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Cpp

Sorry I haven't been on really in a few days.. Had some stuff come up with my lil one.. But bubble been in my thots!! Hope the procedure went decently enough, to help, even if it was just a tiddy-bitty bit!!!
 
M'k kids, so here's the update:

Ketamine infusion went surprisingly well! 1000mg over 96 hrs diminished my pain to around a 2/10, slurred my speech,lowered my inhibitions & I required elbow crutches to get around as I swayed side to side lol. Result!

The NMDA receptors remain dampened down after the infusion some weeks or even months for some lucky pain patients.

However, it didn't help much with my crps, my hip and some days generally my whole leg. Different type of pain. Bone pain.

So, that was a couple of weeks ago, and I've been cruising around happily, hence my time away from this site. I've begun hydrotherapy and also gotten over my fear avoidance of exercising on bad days & kept up my physio regime most days. Crunches, bridges, push-ups etc & now I've been doing this for a couple of months it's so awesome that I can feel my strength improving & increase my sets?.

As usual, I'm getting toward the end of the month with my scripts, & only have a few oxy left. I have however come across a 25mcg fent patch, I used to have these prescribed, & I know It's a very low dose, so I will UTFSE to see how to make the most of it.

Trainspotter, thanks so much for your informative posts.

Roo, I hope your doing well, and that it's not your time of the month of running low on meds as well.

Rtp
 
So happy things to be working well for u paradise!!!
I went in earlier then usual to dr, but it was the nurses fault not looking at calendar right. Either way, it worked in my benefit!! She refilled my prx, and even put me on morph. Last time I had em, I was sweating like a whore in church, but willing to retry. If they don't work, I tell her when I got back next month. She is hoping it'll keep sonething in my system longer, so it's not so hard to get I front of the pain and 'so I don't have to figure if it bad enough to take a pill'
 
Roo,

That must be incredibly frustrating for you,- trying all these meds with no positive outcome yet. Just a thouught, If your body metabolises meds so quickly, is there any possibility of a drug to slow ur metabolism eg: thyroid meds or a way to balance your liver enzymes?

Rtb
 
Runtoparadise said:
Roo,

That must be incredibly frustrating for you,- trying all these meds with no positive outcome yet. Just a thouught, If your body metabolises meds so quickly, is there any possibility of a drug to slow ur metabolism eg: thyroid meds or a way to balance your liver enzymes?

Rtb
Click to expand...

I know they have checked my thyroid and say I'm within .5, in the 'normal range' to Graves' disease. From what ibundersand about that, it speeds the heart, rabid weight loss, high metabolism, can pet rude the eyes ect.. I have the first 3 above, but due to that .5 on the normal scale, they can't give me anything. Trust me, I have tried!!
It's just one of those, hit and miss.. Then try a new meds game.. It get super fruatrating!!


And thank you captain,
Ppl looks at me like I'm making it up when I say I have crps. Like I'm supposed to be gang related for something. They then ask if it's like fibromyalgia.. I say I guess in a way, but has to do with the main, sympathetic nerve, vs the lil nerves in muscles. The worst part is when it jumps limbs and decides to work on part that I'm not used to the pain. Makes it so much more worse on the pain tolerance.
 
So, once again in wds, but managing. Pondering if it's the strong and stealthy amongst us that feel we will never become dependant on opiates or the weak & spineless.

As mentioned before, long time lurker before becoming a bluelighter, I've read so many threads, and really no one wants to be addicted!! Of course we all enjoy our doc, but after we've paid the price it seems so many find a point where they need to get clean.

This is so very different for chronic pain patients. We need these medicines, but so often can't be prescribed what we actually need. I'd love to hear from any cpp's in Oz or abroad regarding how they broached this with their Pain Mgt Specialists,

Cheers,

RTP
 
RTP

I hope that u have found some relief since we last chatted.. U have been on my mind ;)
 
Hey Roo,

Thanks, I did just get one of my scripts, short term relief, but the big doses come back in a wk or so, hurrah!

Likewise uv been on my mind. How's the morphine wrkng for u? R u running out of that early also or is temptation at bay with that one? Or is it helping u use less of umm, I've forgotten what u were scripted for short acting pain relief?

On a bright note, imma taking sweet child of mine outta school to head to a balmy beach for two wks, change of scenery & quality time + relaxation = clearer mindset. Well, that's my intent.

Roo, have u had physio? Or some type of regular excercise? I'm finding I actually look fwd to my hydrotherapy. The pool is 6ft deep,(I'm 5'8), so I'm up the deep end & I've graduated to running laps with the help of a flotation belt around my waist, squats, weights,- I've really noticed a difference with strength & tone,- great for impending bikini season.

Love to hear back from u as we really r so similar, & it's great to have a buddy to discuss where we're at & how things r going. Also if anything new is helping.

My mrng oxycontin has been increased with the intent of not having my oxycodone, or needing it, so far hasn't made any difference. Time will tell.

Talk soon,

RTP x
 
Rotp,

I so sorry! I haven't been on in almost a month! Been super busy with the kiddos and hubby!

The original morph prx was ok, wasn't quite strong enough so she wrote me a new one today for 30's plus my oxy 15's for acute.. I'll know more hopefully after I get better.

I have been super sick for over a week. The last 2 nights I can't sleep cuz I'm wheezing so bad. I can't get a full lung of air. My bestie finally broke me down this evening and I promised I would call in the morn to make a dr appt. I think it has officially jumped ship and is pnemonia ;(.
Otherwise things are going pretty good!! Answering ur physical movement quest, I do some here and there if I'm feeling up to it. Between my back and having a heart problem, it makes it a lil hard. Obviously my back cuz it hurts, but if my heart goes above a certain bpm, it just stops. My dr said it is a muscle and like other muscles u over work, they get tired and just poop out. Been a few times it has happened. Someone has to Wack me in the chest really really hard to shock it awake and pumping again.

But I have been trying to keep my house tidier then I usually don't! I won't lie, I do not clean, at all... Maybe 3 times a year I get a hair up my ass, clean it like Cinderella from top to bottom. Stays like that about 4 days, then it's back to my clutter filled home ;) I have been slowly doing small things, so I don't over exert myself, but still feel good about what I did. Like in the kitchen, I cleaned eveything, organized the cupboards, then moved a cpl things around and now have twice as much counter space! I picked up my dining room, put a bookshelf in there with all my daughters arts and crafts on. Usually all that stuff is on the table so we eat in the living room on trays. Well ever since I got that picked up, we have family dinner at the table every night! Well, Saturdays we make an exception and do the Living room, but we still talk! It's been awesome!!

How are things with u going?!?! I've had u in my thots and prayers ;)
Xoxox
Roo
 
Hey Roo,

Thanks as always for responding. Apart from being sick, it sounds like ur cruising around which is great! Although the heart bpm issue is a worry!!

Like u, I love accomplishing little things around the house, when I get the motivation which is smthg I struggle with!! I had new doors installed throughout a few wks ago, & that made a stunning difference & also gave me some inspiration as to how I'd like my new kitchen to be.

We've just returned from the holiday I spoke of in an earlier post. The beaches were all white sand & aqua water. Gorgeous. There were also surf beaches where sweet child of mine & I had a great time trying to bodysurf but mostly failing epically or getting dumped lol. It took ridiculous amounts of oxy to do this, but was so worth it!! So, when I'm wd-ing tmrw (sp), I'll look at the pics & draw on my memories to try to lift my spirits.

I still struggle with the merry-go/round of days where I'm taking more meds than prescribed,- smtms just to get sweet child of mine off to school, other times to do some light gardening or shopping. Then there are days when things just have to be done. School events to attend, birthday parties, family gatherings etc. I learnt quite quickly that no one can really understand my pain so I up my dose & do my best to appear "normal", & keep it to myself. Thats what I love about Bluelight, that there's so many Cpp's. We're all different, but we share that commonality. Also, it's quite possible the majority of BL's have known the horrors of withdrawing from their doc and there is a wealth of knowledge, understanding and support out there. So on my down days I get some type of comfort just reading different threads, knowing others have felt the way I have, some much, much worse. I love that this site exists, another community away from the regular population.

So, I'll be toughing it out for the next few days if anyone would like to say hi I'd really appreciate it!

Rtp x.
 
Thanks Aq,

Have trawled the above thread many times man, & will continue to do so. There's always someone worse off, mentally that can give me a lift to get off the damn couch & do something ;)

Cheers for the welcome also,

Rtp x.
 
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