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Harm Reduction The Pain Management Megathread (Chronic and Acute Pain Discussion) Version 5.0 ~ V

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I had my appointment with the NS. She told me not to do PT (boo) and to NOT, under ANY circumstances, pick up the baby (I knew that) and she yelled at my husband a little, saying that I shouldn't be left alone in the house with the baby. She also did a few physical tests, checked my incision, said it was healing well, gave me a script for a steroid for the inflammation after I told her about the sciatica problem, and wants me to have an MRI to check to make sure I haven't re injured myself. She's not really happy with me since I haven't followed her orders to the letter. I feel guilty.

I have a pain-related question. Are you supposed to take your meds when you feel pain, or are you supposed to take them to prevent pain from happening? I'm not really sure which you're supposed to do...
 
Take them before you feel the pain so that it hopefully prevents it before you feel it, take it after and it is just not as effective
 
Ok great, thanks for the quick reply. I was going to clean the bedroom and I know that will cause me LOTS of pain (and I'll have to keep taking breaks) so I'll take my meds BEFORE and wait for them to kick in and THEN clean, rather than cleaning and then taking the meds after to cope with the pain of it.

ARGH! can't edit posts! TIDY, not CLEAN the bedroom...get my two girls to pick up stuff off the floor...sort-of make the bed...put away folded laundry...
 
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Wow I don't believe it. oxy shortages/dea limits ?

I'm now trying to taper for a final goal of 80 mg oxycontin a day (as that I deem reasonable for my REAL pain). I'm currently comfortable at 260-300 mgs. Just wished I was only prescribed OxyContin and Not OxyNorm IR 20's as well (as the latter are not good for tapering so it's taken restraint not to use them up - as atleast they'll be raising the plasma concentrations of OxyContin as I'm swallowing those whole with water now.

Yeah, it's really nuts. And it's only the IR meds that are impossible to get. They have no financial incentive to even produce generics, it's the same thing that happened with amphetamine salts/Adderall last year. They were putting so much of the national amphetamine salts production quota into Vyvanse/Adderall XR formulations that there was a shortage of generic amphetamine salts, as well as branded Adderall IR.

Good luck with your tapering. It's so hard to decide what's an adequate amount for your pain, since it's so hard to look at it objectively.
It's been weird for me the past week too managing OxyContin and OxyIR. The OCs suck, fortunately I have some extra IR from last month to mix it up.

That's good to know about taking meds before pain too, it's so hard to judge when I need them though, especially since my pain is digestive related so I would take them before eating but that would just screw with the very minimal appetite that I do have...
(sorry for the double post)
 
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Doctor wants to switch me to methadone - terrible idea?

I've been seeing Pain Mgmt doctors for several years due to a degenerative disc condition in my lumbar. I recently moved and had to find a new doctor, and unfortunately he seems to have a big problem with the drugs I've been prescribed. I'm currently on Oxycontin 20mg 2x day, and Roxicodone 30mg 4x day. In his opinion, being on this dose of narcotics is not sustainable, and he would like me to taper down. The problem is that he thinks the best things for me to taper with are either Methadone or Fentanyl, as he wants me to get on a single drug rather than taking multiple each day. I told him I'd try the Methadone just due to the cheaper cost, but I've read so many horror stories that now I am re-thinking it. The dose he is starting me on is 10mg, 2x day. On Monday I am supposed to start it, but I went ahead and made a follow up appointment with him the same day to express my concerns about this switch.

Is it crazy to put someone with my current dosage on methadone? I'm gainfully employed and fully functional, so it's not as if I'm in a desperate position due to the addiction. I'm terrified of the horrible withdrawals that I've read about it. I also had someone tell me that it will be very difficult to get life insurance in the future if they see Methadone in my prescription history. Thanks for any input.
 
FUCK IM HURTING. I think I've got enough oxy in my system as my pupils are microscopic. Beginning to think non-opiods work better for my pain. Going to try a large dose of paracetemol.
 
FUCK IM HURTING. I think I've got enough oxy in my system as my pupils are microscopic. Beginning to think non-opiods work better for my pain. Going to try a large dose of paracetemol.


Crazy, isn't it....... Darvocet worked better for my pain than anything else while others say Darvocet never did anything for them.

I now take Vicodin for back pain since Darvocet was taken off the market & for good reason, it was bad for the heart from what studies were done.
 
I went for a bit of APAP and a REALLY nice anti-immflamatory diclofenac. Being pain free in itself rapidly is very euphoric for me.
 
I have chronic neurosis in the worst of places (testes) from a 12 hr torsion years ago. I've been on 5x10mg/325 hydro (Norco) for 13 years. Same dosage , same doctor for the last 10, never ran out or doctor shopped, no record of drug addiction (though when I come across something I take it:). But as I get older the Norco just isn't cutting it. Tired of suffering. Can't have sex. My doctor just doesn't seem to want to prescribe schII, is this some DEA regulation or some law specific to Pennsylvania or should I keep trying. I know from exp. that a 30mg MSCotin makes me feel like I used to before the accident, but I can't tell him that. Got another appointment next week. Any advice appreciated.

thx.


So I went to my appt. The doc says he is doubling my neurotin, he says that "fixies" the pain while the opiod (Norco) just blocks it. Well the Neurotin made sick dizzy and foggy, I can't take this much neurotin, tried increasing slowly it just doesn't help. Basically I had non-decended testes as a child, ignored it, lived with severe torsions till one day I woke up from being passed out in pain for 8 hours. They did a surgery and I've been on 5 Norcos a day for over 20 years. It just isn't enough anymore. Every time I turn the wrong way it feels like being kicked in the nuts. So the next step is a specialist. I've been down the pain clinic road before with 100's of nerve blocks and an appendectomy to show for it, just a big scam. I am thinking a Neurologist would be the best specialist for this sort of thing, 15 years ago helpful people had a list with doctors who weren't afraid of opiates, does such a list exist today? And why is a PCP so reluctant to increase/change an opioid scrip. Its like prescribing schII is Forbotten in PA, I don't get it.
 
I'm being told that Opana is a good choice for me. Does anyone have any advice for me on this medicine? I'm still in a fuckload of pain and I'm tired of waking up every day to this. However it helps to know that there are other people out there who have worse pain, and have been in that pain for longer, and yet they're still amazing people who contribute so much to this world. :)
 
So I went to my appt. The doc says he is doubling my neurotin, he says that "fixies" the pain while the opiod (Norco) just blocks it. Well the Neurotin made sick dizzy and foggy, I can't take this much neurotin, tried increasing slowly it just doesn't help. Basically I had non-decended testes as a child, ignored it, lived with severe torsions till one day I woke up from being passed out in pain for 8 hours. They did a surgery and I've been on 5 Norcos a day for over 20 years. It just isn't enough anymore. Every time I turn the wrong way it feels like being kicked in the nuts. So the next step is a specialist. I've been down the pain clinic road before with 100's of nerve blocks and an appendectomy to show for it, just a big scam. I am thinking a Neurologist would be the best specialist for this sort of thing, 15 years ago helpful people had a list with doctors who weren't afraid of opiates, does such a list exist today? And why is a PCP so reluctant to increase/change an opioid scrip. Its like prescribing schII is Forbotten in PA, I don't get it.

Dude that lyrica/neurontin is bad shit! Have you read the pack insert ? It's as thick as the New York Times.
 
Hello everyone. I'm a long-time reader of the various iterations of this thread, but have not needed pain management in about 4 years. Enter October 2013, when I fell off a concrete ledge onto ANOTHER concrete ledge and then a concrete floor while on vacation in a third-world country, and suffered various severe injuries to both legs and ankles (2 fractures, massive hematomas, and so on). With the help of my awesome insurance company and even more awesome airline (shocking, I know, but they flew me home first class for free, the injuries were obvious to the eye and I had medical documentation from the terrifying 3rd world hospital), I was flown home as quickly as possible, but still had about 60 hours between the fall and getting medical treatment in a first-world country. I was met by an ambulance right off the airplane, and at the hospital I was treated well and given adequate pain treatment.

After surgery, I entered a post-surgical rehab facility, where I was scripted six 5 mg. hydrocodone a day. It was keeping my pain at an endurable level (and I know that is the best I could hope for in the current climate). I finished with my PT at rehab and went home to another 6 weeks of strict bed rest under the care of my orthopedic surgeon. I have been steadily refilling my prescription, but getting diminishing results. Despite this, I never refilled early, and never asked for an increase in dose. I know how dangerous it is to even introduce the subject of needing more pain meds, and so I figured if I wasn't actively writhing in pain and managing to get a total of 5 hours of sleep a night, I'd call it good.

In the last two weeks, I've been off bed rest (still on restricted activity) and feeling incrementally better. We are ramping up the outpatient PT and I am still in significant pain, but was starting to see the light at the end of the tunnel. Then, my tooth began to hurt. Then, my tooth began to hurt severely. I made a dentist appointment for as soon as possible with a new dentist (I just moved to this city last year) and was due to see him this past Monday. By Sunday night, I was in a world of agony which I don't even have words to describe. All I could think about was stepping in front of a bus, or finding a gun and shooting myself in the head. There was nothing but pain, everything else ceased to exist. I went to the ER, where after a CT scan I was diagnosed with an abscessed tooth so bad that the infection had spread to my jaw bone. The entire bottom left side of my face and neck was swollen up to the size of a grapefruit. The staff at the ER were wonderful and shot me full of Dilaudid until I could stop screaming.

It was just 6 hours between when I left the ER and had my dentist appointment. i went to the dentist and pretty immediately knew I had made a bad choice - the whole place was open-plan, and everyone seemed tense and angry. I was shown to a chair and the dentist walked over and stood behind me, didn't introduce himself, and said "How did you hear about us?" Once he had gotten his marketing questions finished, he asked me what was going on. I told him about my tooth, the ER visit, the diagnosis, the CT scan, and the fact that I was currently being prescribed pain medication for leg injuries. He said "Well, if someone else is prescribing you a narcotic pain medication, I cannot write you a prescription. So I can send you home with antibiotics (the ER had given me IV antibiotics AND an rx for them) and you can live with the pain for a few more days until I can do a root canal, or someone here can pull the tooth right now and you can have immediate relief." The choice was obvious - if I went home without any additional pain meds, I would've ended up back at the ER later that day. So I let them pull the tooth. When i mentioned to the dentist that the medication I was already prescribed did not touch the tooth pain, he said "So take more of it."

The next part is too painful for me to even really write about, but due to having an active infection, the novocaine did not work. This is apparently a well-known issue in dentistry and as soon as they saw that I was not anesthetized, they should've stopped. But they didn't, and I had an abscessed tooth pulled without any anesthesia. There were other complications during the procedure, and it ended up taking about 90 minutes. During which time I was screaming and shaking uncontrollably. It was torture. They removed all the other patients so they wouldn't hear my screams. (an aside: I have had many, many extractions and oral surgeries in my life and never had anything like this happen; never even shed a tear before - I am not a crier).

I was sent on my way with nary an Advil. I made it through the first 24 hours OK, because I still had a few lortabs left and I think the Dilaudid was still in my system. The pain in my infected jaw bone, however, soon began to get worse. I didn't sleep for two nights. I haven't been able to eat or talk. My refill on lortab from my ortho surg was due today, so I called them this morning to ask for it. They told me it would not be ready until tomorrow. I told them what had happened with the surgery and how I told the dentist about my rx from them, and what he said, etc. I said I was in severe pain but that my dentist had said he was legally unable to prescribe me anything. The nurse at the ortho's office said "That is not right. Call them right now and just ask for even two pills, enough to get you through the night. They are legally obligated to treat your pain." I said I would do so, and called them. They called me back and said "Because you were prescribed lortab over the last 12 weeks, we are legally unable to prescribe you anything to treat your post-surgical pain." By this time, I was just broken. Done and broken. Every conversation was increasing my already unendurable pain and I just couldn't fight it anymore.

So. I live in New York, where we have a new law/monitoring system called I-STOP. This is what the dentist referenced when he said he could not prescribe me anything for post-surgical pain. Could it be possible that if I am prescribed a low-dose narcotic (like lortab 5 mg/ six a day), that no matter what happens to me (lose an arm, break my hip, get in a car accident, have appendicitis), no other doctor can prescribe another short-term narcotic for a different medical issue, even if it is an emergency? Because that would mean that I would have to rely on my ortho surgeon for any and all pain management and he is NOT going to be comfortable (nor should he be) taking care of post oral surgery pain!

Has anyone run into this issue before? Any advice? I feel so confused and screwed over that I did everything in my power to be 100% up-front, honest, and open with both doctors and yet here I sit, my pain untreated, another sleepless night ahead of me. And I get the distinct feeling that this whole thing with the oral surgery is going to spook my ortho surgeon and HE is going to refuse my refill tomorrow. What is pain management in this country coming to? This feeling of powerlessness is maddening.
 
Hello everyone. I'm a long-time reader of the various iterations of this thread, but have not needed pain management in about 4 years. Enter October 2013, when I fell off a concrete ledge onto ANOTHER concrete ledge and then a concrete floor while on vacation in a third-world country, and suffered various severe injuries to both legs and ankles (2 fractures, massive hematomas, and so on). With the help of my awesome insurance company and even more awesome airline (shocking, I know, but they flew me home first class for free, the injuries were obvious to the eye and I had medical documentation from the terrifying 3rd world hospital), I was flown home as quickly as possible, but still had about 60 hours between the fall and getting medical treatment in a first-world country. I was met by an ambulance right off the airplane, and at the hospital I was treated well and given adequate pain treatment.

After surgery, I entered a post-surgical rehab facility, where I was scripted six 5 mg. hydrocodone a day. It was keeping my pain at an endurable level (and I know that is the best I could hope for in the current climate). I finished with my PT at rehab and went home to another 6 weeks of strict bed rest under the care of my orthopedic surgeon. I have been steadily refilling my prescription, but getting diminishing results. Despite this, I never refilled early, and never asked for an increase in dose. I know how dangerous it is to even introduce the subject of needing more pain meds, and so I figured if I wasn't actively writhing in pain and managing to get a total of 5 hours of sleep a night, I'd call it good.

In the last two weeks, I've been off bed rest (still on restricted activity) and feeling incrementally better. We are ramping up the outpatient PT and I am still in significant pain, but was starting to see the light at the end of the tunnel. Then, my tooth began to hurt. Then, my tooth began to hurt severely. I made a dentist appointment for as soon as possible with a new dentist (I just moved to this city last year) and was due to see him this past Monday. By Sunday night, I was in a world of agony which I don't even have words to describe. All I could think about was stepping in front of a bus, or finding a gun and shooting myself in the head. There was nothing but pain, everything else ceased to exist. I went to the ER, where after a CT scan I was diagnosed with an abscessed tooth so bad that the infection had spread to my jaw bone. The entire bottom left side of my face and neck was swollen up to the size of a grapefruit. The staff at the ER were wonderful and shot me full of Dilaudid until I could stop screaming.

It was just 6 hours between when I left the ER and had my dentist appointment. i went to the dentist and pretty immediately knew I had made a bad choice - the whole place was open-plan, and everyone seemed tense and angry. I was shown to a chair and the dentist walked over and stood behind me, didn't introduce himself, and said "How did you hear about us?" Once he had gotten his marketing questions finished, he asked me what was going on. I told him about my tooth, the ER visit, the diagnosis, the CT scan, and the fact that I was currently being prescribed pain medication for leg injuries. He said "Well, if someone else is prescribing you a narcotic pain medication, I cannot write you a prescription. So I can send you home with antibiotics (the ER had given me IV antibiotics AND an rx for them) and you can live with the pain for a few more days until I can do a root canal, or someone here can pull the tooth right now and you can have immediate relief." The choice was obvious - if I went home without any additional pain meds, I would've ended up back at the ER later that day. So I let them pull the tooth. When i mentioned to the dentist that the medication I was already prescribed did not touch the tooth pain, he said "So take more of it."

The next part is too painful for me to even really write about, but due to having an active infection, the novocaine did not work. This is apparently a well-known issue in dentistry and as soon as they saw that I was not anesthetized, they should've stopped. But they didn't, and I had an abscessed tooth pulled without any anesthesia. There were other complications during the procedure, and it ended up taking about 90 minutes. During which time I was screaming and shaking uncontrollably. It was torture. They removed all the other patients so they wouldn't hear my screams. (an aside: I have had many, many extractions and oral surgeries in my life and never had anything like this happen; never even shed a tear before - I am not a crier).

I was sent on my way with nary an Advil. I made it through the first 24 hours OK, because I still had a few lortabs left and I think the Dilaudid was still in my system. The pain in my infected jaw bone, however, soon began to get worse. I didn't sleep for two nights. I haven't been able to eat or talk. My refill on lortab from my ortho surg was due today, so I called them this morning to ask for it. They told me it would not be ready until tomorrow. I told them what had happened with the surgery and how I told the dentist about my rx from them, and what he said, etc. I said I was in severe pain but that my dentist had said he was legally unable to prescribe me anything. The nurse at the ortho's office said "That is not right. Call them right now and just ask for even two pills, enough to get you through the night. They are legally obligated to treat your pain." I said I would do so, and called them. They called me back and said "Because you were prescribed lortab over the last 12 weeks, we are legally unable to prescribe you anything to treat your post-surgical pain." By this time, I was just broken. Done and broken. Every conversation was increasing my already unendurable pain and I just couldn't fight it anymore.

So. I live in New York, where we have a new law/monitoring system called I-STOP. This is what the dentist referenced when he said he could not prescribe me anything for post-surgical pain. Could it be possible that if I am prescribed a low-dose narcotic (like lortab 5 mg/ six a day), that no matter what happens to me (lose an arm, break my hip, get in a car accident, have appendicitis), no other doctor can prescribe another short-term narcotic for a different medical issue, even if it is an emergency? Because that would mean that I would have to rely on my ortho surgeon for any and all pain management and he is NOT going to be comfortable (nor should he be) taking care of post oral surgery pain!

Has anyone run into this issue before? Any advice? I feel so confused and screwed over that I did everything in my power to be 100% up-front, honest, and open with both doctors and yet here I sit, my pain untreated, another sleepless night ahead of me. And I get the distinct feeling that this whole thing with the oral surgery is going to spook my ortho surgeon and HE is going to refuse my refill tomorrow. What is pain management in this country coming to? This feeling of powerlessness is maddening.

I'm so sorry you are going through this ColdMiser. What an ordeal! That is ridiculous that your dentist refused to prescribe you anything. As you said, if that is in fact the law (which I doubt), then making your ortho responsible for any and all issues that require pain meds is ludicrous. If it gets too severe I would say go back to the ER. You clearly have a legit reason for being in pain.
 
I live in NY and I have run into this and I don't understand it either. I have been researching and it's difficult to read these fucking legal documents but I'm trying to wade through them so I can get some answers. I was given pain medication from pain management but I was under-medicated and at the time leading up to my surgery I called them repeatedly asking what to do because the medicine that they gave me was not helping with my pain. They said "so take more of it" which I did, because I had surgery coming up and I thought I would be ok after the surgery because the surgeon would prescribe me something. Well as it turned out they did not. They said because I was supposed to have medicine at home they could not prescribe me anything for post-surgical pain. However I had been using more of my medicine as per what they told me to do at pain management so I begged them to give me medicine. They sent me home with a day's worth of medicine (3 pills.) However I was unable to get this filled because it was the same exact thing as my medicine that I had formerly been prescribed and the pharmacy would not give me the medicine until my other medicine would have run out. I tried several different pharmacies.

I think this is TERRIBLE, to send someone home from spinal surgery with a prescription for 3 lousy 5 mg Percocet that you can't even fill. This is a AMORAL state and I am going to write to whoever I can to state that this is a terrible state of affairs. I suggest that anyone else who has been butt-fucked by the ridiculous NYS laws do the same: write to the press, write to the governor, write to anybody you can.
 
xtc, yes! Exactly the same circumstances. It is maddening and feels like everyone's ass is being covered except for the patient in pain. I'm so sorry that happened to you. No one wants to address the issue of tolerance, which is just a clinical reality - if you've been legitimately taking x mg of y drug for any appreciable length of time for existing pain, that same dosage is NOT going to cover a new, acute, severe, or post-surgical pain. Yet in NY at least, the new crack-down is giving doctors an excuse to ignore this reality and let patients suffer.

If you want to shoot me a link to the legal docs you are trying to decipher, I'll read them over - I read & write for a living, so I'm pretty good at translating dense jargon into palatable form.

It occurs to me that the government is going about this whole opiate-addiction issue in completely the wrong way. I think we as a society need to address WHY people are getting addicted in such huge numbers - what is the illness of spirit that is causing so many people to self-medicate their loneliness or psychic pain and why has it reached such critical proportions at this time in history - rather than trying to control ACCESS, which just ends up sending addicts to heroin and legit pain patients to the hell of untreated chronic pain. It ends up, as it always does, that the people with power and privilege (doctors, legislators) are protected from harm and the little man (patients) are subjected to MORE harm and no addict I've ever known has gotten long-term clean because of lack of access to his drug of choice.

I hope everyone is feeling OK today…I've followed your stories and cheered you on from the sidelines and it's nice to finally say hello. My ortho surg called and my rx is ready, but as always, I won't relax into knowing my misery is over until I have the actual medication in my hand.
 
^
What a shitty way to be treated!.
American pharmacists seem to think their the gods of medicines, if a doctor scripts it then they should fill it, end of. Thank god for the NHS....

On that note, I have a question for you guys on here.
I suffer with neuropathy through my face, neck, shoulders and whole back. Im scripted DHC, codeine and pregabalin for this (and anxiety) and mirtazapine at night for anxiety and depression.
Anyway, my pain has been getting steadily worse over the past year and my doctor has tried to increase my pregabalin (now at 600mg a day) with limited success.
He has mentioned stronger pain meds (namely morphine) but has said his hands are tied until ive done a PT assessment (because he thinks theres mech probs aswell) and orthopedics assessment (understandably).
Im just looking for your opinions and experience with this medication change.
I personally get alot of nausea and sedation with morphine but im unsure what my other options are.
I discussed some of this with my doc but hes understandably reticent until he get a solid dx and told me to do some research myself and come back after assessments with ideas.
So guys, all opioins and views appreciated and thanks for reading.
 
Well, I was right to not trust the refill. Had a nasty surprise upon pickup - the doctor switched me to codeine. Without telling me, calling me, or discussing it with me. Why? I don't react well to codeine, but I also knew for a fact that if I mentioned that, he would switch me to straight-up ibuprofen. I am just sick right now. I feel so completely powerless and scared and hopeless. I've never felt this close to giving up in my life. Codeine. What a joke.
 
Well, I was right to not trust the refill. Had a nasty surprise upon pickup - the doctor switched me to codeine. Without telling me, calling me, or discussing it with me. Why? I don't react well to codeine, but I also knew for a fact that if I mentioned that, he would switch me to straight-up ibuprofen. I am just sick right now. I feel so completely powerless and scared and hopeless. I've never felt this close to giving up in my life. Codeine. What a joke.

Wow, unbelievable. It absolutely sucks being treated like a criminal as a patient with legit pain. So difficult to find compassionate doctors these days.
 
Thanks, Harris. It's a very particular horrible feeling: sitting in your car, opening the envelope that your doctor (who is not in today) left at the desk for you, anticipating your salvation from the constant, soul-crushing pain, and seeing that he has switched you to a far less effective med that you do not tolerate well. Just a kick in the gut. I'm still partially in denial…it takes my brain long time to process the reality of a near-term future spent in pain. I think it's the powerlessness that gets to me the most. I guess I always believed, deep down inside, that if I really REALLY needed help, and I did everything right, help would be given. It's a tough thing to realize that nope, I was wrong, there's no help.

I so much hope that everyone who is under treated for their pain today can find some help eventually. It's cruel and inhuman to expect people to live like this. If it weren't for my beautiful husband who every day tips the universal good-bad scales back toward good, and my dogs, I'd be putting a bullet between my eyes today.
 
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