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Mental Health Coming off Invega/Xeplion (paliperidone) injections v. 9

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okthen said:
Yes, it wasn't constant though, would come in burst that would last till I went yo sleep. Don't remember when it went away, I still can't sit or lay comfortably, it just doesn't feel right. I no longer need to get up at pace around though, I can just lay through the bad feeling.
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How long did it take you to get to that point? This is pure hell on earth
 
IOSIP said:
How long did it take you to get to that point? This is pure hell on earth
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I've been mostly laying here without the need to get up and walk in bursts roughly since my ability to talk came back, so about 1 1/2 - 2 months it lasted
 
okthen said:
I've been mostly laying here without the need to get up and walk in bursts roughly since my ability to talk came back, so about 1 1/2 - 2 months it lasted
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Lost your ability to talk, like you had nothing to say? Because I feel the same way. I'm self absorbed with how terrible I feel I have nothing to say to anyone. Plus the pacing I hear what your saying.
 
IOSIP said:
How are you going off of your shots now?
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Huh? I haven't had invega in over 1.5 years, coming up on two years. I just have emotional blunting, memory problems, and sexual dysfunction left, all of which could be just PSSD.

My orgasms feel 90% mechanically normal, it's still missing the sensitivity and "opening" motion I guess? It's amazing to have that back and I think pelvic floor therapy is to thank for some of that.
 
IOSIP said:
Yes he sure has alot to say for a guy who had haldol on the invega thread
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Yes that's right and I'm not the only one on this thread to have had haldol, it was a pain my brain didn't tell me when I had to go to the bathroom or pee I was a complete zombie I didn't have that metallic taste it's true but I didn't taste anything I ate everything was bland and I didn't feel the cold I didn't have invega but the side effects are very similar.
 
IOSIP said:
Lost your ability to talk, like you had nothing to say? Because I feel the same way. I'm self absorbed with how terrible I feel I have nothing to say to anyone. Plus the pacing I hear what your saying.
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I had no conversation, I stayed 7 8 months in my bed looking at the ceiling h24 I didn't even brush my teeth or go to the hairdresser I was a complete zombie now I'm doing a lot of things now I'm looking for work
 
fenec said:
I had no conversation, I stayed 7 8 months in my bed looking at the ceiling h24 I didn't even brush my teeth or go to the hairdresser I was a complete zombie now I'm doing a lot of things now I'm looking for work
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All the side effects invega I had them see worse I do not feel fatigue hunger thirst anedonia etc weight gain of 20 kilo joint pain during sleep violent headaches shaking legs heavy when I walk, semen that looks like water all this is gone I thank the medicinal leeches it made me a good of crazy
 
IOSIP said:
Lost your ability to talk, like you had nothing to say? Because I feel the same way. I'm self absorbed with how terrible I feel I have nothing to say to anyone. Plus the pacing I hear what your saying.
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Idk, I still don't talk to people much now, no desire to. When first getting injected, it was different though, I couldn't talk haha, only yes/no answers I could manage.

How are you other than the akathesua? Still manage to go out? Interact with people normally? Do hobbies ect..
 
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IOSIP said:
Does this get easier guys, im a month in and its not good.
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InvegaAnon said:
Huh? I haven't had invega in over 1.5 years, coming up on two years. I just have emotional blunting, memory problems, and sexual dysfunction left, all of which could be just PSSD.

My orgasms feel 90% mechanically normal, it's still missing the sensitivity and "opening" motion I guess? It's amazing to have that back and I think pelvic floor therapy is to thank for some of that.
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okthen said:
Idk, I still don't talk to people much now, no desire to. When first getting injected, it was different though, I couldn't talk haha, only yes/no answers I could manage.

How are you other than the akathesua? Still manage to go out? Interact with people normally? Do hobbies ect..
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I just made a video of some of the supplemets that have aided in my overall wellbeing. Do you take supplements? Are you considering taking supplements? Do you have limiting beliefs about supplements? Watch the video and let me know!

 
okthen said:
Idk, I still don't talk to people much now, no desire to. When first getting injected, it was different though, I couldn't talk haha, only yes/no answers I could manage.

How are you other than the akathesua? Still manage to go out? Interact with people normally? Do hobbies ect..
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I can barely do anything at all. I sit in my room and pace. I eat , I don't talk to anyone. Have nothing to say I just stress.
 
Does time move at a snails pace for everyone else ? It feels like all in do is wait for time to slowly pass so that I may get to bed time. I go to bed at 7pm and before then I have 14 hours of nothing. Nothing at all but suffering
 
IOSIP said:
I can barely do anything at all. I sit in my room and pace. I eat , I don't talk to anyone. Have nothing to say I just stress.
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You could really look into alternative healing modalities like I'm mentioning. For example, in addition to supplements that have the potential of bringing a whole new life into you, you could try acupuncture. Acupuncture gets all kinds of energy flowing in your body that may otherwise be stagnant or "blocked".

Try to help yourself out if you want to feel better, you know what I mean?
 
LuiBliss said:
You could really look into alternative healing modalities like I'm mentioning. For example, in addition to supplements that have the potential of bringing a whole new life into you, you could try acupuncture. Acupuncture gets all kinds of energy flowing in your body that may otherwise be stagnant or "blocked".

Try to help yourself out if you want to feel better, you know what I mean
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Supplements won't help this ive already been trying that approach. Acupuncture won't help this. I wouldn't even be able to sit still.

I don't know if you saw the restlessness I have but it's unbearable it just keeps going all day.
 
IOSIP said:
Supplements won't help this ive already been trying that approach. Acupuncture won't help this. I wouldn't even be able to sit still.

I don't know if you saw the restlessness I have but it's unbearable it just keeps going all day.
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Trying brewing yourself some skullcap tea. They use this stuff on heroine addicts to calm them down during withdrawal.

Don't lose hope, any effort you make towards your wellness and wellbeing is good effort.

And taking action is the most important part, looking for a solution as opposed to closing up on any chance for an opportunity to do so.
 
LuiBliss said:
Trying brewing yourself some skullcap tea. They use this stuff on heroine addicts to calm them down during withdrawal.

Don't lose hope, any effort you make towards your wellness and wellbeing is good effort.

And taking action is the most important part, looking for a solution as opposed to closing up on any chance for an opportunity to do so.
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How long off are you and how are you going?
 
@IOSIP
You would be surprised. I'm not off at all. I've been consistently on imvega trinza for the past 2 years +.

I tried many times (since 2014) to get off imvega sustenna but I kept ketting manic and getting into trouble that they threw me back in the hospital and forced me on it.

So I haven't been trying to get off it for the past 2 years but I decided that if I was going to be on it I gotta do something else to feel like a normal person. So I overpowered my body with LOTS of supplements and I drink some herbal tea every night and now, even while I am on invega I'm doing better than most people who are not on any medication. And I believe that I've got my own efforts in getting out of the rut that I was in is to be thanked.

I am now shedding light to people that it's okay to be on meds and you can do something about it to make you feel better.

Perhaps, as I realise this thread is about coming of paliperidone, that maybe I should stop posting here because I don't want to play devils advocate. But I do want to help people and also see them recover from the I'll effects of this drug.

If you are watching and enjoying my videos, here's one where I talk about my story and why i refused taking my meds for the most part since I got my diagnosis and how I needed up having a change of heart:-



And there's this one too :-)



Wish you the best of luck, feel free to PM me for anything and I would love to know how things play out with you.
 
How do they call sustenna a month long injection when it lasts way longer then a month? That's such a scam.
 
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