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What Are You Prescribed? v. Gimme The Good Stuff, Doc.

papercuts said:
A fellow EDSer?
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Still wondering about that, if it actually exists.

Some form's tested for are genetically demonstrated, like Marphan. To bad my test result's got lost, so I have no clue wether I have it or not (genetically).

The test was done because my partner got tested for it and the dr. thought 'well you have all the asset's for EDS, so I'll bi-opt you too'.

Maybe I am biased, but my now ex seemed to use as a excuse for 'lazyness'. Her test came out negative btw.
 
papercuts said:
There isn't a test which can conclude you don't have it, some forms have a specific genetic marker but the most common form doesn't. It certainly exists but I get what you're saying about it being hard to believe sometimes. I was treated for my first dislocation at age three days old. I'd hundreds more dislocations as a child which resulted in arthritis in my early forties. Only then did they think to diagnose me with anything. I spent my childhood contorting for everyone's amusement (family of eight kids) then they'd run off to play something energetic that I couldn't manage. There is the digestive problem too, which has me anaemic a lot of the time, again more so in childhood. The nerve damage is bad these days as well. So, yeah it exists but is very rarely diagnosed in the UK and Ireland, only very obvious cases like mine.
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Thank's for not getting down to hard on me.

It does seem to impact your energy level's, in your case. While my arms are permanently dislocated, my somewhat more musculair posture. Probably, according to the genetic specialized dr. that lost my bi-opt result's.

The advantage of being a male, her word's. Saved me the trouble you and most probably my ex suffer.
 
Sertraline (Zoloft)
Dihydrocodeine
Naproxen
Gabapentin (Neurontin)
Sodium Valproate
Trazodone
Cyclizine
Quetiapine (Seroquel)
Chlorpromazine (Thorazine)
Metoclopramide
Sodium Docusate
Senna
 
90x 400mg Gabapentin (Nerve pain/Anxiety)
30x 27mg Concerta.
I also have a script of Thorazine and Mirtazapine but l rarely take the latter and I have the Thorazine around just in case I dose too high on a psychedelic or an emergency happens and changes the vibe while I'm tripping for a little placebo comedown. I don't think it does anything to end the trip.
 
Methadone 102mg
Adderall 10mg 2x a day
Temazepam 15mg 1x a day
Hydroxyzine 50mg 3x a day
Venlafaxine 225mg 1x a day
Abilify 5mg 1x a day
Metoprolol 25mg 2x a day
 
Was prescribed Pizotifen (I think it’s this med) for mirgraines yesterday over the phone so have yet to pick it up and see if it actually does help. Been text to say it’ll be ready after 4pm so here’s hoping 🤞 if not I’ll go down tomorrow afternoon.

This is on top of everything else I’m on.
 
Gabapentin 2x 600 mg
Topomax 2x 200 mg
Buproprion (Wellbutrin) 300 mg
Hydroxyzine 3x 25 mg
Lorazepam 3x 1 mg
Percocet 10/325 mg (oxycodone/acetaminophen)
Ambien 5 mg

Happy to share details for anyone who is curious. I have several chronic pain conditions (have had them for many years) and seen countless specialists, had multiple surgeries and treatments. This barely scratches the surface (as far as pain) but I am very grateful to have what I have.
 
papercuts said:
I had to be referred to the hospital pain clinic where the specialist recommended baclofen and butrans, only then was my normal doctor allowed to prescribe them. Or that was how it seemed to me.
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I assume you're in the UK? Butrans was given to me by my usual GP a while back. Maybe things have changed in the past few years though?
I think the idea is that if you have a condition so severe that you need strong opioids ect... you should be seeing a specialist rather than your GP. I was given them because a previous doctor had accused me of over using my codeine prescription, so they were a less abusable alternative to a weaker opiate, rather than for more severe pain.
 
Yes, I'm in the UK. Are you still prescribed butrans? Mine is butec, generic brand but the does the same. I'm wondering how it goes with these patches long term. I didn't ask questions because I just wanted the patches before he changed his mind, I've also raised suspicions in the past but it seems the last move between doctors lost my notes 😳. This means they have to rely on my memory 😂
 
I’m off to see my Psychiatrist for my quarterly case review and script refill. Hopefully the session will end with:

Dexamfetamine 30 mg per day
Abilify 10 mg per day
Valium 5 mg p.r.n with 50 tablets for 3 months
Agomelatine 10 mg per day
Seroquel 50 mg p.r.n with 90 tablets for 3 months.

I’m also laying the groundwork for getting the second opinion required for government approval to increase my dex to 40 mg per day. Or even 50.....
 
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Just spoken the pain management specialist via telephone appointment. They're recommending 4 x 10mg ER morphine tabs instead of the 240mg of DHC IR I get now.... 😐 I honestly think they think 40mg of er morphine is the stronger option. I'm going to have to go with it and complain of exessive sedation or something to try get back to dhc or perhaps something else.
 
kaosisallwesee said:
Gabapentin will potentiate the opioids. But has an unusual BA and tolerance builds extremely quickly so it is best saved for occasional use when you really need them.
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My daily meds as follows.
15mg Baclofen x3
Zomorph-am 60mg pm 40mg
Pregabalin 300mg x2

As with the Gabapentin being in the same class of drugs will Pregabalin have the same effect

ive reduced from 400mg morphine Daily to what I take now & I’ve completely stopped taking oramorph at 600ml a week prescribed
this was obviously done as a taper but this will be my 8th year on opiates. Health has obviously put me in a position whereby I’m dependent. my dose now has virtually made me incapable of functioning as a normal person. Sometimes I wish I could be back on 400mg morphine but given the hard work and destruction I inflicted on myself along the way tapering it would be all for nothing
I have a bad coke habit now, withdrawal symptoms wearing me out
 
- 2mg Clonazepam
- Mersyndol (OTC) when my damaged arm flares up but I’m not that big into opiates/opioids.
______
In the last I’ve been actually prescribed trazadone (was meh), seroquel (fuckin garbage), esitaloporam, lorazepam, diazepam, zoplicone, Wellbutrin, and now Trintellix for the past 6 months (not a fan of this either).
 
Cyamemazine 25mg 3 to 4 x a day
Alimemazine 15 to 25mg before sleep
Topiramate 125mg in the morning
N-acetylcysteine 600mg 3x a day
 
BenzoBen said:
Ativan
Klonopin
Morphine solution
Sometimes oxycodone solution
I can only take the liquid forms due to my abdominal surgeries (Had UC and had a 3-step J-pouch surgeries at 3 intervals at the Cleveland Clinic. I take all of the above per the prescription label. I never take more than I should. Morphine 35mg has OK effect on me, but not substantial. Now I'm trying to nix those and get Dilaudid instead. That stuff is magical when it comes to pain and nausea control.
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Damn that's a lot of surgery. Sorry. Hope u can manage that pain. 30mg of morphine isn't shit for a medical history like that. You shouldn't have 8 mg dikaudids or 30 oxys.

I have 2 mg alprazolam
5 mg methadone (from pain doctor not clinic). Per day.

Don't even take methadone it sucks for pain I find suboxone better even tho it's just a partial agonist. Even at 10 mg from methadone I get strong sedation but like no analgesia
 
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Lol only saw this thread now for the first time, just shows how fuct i've been for a long time. So what am I prescribed? Well it goes something like this and no not gonna go in full detail

Doc1:
60x 1mg alzam
60x 6mg bromazepam
14x 2mg subutex

Doc2:
90x 400mg gabapentin
14x 2mg subutex

Doc3:
14x 2mg subutex
84x 125mg pregabalin
90x 10mg diazepam or 180x 5mg diazepam

And then there is other places to get the rest ;) sure you know what i mean.
 
I just achieved what I thought was impossible in America in present day. I have methadone (not for addiction) and Xanax prescription at the same time from the same doctor.

There are cancer patients and people fully bedridden with shattered spines committing suicide from pain because all they get is tramadol so I consider myself super lucky.

I am beyond elated. This really allows me to manage chronic pain in a way that have one only the opioid or only the benzo would not by utilizing each one for different symptoms or pain levels...all without the threat of losing my career family and freedom. Finally.

Also when I get so sick of living a torture existence of being in pain a the time I can legally drug myself into oblivion to escape the hell for a day. ...but trying not to go that route.

Really would like to get an upgrade from the methadone to oxy. But baby steps I guess.
 
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