Mental Health Coming off Invega Sustenna (paliperidone)

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I'm not sure there's any direct evidence that shows psychosis or mania damages the brain in any way or form. It could be damaging to the livelihood of the individual that is to be living in a reality contrary to others, but biologically there simply isn't conclusive evidence yet that establishes the process itself is damaging to the brain. In fact I will say, these states of minds are revelatory; that is a lot could be gained from it creatively, personally, and spiritually if the individual is more in control of his or her own life process. People do come out of these episodes naturally. Now looking back, I had many times probably; althought I can not be certain that my experiences can really parallel those definitions. I don’t think my mental states ever got to a point where I was not functional, lucid, and performing. Before Invega I was at my creative productive peak socially despite the existence of delusionary perception at times. This drug destroyed me. I’m sure most creative people derive the peaks of their performance from these altered psychological states that psychiatry is way too quick to condemn. Human beings are ‘spiritual’ creatures, their survival and continuity depends on the extremities of these experiences. We're the only species whom bury the dead and conceives of afterlives. It's just that these experiences are often hard to be boxed in the modern ‘scientific’ industrial experience. One thing is known for certain is antipsychotics are damaging to the brain because these are synthetic chemicals that should not be in your body thus explaining the adverse reactions , and they can seriously damage a person's mind biologically/physically (the permanent long term alterations such as tardive dyskinesia etc.). As experiencers of this awful fact, we can all concur that what ever benefit these drugs claim to derive, in the long run they do more damage than good. I became docile, removed, and more or less a zombie; but I was simply not cured, I was damaged. Maybe other people can report the contrary, but my experience has been one of utter devastation.

Instances of recovery for non medicated 'madness' is 44% at current even in developed countries. This is much higher than the instances of recovery for the medicated. It is much higher in developed countries where these medications are simply not available. It takes loving hearts, communities, families, and great amount of social and psychological support to really ‘cure’ individuals. The creative mind biologically functions the same as one prone to madness, this is well documented. It is terrifying and sad that so many of our creative and artistic people because of the lack of social support networks and more humane methods of recovery fall prey to a process that might do more damage than good in the long run.

Depersonalization/Derealization and my experience with it is that you see/feel not simply gain the frightening realization that reality is pretty much all illusory, the self is illusory, and not in any Buddhistic comforting sense that is, but in a nightmarish non functional kind of fashion which makes you ache anxiety even at the thought of it. Every day you get updates of your operating system-windows style where things become more real and you become more real and grounded- praying as i write this. It's not simply a visual experience of seeing things in a distorted manner but you also feel it in that manner. The disconnectedness might be related, but at this point I'm not sure it's just the reset button for the brain from the traumatic drug experience or the drug that's still active and doing this or simply this is how brain is trying to normalise. The feeling I had was my brain chemistry due to whatever reason that might had induced it is seriously out of equilibrium. I'm sure there's a lot of parallels with psychosis, but where here your eyes are wide open and certain that this is not the comfortable 'reality' you're seeing. I can say I had gotten a lot better, although colors and such are still off, but I can comment that weeks ago I wouldn't imagine myself being able to formulate thoughts or more or less write what I wrote today. My mind was so blank that I had one sentence ruminations for the entire day and I would just be walking back and forth in high states of extreme anxiety trying to come to terms with the emptiness of mind and the distortions of reality with the terrifying fear that I truly had lost it.


Here's a list of symptoms (from the links):

http://www.mayoclinic.org/diseases-c...s/con-20033401
Depersonalization symptoms

Symptoms of depersonalization include:


• Feelings that you're an outside observer of your thoughts, feelings, your body or parts of your body, perhaps as if you were floating in air above yourself
• Feeling like a robot or that you're not in control of your speech or movements
• The sense that your body, legs or arms appear distorted, enlarged or shrunken, or that your head is wrapped in cotton
• Emotional or physical numbness of your senses or responses to the world around you
• A sense that your memories lack emotion, and that they may or may not be your own memories

Derealization symptoms

Symptoms of derealization include:


• Feelings of being alienated from or unfamiliar with your surroundings, perhaps like you're living in a movie
• Feeling emotionally disconnected from people you care about, as if you were separated by a glass wall
• Surroundings that appear distorted, blurry, colorless, two-dimensional or artificial, or a heightened awareness and clarity of your surroundings
• Distortions in perception of time, such as recent events feeling like distant past
• Distortions of distance and the size and shape of objects


http://www.dpselfhelp.com/forum/index.php?/topic/32446-dpdr-daily-symptoms/
http://www.dpselfhelp.com/forum/inde...now-your-turn/

• Visual distortions, ghosting/trailing, floaters, 'blurred vision'
• pane of glass phenomenon in vision (like I was separated from everything)
• sensation of loss of self, could not find it, normal self-sense was not there, existential paranoia
• Extreeeeeeeeme anxiety, paranoia, fear of going insane or losing mind
• Frame by frame sensation, as if the world were existing in cut-frames and not fluid
• Forgetting names, normal things, difficulty conceptualizing/abstract or critical thinking
• This was so frightening, I thought I would never be smart or normal again
• Tendency to stare at things, knowing I should know what it was, but unable to 'feel' it normally, or think of what it was called
• This happened with people, places, and things (even people I loved, this was very hard)
• Extreme sense of sensory detachment from world, self, feelings
• ZERO short term memory (literally forgetting things seconds after they occurred)
• No sense of time continuity
• Constantly becoming aware of symptoms and reacting to them with anxiety/paranoia
• Constantly fearing I would never be the same again
• Hating God/Life for making me suffer so extremely
• Difficulty with coordination and speech
• Weight loss - I weigh 160 lbs normally, I was down to 120 during the worst...
• No positive emotions, only anxiety, fear and paranoia
• Fluorescent Lights felt terrible!
• Couldn’t drive a car (for some time) because my perception was $%^&*’ed
• Probably a thousand more….


 
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I'm not sure there's any direct evidence that shows psychosis or mania damages the brain in any way or form. It could be damaging to the livelihood of the individual that is to be living in a reality contrary to others, but biologically there simply isn't conclusive evidence yet that establishes the process itself is damaging to the brain. In fact I will say, these states of minds are revelatory; that is a lot could be gained from it creatively, personally, and spiritually if the individual is more in control of his or her own life process. People do come out of these episodes naturally. Now looking back, I had many times probably; althought I can not be certain that my experiences can really parallel those definitions. I don’t think my mental states ever got to a point where I was not functional, lucid, and performing. Before Invega I was at my creative productive peak socially despite the existence of delusionary perception at times. This drug destroyed me. I’m sure most creative people derive the peaks of their performance from these altered psychological states that psychiatry is way too quick to condemn. Human beings are ‘spiritual’ creatures, their survival and continuity depends on the extremities of these experiences.

As far as i know Mania doesn't cause brain damage in and of itself but the sleep deprivation it causes can certainly cause brain damage. The brains of Schizophrenics do however show signs of brain abnormalities and maybe even brain damage but psychosis is only one aspect of Schizophrenia and there are many Schizophrenics whos episodes of what we call psychosis are very rare. There is however a sort of kindling effect associated with Mania in that left untreated you start to rapid cycle more and the Mania becomes harder and harder to control. This certainly fits with my own experiences. I don't find anything to be spiritual or anything from a Manic episode and even hypomania get's to me after awile. As bad as Risperidone is i would still have no problems taking it like i have in the past for Manic episodes not controlled by the anti-psychotic i usually get which is Quetiapine. Now i would much rather Olanzapine or hell even good ol Largactil aka Thorazine over Risperidone especially or even Quetiapine. I find Zyprexa Zydis to work the fastest and be the best by far but as it costs a fortune i can rarely get it. Largactil works well for me to even though it's about the oldest anti-psychotic on the market but i don't find the side effects to be bad at all at 150mg's a day or under.


Depersonalization/Derealization and my experience with it is that you see/feel not simply gain the frightening realization that reality is pretty much all illusory, the self is illusory, and not in any Buddhistic comforting sense that is, but in a nightmarish non functional kind of fashion which makes you ache anxiety even at the thought of it. Every day you get updates of your operating system-windows style where things become more real and you become more real and grounded- praying as i write this. It's not simply a visual experience of seeing things in a distorted manner but you also feel it in that manner. The disconnectedness might be related, but at this point I'm not sure it's just the reset button for the brain from the traumatic drug experience or the drug that's still active and doing this or simply this is how brain is trying to normalise. The feeling I had was my brain chemistry due to whatever reason that might had induced it is seriously out of equilibrium. I'm sure there's a lot of parallels with psychosis, but where here your eyes are wide open and certain that this is not the comfortable 'reality' you're seeing
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I found Depersonalization and derealization to be a walking nightmare for me. I also used to get severe brain fog. It got so bad for me that i thought i was developing some type of Schizophrenia and the derealization was especially unsettling. This was before i got any of my psychiatric problems dealt with and it was a huge sigh of relief when i finally got up the nerve to ask a shrink about it as she reassured me that it was a very common symptom of severe anxiety and that i was certainly not loosing it like i though. She gave me Clonazepam to take and after a day or so my anxiety started to fade away and after maybe a week the DP and DR was gone along with the brain fog and neither has ever come back really. It felt like a fog had been lifted from my brain and that i was now only seeing things clearly. So mine was caused entirely by anxiety i think as the Clonazepam stopped the Depersonalization and Derealization as well as the godawful brain fog. From what i have heard first hand and from what i have read Anti-psychotics and especially ones like Paliperidone and Risperidone that can actually cause anxiety are not a good treatment for it and can sometimes make it worse. Benzos seem to work the best but they of course carry their own risks.
 
Hey Paranoid Android, thanks for your insights. I was given clonazepam and took it for about a month of time to calm the akathesia caused by the invega. The DPDR started probably around the same time of discontinuation. I don't know if this was due to some form of acute withdrawal but I had some pretty severe panic attacks and racing thoughts, so part of my fear of not taking any more clonazepam was that it might had been the trigger for the DPDR episode. I did reinstate once or twice with half a pill, and it did seem to make things a lot better- but things kind of return back to DPDR the next day. It's been nearly 5 months or more now with DPDR, and things have improved without medication although it still disturbs me to a large extent, and I would say probably I'm still rather distant from normal. There's been various different reports; it works for some people, and some people claim it will worsen DPDR once discontinued, because it's easy for the mind to become dependent on it. Most people say it's safer to just ride it out and see if it goes away within a year of time, and this way it doesn't come back and let the brain naturally resolve especially if there's a traumatic experience involved. So I'm kind of giving that a try, and it has been in every way I agree a walking nightmare.

There's this awful disconnect. It's like I don't quite belong to the world. It's a very disturbing feeling as you feel you're existing within your own dimension almost completely detached from the livelihoods of other humans. This happens especially when you're watching the news etc. Did you get this too during DPDR or is this just Invega?
 
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Invegascrewed: That's a awful long time for Akathesia to lift. Did you try taking Benzotropane with the Clonazepam or just Clonazepam alone? It could very well have been some kind of a withdrawal symptom and Risperidone is notorious for causing awful wd symptoms and i can't see Paliperidone being any better. I didn't get Akathesia quitting Risperidone but my mania came back so bad that i would start working out first thing after having some breakfast and a few spliffs, then i would clean the house top to bottom every fucking day, then go for a run on the 4 wheeler for a few hours and spend the rest of the day smoking weed and hash trying not to flip out.

Having DP/DR and brain fog certainly made me feel i was in my own world that's for sure so nope it's not just the Paliperidone because i was not on it and it got so bad i ad a hard time communicating with people because it felt sort of like looking at the world through a dirty windowpane. Did you get any emotional numbness with it by the way? That was a big symptom i had with it and once it lifted all my emotions came flooding back with a vengeance and i became alot more alert.

I didn't stop taking Clonazepam because i wasn't on it for just anxiety and DP/DR. I was also taking it for Trigeminal neuralgia which it helped quite abit with and also mania. I did have to go cold turkey once after someone nicked most of my script and i was about a thousand miles away from my own doctor and it didn't come back.
 
paranoid android: I'm curious about the fact that you smoke weed and hash after a risperidone treatment? I thought it was not recommended to mess with psychedelics in our case, I have been a weed smoker since I was 17 (I am now 30) and the doctors told me that I absolutely needed to stop smoking after having a psychosis which i believe was caused by LSD. Do you think I could smoke weed again someday?

Anyway, I admire all of you guys who got through the Invega hell, it's only my first month since the last injection and it's really a torture. I have to force myself to shower and to go out of my house every now and then, otherwise I guess I would just stay home and get frustrated all week, all month, all year long. I am happy that some people made it and are now living a happy and fulfilling life, it gives me hope for the future, this is an experience that i wouldn't wish to anybody, the feeling of being disconnected from reality is unbearable.

Good luck to all of you who are, like me, living through this, we will make it someday, hopefully with no permanent effects.
 
I took benztropine and clonazepam. The terrible DPDR kind of started after a night of ingesting benztropine without food. Early morning I had an ER visitation due to racing thoughts/ hallucination and then had uncontrollable akathesia. Afterwards, I wasn't the same again. It took several weeks to slowly realize that things seem very different. It was impossible to process information from youtube or television, and this disconnected feeling started. Soon I begin to notice the sky looks different, and familiar places seem unfamiliar, and places that gave me emotional responses no longer register. Sunlight, environments, everything started looking as if I been ported into another world. Some of my living room lights changed color. The sky would transform from one state to the next. Lights would also seem a lot brighter- there's improvements here. The first hypothesis was this some kind of withdrawal psychosis from invega or dopamine supersensitivity and maybe it was. Then things became slightly more consistent and resembling the symptom list of DPDR, and lights no longer changed color. That emptied out feeling arrived as if my body is a suit, and everything looked super clear and fluid. It was a hyperawareness state where I didn't seem to exist, and I was just two rolling eyeballs. Little by little as the weeks-months progressed. The self became a bit more fulfilled- it was many weeks of akathesia like moments of rumination and walking back and forth to ward off the extreme anxiety. Things would look two dimensional or photoshoped. Interacting with people and environments felt like a fishbowl- a warping of space. Things seem to be moving a lot slower than it should. At one point, that lessened, and visually things speed up. People and objects are moving more fluid now. Sunlight seems less clumpy and piercing. Agoraphobia starts getting better. It was easier per say to sit in a space and enjoy a meal and not be as bothered by the lights. Trees now seem crispy or some times fluid as light is reflected as if I'm watching everything on high definition television. The feeling of existing in a fishbowl kind of faded. Slowly, I'm feeling people and space a bit more- the emotional numbness part of it was the most aggravating, but listening to music still sounds like a structural rather than feeling endeavor. The presence of self is stronger, but I still feel directionless, a bit empty, and micro analyzing thoughts. There has been so many shifts of perception that it seems like a drug trip that never quite leaves you. Problem is how do you find normal after all this? Part of me thinks this might be DPDR or maybe withdrawal psychosis- whatever it is it's been long and painful- and improvements. After the sixth month, anxiety has improved a bit. It seems that most people do report most of these symptoms, and a lot do recover. It gives hope.

Invega also blocks your emotions so it's hard to figure out whether or not I ever recovered from invega or this is just DPDR triggered and taking its toll, maybe both. One thing though; the physical aspects of side effects that is parkinsonism, not being able to move my fingers, not being able to open my eyes, hypothermia etc. most of that has gone away or all. What is lingering is this emotional disconnect and not being quite able to register or process information and feel fully whether it be people, music, or a nice place ( which might all be just the DPDR ), and the voided sense of self which is slowly getting filled a bit more.

All of this really does make you feel like you're living life at 50%. There are still moments I feel like my body is a dog that I'm leading around the neighborhood, and that fragmented sense of self where the past doesn't quite drive the future makes it impossible to really plan or flow with the day. Constantly, I'm just trapped in forums trying to find relief from DPDR recovery stories, psychosis/mania recovery, or neuroleptic recovery. Which brings back to my original thoughts, what would had been better was a psychotherapeutic approach. Once these heavy duty drugs are involved which gave me more hallucinations, physical symptoms etc., and major cognitive deficits then whatever I had gave me complicated the situation a million fold. Now it seems impossible for me to find normal.
 
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I had a problem adjusting to feeling normal after the DP/DR went away and the brain fog lifted. I was so used to living in a total fog that the world almost seemed too much without looking at it through that dirty lens. I'll never forget when i was watching the movie "One Flew Over the Cuckoos Nest" about a week after it cleared up. I had seen it many times before but i became so emotionally involved in the movie i didn't even get up to have a smoke my whole time watching it. I fucking cried like a goddamn baby at the ending of it ffs 8) . Though i guess with such a awesome movie it was justified ;) . I ended up calling up my then g/f at like 1 in the morning bawling my eyes out about everything though i wasn't even depressed i was just overwhelmed and for the first time in years didn't feel emotionally dead.

It does take some getting used to but don't worry i got used to it pretty quick and so can you. Hell i hardly even get mental anxiety anymore unless i am really stressed or hungover. That's another reason why i rarely drink these days it really fucks with my head big time.
 
Ho-Chi-Minh: When I said Doctors advice never helped anyone I meant - yes, exercise=good. But everyone knows this already. If they aren't getting enough exercise it's not because they don't know exercise is beneficial. Likely the paliperidone has you feeling like a potato. Its not a lack of knowledge, their are other factors that can't be fixed by a sentence from a professional.

Doctors with personal experience of mental illness? You mean a spouse or family member with mental illness? After a dozen doctors I've never had someone tell me that but yes, it could happen.
But this second hand experience is still a world away from first hand experience and leads to different, conservative views of medication. To a spouse stability is #1 to the individual fulfilment is #1

If I told my doctor (and by the way I think he's the best I've had yet) that I haven't taken lithium in 18 months he might want to put me right back on it. I wouldn't be able to refuse and they'd monitor the blood tests much more carefully. They have the legal right to medicate me against my will. So no honesty then.

Would you say that if someone manages fine without a drug for over a year its clear that it is unnecessary? I think that passes a logical test. But last time I saw my doctor he told me of someone that had been unmedicated for three years and then had an episode. The moral of the story was that medication is necessary. They'll chuck that unfortunate soul back on medication. But shouldn't that period of time they were well be worth looking into? If they were medicated during that time they would take it as a sign that that medication is beneficial and should be continued. But any episodes during an unmedicated period are proof that medication is necessary. Double standards.

Anything to back up the idea that mania causes brain damage? I think this 'kindling' idea is taking over from the 'chemical imbalance' because the chemical imbalance idea has been around for long enough without any proof that it got embarrassing.

If the medical establishment is around to convince people of the benefits of taking medication shouldn't they just round up all the old bi-polar people and have them pass on this wisdom? Rather than a bunch of people with no first hand experience, heavily invested in a school of thought with no credibility?
 
I would argue that it definitely carries more weight coming directly from a mental health professional. Also, it seems to us like common knowledge, but I'd bet there are a fair number of people whom don't know just how much of a beneficial effect exercise has. Your point is well-taken though.

Yes I mean that, or they themselves may be going through it. I think it would be a borderline breach of professionalism for them to tell you though. They additionally run the risk of having that kind of personal information exposed to the wider public. Although they are usually required to keep your health information private, the same can't be said about what they tell you.

It's true that having a friend go through mental illness generally makes one less understanding than if one has battled it themself, but I think there are multiple factors to take into account. One is that if someone is in the early stage of developing psychosis and isn't treated, the family members of the individual affected will be able to see their break from reality more clearly than the mental ill person. Family members of someone who is mentally ill also love them, oftentimes more than the ill person likes themself, so it's quite personal. They tend to care about people who go through it as a whole because it hits home very hard for them.

Are you saying that your doctor thinks you're on lithium, but you aren't?

It's really not easy to have to be medicated against your will, both in the amount of evidence required, and, I'm sure, being on the receiving end. It's all about safety, my friend. I know it's not easy to believe, but other people know you better than you know yourself in many ways. Doctors spend countless hours in training so that they can find out what's wrong and develop a plan of best treatment. I don't doubt that some of them have put people on medication that they don't need, but these cases are the exception, not the rule. There are basically two things they want to ensure: your safety, and the safety of those around you. When you bring legalities into the picture, things get very serious, very fast. As I said, being forced to take medication means that there is a lot of evidence stating that you pose significant harm to yourself or to others without it. Of course I'm not lawyer or doctor, so please ask the appropriate professionals for a more accurate explanation.

I would say that, generally, that may be the case. However, it's important that the people around you are saying you're fine, not yourself. There are so many people that go off their medication and think they're fine. The key is getting outside input.

It's difficult because there's no telling what kind of environmental stress could set off an episode. I agree that people should engage in habits that improve their well-being. The problem is that medication provides a safety net that healthy habits can't necessarily provide. So, one may be doing very well for a significant amount of time while off a medication, then experience a trigger that makes them fall very hard to the bottom of the abyss. When this happens, usually they will need a higher dose of medication (than if they hadn't gotten off of it in the first place) to become stable. For some very unfortunate people, when this happens, the medication doesn't work anymore, in part or full.

If you could be a little more clear, I think we could have a more meaningful conversation. You're telling me that you haven't been honest? That your doctor hasn't been honest? That the system isn't honest? I'm not sure what you're trying to say.

I wish I had the time to look up and post sources. I might get around to it at some point. I'd encourage you to look up the evidence and decide from yourself.

People can't be mandated by the institution to tell their story. There's still a large stigma against mental illness, so people usually don't feel safe relating their story. That said, there may be a mental health support group that meets regularly and that is somewhat near where you make your home.

Again, categorically stating that mental health professionals have no first-hand experience is false. Psychiatry may not be as much of a science as chemistry or physics, but it's a basic necessity of what we currently can offer the mentally ill. There are other theories than the chemical imbalance one as to how most psychiatric medications work. I'd recommend doing some research on it. It kind of sounds like you're bias and haven't taken into account opposing viewpoints.
 
paranoid android: I'm curious about the fact that you smoke weed and hash after a risperidone treatment? I thought it was not recommended to mess with psychedelics in our case, I have been a weed smoker since I was 17 (I am now 30) and the doctors told me that I absolutely needed to stop smoking after having a psychosis which i believe was caused by LSD. Do you think I could smoke weed again someday?

Well Cannabis has never affected my mood negatively and if anything acts as a sort of mood stabilizer for me. Not to mention i also suffer from chronic pain so that's another reason to smoke it. My last shrink as well as my current GP both knew that i smoked weed while on anti-psychotics such as Risperidone, Quetiapine and Olanzapine. They said basically that if it works for me then they wouldn't tell me to stop using it. I mean it's not like i admitted smoking crack to them or anything though my doc does know about my past Coke/Crack use. I guess they figure out of everything i could be doing weed was the least harmful. Since i've been smoking weed and hash since i was 11 or 12 (now i'm 33) with no negative side effects my GP thinks nothing of it really.

As for you i can't predict how weed will affect you because everyone is different in that regard. But yes you may be able to smoke it down the road depending on your luck. Just be very careful if you do decide to do that as you don't want all your symptoms coming back full force.
 
Thanks for the info Paranoid Android. One Flew Over the Cuckoo's Next is definitely an interesting film.

For people who are on Invega, do you get environmental anhedonia as well- also if you managed to get out of it. I'm not sure if it's DPDR or invega probably both, but going to a nice scenic environment no longer feels the same way. I used to get a powerful sweep of emotion when going out to the beach. Maybe it's the distortions, but things are very much lacking in sentiment when out in nature.

How about you Paranoid Android, did you feel this way with DPDR?
 
Nothing I do feels good anymore thanks to invega. I'm about to start 25mg injections of invega next week, down from 50mg. Does anyone know how long I should stay on 25mg before I stop the drug altogether? I can't discuss this with my doctor as they believe I am taking the tablets. I plan to get re assessed/diagnosed once I am medication free as I should not be on them. I got stalked by an ex partner repeatedly and the policeman I told was a friend of his who then convinced the mental health team that I was delusional and made it all up when I didn't; so therefore I should never have been given this disgusting drug in the first place
 
Honestly I gained even more from the experience -- the suffering was for me a trial by fire. After the dust cleared I was able to gain a paradigm in life again. I am very well off now, compared to where I was while getting Invega-Sustenna out of my body, but even compared to my normal life before that.

I was diagnosed with brief PTSD and BPD (brief psychotic disorder) but it was well determined that I had no permanent mental defect. I had already graduated college by the time I had my 'episode' which led doctors to think Invega Sustenna was a good idea. What I frankly, really, needed was love. Just time, love, compassion, healing -- all these things were gratefully provided through my parents and others, especially a pastor and dear friend.

I can say that from the initial BPD and Invega injection, starting about a week or so after, I had serious depression -- yes, depersonalization. The way I phrased it was that I "lost my paradigm". I didn't have a basis of rational thought -- a foundation from which to build a worldview. It's like it left me when the drug altered my physical mechanism for thinking. I developed a very pessimistic, nihilistic, and almost atheist thoughtlife, and it haunted me for a long time.

All that said, yes, after 6 months it began to improve. The first 6 months were literally horrible, and I believe you when you say you have suffered and are suffering. For a time in the first couple months I had a strong uncontrollable impulse to get up, and pace/walk, as if to escape my body and thoughts.

After a full year I really was beginning to re-develop a sense of self and placement in existence. I read the scriptures (Bible) a lot more. Before the BPD I had read it entirely but Ecclesiastes in particular meant a lot to me in this time. My intelligence has been fully restored (if any were lost or altered in the first place). I'm firing on all cylinders. Eating well and a daily vitamin can only help you, even if the motivation is not there, you have to fight it. Do fight it. You can make it. I and others certainly have. I remember talking to a guy that said he suffered the same things from Invega but after 2 full years was totally back into a normal "swing of things".

What you (or anyone suffering from a temporary and especially unnecessary treatment with Invega Sustenna) need to know is this: You can and will get through this. I assure you that you may believe it is impossible, because so did I, but it is not impossible. The human body, mind and soul are absolutely glorious is their composition and capacity to heal.

Eat well, intentionally do good for yourself. Fight it. Pray. Pray desperately -- read scripture, do what you must, do what you can. Feel free to message back. I may not get around to responding immediately but I assure you I will make the effort eventually. As of now, I'm in graduate school working on a Ph.D. Nothing is impossible to him that believes, so do not lose faith in a full restoration.

If interested here's a thread I posted back in the thick of it: http://www.bluelight.org/vb/threads/712455-Life-itself-bothers-me

There is hope! Wish Khaverim7 will come back and give us more info.
 
Just wanna give you guys an update 8 and half months in.... derealization is still here.... depression and axiexty is still here but the lows of the depresssion are not as bad... my ptoblem right now is having confidence in my self in social situations. .... i feel a little bit off like "am i acting like my old self"


Got a follow up interview for this job tommorow so i hope that goes well
 
Nothing I do feels good anymore thanks to invega. I'm about to start 25mg injections of invega next week, down from 50mg. Does anyone know how long I should stay on 25mg before I stop the drug altogether? I can't discuss this with my doctor as they believe I am taking the tablets. I plan to get re assessed/diagnosed once I am medication free as I should not be on them. I got stalked by an ex partner repeatedly and the policeman I told was a friend of his who then convinced the mental health team that I was delusional and made it all up when I didn't; so therefore I should never have been given this disgusting drug in the first place
For me mdma gave me a break through.... i dont reccomend it tho unless you tried everything else first i was excercising, doing new activities going to therapy and still just needed that extra push ....thats my experience tho, do what you feel is best for you
 
Nothing I do feels good anymore thanks to invega. I'm about to start 25mg injections of invega next week, down from 50mg. Does anyone know how long I should stay on 25mg before I stop the drug altogether? I can't discuss this with my doctor as they believe I am taking the tablets. I plan to get re assessed/diagnosed once I am medication free as I should not be on them. I got stalked by an ex partner repeatedly and the policeman I told was a friend of his who then convinced the mental health team that I was delusional and made it all up when I didn't; so therefore I should never have been given this disgusting drug in the first place
Well Cannabis has never affected my mood negatively and if anything acts as a sort of mood stabilizer for me. Not to mention i also suffer from chronic pain so that's another reason to smoke it. My last shrink as well as my current GP both knew that i smoked weed while on anti-psychotics such as Risperidone, Quetiapine and Olanzapine. They said basically that if it works for me then they wouldn't tell me to stop using it. I mean it's not like i admitted smoking crack to them or anything though my doc does know about my past Coke/Crack use. I guess they figure out of everything i could be doing weed was the least harmful. Since i've been smoking weed and hash since i was 11 or 12 (now i'm 33) with no negative side effects my GP thinks nothing of it really.

As for you i can't predict how weed will affect you because everyone is different in that regard. But yes you may be able to smoke it down the road depending on your luck. Just be very careful if you do decide to do that as you don't want all your symptoms coming back full force.
Im smoking weed now but not like i use too..... more just to help me be productive. .... smoking weed just to feel good i think isnt the best idea but everyones diffrent..... when i started taking invega i didnt smoke for a good 6 months after the first injection and i think that helped
 
Symbolicone09: First good luck for your job interview tomorrow, think positive, I'm sure all will go well. I'm surprised you still experience derealization 8 months and a half away from your last injection, but I believe from what I've read that it goes away after a full year, my only hope is that it's not permanent and that all of this suffering is temporary, it hurts psychologically but it's bearable as long as one thinks it's a temporary situation. Did you at least notice an improvement from what you experienced 1-2 months out? This whole Invega thing is such a pain...

Thanks for the update!
 
Hey out of the all of the stuff I read, http:///dpselfhelp.com recovery sections etc. it's best not to smoke pot since it could be a trigger; alcohol, caffeine etc. Derealization/depersonalization is most likely due to a heavily traumatized central nervous system. Something heavy duty like Invega plus just the psychological experience of it might had triggered it. For me there was also clonazepam and cogentin involved which was discontinued too abruptly after just a month of use. Recovery from DPDR is hard to determine, that's the scary part about it, but I will say there's definitely been marked improvements. It's a bit more bearable. Waking up in the morning and just looking outside is still a drag, and the terrible part about it, is you really don't get the nice feeling you get when you look at nice places, but that could both be DPDR or Invega- for there's still a bit of distortion going on for me- There's also a lot of suggestions to just not focus on it, and be as busy as possible. It seems time is the best medication, and you just have to let the brain find its own natural homeostasis. I don't know if Khaverim7 experienced DR but he had some form of depersonalization and got better within a year. Most people make some kind of recovery from Invega in a 1-2 year period. It's hard to say they will be the same person, but I guess for each person it's different. Most DPDR recovery seems to be around that time too. 3-4 months, 6-9 months, or 1-2 years etc. Active engagement seems to be a big part of it.
 
Does anyone notice they gag a lot and vomit while on invega? I've noticed alcohol makes it happen more. Even one drink and I will start gagging and vomiting
 
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