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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) Version 5.0 ~ V

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I am new here can someone tell me how to post on chronic pain board specifically. I know I sound like a moron but maybe it's just because I have a horrific migraine and my pain is so high today I just can't think ??

Wellcome...you just did

hoping your pain vanishes soon
 
I wish I knew someone else in real life, who has chronic pain too. It must be uncommon in young people, because I haven't found a single other. Makes me feel like I'm fighting this battle alone, especially because the medical system could not possibly have been anymore inconsiderate and useless in the way that they 'treat' me. The medical system is an utter disgrace, it's always worth a try and I'd never say "just don't go there" but in my experience it did much more harm than good for me (considering that I actually trusted their dumb-fuck treatments like a massive dose of the antipsychotic seroquel, and useless NSAI after useless NSAI, a miserable injection that caused cortisone flare... considering doctors had never done harm to me before, I assumed it would be the same this time around, but it wasn't. They hurt me more. I sincerely believe that the garbage treatment I have received over the past 3 years for my chronic spinal agony, has actually caused my mental health to suffer, due to the extreme anger I experience every time I walk into one of those offices with a glimmer of hope, only to be treated like a fuckin chronic pain label is stuck to my forehead, trying to explain what has happened to me and what in the past has helped and they don't have any desire to listen to me. They're fuckin egomaniacs robots but what do you expect really in this day and age.

The terrible medical treatment, and also going months if not years without even seeing a doctor about this, caused so much feelings of stress, hopelessness, outrage, depression, and other negative emotions (since the chronic pain had gone untreated for so long and I have TRIED, TRIED, TRIED). This eventually resulted in triggering a severe, chronic panic attack disorder. I was ready to stab a knife through my heart - just think symptoms of a full blown panic attacks, but one that never goes away, it's just your sobriety now - but then in the emergency room I was given xanax and told to stop my antipsychotics because she was confused as to why the fuck I was on seroquel to begin with (and up to a gram a day of that shit).

So I replaced a gram of seroquel a day + 6 beers chugged as needed when the panic got really out of control, for a benzo habit which I have continued on for years at this point with no issues. The equivalent of a bar a day. Since that day I was given my first benzo, I never had another sip of alcohol and I never will again. Huge positive change for me. I like to cycle between the benzos every couple months, my tolerance is very reasonable.

At this point, I was almost able to function in society. I wasn't having panic attacks anymore, but I still was barely able to walk. This agony in my spine, will be the death of me, it is SO SO painful in my thoracic region just makes me wants to scream and cry and cut myself of course. I cannot do a single pushup or situp, that would cripple me. 10km run used to be a walk around the park, now i refuse to risk even a light jog. Cycling, is still rad so long as I'm on opium or something. I've had to drastically transform my cosmic energies... I used to be a gym rat, absolutely shredded , played too many sports to count... nothing now. I play guitar now, I can't do any physical activities. Of course this is a huge deal for me since I used to live and love that lifestyle. I let the anger, sadness, addiction etc. come out int he music that I write.

I discovered opiates, first it was dillies that magically came into my possession. Of course they did wonders for my pain and I was prescribed percocet for a while after that. Then I got a little deeper into opiates, carefully making decision and my pain is 100% managed now. Since the time that I have returned to normality, I have resumed a career choice that had been placed on hold for 3 years as I stared at a ceiling drinking beer and smoking dope all day, which didn't do anything for my pain, I was just too angry to cope. I am now living a healthy, active lifestyle, I have a girl and a future but I have been scarred by this experience and it looks like I'll be on these substances for life, which is ok by me. This body is just in transit anyway and I'll be getting off at my next stop at some point relatively soon. It would be really nice if they could just fix it somehow like how they're good with broken bones. I guess too many smart people went into physics.

Anyways, cheers all of you. I have great respect for those dealing with this permanent (in this lifetime), agonizing form of extreme suffering and loss that often comes out of the blue; a sudden shock to the system without warning. It is completely misunderstood and stigmatized by the general society too. I'm young, and I look fit. Grab the chainsaw, boy! Were takin' the whole thing down today, I hope you're ready to WORK. Ummm...... sorry, sir..... I can't work........ my back really hurts and this will make it worse. I need to go lie down and rest. "Get out of my face, pussyboy, and never come back! You've completely fucked my schedule for today - think you're smart eh pulling these stunts (begins to throw stones at cpp)
 
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Hey Folks...I'm 1.5 years into PM after a lifetime of pain. I'm new here. My post was relocated to Dark Side forum. I have so many questions about this "pain management" thing which so far has caused more stress and suffering.

Yesterday I posted results for genetic testing for metabolism of pain meds. I'm looking for anyone who can share their knowledge and/or experience with me.

Please somebody...I need your smarts!
 
Pain

I'm new here and hope i am in the right place. I have a question. My husband is having dull pain that runs all the way to his knee. He has been put on roxy's and they seem to work great during the day but at night its like he hasn't taken a thing so by morning he is taking way to many and even snorting them so it gets to the pain quicker. Just wondering if anyone has a clue why they would not work at night. Not only does he have to pain meds add muscle relaxers,weed, benzos, advil...what ever we can think of to help with the pain. Just trying to make it till we go to our pain mgt. doc on Wed. Any info???? Thanks
:?
 
Welcome to Bluelight.

Hopefully your husband will have gotten professional help by now. His schedule and/or dose need to be adjusted, obviously.

What is causing the pain? It's almost always better to treat the cause than to treat the pain.

Moving to the pain management megathread.
 
I'm new here and hope i am in the right place. I have a question. My husband is having dull pain that runs all the way to his knee. He has been put on roxy's and they seem to work great during the day but at night its like he hasn't taken a thing so by morning he is taking way to many and even snorting them so it gets to the pain quicker. Just wondering if anyone has a clue why they would not work at night. Not only does he have to pain meds add muscle relaxers,weed, benzos, advil...what ever we can think of to help with the pain. Just trying to make it till we go to our pain mgt. doc on Wed. Any info???? Thanks
:?

Don't expect a lot from PM Drs., I am going to assume the pain is coming from his lower back? Sounds like trouble with the sciatic nerve, has he had Xrays MRI? I just had an xray that showed there is nothing left of my disc between L5 and S1 and narrowing in the nerve tunnel (spinal stenosis) now I'm waiting for my MRI appt.

There are two kinds of PM places one hardly ever prescribes narcotic pain meds the other uses them almost exclusively, that being said my PM place lets you know right at the first visit they will not prescribe ANY meds at the first visit it is solely for the diagnosis of the problem then if they are like mine he will need to answer a whole battery of questions about the problem and about past drug use licit or illicit as well as a list of ALL DRs. seen in the past and then there was a drug screen as well and other tests such as DNA cheek swab to find out how well and how quickly your body metabolizes medications. Anyway that was the way it went with my first visit with the pain doctors, yours may be different and remember as of the last 10 years or so pain management places have been under close scrutiny as to their prescribing of narcotic drugs so they to protect themselves may seem a bit hesitant to move too quickly with the prescriptions.

As I once had an ER room visit with a bashed ankle and in severe pain and was causing a scene as to how long things were taking, sir ... no one has ever died from just pain so don't expect anything to move to quickly.
 
^My PM experience has been different. Pain is pain no matter where it stems from.

Indeed it could be sciatic.. I know that my sciatica gets worse at bedtime or laying down.

Especially if you lay on the opposite side of the bad knee.

Trying to lay flat on your back with a pillow under the knees might help.

While waiting to get into PM, one way to test if it's your back is to lay on a flat surface, sit up straight, then with your legs outstretched before you try to raise them upward.

You'll likely feel at least a twinge in the lower back.

Hope this helps,

Rtp
 
Any chronic pain peeps had Botox for Chronic Migraines?

I had my injections about 4 weeks ago and there's been no improvement at all. Really disappointed as I'd heard amazing things about miracle cures :(
 
^Ive also heard about Botox for pain. IME, a friends actually, it was pretty much immediate relief.

Many of these interventions are trial & error, so persist with whatever the next step may be.

@Rybee, have you tried lithium?

Rtp
 
^Ive also heard about Botox for pain. IME, a friends actually, it was pretty much immediate relief.

Many of these interventions are trial & error, so persist with whatever the next step may be.

@Rybee, have you tried lithium?

Rtp

No, I haven't actually. I didn't even know lithium was an option for migraine? I've tried pretty much most common medications for migraine prophylaxis, unless it's something used off label as a long shot solution. I've got to have another round of botox in 8 weeks, so hopefully the second set will help.
 
Migraine Help!
... following on from above...

There seems to be varying accounts online of how long Botox takes to work with most saying 3-7 days. I was of the opinion that it was about a week though some have vouched it worked within 4-6 weeks or even after the second set... Migraine treatment is a game of dice anyway so who knows.

However, mine seem to have suddenly subsided (inc the photophobia and nausea) and I'm not sure whether it was the Botox or just the cycle that it seems to go through. I'm due for my second round of Botox in 6 weeks, and if it does stay as good as it is now, I'd have tackled the prophylaxis for the chronic side of the pain but I still feel like I have zero control over acute attacks. A lot of the consultations with my neurologist over the last decade have been on prophylaxis instead of abortion of acute and heavy attacks - which are still breaking through every now and then, despite the Botox.

When I feel an attack coming on, I currently, I use:
10mg Orodispersable Rizatriptan tablets or a 6mg Sumatriptan IM Injection
1,200mg Aspirin
1,5000mg Paracetamol

I've used various opiates for 2-3 years for chronic spinal pain and am just seeing off the last of my withdrawals so I don't really want to resort back to being prescribed those devilly moreish pills of warm hugs. However, I have a feeling that Tapentadol would work really well for me and I'd be more open to that since it's not so opiate heavy. Tramadol used to work a treat for me, but due to tolerance at the moment, I don't think it's going to be an option. I'm due to see my Neuro after my second Botox injection and just wanted to do a little bit more research on acute medications that people could recommend, that aren't opiates, and are medications that he will realistically be willing to prescribe.

I've been thinking along the lines of something like a short acting steroid that may help? Steroids are really not my area though, and I know nothing about them really.

I've tried all the typical NSAIDs by the way... I just find a high dose of Aspirin to be the winner.

Cheers guys, any help appreciated.

Much love <3
 
Are PM centers worth it? I hear more negative things than good (only out for money and treat you like an addict). I'm hesitant to even try one. I don't know if my type of CP woukd even be considered, osteoarthritis. And I'm sure just tetting tge insurance to approve it is a nightmare.
 
crunkman: as a matter of site policy, we don't help people gain their physicians. Since you have a legitimate problem with pain, you should be able to get what you need by being honest and straightforward.

ebola

if only this were true.

every dirtbag and their brother is out there hitting up doctors with an MRI of a bulging disc before they head off to the gym and weighting. If you have real pain you fall into this same category in the doctor's eyes. I have a phd from an invy league school, real job. they don't care, if you're a young male in my parts you're fucked if you need opiates to treat pain. thank god for the cartel.
 
I'm having an endoscopic discectomy on my herniated disc, hoping to beat my chronic pain with this surgery after ten years of suffering
 
He sounds like mad scientist that just wanted to see how you would react in withdrawal......of course he'd gonna make excuses that its your fault.

Doctors NEVER want to admit they're wrong......

many of them are just actually that stupid and clueless about medicine
 
It's a damn shame the way I've been treated by the medical community. I can't even discuss pain meds or I look like a 'junkie'... these doctors have NO idea what it's like. I can't even cook myself a healthy meal without them. Imagine I said I needed more pain meds than I am presently given. That would surely 'raise a red flag'

Legalize all opiates, needles and everything should be available if that's the choice a person makes, PURE oxycodone not this bullshit mixed with toxic amounts of tylenol, and make a real effort to diagnose me properly. It's like you get an MRI, if it doesnt show anything they give up. What about other tests? CT scan? Blood tests? But just fucking off is the right thing to do, attempting to pass me off to another doctor? Like I'm literally just fending for myself here... with a permanent broken bone in my god damned SPINE.

RUINED my life, everything good that I had going for me is gone. I've been out of work so long I'll never work again, in interviews I am judged harshly. 'What have you been up to?' - I have chronic pain asshole, that's why my resume suddenly cuts off and I simply can't work, I can barely get by with no responsibilities at all and a lot of the time I feel suicidal. Psychologist or whatever? Well I requested one, never got anywhere. Again, left to fend for myself even if I wanna fucking cut my wrists
 
This might be a duzi but I want to ask advice aswell as vent a little..

Im 29y old. I had my first pancreatitis attack at 20, necrotic pancreatitis with a massive cyst. I was in hospital 7 months, 3+half in ICU.
In November of last year I was diagnosed with chronic pancreatitis. An atrophic pancreas with calcifications. I was hospitalized again 2 months later with acute on chronic pancreatitis.

I was in severe pain, but because I had used opiates before, hydromorphone to be exact and had went to rehab and was put om methadone(for addiction not pain in others opinions) now in November they refused to give me opioids. I was on 30mg a day, my maintenance dose in their opinions should be sufficient for my pain. But it wasn't.. Obviously.

I eventually found a doctor who sorta gave in to my appeals of pain an I was eventually stabilized on 50ug fentanyl patches. 2 months later I had an appointment at the pain clinic where they outright told me that they will not prescribe me any opioids. I had a celiac plexus nerve block done and the pain was much better, bearing in mind that I was still on 50 fentanyl. Now im lying in bed with my last patch thats been on for 5days. Starting to withdraw and my doctor is on vacation.. Im really tired of not being taken seriously about my pain. This is just bits of the story but what I need to ask, is how do I get taken seriously I have c.t scans ect yet no one believes im in pain... Oh what to do.. ?

Thanks bluelight..
 
^Damn, I wrote a looong post to you last night, & it's disappeared!!

Firstly, obviously you want to avoid wds! How long is your doctor away for & who fills in for him when he's on vacation? At my clinic, if my doc is absent & my opiate scripts are due, legally another doctor at that clinic where my authority is kept must write my prescriptions.

What do you mean that you were " put on methadone for addiction not pain, in other ppls opinion"? Was it liquid eg: methadone maintenance treatment or tablets? Are you still on it or has it been replaced with the Fent?

Rather then a pain clinic, it sounds like you need specialist care. Have you seen one? I'm not sure who to see, maybe an internist or gastroenterologist? Not my area of expertise I'm sorry.

Pancreatitis is well known to be extremely painful, let alone acute on chronic!! I know when my specialists say jump, my doctor sure does!

Additionally, I've always heard that a good result in PM with meds alone is a 50% reduction in pain levels. My GP just told me it was more like 30%, the rest being physio, psych, etc. Can't see physio doing you much good though!

Hope even just having a reply to your post helps a little, stay around, keep posting...it sure helps me to know there's others in chronic pain.

Rtp
 
Hey Stefx85, I'll start with a round of sympathy.......I was hospitalised with acute pancreatitis which resulted in a cholecystectomy which eventually sorted out my pancreas issues. Pancreatitis and the pain associated is sickening, you feel like you're dying, at least I certainly did. A sick gallbladder is the most common cause of pancreatitis but this is not so with you. I feel really sorry for you actually, pancreatitis is disgusting and you've been living with it for years!

There is obviously plenty of background to your story but it certainly appears to be a case of Doctors not wanting to prescribe opiates because of your drug use history and being on methadone. I Would love answers to RTP's questions above. If you have blotted your copy book even unknowingly regarding drug addiction to opiates then yes, it's likely that this is the number one reason you will not be prescribed those drugs now.

I would love to know more about your condition and just what your experience has been this past decade having been diagnosed with necrotic pancreatitis. I assumed such a condition to be deadly quite frankly, my liver and kidneys were battered and bruised when I was hospitalised with pancreatitis, their function was quite diminished and I'm fortunate to have come out the other side - others are not so lucky. However, while I was in hospital I was referred to a haematologist due to abnormalities in my blood, after the usual cancer scare scenario waiting for the results of a bone marrow biopsy I've ended up with a condition called Monoclonal gammopathy of unknown significance. Fortunately it's mostly a benign condition with a small chance of it developing into something like myeloma or leukaemia.

But I wonder what you have been told by your gut doctor regarding complications associated with your condition. Is the future bleak? I had acute pancreatitis, if I had chronic pancreatitis then they would be giving me as much morphine/oxycodone as I need cos I would not be able to function at all. Thanks to oxy I was able to crawl from bed to the couch and even feed myself on occasion once the gallbladder was out the pancreatitis went away and took the pain with it - you are not anywhere near so lucky. I hope you're ok and wish you all the best.
 
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