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hep c possitive could use some advice

BearLeeLive

BearLeeLive

Bluelighter
Joined
Feb 22, 2010
Messages
194
Location
210SA Town Tex-ass
first off i got it Knowing befor i stuk my self i was geting it

doe anyone have any advice on how to take care of my self so that in10 yrs i wont have serosses:(
 
I'm also Hep C positive. Like you, I got it knowing the needle was infected... I just didn't give a shit. My advice is to take care of yourself as much as you can - especially your liver. Avoid too much alcohol, etc. Some people can live for many years before displaying any symptoms.
 
thax for the advice. only problem(ok im the real prblem)is i drink when i crave dope and drink untill i cant stand(witch i no i should not do) agian i do apceate you concer and insight
BLL
 
^ Try to cut down the drinking if you can. You're definitely not doing your liver any favours. :\
 
I didn't really feel like starting a new thread, because thats how I am. Anyway, I've been on Pegatron/Rebetol for a little over five weeks. I'm not trying to scare anyone out of treatment( some people get little to no side effects, some get a lot) but I can't handle this shit anymore. I find myself taking 10+ Immodium a day to contain my stomach unloading every 5 minutes. The nausea from my injection is so fucking intense, at times I feel like I might have taken too much interferon, but it goes away after 50 hours or so. These are the least of my problems. My main problem is the depression/anxiety I get from it. I've always been suicidal, I never tell anyone but its true. I fantasize my death many times, almost everyday. I have specific plans and locations varying on my mood. I know I won't do it, but like, this isn't normal. I just want to feel fucking normal.
 
I suppose you have the interferon that you needn't inject every day (PegInterferon). Are you injecting correctly? Coz if you inject into the bloodstream (instead of into superficial body fat) you can get nasty side-effects. Check your injection technique in the presence of someone who knows how it's done!

A friend of mine was diagnosed with hep C. She (with my help) made it through 12 months of treatment. Then tough luck, the virus reappeared. She (with my help again) went on a 2nd course (18 months) and this time Eureka! The virus has vanished. So it pays to persevere. In her case the side-effects tended to become less after a few months, like there is a tolerance towards side-effects. Yes, depression is one of the side-effects, ask your doc for some anti-depressant. Antidepressants combines well with hep C treatment.
 
I was talking to my doctor, it might have to do with the injection site I use. I IM it, I would never think of hitting a vein with this stuff.
 
as versed said go to your doctor! the treatment can be very bad for some but for the lucky ones like me it is bearable! its vital not to drink,eat well and do NOT use during ur treatment as this made it much worse for me. please dont despair, it can be fixed. i was lucky/unlucky enough to have type 2 hc and this is the easiest one to treat. iwas tolod 6 months but after 5 weeks my viral load was almost gone and 3 months into they stopped my treatment dont despair! go to your doc love/ erik:):)
 
^^^Good to hear from someone who's been through it :) I have noticed using will only take the pain away for a little, but when it comes back its 10x worse.
 
your right purelifre when ur feelimg like death using does make it seen better for a while, the downside of this (according to doc) is the possibility of ur liver dealing with the drugs instead ofd the interferon and could prolong treatment.iknow its rough but try to do the right things and u will get through it. have u tried using milk thistle? i have heardthis makes things slightly easier hang tough bud!!!! e
 
Right now I just take immodium, prozac and ativan and aleve. The combination together makes things at times ok i guess. but eh, it sucks/
 
I don't think ya should totally freak out goto the Docs get the blood tests in 3 months time theres a good chance your body will naturally clear it if you've been healthy living. I just realised your in the US don't know what your situation would be like now in terms of health cover. Fuck that I'm glad I live in Australia. Anyways even if ya body doesn't clear it I've realised over the years it isn't really that bad once I did a ton of research on it. Personally I'm afraid of the treatment and most doctors didn't suggest it for me.Told me to wait 5 years and see if the treatment has improved at all. 12 months of that shit would drive me to suicide. I struggle enough to stay clean these days as it is let alone without those hectic side effects that ya get from inteferon.
 
you hear lots of things to do /not do during the interferon treatment. my doc told me to not take as much as a simple painkiller during,who knows? one thing you should def not do is take your drug of choice during. i did and it made it worse for a long time after good luck all..........e
 
No alcohol and no drugs that are hard on the liver. Try to see the treatment through (the whole course, 12 months I think), possibly by buying generics if you have a money problem. And remember that hep C has different evolutions from one patient to the next. Also, some new, life-saving treatments may come on the market before you have cirrhoses.
 
lets hope so,its a bad disease which affects so many people, and right now the treatment is to much to take for a lot of people lets keep the fingers crossed .................love
 
I too am debating on getting the interferon treatment.

I have genotype 1, which is the hardest form of Hep C to treat. The doctors say its up to me whether or not I get treatment, but it's a 50/50 chance I can beat it. I've heard of people going through the treatment and it was successful but then it came back so...I'm not too keen on going through a year of being sick as a dog just to get rid of something for a few months to have it come back.

I'm waiting on better treatment options in the near future. Even my doctors say that there should be something comming out thats even better than the treatment now within the next few years or so. I think it will be worth the wait.

Hep C sucks man. I don't know about others, but it's made me constantly fatigued and achey all over. I have good days and bad days. When I first got sick with it, I turned yellow and was vomitting. After all that went away, the achey muscles(mainly my legs and arms) and fatigue still persisted. But there isn't really anything the doctors can do for that, so I just deal with it.

Good luck with treatment, if thats what you decide!

To all you others out there suffering with this disease, hang in there! Your not alone!
 
hollyw i think you should consider just going for it.holdin back might compound the damage already done.. the treatment is not the same for everybody,for me it was definatly bearable,you might be the same! i had type 2 hc and was told it would be a 6 month treatment,after 5 weeks my viral load was down to almost nothing and 3 months in the docs stoppedmy treatment! have been back every 3 months andno sign of the virus returning yet.cant tell you how much better i feel to be rid of this horrible virus!!!(havent relapsed either!!!)whatever choice you make stay strong ill be thinking bout you! take care..................love, e
 
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the bold one said:
hollyw i think you should consider just going for it.holdin back might compound the damage already done.. the treatment is not the same for everybody,for me it was definatly bearable,you might be the same! i had type 2 hc and was told it would be a 6 month treatment,after 5 weeks my viral load was down to almost nothing and 3 months in the docs stoppedmy treatment! have been back every 3 months andno sign of the virus returning yet.cant tell you how much better i feel to be rid of this horrible virus!!!(havent relapsed either!!!)whatever choice you make stay strong ill be thinking bout you! take care..................love, e
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Thank you for the kind words, honey! Well you're lucky you have type 2, because I have type 1 and its the hardest to get rid of. I think I'm just going to wait for more advanced treatment comes out. I've just come to terms with accepting my hand i've been dealt I suppose. People live a long time with this disease, and yeah it sucks but I try to tell myself it could be worse. My best friend got HIV from sharing needles and I tested negative for that so I consider myself lucky that all I got was Hep C. I definately want treatment, just not with interferon. I want something that is gonna give me higher than a 50/50 chance of beating it.

I also have bi-polar disorder and from what I hear, the interferon treatments trigger major depression in a lot of people and I don't need anymore of that. I'm already on a cocktail of meds for being bi polar and the last thing i need is to lose my mind due to the interferon treatments. Even my doctors think I should wait for something better to come out. I'm just too scared to do the interferon. I'm barely able to function cuz of the side effects of the medications i'm on now, I would be a hot mess doing interferon!8o

So, I'll wait awhile. I'm young...only 26. I got plenty of time to decide about treatment. If I do decide to do it, it will definately be before I'm 30! I guess the younger you are, the more of a chance you have of beating it.

I hope your doing well sweetie! You hang in there too!:)
 
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