Auto-immune disease is ruining my life

Burnt Offerings

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I'm not sure if this is the right place to post this, but...

Around a year and a half ago I was diagnosed as a type 1 diabetic, after a protracted period of time in which I experienced light symptoms of it (most notably blurry vision). There was absolutely no genetic link to it anywhere in my family history, so apparently I'm one of the lucky 0.5% of the population who contracts the disease with no genetic link. Ever since I started the medication they put me on, I haven't had one day where I've felt "well"...I pretty much always feel like crap, even though they've done tests that show my glucose levels as essentially being the same as someone who isn't diabetic (although the last A1C test I had was taken quite some time ago, I've probably been running high numbers since then).

Around November of last year I started having new, weird symptoms, including blurry vision/double vision coming back and weird sporadic numbness in some of my limbs, signs of degenerative nerve disease. I had an MRI done and based on the results they couldn't rule out MS as being a possibility at that time. I took the results to other radiologists who said that the results weren't really indicative of anything, though. I was (ab)using drugs at that time (recreational cocaine and amphetamine use, non-recreational/problematic lorazepam use) and coupled with some of the crazy stuff in my personal life at that time, my anxiety just went out of control and I had a rare, full fledged panic attack, probably made worse by the benzo use at that time. Symptoms "went away" for a while, but now they're back, and it seems that one of my eyes is losing it's vision compared to the other one.

Anyway, all of this stuff combined with my natural anxiety is really starting to corrode my sanity. The only time I feel "good" is when I'm high on drugs. :( I'm scared to tell anyone about my problems because I don't know what I'll do if I have some new disease...probably kill myself, even though death doesn't really look any more appealing than life. My body seems intent on self-destruction though. It sucks that I'm in my mid-20's and have to deal with all this illness. I just don't see any hope on the horizon.
 
This advice is really unorthodox. I would consider talking with your doctor and exploring the use of lamictal. I belive that the root of many autoimmune diseases will be found in the hypothalamus. I think that this medication can work to stabilize the bodies over all immune reaction.

Please take a read through this thread as it explores this idea in more depth.

An article I wrote on help with withdrawal, inspired by the Thomas Recipe
 
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Is there any support around you that may help?
I've had to deal with one health issue after another it seems like. I reached a bit of a breaking point in admin mistakes within the health system and that along with just the stress of the health issues led to me seeking out some things. I saw a counsellor and went to a health workshop for people with chronic issues.
For me, the workshop was a huge help, it got me out of the house and it was still going on when I finally got dx'ed and found out I'd be treating myself with IV infusions.

Seek out what's available to you, and go with whatever sounds helpful for your situation.

Sometimes you just get lucky too. Years ago, I went through an MRI as a test for MS after experiencing paraesthesia. I never got an answer as to the issue, but the doctor thought it would improve over time and it has. I still get it on a very rare occasion, but the frequency, severity and area affected has drastically decreased.

Even if that isn't the case for you, treatment can make a huge difference. I dislike the needle, but I'm grateful for the difference the IV drug has made for me. Getting a diagnosis can be scary and depressing, but having the knowledge can also be very beneficial.
 
That's really good idea BlueIV, with seeing a counselor and finding a workshop or support group for help. Aren't there more tests they can perform to diagnose MS? I thought that blurred vision was one of the most common first symptoms too. Is it possible for you to get a second opinion?
 
I don't know, if it is something like that I'd prefer to just die honestly. I'd just be viewed as an object of sympathy from everyone who knows me and I can't stand that. That's not how I personally view people with medical problems but I know that's how I'd be viewed by some people. Fuck that. I've seriously considered suicide before and came pretty close to actually killing myself (not in a cry-for-help kind of way, I was all alone at that time) but I couldn't muster up the courage to do it. Death still intimidates me somewhat. So is living a life of pain until an early death, though. The issue is mostly academic anyway since there isn't really an abundance of support services where I live.

Just need to get the issue off my chest.
 
I was able to heal fully and completely from the autoimmune and realted issues that made my life hell for almost five years, so i wouldn't give up hope. (going on two years symptom and medication free) The last little present it gave me was also type 1 diabetes, which I hope they find a cure for soon.

Hang in there and don't stop looking for an answer that works for you.
 
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