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A plea for help

Nobody in my family had them so they didn't understand the severity. They thought I was just some wuss. I fought them for years and years and no doctor could even diagnosis it. One day I found a surgeon that said in one second. "That's a cluster" and gave me Sansert and that was my abortive for years after wards. When Joey started getting these I was the only one that understood. That does not solve his problem but at least he has someone who understands and I'm trying to find an answer.

Yep, one side, it reminded me of someone was inside my head trying to push through with a hot fireplace poker. Whenever I said I was getting a headache, people around me would say, I think 'm getting one too. Right....

They are nasty SOB's for sure and if I thought pot was my answer, I'd be rolling with one hand and holding my head with the other, while gnawing on a bud.

Mine was and Joey's is cyclical not chronic but that's bad enough as every few months in cycle.
 
Nobody in my family had them so they didn't understand the severity. They thought I was just some wuss. I fought them for years and years and no doctor could even diagnosis it. One day I found a surgeon that said in one second. "That's a cluster" and gave me Sansert and that was my abortive for years after wards. When Joey started getting these I was the only one that understood. That does not solve his problem but at least he has someone who understands and I'm trying to find an answer.

Yep, one side, it reminded me of someone was inside my head trying to push through with a hot fireplace poker. Whenever I said I was getting a headache, people around me would say, I think 'm getting one too. Right....

They are nasty SOB's for sure and if I thought pot was my answer, I'd be rolling with one hand and holding my head with the other, while gnawing on a bud.

Mine was and Joey's is cyclical not chronic but that's bad enough as every few months in cycle.

Do you live in a medical marijuana state? Because that would really help out with protecting your son under the law. What state do you live in?
 
We live in Texas, I don't think we have that yet. Even so I bet getting it would take some real doing.

We went to more than a few Doctors of course and they didn't want to listen to me because they "know it all" and kept throwing Imatrex at us and that did no good so we gave up on doctors. My neurosurgeon retired so that's not an option. We even went to headache "specialist" and they still gave us the same run around. All they wanted to do was do a battery of tests to determine what it was, we already know what it is but they would not listen. God like "tudes" need not apply here.
 
We live in Texas, I don't think we have that yet. Even so I bet getting it would take some real doing.

We went to more than a few Doctors of course and they didn't want to listen to me because they "know it all" and kept throwing Imatrex at us and that did no good so we gave up on doctors. My neurosurgeon retired so that's not an option. We even went to headache "specialist" and they still gave us the same run around. All they wanted to do was do a battery of tests to determine what it was, we already know what it is but they would not listen. God like "tudes" need not apply here.

Ouch, that is rough. Texas has neither mmj or decrim. I think Austin has decrim. but not the whole state. I would strongly advise you and your son to be very careful.
 
I just called my pharmacist and he said Marinol was legal here but even the generic is 250.00 for 60 pills. Not an inexpensive solution but it might be our only one in the end.
 
I just called my pharmacist and he said Marinol was legal here but even the generic is 250.00 for 60 pills. Not an inexpensive solution but it might be our only one in the end.

If your son wants to stick with cannabis, you could do some research into an affirmative medical defense. Essentially your defense is that no sane person would put up with a debilitating disorder, like your son has, and not break the law using something that provides relief.
 
If for some out of this world reason you ever do decide to try the mushrooms will you please post back here and update? It would be really interesting to hear of any success or otherwise.
 
If your son uses any other substances, such as caffine or nicotine they may help him deal with the "side effects".

My best advice is to start with very small amounts several times throughout the day. Have him smoke just one or two hits, then wait for 20 minutes or a half hour before smoking more. Although when smoking the effects can be felt immediately, full onset takes about 15-20 minutes, depending on the weed and the individual. It is easy for an inexperienced user to smoke too much too quickly simply because they haven't really felt the first hit they took yet. A quarter of a joint may be too much too quickly for someone without a tolerence.

Get him a "dugout" and "cigbat". This is a small wooden box that contains a chamber for crushed bud and a little pipe that looks like a cigarette. These are very discrete and allow a patient to take in a small, controlled, amount every few hours throughout the day. I think I heard they were giving these to every new medical cannabis patient in California for a while.

Your son may find that after a few days or a week of taking cannabis is small regular small doses that he doesn't even notice the high, or that it isn't as uncomfortable as he once felt. Most people, when aware of their intake, eventually find the exact amount they need to smoke in a day to relieve their pain while still functioning.

Another idea is to make change the method of consumption. Has he tried edibles? Have him try cannabutter and tincture. Edibles have the added bonus of being extremely safe to carry and consume without police harrassment. Tincture in particular also works almost as fast as smoking when a small amount is held in the mouth for 30 seconds or so.

Marinol is not nearly as safe or effective as cannabis. There is plenty of information out there about it, so you should research and decide for yourself. I believe marinol is mostly on the market because pharmaceutical companies were desperate to find some way to profit from medical cannabis.

The medical cannabis program in New Mexico just a border away is just getting started, but there may be a way for him to get involved when it is more legit. I think it is more likely that Texas will just legalize the stuff rather than start a medical program, but that it still a few years away. I think most people in Texas don't want it to be a crime any more.

Chances are, your son's negative reaction to being high is psychological. You have said that he feels guilt for using drugs, which is completely understandable. There was certainly a time when I thought that pot was the boogy man, and it certainly effected my perception of the high the first few times I tried it, even though it wasn't something I believed anymore. If this is the case, he will probably learn to relax and enjoy the high a bit more as time goes on. The fear, at least for me, was in becoming a burn out, but being a stoner doesn't make your a burn out. Thomas Jefferson was a pot head, and so are most of the guys running the computer business these days. Lots of people get stoned every day and go out and accomplish things.

Good luck, I hope everything works out for ya.
 
That's a good point Kaneh, I did find a legal defense fund for compassionate care. Texans are just a bunch of tight a$$es. Republican state, Christian right extremists, bible belt, John McCain even won Texas, go figure.

First timers in Texas: With no prior felony convictions, if convicted of possession of less than one pound of marijuana a judge must impose a sentence of probation with mandatory drug treatment. If no treatment center exists within the jurisdiction, the judge may waive the treatment requirement. The judge can also waive all fines.

That's not a rosy picture.
 
artic,

He has a very low tolerance to any drugs. .05mg of Valium puts him to sleep for all day. The only time he uses it is when he gets a headache. I don't see him taking any hits throughout the day. Fact is, he does not want to smoke it at all.

I think the best approach is to monitor it, maybe one hit, wait 5 minutes and see if he get's any relief. If one hit does what he needs that might solve the problem to some extent. He says now 1/4 of a joint works but that might mean the time it takes to actually enter his blood stream from the first to the 4th hit. The first hit may be enough, self medicating is not a good idea but our options are limited and it's a shame we can't get him some relief legally.
 
We live in Texas, I don't think we have that yet. Even so I bet getting it would take some real doing.

We went to more than a few Doctors of course and they didn't want to listen to me because they "know it all" and kept throwing Imatrex at us and that did no good so we gave up on doctors. My neurosurgeon retired so that's not an option. We even went to headache "specialist" and they still gave us the same run around. All they wanted to do was do a battery of tests to determine what it was, we already know what it is but they would not listen. God like "tudes" need not apply here.

Have you tried contacting your neurosurgeon to see if he had a partner in the same practice or someone he could refer you to? I'm sure it's hard to find someone to sympathize with you two as it looks like this is a rare condition.

You could also try contacting someone else out of your state to see if they can recommend anyone. You'd be surprised how hopeful some people can by by just sending an email.
 
Yeah, have him just take one hit next time he gets a headache. If he doesn't have constant pain he doens't need to smoke constantly.

I'd really encourage him to give edibles a try before settling for marinol. Nothing beats smoking for immediate relief, though.

The fact is that we all self medicate. At least if we are aware of it we can control it. Taking cannabis is safer than taking asprin, or ibuprophin. Hell, using cannabis daily is safer than using coffee daily.
 
I suggest he look into growing his own cannabis, there's no risk of getting caught if its done indoors and nobody besides you and him know. Its better than dealing with dealers and is the next best thing than medical marijuana. I don't like being a criminal either, but I would do what I think is right. One small hit of weed should do it, but there's nothing wrong with doing it until he feels good. I know if I were him I'd be smoking if it were an appropriate time. He sounds like he would be able to control his usage anyways.


Try looking into shrooms also, they can be grown also and the difficulty level is the same, but everything MUST be STERILE.
 
I suggest he look into growing his own cannabis, there's no risk of getting caught if its done indoors and nobody besides you and him know.

Ha, Ha. That statement could not be further from the truth.

Now that statement is true for the cultivation of psilocybin mushrooms, since they do not require any electricity and do not produce a noticeable odor, unlike cannabis cultivation. But it does require quite a bit of research and skill.
 
my little brother suffers from cluster headaches...he says a combo of a little weed and caffeine helps him. Marinol didn't help
 
First I want to thank everyone for their responses. Perhaps some combination of things may be the interim solution.

Someday maybe this can be used as a medicine to help people without the fear of reprisals. That day is sadly not today.
 
joeysdad, you should consider a vaporizer. I find the effects from a vaporizer to be a little different than smoking. I think this has to do with the fact that you are only getting THC as opposed to all of the other cannabinoids that are burned when you smoke it. I personally find it to be less stoney and lethargic. Might help.
 
My son suffers from chronic cluster headaches. I had those many years ago and I know what he is going through. It's completely depilatory and myself had to be hospitalized on several occasions due to these. We have tried every known drug to abort these things for him and NOTHING has worked until now.

He has discovered smoking 1/4 of a joint relieves these God awful headaches. This is no joke and I'm not a kid but a parent that wants my son pain free and if it means he smoke a little pot, I'm ALL for it and 100%.

The downside is he does not want to be stoned, he just needs to THC to stop the vascular constrictions. He is using this a medical relief only and I have every reason in the world to believe this is true.

How is the best way to come down and f-a-s-t?

You should give this a read, its very interesting.

http://www.erowid.org/plants/mushrooms/mushrooms_medical1.shtml

It is about the clinical use of psilocybin-containing mushrooms and LSD for the treatment of cluster headaches; both are supposedly exceedingly effective in the treatment of this condition.

Best of luck to you and your son. :)
 
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