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MDMA Recovery (Stories & Support - 7) [ALL LTC posts go here]

Out of curiosity, could you tell us what dose Zyprexa/Olanzapine that you're on?

I've been up to higher doses with atypical anti-psychotics like Zyprexa and gotten moment related side effects, and then withdrawing off of most types of drugs (including atypical anti-psychotics) I get restless legs syndrome. You have my sympathies.

The movement related side effects of anti-psychotics are stronger at higher doses, and some are known to be worse than others (Seroquel/Quetiapine for example is known to be worse). At low enough doses, some anti-psychotics will function more like an anti-histamine and adrenaline blocker and have minimal effects on dopamine receptors directly, but there will still be a withdrawal period if you've been on them for more than a month or two.
For me zyprexa didnt cause the syndrome of the ressltess leg syndrome . I have it before taking zyprexa its been 21 month i feel nervoussness in my chest and legs i cant stand still i have to move it weird like a sensation . I dont know if will go away one day or its permanent?!🤕
 
Out of curiosity, could you tell us what dose Zyprexa/Olanzapine that you're on?

I've been up to higher doses with atypical anti-psychotics like Zyprexa and gotten moment related side effects, and then withdrawing off of most types of drugs (including atypical anti-psychotics) I get restless legs syndrome. You have my sympathies.

The movement related side effects of anti-psychotics are stronger at higher doses, and some are known to be worse than others (Seroquel/Quetiapine for example is known to be worse). At low enough doses, some anti-psychotics will function more like an anti-histamine and adrenaline blocker and have minimal effects on dopamine receptors directly, but there will still be a withdrawal period if you've been on them for more than a month or two.
The zyprexa eased that symptoms but after withrawing it comes imbearable i have been on it 1 year on it
 
Anybody feels bad in the morning and improves greatly in the evening feeling almost fully recovered at night? Then next morning back to square 1. Never ending cycle for me.
 
There has to be a way to break this cycle. Benzos help a lot and makes me feel great again, I think what we have is an anxiety disorder.
 
There has to be a way to break this cycle. Benzos help a lot and makes me feel great again, I think what we have is an anxiety disorder.
How much mdma you took ? Have you had rolled another time over thoses 7 years?
 
Who is experiencing numbness and aches muscles shoulder arms back?
You've got to relax, man. If we were answering your questions, would you actually feel better yourself? Maybe short term, but you wouldn't be 'cured', very far from it. Just take it easy and stop asking all these questions, get on with your life, and things will eventually subside.
 
Guys there's a new sleep drug for chronic use: Dayvigo. It's not a benzo, it's not addictive, and it's for long term.

Only symptom left from my LTC is insomnia. Thinking about trying this. Thoughts?
 
Who is experiencing numbness and aches muscles shoulder arms back?
I had a lot of musculoskeletal issues as a fallout from the chronic insomnia. I had to do quite a lot of physical therapy. I advise a good workout, stretching and diet routine to try to decrease those problems as much as possible. Especially if you find yourself losing weight, make sure you're eating enough or getting enough calories (even if its from a liquid meal replacer).

Have you been trying mindfulness meditation yet? I had a lot of restless legs syndrome (RLS) when I was younger and its definitely true for me that stress exacerbates it. I know its hard to relax and de-stress with all these things going on but give mindfulness your best shot for as long as you can, download some mindfulness apps and listen to some guided meditations for starters. Endless googling has a tendency to just worsen people's anxiety unfortunately.

Once you practice mindfulness with concentrated sessions (15 minutes 3 times a day et cetera) then the goal is to be able to apply it 24/7. Then the brain and body will really start to benefit. Careful with being on the benzos for longer than a month. Some people who have never taken ecstasy end up having mental illness for which they have to take all sorts of medication for long term, so that's nothing to be ashamed of if anti-psychotics are helping. I was on Risperidone for a while.

CY
 
Guys there's a new sleep drug for chronic use: Dayvigo. It's not a benzo, it's not addictive, and it's for long term.

Only symptom left from my LTC is insomnia. Thinking about trying this. Thoughts?
That would be Lemborexant - same class as Suvorexant, an orexin receptor antagonist. I took Suvorexant for a few months back when it first came out. It was helpful for me, but very expensive as a brand name. Doesn't seem to be a generic for either one yet from a glance.

There is pretty limited reports of dependence and withdrawals, but it wasn't that potent to begin with for me. The drug reps had spread the word back then that it was most effective at the highest dose (20mg in the case of Suvorexant). It didn't seem to have a sedative effect, more like it allowed you to go to sleep if you were already in bed and winding down. I combo'd it with mindfulness meditation and it helped me drift off to sleep. I know many of you would gladly pay $20 a night for better sleep, but don't give up on mindfulness alone.
 
I had a lot of musculoskeletal issues as a fallout from the chronic insomnia. I had to do quite a lot of physical therapy. I advise a good workout, stretching and diet routine to try to decrease those problems as much as possible. Especially if you find yourself losing weight, make sure you're eating enough or getting enough calories (even if its from a liquid meal replacer).

Have you been trying mindfulness meditation yet? I had a lot of restless legs syndrome (RLS) when I was younger and its definitely true for me that stress exacerbates it. I know its hard to relax and de-stress with all these things going on but give mindfulness your best shot for as long as you can, download some mindfulness apps and listen to some guided meditations for starters. Endless googling has a tendency to just worsen people's anxiety unfortunately.

Once you practice mindfulness with concentrated sessions (15 minutes 3 times a day et cetera) then the goal is to be able to apply it 24/7. Then the brain and body will really start to benefit. Careful with being on the benzos for longer than a month. Some people who have never taken ecstasy end up having mental illness for which they have to take all sorts of medication for long term, so that's nothing to be ashamed of if anti-psychotics are helping. I was on Risperidone for a while.

CY
Hi cotcha
I just wanna have some insurance you seem very educated and helpful
In11/2017 i took that pill who made very ill but when i took prozac , amisulpride and xanax after one month all my symptoms faded when i stoped the medication the symptoms didnt came back until i took a corticoid prednisnone the all the symptoms cale back with full force
I tried the medication again but didnt work this time im struggling with
Muscle twitching
Tingling
My left arm hurt me badly
My legs are stiff and hurt
I have a pressure around the liver
Insomnia
I feel burning in my back skin and thru all the body this the most
I dont know what to do
Do you think these symptome will fade away with time or this is permanent?
I need some help cotcha
Do you some medication to help with these issues ?i tried to pm you but its impossible maybe its your box is full
 
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All my tingling feelings and dumb face was due to anxiety cause it’s gone. Went away after starting sertraline. I was worried about damaged nerves, but that wasn’t the case.
 
Yeah, anxiety is the root, but what's the cause of long-term anxiety? I've noticed my memory is much better when waking up or falling asleep. I guess it's some rapid neuron firing causing overstimula overlapping my memory recall...
 
That would be Lemborexant - same class as Suvorexant, an orexin receptor antagonist. I took Suvorexant for a few months back when it first came out. It was helpful for me, but very expensive as a brand name. Doesn't seem to be a generic for either one yet from a glance.

There is pretty limited reports of dependence and withdrawals, but it wasn't that potent to begin with for me. The drug reps had spread the word back then that it was most effective at the highest dose (20mg in the case of Suvorexant). It didn't seem to have a sedative effect, more like it allowed you to go to sleep if you were already in bed and winding down. I combo'd it with mindfulness meditation and it helped me drift off to sleep. I know many of you would gladly pay $20 a night for better sleep, but don't give up on mindfulness alone.

Interesting, thanks for the info. I think I will give it a try and see. I might end up having to use it for life though.

I am on lowest dose of Lexapro. I think I rather be on that than Lexapro esp. considering my only symptom is insomnia, and Lexapro made me gain 20 lbs. Thoughts?
 
My left arm hurt me badly
My legs are stiff and hurt
I feel burning in my back skin and thru all the body this the most
I've heard a lot of similar reports of chronic musculoskeletal problems and neurological/neuropathic pains, and not just brain zaps.
Disclaimer - not everyone's symptoms may have such a physical/musculoskeletal cause as mentioned below, but its worth investigating with the guidance of a healthcare professional for those of you experiencing many physical symptoms.

Some neck muscles are activated with "anxiety breathing". These are known as accessory muscles of respiration, and these neck muscles (such as the SCM and scalenes) can cause all sorts of symptoms. This seems to be due to these neck muscles interactions with nerve plexuses and arteries around the neck/cranium. A meditation technique like vipassana (a form of mindfulness using the breath as an anchor) is particularly helpful for those with anxiety, and may help reset the unhelpful breathing patterns.

Anxiety breathing can also cause respiratory alkalosis, an acute symptom of panic breathing. A primary symptom of which is tingling, typically starting in the face and progressing further.

In your case with arm symptoms and other physical pains, see Thoracic Outlet Syndrome, which a couple of us have had. I would definitely check it out, but try not to self-diagnose. TOS is primarily a hand/arm condition, but various symptoms affecting the head can be present.

TOS is difficult to diagnose and many doctors are not familiar with it, and unfortunately if somebody goes to a doctor with these "psychiatric" symptoms also present, many valid physical musculoskeletal issues can be ignored or waived away as many doctors would think that we are crazy. TOS's ability to cause neurological/psychiatric symptoms is still not clear. It has been shown with brain bloodflow imaging studies that the neck muscles involved in TOS can compress certain arteries that supply the brain with blood, and I would bet that chronic compression/irritation of the subclavian artery could affect the brain as well. Personally, my psychiatric symptoms got better as I treated the physical illness. There are certainly many reasons why treating physical illness will improve mental health though, and as a general guideline everyone should aim to be in better physical shape.

There are many ways to treat TOS, and I have had neck injections and surgery as well. That surgeon, a regional TOS expert (MD+PhD), has a theory that the scalene muscles primarily cause the head symptoms where they attach up into the back of the scalp. There are many cranial nerves there (see occipital neuralgia).

The brain zaps (also frequent in SSRI withdrawal, in people who have never taken ecstasy) are known to be an issue with cranial nerves rather than the brain itself, and the cranial nerves run all sorts of weird routes through the head/neck. The cranial nerves and cranial arteries both express serotonin receptors. See the condition occipital neuralgia again, known for causing visual disturbances similar to HPPD and migraine. Lidocaine injections can be helpful for occipital neuralgia. As yet another example, an ophthalmologist told me many years ago that many of these visual disturbances are caused by an artery spasming in the back of the head. Anyways, there can be many physical causes to strange symptoms that might appear at first glance to have a chemical/cellular cause.

In the case of someone with TOS, the goal would be to stretch/release the muscles and tissues that need to be stretched, and to strengthen the muscles that need to be strong so that they can hold proper posture. Correction of bad posture (especially forward head posture) is extremely important no matter who you are. I have no doubt that many of you are hunched over as hell as you read this.

Physical therapy is where I would start. They can be very helpful in accurately diagnosing and treating musculoskeletal/neuropathic pains. As you progress along with physical therapy, I'd be happy to offer some pointers and share my experiences with it. I did multiple stints of physical therapy, about a year for 2-3 times a week, and in that time I recovered the use of my hands. Which I lost the use of for about 2 years. Fun times.

Hang in there everybody,
CY
 
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Interesting, thanks for the info. I think I will give it a try and see. I might end up having to use it for life though.

I am on lowest dose of Lexapro. I think I rather be on that than Lexapro esp. considering my only symptom is insomnia, and Lexapro made me gain 20 lbs. Thoughts?
If you do decide to come off of Lexapro, I would do so very carefully and slowly. I would give mindfulness meditation a thorough try before making any changes, to see if that is helpful. If mindfulness is helpful, then I would hope that you would be able to live med free. Antidepressant weight gain can be fierce but I hope your doctor advised you on proper diet and exercise.
 
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