I don't mean to scare anyone with the title, and I want to refrain from being too melodramatic. But I really don't know what to do right now, nor who to talk to or contact. In general, I have really like the people/support on here, so thought someone could advise me.
I was taking Mirtazapine for 2 weeks to sleep. It was only a low dose and I stopped it cold-turkey due to side-effects (with my doctor's permission). After that, I developed neurological side-effects .. akathisia, stiffness in my face and restless legs. I also have intense anxiety, scattered thoughts and so on. I'm not sure if people are totally familiar with akathisia here, but it's basically hell on earth .. an intense need to keep moving, inability to sit still, feel comfortable (even watching TV etc.); it's a common side-effect of opiate discontinuation. Even writing a simple email can be nearly impossible when it's at its worst.
I have always been prone to neurological side-effects on psychotropics (including akathisia), which is why I never really stayed on any. And now this akathisia triggered by stopping Mirtazapine has been going on for 8 weeks. To be honest, I don't know how I haven't lost my mind .. I am basically bed bound all day, I can't leave the house, and I can concentrate for about 5-10 minutes max, which means I am lying in bed writhing, or pacing energetically, or watching crap on youtube. Codeine helps for about 2 hours (which is how I'm writing this post), but I'm far too wary to use it regularly.
Here is what I've tried so far:
Benzos (paradoxical reactions to all)
Beta-blockers (slight help, but bad side-effects)
Going back on Mirtazapine -- made problem worse
Other antihistamines -- made problem worse
Cogentin -- made anxiety worse
Codeine -- eliminates symptoms by about 40%, improves mood a lot, but scared to use paracetemol regularly and find Codeine kind of activating
Lyrica -- trying now, can't tell if it's doing anything
I've seen:
My regular GP, who basically accused me of being a hypochondriac because I could hold it together for our 10 min appointment. Because I have an anxiety disorder, he will never do bloodwork or refer me to specialists anyway.
A family friend GP who understands what's going on to some extent but keeps insisting I drive 45 minutes out to see him because "it's good for [me] to get out the house". I managed to get there once, but it's too dangerous for me to drive.
Been to the emergency room twice; had to say I was suicidal the second time to get seen. Couldn't see a psychiatrist or neurologist, and was told by doctors they couldn't do anything.
I have not a cent to my name, nor am I entitled to any kind of centrelink assistance because I'm not a permanent resident (moved here from New Zealand 4 years ago).
My parents are battling financially and are basically c*nts, I don't know how to put it otherwise -- my mom is a tremendous narcissist who can't cope with anyone else's problems. When I've asked for advice, she just freaks out and will kind of insist I figure it out, so I don't bother talking to her anymore. My dad is introverted and distant and got fed up with me years ago.
I have a referral to a private psychiatrist -- I think he's practising again in a few weeks -- but can't afford his fee. My family friend GP referred me to a public neurologist, which will take about 3 months.
I have dealt with a lot psychiatrically, but to be honest, this takes the cake. I am dreading knowing the Codeine will wear off soon and I will be back in misery. I feel paralyzed by fear, can barely think straight or make a decision when unself-medicated, and am living in bed. I just don't know how to navigate the Melbourne health system and am so scared .. I have no friends I can reach out to for support, family are useless. I have this nightmarish feeling of being completely alone.
Should I call CAT? Surely there should been some way to see a neurologist/psychiatrist faster, if it's a crisis, or do they not do emergency-room stuff in a hospital? It just sucks I am not eligible for any financial support whatsoever ..
Sorry if this is vague or whatever. I just want to emphasize again that while there is a lot of anxiety present, this is different -- akathisia can produce anxiety, and even at my most anxious, I have never felt this intense, horrifying restlessness. Also, please don't berate me or call me a hysteric or whatever.. it's really hard enough dealing with this right now.
Thank you ....
I was taking Mirtazapine for 2 weeks to sleep. It was only a low dose and I stopped it cold-turkey due to side-effects (with my doctor's permission). After that, I developed neurological side-effects .. akathisia, stiffness in my face and restless legs. I also have intense anxiety, scattered thoughts and so on. I'm not sure if people are totally familiar with akathisia here, but it's basically hell on earth .. an intense need to keep moving, inability to sit still, feel comfortable (even watching TV etc.); it's a common side-effect of opiate discontinuation. Even writing a simple email can be nearly impossible when it's at its worst.
I have always been prone to neurological side-effects on psychotropics (including akathisia), which is why I never really stayed on any. And now this akathisia triggered by stopping Mirtazapine has been going on for 8 weeks. To be honest, I don't know how I haven't lost my mind .. I am basically bed bound all day, I can't leave the house, and I can concentrate for about 5-10 minutes max, which means I am lying in bed writhing, or pacing energetically, or watching crap on youtube. Codeine helps for about 2 hours (which is how I'm writing this post), but I'm far too wary to use it regularly.
Here is what I've tried so far:
Benzos (paradoxical reactions to all)
Beta-blockers (slight help, but bad side-effects)
Going back on Mirtazapine -- made problem worse
Other antihistamines -- made problem worse
Cogentin -- made anxiety worse
Codeine -- eliminates symptoms by about 40%, improves mood a lot, but scared to use paracetemol regularly and find Codeine kind of activating
Lyrica -- trying now, can't tell if it's doing anything
I've seen:
My regular GP, who basically accused me of being a hypochondriac because I could hold it together for our 10 min appointment. Because I have an anxiety disorder, he will never do bloodwork or refer me to specialists anyway.
A family friend GP who understands what's going on to some extent but keeps insisting I drive 45 minutes out to see him because "it's good for [me] to get out the house". I managed to get there once, but it's too dangerous for me to drive.
Been to the emergency room twice; had to say I was suicidal the second time to get seen. Couldn't see a psychiatrist or neurologist, and was told by doctors they couldn't do anything.
I have not a cent to my name, nor am I entitled to any kind of centrelink assistance because I'm not a permanent resident (moved here from New Zealand 4 years ago).
My parents are battling financially and are basically c*nts, I don't know how to put it otherwise -- my mom is a tremendous narcissist who can't cope with anyone else's problems. When I've asked for advice, she just freaks out and will kind of insist I figure it out, so I don't bother talking to her anymore. My dad is introverted and distant and got fed up with me years ago.
I have a referral to a private psychiatrist -- I think he's practising again in a few weeks -- but can't afford his fee. My family friend GP referred me to a public neurologist, which will take about 3 months.
I have dealt with a lot psychiatrically, but to be honest, this takes the cake. I am dreading knowing the Codeine will wear off soon and I will be back in misery. I feel paralyzed by fear, can barely think straight or make a decision when unself-medicated, and am living in bed. I just don't know how to navigate the Melbourne health system and am so scared .. I have no friends I can reach out to for support, family are useless. I have this nightmarish feeling of being completely alone.
Should I call CAT? Surely there should been some way to see a neurologist/psychiatrist faster, if it's a crisis, or do they not do emergency-room stuff in a hospital? It just sucks I am not eligible for any financial support whatsoever ..
Sorry if this is vague or whatever. I just want to emphasize again that while there is a lot of anxiety present, this is different -- akathisia can produce anxiety, and even at my most anxious, I have never felt this intense, horrifying restlessness. Also, please don't berate me or call me a hysteric or whatever.. it's really hard enough dealing with this right now.
Thank you ....