth a bit like the oatmeal that came before it. And that’s when it hit me – this was the day I was put on thickened liquids, for a fake diagnosis of swallowing difficulties. I grimaced briefly as I eyed the thin, watery beverages before my compatriots enviously, but then I thought, after eating pureed meat, how bad could it be? I requested coffee, hoping that just maybe, I’d get served by a dietary worker who was tipping the round glass coffee pot on autopilot, unaware of my newly imposed dietary need. She did indeed fill my mug without question, before swiftly tearing open a packet of modified food starch and stirring it in. Orange juice at least is sweet and nectar-like. But coffee sludge? That didn’t go down as well. Once again I gagged, and Mark asked me if something was wrong. The guys had a bit of a laugh about my trouble, but I knew I was among friends, and besides, I was not about to go without caffeine.

I’ve been a bit drier and thirstier today, as a result of being on thickened liquids, and not being as motivated to drink. My water pitcher has been removed. Adding to this has been the suddenly increased temperature today, though after three straight days of damp, rain, and cold, I’m not complaining.

After breakfast, I sat down in my room at my computer, but even after sleeping, eating, vitamins, and coffee, sitting there and typing feels like a grind. I realize that it’s the institutional furniture that’s getting to me, and that I desperately need a change of scenery. There’s just something about the way the chair arms chafe my elbows, and the way the back of the chair inclines my back, and the way the tray table squeaks, rocks, and restricts my feet. There’s also the fact that the sun is shining outside, and my roommate Joe is not emanating sunshine today. I get the sense there will not be a parade of people into my room to meet this most unusual zoo animal of a resident, because it’s Saturday. So I tell the nurses I’m going outside to see the llamas and take a walk around the grounds.

My walker slows my pace to a point where I can’t not stop and smell the roses, which adds to the refreshment of going outdoors for the first time in 4 days. I’m in front of the home as I write this, and many other residents are sitting with me, chatting with family and friends who’ve come to visit them. I realize how much of a gift a day like this must be to residents, especially ones whose mobility and ability to participate in active indoor activities is severely limited. If I had to choose between retiring to a place where it’s always warm and green, and retiring to a place close to people who could visit me often, I’d have a hard time choosing.

Today is a relaxing day, in sharp contrast to the past few, and I’m ever so grateful for it. At the same time, I’m bothered by the fact that a couple good friends of mine, whom I called the other day, neither picked up nor returned my calls. Not knowing exactly where I stand with old friends that I’ve been out of touch with for a long time is a feeling I’m no stranger to, since keeping in touch is not my greatest talent. It’s a feeling well captured by the Portuguese word saudade, which has no exact English equivalent (and is worth a lookup, if you’ve never heard this term). But I can imagine how much more frequent, not to mention salient, this feeling of longing for past joyful relationships that are possibly (but hopefully not) gone for good, must be in the institutionalized elderly. This is because they are nearing the end of their lives, are never quite sure of how many old friends still are living, and have nothing but time to reminisce, obsess, and spin “what ifs”. I realize I need to get better about holding those close to me closer, so that I have a lower chance of being sad and alone when I’m old and gray.
 
May 31

I woke up this morning around 4:30, feeling terrible. I was shivering and cold, even though I somehow knew it wasn’t really cold in the room. Uh-oh, I thought, I hope I’m not getting sick. I’d seen enough residents wheeling around with boxes of tissues atop their laps, so it was a distinct possibility. And at this point, I felt crabby and sleepless to boot. So I got out of bed to look for my earplugs and eye mask, in the hopes of shutting out the world and at least slipping into a sensory deprivation state superficially resembling sleep, until morning came. No sooner had I gotten up and gone to my closet to rummage through my bag, when the weekend night nurse and night CNA showed up at my door to shake their fingers at me for moving around without a walker. I just wasn’t in the mood to deal with people, not in the least. I had only walked two steps from my bed to the closet, and if I were truly unsteady on my feet, I would have had plenty to grab onto. As a matter of fact, I was holding onto the frame of the closet as I crouched down to open my bag. And what’s more, a walker would not have even fit where I was. But I guess if getting the full nursing home experience was my goal, what I was doing was technically cheating.

Much to my chagrin, I realized I’d forgotten to bring my eye mask. The weekend night CNA “Roberta,” was a portly, chirpy, overbearing but well-meaning young woman. (If I were making a film version of this nursing home adventure, I’d probably cast Kathy Najimy, or maybe the woman who played Big Bird.) Roberta was all too eager to help me look, or offer me some suggestions for how to make a makeshift eye mask out of a towel. Feeling sick and tired, this was the last thing I needed. I just wanted to be asleep again as soon as possible, and Roberta just didn’t get the hint. I never realized I was curt with her, until the next day when the staffing coordinator told me she’d felt rebuffed. I felt bad, because I really didn’t mean to be a jerk. I just do not like getting bugged when all I want to do is sleep, and can be a bit crabby when people foist their presence upon my sleep-deprived self. The staffing coordinator understood – Roberta was apparently well known by other staff for being very intense and sensitive, and a bit of a perfectionist on the job. Roberta was dead wrong about the towel, by the way. The towels the facility provided were amazingly big and fluffy, but poorly suited for use as a head wrap or eye mask. Bless her.

It didn’t take as long as I’d anticipated to fall back asleep, luckily. After some bizarre and vivid dreams, another common indicator that I’m about to get sick, I woke feeling remarkably good and refreshed. It was also 8:30. I’d missed breakfast, and there was a cold breakfast tray waiting for me on my bedside table. I ate it down quickly, as not to keep the dietary staff waiting too long. As it turns out, the morning CNA had tried to rouse me at the usual 7:00, and I was dead to the world – apparently I’m no closer to becoming a morning person. At least today I felt OK, and was fairly sure at this point I wasn’t sick. Whew.

My wife had been feeling ill in the days before I went into the nursing home, and being certain I was destined to catch whatever she had, I remember thinking how fitting it would be to enter the nursing home in a genuinely sickly state. I really don’t know how I got that notion into my head, because I would have felt irresponsible importing a nasty germ to a population that won’t be leaving after ten days. Sure, the facility would have had the wherewithal to care for me. But they weren’t expecting to, and being sick would have made it hard to cooperate with the activities the home wanted me involved with, such as writing this journal.

Sunday at the nursing home turned out to be rather devoid of organized activities, vital healthcare and harmless entertainment alike. Many family members were there to take their parents and grandparents out for a bit of air, and as it was sunny, I decided I’d try to get outside too. But it was not to be. I was stopped at the door by the receptionist, whose desk had been unmanned and draped in paint tarpaulins the day I arrived. She told me my picture was in the book on her desk marked “Do not allow to exit unsupervised.” So all this time, I had been sneaking out illegally. She told me she’d have to find a caretaker who was willing to go out with me and make sure I stayed out of trouble, because according to the book, I had mild dementia, and thus was a serious flight risk. She couldn’t find anyone free, and so I settled for sitting in a hall with a big window. I had a lingering pouty “It’s not fair!” feeling about being trapped inside on a gorgeous day, a feeling I’m sure is familiar to many elderly who are not able to care for themselves.

This turned out to be a blessing in disguise, for I spent the remainder of the afternoon writing thank you cards to people who attended my wedding, almost a year ago. This gave me a great sense of accomplishment and was a real weight off my shoulders. I was proud to call my wife in the evening and tell her I’d finished this project that I’d put off for too long, and had promised her I’d finish. I think if I were ever institutionalized long term, and confined inside, I’d need some sort of writing hobby to keep me sane, even if it was just writing short notes to family and friends. Some phone calls to folks on the outside rounded out my day.
 
June 1

This was my day with the Alzheimer’s patients. I had looked at my schedule the night before, and this day had me rising at 5:00 to be transported to the Special Care Unit (SCU). From the way it was worded, I couldn’t figure out whether I’d be moving there with all my stuff to sleep, or whether the home had just decided to give me the experience of an abrupt transit at an ungodly hour, for some ungodly reason, with the intention of returning to my old room that night. So I packed up all my things the night before.

I was already awake at 5:00, and in the bathroom, when a knock and a heavy sing-songy African accent announced to me it was transport time. Apparently I was to move there with all my stuff, and I was glad I had packed. The transport consisted of nothing but the night CNA acting as a porter, as I walked with my walker down to the SCU. The nurse there was baffled about my stuff, so apparently the confusion was not only on my end – as it turns out, I was to return to my original room at night, making the transport purely symbolic.

The SCU looked similar to the other wings, except that it had a locked set of double doors with an access code, and a very large sunroom at the other end, in which the Alzheimer’s patients spent all their waking hours. I soon understood why the home wanted me to arrive so early on this unit. I was to play the part of the anthropologist in the South Pacific, observing unobtrusively the diurnal cycle of the dementia ward from start to finish.

It was not long after I arrived that the nighttime CNA of the ward wheeled out the first resident, and then the second. Both of these were non-ambulatory and nonverbal women, who were obviously completely dependent on the nursing home staff for all their needs. They were seated in GeriChairs, which looked like big soft recliners on wheels, which were designed to prevent pressure ulcers. One by one, as the shift changed, more and more residents arrived, the less able ones tending to arrive earlier. The first one that I noticed was a woman in a GeriChair who clutched a small doll and cried constantly. It was sad to see her, but it was obvious there was nothing anyone could do for her. Others would hum or mutter all day long, or simply bob their heads.

The residents on this floor varied considerably in their ability to function. A few were even able to walk without a prosthetic and could carry on fluid conversations, their dementia not becoming apparent until one observed their behavior for a few minutes. But most were wheelchair bound, and clearly incapable of any sort of self-sufficient life outside the facility. The woman who sat across from me at my table wore a worried look on her face at all times, and had a chair alarm, for she was constantly standing up as if to catch a train. Her speech made little sense. Also at my table was a man with a low gravely voice and head movements that reminded me of a turtle, who was impatient to get back to his room. I told him all hundred times he asked, that the janitor was in his room cleaning it, but he was determined, and as I was playing the part of a resident, it was not my place to stop him as he stubbornly wheeled his hospital gown clad self down to his unready room. He ate nothing on his tray except his ice cream. At a table behind me was a clique of ladies who reminded me of a bridge circle. They were all verbal and sociable, and eager to make my acquaintance, though our conversations did get repetitive before long.

I took the time to go around to all the tables to introduce myself. Most of them were happy to receive me, though some looked mistrustful, and a lot of them seemed unable to acknowledge my presence, returning only a vacant stare. At several intervals I looked around and drank in my surroundings, and I was reminded very much of a daycare center for small children. In one corner, a visiting daughter was singing a hymn to her comatose mother in a fully reclined GeriChair. At another table, women were painting cutout shapes of animals, occasionally bickering over arts and crafts materials. It’s true what they say – senile dementia is in many ways a regression back to early childhood, as the higher parts of the brain that house learned adult behavioral restraints become congested with plaque. I looked around at one point and noticed how many heads were lolling to one side, especially after long periods of inactivity.

As was the case with Gina several days ago, I found the conversations simple, often nonsensical, and full of misunderstandings and repetitions. But once I had earned the trust of the communicative residents, they seemed to remember my goodwill and good cheer, even if they could never remember anything I’d just told them.

“Astrid”, the young woman who works as the activities coordinator for the dementia ward, is truly a godsend to the residents. She’s a couple years younger than me, and her job bears some resemblance to a preschool teacher’s aide. From after breakfast until dinner starts, her job is to keep the more able and communicative residents focused on something to do. First came trivia questions, and then a brief sing along. After that came arts and crafts projects, which today involved gluing foam letters to paper, and painting cut out animal shapes. After lunch, the shades were drawn, and a movie was put on. I was quite impressed with Astrid’s tireless and friendly dedication to keeping the residents occupied, because although most of them have little in the way of short term memory, my experience with Alzheimer’s patients tells me this affords them no immunity to boredom, or general feelings of being alone and helpless. I’ve seen other facilities where residents with severe dementia are simply left to their own devices, and it’s no wonder they work themselves into a tizzy, and often end up clinging to staff and starting petty drama amongst one another.

Although many of the residents on SCU were not people whose company would be freely sought out by the cognitively intact, I was amazed at how generally tolerant and accepting they were of each other’s bizarre and annoying idiosyncrasies. One might occasionally beef about the lady who hums and rocks, or remark on how pitiable the crying woman with her doll is, but then they’d turn back to the structured activities provided for them, and a good time would be had by all. This facility seemed to have mastered the art of compassionate care for those with senile dementia, and I was truly impressed. The staff kept approaching me as I took notes, looked around, or conversed, worried I was going crazy. But the place never failed to intrigue me, and I was never bored.

I ate all my meals in the common sunroom of SCU, with the dementia patients. Most are not big eaters, and/or don’t have the attention span to be able to sit through a whole meal. I noticed that the facility’s dietary staff has a well-orchestrated plan for setting up the residents to eat, coaching the more able ones to devour at least a few bites, and literally spoonfeeding those who are helpless. Meals took a long time to serve, because of all the setup help that these residents needed.

Twice during my sojourn on SCU, the staffing coordinator asked me to come down to her office to debrief. I simply gave her my impression of my interactions with the staff, mostly along the lines of what I’ve written in this journal. She offered me feedback, and told me that I was received all in all very positively by the staff. She told me that, as I had suspected, my presence made the young female CNAs very uncomfortable at first, because they were not used to providing personal care to a young able man. (Remember Sara’s insistence on me wearing a swimsuit under my hospital gown?) But as time had worn on, I had won their trust and respect. I got the idea the staffing coordinator had expected me to be under much more stress than I actually was. She rewarded my being a good sport by approving me early to go out on the porch by myself this evening, and I really appreciated that.

I’ll leave you with one more thought I had about the roomful of Alzheimer’s patients. I likened the scene to a daycare center before, but as I looked around at all the lolling heads and vacant stares, and listened to a bit of mindless chatter, I was reminded of another setting I’d seen before: that of a packed waiting room at a train station, where the train is late, and no one knows exactly when it’s coming. I realized that in a way, this was exactly what this place was. These were passengers, with tickets in hand and bags packed, dozing or casually occupying themselves in wait for that great final train. No one could say exactly when it was coming, but it was certainly on its way.
 
That was a beautiful description of Alzheimer's Disease, coming from someone who has worked closely with Alzheimers... I only wish more people knew to communicate in "their" world with them. I was also touched by your earlier description of your discussion with Gina, where you realized at the heart and soul of each of us, we all long to feel acknowledged and appreciated.
 
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