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Mental Health Coming off Invega/Xeplion (paliperidone) injections v. 10

Success post to give some hope! I'm 131days/4.5months off of Sustenna (100/75mg) and something has changed where the voice in my head returned, I've experienced a bit of motivation, and can feel excitement for the future! Before that I was completely dead and suicidal, even up until last weekend then something changed two nights ago and I'm starting to feel better. It was really weird it was like a light switch turning back on where I felt like I could think again and noticed a huge difference. I was not expecting that at all! It does get better and I hope all of you do too. I felt like it was going to last forever and was so scared because there is seriously nothing worse than having your pleasure and reward system shut down and now that it's back I seriously can't believe how cruel Invega is and definitely do not think it should be legal. It's so beyond f*cked up that this is given to people. What the actual fuck. Like I seriously thought of suicide almost every second of every day for 5 months since I was given it against my will twice when I don't even have schitzophrenia and was just really stressed from potentially losing my education (which actually did happen due to Invega) and the idiot doctor said it was mania. I still don't have hunger or thirst signals nor can feel nicotine but the unbearable part seems to have passed. I've heard it can be intermitant so we'll see if this is a window.
 
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Like my whole nervous system is shut down. No thirst or hunger or feelings from nicotine or caffeine. No anxiety. No emotions. Hard to sleep. Fearful it’s been eight and a half months with no recovery signs :(
Conky said:
What kind of psychiatric symptoms are you feeling? They can usually be treated. But make sure you can give informed consent before taking any new prescription.
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Trueart2 said:
Invega Sustenna is making me experience the cognitive dulling effect. I just searched it up and saw Hafyera is the 6 month one, I have to take sustenna for 6 months once monthly at 234 mg right now.


Thanks for letting me know, I’ll try and see if I can switch off of it. Any advice if I run into difficulties aka if my provider doesn’t allow me to switch off or at least lower the dosage? Thanks for letting me know about your experience, it’s valuable to me. Continue to recover.
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My best advice would be to advocate for yourself like your life depends on it. Why are you scheduled for 6 months on it? That's a massive dose too. Even if you stop it it's going to take a really long time to get out of your system. If it's not a court order remember that you are a voluntary patient and they're supposed to be helping you and not directing your care. This is one of the strongest antipsychotics there is and so long as you're not violent or having severe, severe psychosis another medication will likely do just fine. I was over medicated with this medicine and my biggest regret is just not outright refusing it once I knew it was way too strong for me.
invegetable said:
It sounds like we should all be taking St. Johns Wort.
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I started taking it after reading that study awhile ago and I swear it made me feel less depressed! I also read that matcha helps too and noticed a big difference after starting that about 2 weeks after the St. John's Wort. I have 1.5t in the morning over ice.
 
lifeinsequins said:
My best advice would be to advocate for yourself like your life depends on it. Why are you scheduled for 6 months on it? That's a massive dose too. Even if you stop it it's going to take a really long time to get out of your system. If it's not a court order remember that you are a voluntary patient and they're supposed to be helping you and not directing your care. This is one of the strongest antipsychotics there is and so long as you're not violent or having severe, severe psychosis another medication will likely do just fine. I was over medicated with this medicine and my biggest regret is just not outright refusing it once I knew it was way too strong for me.

I started taking it after reading that study awhile ago and I swear it made me feel less depressed! I also read that matcha helps too and noticed a big difference after starting that about 2 weeks after the St. John's Wort. I have 1.5t in the morning over ice.
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Yep I'm mandated to take it unfortunately, will continue to advocate and try and get the dosage lowered at least. Also I'll check out the St Johns Wort even though the comment wasn't directed towards me.
 
Just bought Lion's mane, I remember seeing it on this forum for some reason, will hold off on taking it for a couple hours until I've done more research. Additionally is smoking weed/having the ability to get high a good sign while still on anti-psychotics? Wondering how the receptors interact with each other(while high) and if smoking weed could potentially help in a recovery process.
 
Trueart2 said:
Invega Sustenna is making me experience the cognitive dulling effect. I just searched it up and saw Hafyera is the 6 month one, I have to take sustenna for 6 months once monthly at 234 mg right now.


Thanks for letting me know, I’ll try and see if I can switch off of it. Any advice if I run into difficulties aka if my provider doesn’t allow me to switch off or at least lower the dosage? Thanks for letting me know about your experience, it’s valuable to me. Continue to recover.
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Okay, well I hope things go better for you then they went for me.
 
So I had some abnormal test results on my metabolic panel (blood tests) and I am hoping the Doctor comments on them soon.

I went in for a reason unrelated to Invega, heartburn actually. But I am hoping that it isn’t anything super bad and that I am going to be okay.

I have just had so many health issues because of Invega that I would not be surprised if this is also due to Invega.
 
Trueart2 said:
Just bought Lion's mane, I remember seeing it on this forum for some reason, will hold off on taking it for a couple hours until I've done more research. Additionally is smoking weed/having the ability to get high a good sign while still on anti-psychotics? Wondering how the receptors interact with each other(while high) and if smoking weed could potentially help in a recovery process.
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I'm iffy about lion's mane. It probably played a role in my PSSD.
 
InvegaAnon said:
Trinza is a longer fight. Whatever happens, hold on.
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Thanks, my Psychiatric Provider said that I am young and healthy (somewhat, got some abnormal blood results today, PCP has yet to comment on them) so I should clear it out in 6 months.

Reading from the comments on here I am doubtful about that.

I just hate the appetite changes and the bullshit that comes with that.
 
I don’t know how much longer I can do this. I’m hanging on for my two kids but no sign of recovery in eight and a half months is doing my head in. I was so full of life before those two shots. I don’t know how people just accept this and wait for change. Please if anyone has any recovery stories let me know and others that need to hear it. Many thanks. ✨
 
I’m desperate to connect emotionally again…. Please… I might be able to hang on for a few months if I can be assured that my ability to connect emotionally to people and music and anime will come back…

Please…

Does anyone have recovery stories? Will I be better by 8 months? It’s been 5.5 and I’ve got 4 shots
 
Well I have two 5hr shifts in a row this weekend (working weekends all this months, which is fine)…hope the pain is not too bad today.

I know the weight gain has contributed to it.

But I do think the medication caused muscle stiffness.

I am trying to do what I can to make it better though. Got new shoes that are good. Drinking water.
 
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