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Diagnosed; prevent this from happening to you!

not to sound mean or anything but something got me curious. U took oxycodeine for the extreme pain u had before but u are completely against pills. I'm confused. I totally think u need pain meds in your situation. And if that means getting it from someone else, I'd personally take it, so u don't pass out from pain like I did.

And if u can, like others said, get a second opinion. This is serious stuff and u need to be treated properly which includes your pain being treated. Even addicts (not you) should be treated with dignity when facing serious medical procedures. Some doctors are just like that, unsympathetic. But u are not asking meds to get high. U actually have extreme pain which is evident and proven. Can u see some other doc and explain the situation?

I know that kind of contradicted itself which is dumb, but I do not take pills to get fucked up is what I mean. Only in situations where I am seriously not okay without medication do I take it. I can't even swallow pills, I have to crush it up into a drink blech. I am considering telling her to hold off on the procedure on monday and discuss with my grandma what she thinks I should do. I'm not sure, but I'm gonna try to see if we can afford a second opinion. Stuff's rough right now especially in the money department. :/
 
P.s. I absolutely love everyone on bluelight and my dream is to host a bluelight party and invite every single member and fly everyone out to my stupid little house to swim in my pool with me. I would be so blessed to know any of you in real life. <3 thank you for always being there!
 
I'm so sorry to hear about this <3. I was diagnosed with CIN3 cells when I was 21, but now i'm in the clear - mine never developed into cancerous cells. I was terrified back then, I can only imagine what you must be feeling. I was having bi-annual pap smears for years, but now i'm down to annual ones again (8 years after being diagnosed, it's been 10 years now).

This condition is so common, a number of my girlfriends have been diagnosed with HPV. Please keep us updated and stay strong.
 
FuturePig, you can have symptoms like the OP described with cervical cancer:
http://cancer.about.com/od/cervicalcancer/a/cervcancrsympt.htm

In 2000, I had carcinoma in situ (grade 0 cervical cancer). I was asymptomatic. I do not have the type of HPV that causes warts. Grade 0 means that cancerous cells have been found in the cervix but have not spread into deeper tissues. Grade 0 cells can be removed in the same way as a lesion of pre-cancerous cells. The affected cervical tissue was removed via LEEP. It was not a painful procedure. I was nervous but not scared. More like a sharp internal pinch. Very tolerable. I bled for about 24 hours. Not a heavy flow. I have been fine since.

Sadly, I continued to smoke cigarettes after the diagnosis. There is a link between cervical cancer and smoking.

You cannot get vaccinated once you have HPV. Once you have HPV, you have it forever.
 
^ You didnt' answer my question.

In a previous reply to somene else I said I actually wasn't sure he got tested at all now that I think about it. He had just told me he was positive he had it, from the visit he had with the doctor. Last night when he called I asked him how he knew he had hpv again (I thought maybe I had forgotten) and he said that the doctor did a visual examination of his..member, and had found a few tiny warts. So ACTUALLY, thank you for asking this question so that now I know I probably have a low-risk strain of hpv along with my "dangerously high" risk hpv that I currently know of. Greeeeaaaat. Lol. Sorry for the confusion I'm going to edit my post to clear some things up
 
^ My partner said that getting the shot after the fact can still help prevent you getting some of the strains of HPV?

My partner of 4 years went through all this about 2 years ago and has since had a number of procedures done as an out patient at the hospital.

She said none of it was particularly painful for her just a little uncomfortable.

She now has pap smears every 6 months (next one in 2 weeks fingers crossed). She also found once she started talking to people everyone knows someone who has had to go through this.

She pushes for all sexually active females to get a regular pap smear and to get all three of their Gardisil shots.
 
^^I can see how that would be useful but at this point in life I don't plan on having sex with anyone new ever again, for that matter...so I'm not sure it would be worth it for me to pay for it? I'm going to look into the cost, though and find out how much my insurance would cover, if not the entire amount.

Today is the big day for my cone biopsy. T-minus 10 minutes until blast-off lol. Wish me luck <3
 
Let us know how bad/good it is: worst-case scenario would be hysterectomy and no chance of having babies?

EDIT: This article seems to say scraping away the cancer cells and minor surgery allows 98% of women to still have chidren:
http://cervicalcancer.about.com/od/cervicaldysplasia/a/leep_pregnancy.htm

Here's a better, more detailed treatment study, which breaks it down by "Stages:"
http://www.nci.nih.gov/cancertopics/pdq/treatment/cervical/Patient/page5

I read/studied this a coupla months ago 'cause these vaccinations are pushed on high-school girls (BIG, several page long article in the New York Times about it) . . . it's a BIG industry, makes alot of $$$ for the vaccination sellers and there's controversy whether, non-sexually active girls should get one.

Here's the New York Times article: http://www.nytimes.com/2008/08/20/health/policy/20vaccine.html?fta=y
 
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FuturePig, you can have symptoms like the OP described with cervical cancer:
http://cancer.about.com/od/cervicalcancer/a/cervcancrsympt.htm

In 2000, I had carcinoma in situ (grade 0 cervical cancer). I was asymptomatic. I do not have the type of HPV that causes warts. Grade 0 means that cancerous cells have been found in the cervix but have not spread into deeper tissues. Grade 0 cells can be removed in the same way as a lesion of pre-cancerous cells. The affected cervical tissue was removed via LEEP. It was not a painful procedure. I was nervous but not scared. More like a sharp internal pinch. Very tolerable. I bled for about 24 hours. Not a heavy flow. I have been fine since.

Sadly, I continued to smoke cigarettes after the diagnosis. There is a link between cervical cancer and smoking.

You cannot get vaccinated once you have HPV. Once you have HPV, you have it forever.

Thanks for the link. I had read the same article and based my question from this statement:

When symptoms are present, they usually do not appear until the cancer is more advanced. This does vary from woman to woman.

...and the OP's assertion that her doctor verified she was in the early stages. Again, all women are different and as the final sentence states, symptoms of course, vary. I certainly wasn't trying to trivialize or negate her symptoms or diagnosis… just that pain and bleeding is not necessarily normal in early-stage cervical cancer... whatever "normal" is. :)

Also, you CAN get vaccinated with Gardasil after being diagnosed with HPV. The shot protects against four types of HPV strains, so even if you've been diagnosed with one, the shot will still help to prevent against contracting the other three. The vaccination can also help to suppress symptoms of HPV if you were already diagnosed. I myself contracted low-risk HPV a number of years ago and had the Gardasil vaccination last year. Gardasil is not a cure if you've already been diagnosed with any of the four strains it helps to prevent and does not protect against the other estimated 96+ different types.

In most cases, HPV is not a life-long condition. Though there is no treatment, your immune system often suppresses and eventually eradicates the virus. If I remember correctly, the time frame is 8 months to 2 years.

Sources:

http://www.cdc.gov/STD/HPV/STDFact-HPV.htm
In 90% of cases, the body’s immune system clears the HPV infection naturally within two years. This is true of both high-risk and low-risk types.

http://www.ashastd.org/hpv/hpv_learn_women.cfm
In almost all cases, the immune system will keep the virus (including the cancer-related HPV types) under control or get rid of it completely.

http://www.plannedparenthood.org/health-topics/stds-hiv-safer-sex/hpv-4272.htm
Although most HPV infections go away within 8 to 13 months, some will not.

To the OP - now I'm confused about your boyfriend's diagnosis. The HPV strains that cause genital warts are low-risk and are not the same strains that cause cervical cancer. What sort of treatment was he given?

I think you should seriously consider getting a second opinion as I stated before. Some places will let you pay out in affordable monthly payments that you determine. When I was first diagnosed with low-risk HPV, I was screened for everything and had to have pretty expensive treatment. I didn't have insurance at the time and racked up a $900 bill. I made arrangements with my doctor and paid them $50 per month - this was the amount I could afford. It was interest free and had no negative bearing on my credit.

I was diagnosed 6 years ago with low-risk HPV. About 3 years ago I went for an annual pap at a new obgyn. I informed them of my history and immediately, they were negative toward me, made me very uncomfortable and said things that really scared me. While there, they insisted I had a "spot" on my cervix that they were unable to confirm what it was and what it wasn't with vinegar solution. A few days later, I got a call to say I had high-risk HPV and I needed a colposcopy and a LEEP performed. Because the experience was so terrible with this particular doctor and because what they were suggesting was so serious (not to mention expensive), I went to, not one but TWO additional doctors for second opinions. Neither of which found this "spot" and neither of which determined I had high-risk HPV.

Please call around and see what your options are. <3
 
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Wow, lauren, that's terrible.

Thanks for sharing because I think it is really important for people to see that those statistics out there aren't just smoke--there are real people attached to them.

Good luck and please keep us updated.
 
Thanks for the link. I had read the same article and based my question from this statement...
I thought it was odd too (not being advanced cancer) seeing as I had zero symptoms.
Not having sex EVER again did not cross my mind when I was diagnosed either.
I am not the alarmist type.
 
Thanks for sharing, many hugs to you!

---> Regular STD checks and regular pap smears are the way to go, it's so so so important!

I went to have my first pap smear done half a year ago, and thankfully the results were fine. I'm 23, I tried to get it done before in Sweden but they told me I was too young - I was about 20 at the time. Then I did it here in the UK once and they lost my results. :\ When I went the last time, the nurse told me they don't generally do it on women that are under 25. Wtf? I insisted. It doesn't make sense, you can get HPV as soon as you become sexually active, and it can develop into cancer in around 5 years (I think), so really, 18-20 years old is when most women should start getting pap smears, to be on the safe side!
 
Futurepig-thanks for the links, I'm a medical link addict in the first place and when it gives me useful information about myself, I love it twice as much.
My boyfriend's examination indicated that he has low-risk hpv and he had no treatment. This was just a side thing when getting a complete check-up. Now, obviously he could also have a high-risk type as well which I'm pretty much positive he does. I'm considering changing doctors because mine does not really take all of my symptoms seriously and doesn't fully listen to what I say, more like waits to talk and judges me. I'm looking into that as well as a psychologist which is getting crucial at this point.

Xxkcxx-thanks for the luck! <3

Perpetual Indulgance-i think that my symptoms are mainly due to a problem that my doctor fails to see, at this point, because she doesn't really believe/understand the severe pain that I'm in. I'm looking into finding a new doctor because I'm sick of this pain.

Glitter-that is insanity that they said you were too young! I would have insisted as well and raised hell with their supervisors. Lol I agree about how seriously important it is to get a pap done as soon as you become sexually active with anyyyyone! Its disgusting that they could even suggest otherwise, being professionals.


Update! I had my appointment today and after waiting almost 3 hours (it is like that every single visit, I swear) I spoke to the doctor and she told me about another choice of procedure I could have done if I didn't want to go through with the cone biopsy, and that was cyrosurgery (a procedure where they use liquid nitrous oxide to freeze the lesions and kill the precancerous cells) and I decided to do it. I was terrified but just sucked it up and did it, and it really wasn't that bad. It was intense cramping because obviously they froze my tissue, and really bad hot flashes afterwards and they said I'll get a gross discharge for up to 2 months, but I'm glad I went through with it. it did not hurt as bad as the colposcopy at all. I get another pap in 8 weeks to see how the cells are and we'll decide from there what to do. <3
 
When i started to read your post I got nervous because a week ago for just one day i had alot of pain near my ovaries. I just wanted you to know that i am proud of how strong you are. It takes balls an hope that you get better soon :)
 
When i started to read your post I got nervous because a week ago for just one day i had alot of pain near my ovaries. I just wanted you to know that i am proud of how strong you are. It takes balls an hope that you get better soon :)

If you have not, go get a pap-smear done to make sure you don't have any problems! Thank you so much everyone here is encouraging me to stay strong, and this is a very hard time for me so I appreciate it with all my heart, honestly. <3
 
Oh & pander^^
I asked my doctor about this and she said I could still benefit from the vaccination even though I was diagnosed with HPV already. It could prevent me from getting a few other strains of HPV, but you are correct in the fact that it would not treat my current virus. And, yes you do have it forever UNLESS your body's immune system supresses it and gets rid of it, which I'm not sure will ever happen to me because my immune system fails.
 
lauren thankyou SO much for sharing your story. i recieved a reminder notice for a pap in january and have absent mindedly let it slide with the thought "ill be fine" although after reading this post, will be sure to get on top of it asap.

youre extremely brave for going forward with the procedure, and in treatment. best wishes for a pain free and hopefully positive recovery <3

take care and keep us updated.

...kytnism...:|
 
Don't you thank me, Kyt, thank all of you for being the support group I wish I had in times like these where I don't have my SO to lean on. I don't trust very easily and the city I live in is full of people who try too hard, and bluelight is where I come to fulfill my life in the friend area. You all have done a spectacular job of making me feel accepted and like a part of something, and for that I could never ever thank all of you enough. I take all of your health and hardships very seriously, and you are all not just names on a screen to me, but my friends. The only one's I've got, pretty much. Information=peace+love,
Peace+love=information. It's a weird equation but it really is my boyfriend and I's key to happiness and the best way to go about fixing any disasters. I have also learned that in sharing information, spreading peace, and showing love, you can create a friendship with tons of people from all over the world. Thank you bluelight<3 mods-send me some bluelight short shorts! (In my dreams!!) ilymods!
 
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