I'm new to bluelight, this is my first post so sorry if I messed up and broke a rule but I tried not to.
BACKGROUND INFORMATION:
I'm 22 years old and was very recently told I most likely have fibromyalgia, which proceeded onto medications to manage my pain, and also tests to see if it could be anything else such as RA, or an autoimmune disease.
The medications helped for a couple weeks tops. My doctor had me on Cyclobenzaprine and Tramadol. Which I didn't really think would help as I had had both of them before for less severe pain and it didn't really even help then. I had asked for testing to see if I had RA about a month before I found my new doctor. I had gone in for a work related injury, and asked him if he thought my pain was abnormal and he said it was odd for someone my age to be in so much pain. He did some blood tests but everything came back normal. My new regular doctor ended up just using his results since they weren't very old results.
Then she asked me about my pain and I explained that it feels like I got ran over every morning when I would wake up. It got better throughout the day, and then mid to late evening the pain would come back, sometimes so bad I couldn't sleep. So she prescribed the before mentioned medications, and as I stated they worked for a few weeks but not very well. then she decided to up my dosages, by taking two tramadol and two cyclobenzaprine throughout the day as needed. Which again sort of made a dent but not much. She set me up with physical therapy and suggested eating better and being more active. Well I missed my physical therapy, I have a bad habit of getting lost. I tried eating better and it made my feel sick and gave me bad diarrhea. I tried to do some stretching but I'm a dog groomer, I'm literally moving around all day. Which might be why the pain gets better the less I'm in bed, but it's so damn near impossible to want to do anything physical after you've worked all day and hurt so much you just want it to stop.
Well the tests came back and my ESR and CRP were elevated a bit for someone with no new injuries or anything like that. Which, if you don't know those are inflammation markers. I emailed her and asked if that was enough to get me in and she said it was, but not to get my hopes up that they would have any better news or any other suggestions for my pain. So I waited a month, finding Hydrocodone anywhere i could, mostly from a couple friends who have arthritis and messed up necks. by the time my appointment came and I was so excited because I wanted answers, someone to realize how much pain I was really in. So much pain that I couldn't even get out of bed some days, and the fatigue was unbearable. Between the pain and the fatigue I was barely able to live my life. So i tried some hydrocodone i got from someone and i actually came into work smiling, my business partner even said "You seem very happy today!"
But then I saw the rheumatologist who asked me a series of questions, tested my grip and reflexes, and ended the appointment by saying we will redo the tests because until recently you didn't have elevated inflammation markers, which was sort of true. They weren't as high as when I had them tested so I could be referred. Which was fine and expected. What upset me was his diagnosis, chronic pain syndrome, which in my understanding is basically the same thing as fibro. Also his answer to my pain was going to the pain clinic, which will just be even more doctors appointments I don't want to deal with when I run my own business. Also he said he couldnt, and wouldn't prescribe me any narcotics and just to keep taking my medicine. I think I was most upset though, when I got the test results showing that my CRP and ESR were stI'll elevated, but I never got a call about the results so I guess whatever the inflammation is caused by is a mystery.
Since that appointment, and maybe a few weeks before that, also a couple of times in the past before I got any diagnosis, I found opiates and narcotics wherever I could to try and see if they worked. I tried fent patches, oxycodone, morphine, tizanidine, and every otc drug that fibro websites reccomended.
THE POINT OF THIS POST:
I see my regular doctor again on monday, and with the same information as I had before but still no relief. I would like any suggestions anyone might have.
I have tried lotions and pain cream made for fibromyalgia, essential oils, hot baths, and still I am in at least moderate pain everyday. It's made my life hell and I don't know if I want to even go on most days.
I have tried probably a couple more pain meds than I listed just above the last paragraph. But 5mg oxy twice or three times a day was the closest I've ever got to being completely pain free. The morphine sulfate 15mg pills worked the first two times I took them and since then my pain has gotten worse so when I tried them over the weekend they didn't even make a dent in my pain at all.
I've even tried snorting & smoking, the morphine as I was desperate, but neither did anything any better than just orally. I also extracted the Tylenol from a couple hydros one night, to see if it would make a difference, which it did slightly but not much. And lastly my real confession, I couldn't find any of the pain meds I wanted, since I only know so many people willing to sell them, as it is illegal and I wouldn't reccomend doing what I've done, but I took the only thing that could be found tonight. At 11 o clock tonight I smoked and plugged crystal meth. It helped for maybe 2 hours tops but still wasn't completely. I'm still a bit strung out and as I stated at the beginning of this horrendously long story, I am new to bluelight. But if you have any ideas of how to help me please, please respond soon or even if its something personal that you dont want to share with everyone, add me as a friend and we can discuss it via messenger or email. Which I will only give out if you have legitimate advice, and really want to help me. I don't regret trying these because sometimes they helped and since I couldn't get them at the doctor, I found other ways. And that led me to a pretty low point, which I'm at right now, in terms of pain. I don't currently regret trying the meth but I wasn't at all what I wanted in terms of pain relief. Anyone with fibromyalgia/CPS who has experience with narcotics and such this is mostly directed at you, because I think a lot of people don't understand the pain and the suffering, or don't even believe it's real. But what have you taken as far as medicine for fibro/CPS, for breakthrough pain and preferably something that I could take nightly as a preventive measure. Lyrica is one I have mentioned to my doctor once and she dismissed it because she didnt think that we should discuss it until I'd seen the rheumatologist. Any good words on anything to help me would be greatly appreciated.
