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my worst fear came true.. seems i got the Boot from pain management and im scared.

areros18

areros18

Bluelighter
Joined
Sep 10, 2012
Messages
154
Location
So Cal- Lost Angeles
my pain management dr was switched and i got this young girl dr. that told me that i am only "thirty something" and too young to be on opiate medication. started me on 25 mgs of topomax and took me off the 20 mgs of opana i was on daily.
nothing for breakthrough pain- unless you consider 3000 mgs of tylenol safe.
i am so pissed, and scared and i do not know how i am going to get along the next couple of months.
i will try the topomax. i will have to figure out how to beat WD's/ or buy my needs elsewhere. i hate the thought of buying elsewhere.
has this happened to anyone?
what have they done?
what was the out come?
any comments appreciated. i am very worried.
 
My Dr. suddenly moved a few years ago and she had me on 200mg ms/er...60mg ms/ir a day! I was frantic!! Methadone clinic was my only alternative...expensive but it worked.
 
Finally a year ago i started pain mgmt.. Now im back on my meds but sooo afraid something might happen again. I guess i would find another doctor...or try to.
 
So the previous pain doctor gave you Opana for _____? If you have your MRI or medical records, you can try to find a new doctor. I'm not sure what the protocol is in your area, as I'm in South Florida. I remember when I went to clinics, some of them would not give opiates to people under 25. That was a few years back and I quit pain management last year. I'm surprised she gave you topamax, isn't that used as an antidepressant or anticonvulsant? Either way that's not indicated for chronic pain. You're best bet if you have no more opana is try the methadone clinic. Hate to see you get sick.
 
You need to find another doctor right away, or at the least see your Primary Care Physician and explain the situation, and that you are having withdrawal symptoms (as anyone on 20mg of Opana a day would.)
You can send a certifies letter to get a copy of your medical records from the previous office, and then start looking for a new pain management doctor.

This happened to me and it was hell. It took several months to get back to a consistent level with my pain. The worst thing you could do is to start buying meds elsewhere. You will most likely have to pass a UA at your new doctor, and it is not healthy to develop or use connections for opiates - at least if you are truly interested in successfully managing your pain long-term.
 
Arthritis in my spine (degenerative disk disease) sacroiliac joint pain, arthritis in my neck/shoulder/wrist all onmy left side.
I have no idea what the Pain Management team is planning.. But I think it's BS. They would rather I take 1600 mgs of ibu & 3000 mgs of Tylenol daily plus Topomax, Prozac and Lamicital. And no opiate pain meds. I think they are watching their backs and not taking care of mine.
My new pain Management Drs words " you are only 30 (hesitates) sometgething.. You still have another 30 to 40 years left to go. I would not recommend giving you any narcotic pain medication for your condition. You are too young and you will need more and more and none of these meds are working" - she said that because the new opana tore my stomach up. I told her it was the perfect med until it was changed. She ignored me. Said she will try topomax and I should give it a few weeks to kick in. When I asked for something to use until it kicked in she said with a patronizing pathetic look "no, I would not recommend that."
That's it. I feel like my PM dr ditched me. Gave me this scripted baby Dr and now they want to see what I'll do. Problem is I don't know what to do. I'll try the topomax. When the pain starts making my life unlivable again I guess I'll blow my primary drs phone up. This was a total chicken shit move.
 
Look man, tell them that. By saying, "Oh, you are only 30," they are indicating that younger people do not feel pain as intensely, or deserve the same quality of life as older patients. THEY WORK FOR YOU. So you need to sit down and have a clear, concise, and proactive conversation with your doctor about this. Tell her it is not acceptable in any circumstance to discontinue you from 20mg of Opana a day - it is medicaly irresponsible. Furthermore, she needs to realize that another, more experienced doctor thought it was necessary that you receive opiates.
Don't be resistant to trying new treatments, but make it clear that you are not willing to try her new stuff unless she meets you halfway.
Really I would just recommend having a talk with her and if it doesn't go well, get your records and find another doctor.
 
Thank you so much. You have really givens some powerful tools to take and use. I will send a certified letter requesting my medical records. I will email my new pain dr and let her know my fears and concerns regarding my treatment or lack of.(kaiser prefers this route of communication- plus it's recorded and cannot be dismissed later).
I really need to think this through and act precisely And demand consice treatment. I really feel like I was thrown under the bus because some drs generous script writing. I cannot prove nor can I point fingers- but something is fishy and my quality of life will not be sacrificed.
 
hello

i wasn't really sure where to send this. it sounds like you may find some compassionate and useful opinions in the dark side.

if it's the wrong place, discuss and we'll find a final home for this.

homeless -> tds

alasdair
 
Some doctors can be completely foolish at times. I suffer from chronic pain and I'm going to pain management soon (as soon as they call me for an appointment, who knows how long that will take) and I fear that I'm going to get told that same thing: "you're only 21, you shouldn't be on such heavy medications for being such a young, tiny girl!"

They didn't taper you off? And they suggest that you take 3,000 mg of APAP!? That's horrible.


I would reccomend getting a 2nd opinion and finding a doctor who is actually understanding of your condition and needs.
 
I would give it a try but I would keep changing doctors till I get one who excepts what I feel I need... one thing I always hate about being on the insurance I am is its hard to get new doctors and you get the same care from them all.... You know your self best...

However if you can learn to deal try to because there is a chance you won't find another doctor to give you what you think you need.... (it sucks I know) I been cut off before too... I always wondered that WTF do they expect me to do really? What would they do if they were hooked and got cut off... but they arn't and so they don't give a shit
 
Read this about Topamax. http://www.drugs.com/topamax.html
It's for seizures and to help in preventing migraine headaches, or reduce the number of attacks.

PM prescribed it to me for headaches. I was not cut off of my pain meds, but it did NOTHING because I don't have migraine headaches, though they are just as bad, I have pinched nerves in my neck.

Leaping Gnome
 
I know exactly where you are comming from. I have almost the exact same thing the Arthritis in the lower back, and shoulder left arm pain, Nailed it. I was on the same meds for 2 years then the same thing
bam shut off, cold turkey or what I could find on the streets or from friends. Doctors suck they are all trying to cover thier asses after the whole michael jackson thing. I don't give a shit about michael jackson i am just tired of living in pain, 15+ year of it, and I finally found a dr. who helped. The is can She told me you'll get dependent, Yeah no shit I said but I'd rather be that then in pain. So now I take 3 Advil and 3 Tylenol chased with 150mg of Caffine twice a day It helps with the back but not my shoulder, but I have to try it. The withdrawls yeah they sucked but Vit B6 and B12, E, and Magnizum daily helped some along with Sex as offen as possible just to get your mind somewhere else. Oh and Unisom 100mg at night the restless leg syndrome sucks more than anything at least for me that was the worst not being able to get to sleep.
I'm still here, yes and in pain
 
She-Doc sounds like a real winner. To not even attempt to at least ween you down first is atrocious.

She is then aware you have a problem with your stomach from previous medication, and recommends you take a crapload of Tylenol everyday. Genius.
 
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That too young to be on pain meds is by far the worst excuse they could give; what about being too young to be bed bound which what allot of us pain patients would be without are medications. It is bad enough your doctor cut you off from your meds but the fact it was done abruptly without tapering you is sadistic.
 
Mascoma said:
Oh and Unisom 100mg at night the restless leg syndrome sucks more than anything at least for me that was the worst not being able to get to sleep.
Click to expand...

I have actually found that Unisom (diphenhydramine) and other things similar too it, (Gravol which is dramamine and other anti-cholinergics that are similar in the way that they act.) actually seem to make the restless legs symptom of opiate withdrawal much worse.
 
in a way she is right you dont want to be on opiates the rest of your life, and you are still young. shes just trying to get you on a non-opiate alternative, if given a chance might work, and you wont need to be dependent on opiates. Dont lie , you know you miss getting alittle buzz from the opana also. im not trying to be a dick.
 
Hey Drinks, you don't know what she is going through. Either way, just stopping someone's pain meds is irresponsible. They should have at the very least tapered you. Definitely find a more compassionate doc. They are out there. Good luck.
 
Update! I emailed new Dr 3 x. First time i said: " Shouldnt I be weaning off my pain meds? You put me on topamax- which is great but I feel like I'm dying. What should I do? I made an appt with my primary dr tomorrow." Her reply: " Given that you were on low dose methadone, it is not necessary to taper. Withdrawal symptom is not expected from this dose. "
Then I emailed her asking for a second opinion. Telling her to look into my medical history- which she obviously hasn't -breaking down my rx list in the last 2.5 years- Norco 120 per month, MS Contin, fentanyl, Opana and new shitty Opana. The Metgadone was used for 3- YES 3 DAYS- between Dr transfer when new Opana upset my stomach and old Dr didn't want to write a me script for anything. Guess what?? The last two emails, copies of the same, were deleted from the Kaiser Permanente server!! I had to call the office manager to request a new Doctor and file complaint. I will ask for Dr H's suggestion I take 3-4k mg of Tylenol daily and 1800 mg of ibuprofen daily in writing in case I get sick. She did not include that in the written instructions when I lest the clinic. They are totally washing their hands of me. And her reply about the methadone makes it so obvious she has No Freaking idea of my medical history. She even referenced things that my original PM Dr noted about not "recommending further opioid medication" for my treatment. Ok- then why did she keep me as a PM patient for 6 months giving me 120 10/325 norco's a month plus Novocain shots?! She even jokes about keeping my script safe because I could get shot for it. Ugh!!! I'm so angry! I don't Ben know how to handle it tomorrow because I'm sure they are ready to sweep me under the carpet. HELP!
 
That's terrible they are giving you the runaround. So you are seeing a different doctor tomorrow or the latest one?

I would be leary about taking large amounts of tylenol or ibuprofen.
 
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