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Misc The Pain Management Mega Thread v. 7

^They will not 'flog a dead horse' so to speak. If you have a case then that's that. I'll assume 'no win, no pay' which is awesome in this country. I have experience with this and I'm glad I did it. My cut was much larger than theirs and well worth it. I barely did a thing to be honest. Apart from have a car accident which involved about 8 cars with mine in the middle.....and so began my journey into chronic pain (Lower Back).....but I managed it with core strength exercises and lots of gym. I also exacerbated the fuck out of the bulging discs later on but that's life.

Good luck, but I don't think you'll need it. Take Care.
 
^Thanks SKR, I was really surprised when after speaking with admin at this firm I recieved an email saying that **** ******, the principal lawyer would like to call me in the next 5-10 mins, (which I didn't see til later as have no email alert on), I sent back a msg around close of business time & he then called me.

Even over the phone we seemed to establish some rapport, he was kinda joking around at the start & seemed super confident. Although he has a team of thirty solicitors under him, he said he would be the one to help me. So he certainly understood I needed an experienced & gutsy lawyer. 98%win record, would I be unlucky enough to be in the minority here? Let's hope not.

My first lawyer, (which I'd never intended to have, until six mths in TAC were still stuffing me about), had said "so, you can't do everything you'd like to do, like, gardening"? Which I agreed with, as the initial process was overwhelming!

Later I called his office & left a msg. It's not just gardening lol, I can't open my front door with my right hand, handle money, brush my teeth properly, cook without burning/cutting myself, use a computer, do up zips or buttons etc & clearly have difficulty helping sweetchildofmine with tasks. I could go on, but I'm typing left handed on my iphone.

You don't know what you've got til it's gone does not just apply to love guys. It sucks that my chronic pain is so well controlled, yet my hand/arm is not. At least two specialists think I have developed complex regional pain syndrome. Which comes top of something called the Mc Gill pain scale?

Think I've mentioned that the general concences is that I will never regain feeling or use of my right thumb or first two fingers. I'm still with my physio in the gym doing light weights & general fitness training in order to keep some function.

It's progressed to random bouts of excruciating burning feeling on top of the numbness. Sounds weird I know, like how can I feel it?!?

Well, that's the nature of the beast unfortunately. Literally like a flame is being held to any or all of my hand. Lol, mum popped in randomly a few nights ago & I was clutching a handful of frozen chips. I'd used up all my ice packs that night , & had resorted to any thing I could hold to my hand.

It's been almost twelve mths since I was hit by the car, august 18th. Feels so long ago, but in other ways so fresh & raw still.

Hugs to you all,

Rtp
 
I know this seems like a naïve question, but what are the most common non-narcotic prescription pain relievers given to chronic pain patients besides Lyrica, Neurontin and Celebrex. I am slowing tapering off of OxyContin, and I am going to need to go on to something else. I will also likely be taking an antidepressant as well. I know that some pain docs use Cymbalta to help with fibromyalgia, but I found it way too stimulating.....even at non-therapeutic dosages.

Has anybody had any success with something else??
 
^No is the short answer. Actually it's my only answer. Massage and every other non drug therapy may be your future if not already. There's of course a plethora of anti inflammatories out there but they are best used to burn a hole through your gut. The antidepressants will help with dealing with life and chronic pain.
 
^^Panadol osteo (6hrly dosing compared to normal 4hrly), actually, I don't think it's even prescription anymore.

As SKR says, none.

Oh, 'Cept Clonidine. Don't think it's widely prescribed though,- remember posting here once at my local ED,(after being given a dose along with ketamine), a dr told me "it's not safe for the community to prescribe clonidine". Lol.

Depends on your pain, & where you live. Ketamine infusions or lozenges might help if it's neuropathic pain. I didn't get much help from the twenty or so I had when my PM ran out of ideas.

The desparate things we do....

Rtp
 
New here. Looking for help with pain.

I'm new here. I have low back pain. I hate taking pain meds. I was just fired from my pain med doc. I had surgery and didn't tell him I had surgery and the surgeon gave me pain meds. I had no idea in state of FL, you can't get pain meds for anything without having pain med doc handle it. I asked him so if I get hit by a bus, you have to prescribe me pain meds in ER? He said yes. OK, I guess you live and you learn. Now I'm trying to get all my med notes: RF ablation of branch nerves, several facet injections, OT, etc. etc. I only throw my back out really bad about 4 times a year and can't walk. That's when I need Medrol (prednisone) and Hydro. I can't take Oxy or Morphine. I get terrible itching and throw up. I'm going to try Kratom for pain. Anyone have any experience with that?
 
Hi all,

Sorry I've been absent. Summer vacation interspersed with workshops, and family trips. I had a radio frequency on Wednesday, as they told me my spinal cord stimulator will only help so much. Of course, I'm the crazy person who gets both sides done at once, so I don't have to have 2 surgeries (8 spots total), so the pain after is terrible. Funny thing is, a new Nevro rep called to check on me that evening (they had to turn off my stimulator with a magnet because no one told me to bring my remote in), and I told her it wasn't helping so much. She suggests I change the program, which I asked to do before but was suggested not to, and low and behold; 2 hours later, I have NO PAIN whatsoever. NONE. Not even the crazy burning from the radio frequency! How crazy is that? One click of a button, and my life is back. I've been in such pain for so long, I don't know what to do with myself.

So. Here's to hope. RTP, I hope that this new lawyer kicks ass, and they fly you somewhere where someone can do something, because you can't put a price on not being able to do things.

SKR, I hope you find relief.

Shroomy, make small goals for yourself, and you will succeed. Now you know what you want; you're halfway there.

Dixie, I'm sorry; I didn't understand all of your message, but I hope someone can get you the oils you need. And I'm so sorry for your friend. I'm going to wish for the lottery for you.

Kittiemomma, how are you doing? I hope your ex gets what's coming to him, and that you find relief. We don't deserve to live in pain. I feel like I've been in a fog for so long. Don't get me wrong; I overdid it yesterday and I'm hurting a bit today, but now I see HOPE.

Yours,
AnnaBanana. Hugs and drugs, and Happy Friday!
 
F%&king nice one Anna that is just so awesome!!!! Oh Lordy we've haaaaad a miracle!

It got me thinking if you are the first in the history of the thread to have a full recovery an actual 180 degree day/night change in your condition!
 
This is my first post. I'm kinda nervous about finding somewhere like here.
I have chronic pain from lots and lots of kidney stones. I pee them out all the time. Pain goes from upo in my kidney, right down to bladder and when peeing it out.
Problem is, every man and his dog use kidney stones as a complaint to drug seek. I dont have alot of doctors who will treat me. Thank god I have an awesome GP who prescribes what I need, and believes me.
Taking M-Eslon and Sevredol (two forms of morphine for those who dont have the brand names in your country) for pain. Not many understand what living with high doses of those meds does to my motivation, energy levels, libido, blah blah blah.
Nice to find others who deal with pain too.
Grizzabella.
 
Welcome Grizzabella, sorry to hear the reason you've joined though,- must be awfully difficult living with that kind of pain.

I've,(as have many here I suspect), suffered acute kidney stones & was in agony. I also recently found out I have a kidney condition called bilateral calcinosis. Doesn't give me any symptoms yet.

Great you have a good doctor, sounds like you're in good hands.

Don't be nervous posting here, we all share & spill as we need to!

Anna, that's amazing news!! Bet you're thinking in hind sight though...

Welcome also to the new posters.

SKR where are you at with meds/pain relief atm?

Rtp
 
Thanks for the welcome.

I must admit it was eye opening to read about people IV'ing M-Eslon?! Something I would be way too scared to do! Like I give myself IM injections of cyclizine (anti-nausea), but dont want to run the risk of infection or something bad outside the hospital scene. Learn something new every day!
I actually found this place while googling to find out how M-Eslon works in the body and how it all works to make it slow release.

G.
 
Haha grizzabella, indeed BL can be eye opening in many ways,- wait til you check out the lounge!

Many pain patients on long term opiate therapy develop tolerance to their meds & many drs lack the knowledge or understanding,( or are shit scared of the govt), to keep increasing doses.

Therefore, one must find a route of action or a method to obtain the best pain relief possible from what they have.

Often this leads to or can overlap with addiction as opposed to just physical dependence. IME experience anyhow.

Rtp
 
Runtoparadise said:
SKR where are you at with meds/pain relief atm?

Rtp
Click to expand...

Still subbing but have been dropping my dose by a 1mg every couple of weeks and currently sit at 15mgs so I'm opioid addiction relieved but I'm facing the possibility of switching to the dreaded methadone.

Making the switch is easy as I'm already at the clinic and my sub Dr will do it, in fact he suggested I try it.......he'll take me up to 80mgs of course which seems to be standard fare but I'm terrified of the prospect to be perfectly honest. I'm not sure if by doing so I'm somehow selling out or giving up.

Talk to ex-Heroin addicts I know and they don't tell me to steer clear or make it out to be Satan on a motorcycle like many folks do but it still freaks me out. I certainly won't be telling any family members about it if I do.

I'm thinking about discussing it with my GP, cos it's either methadone from the clinic or a switch back to oxycodone and maybe try some morphine IR.....but he has to be willing to do so and be prepared that I may require more than he is comfortable prescribing.

I know he won't atm cos I've got a kidney issue they have done tests on, I'm just waiting on the results. I'm at a cross road.
 
And welcome Grizzabella and any others new to the thread or BL or both! ?
 
Ugh. My excitement was short lived. Back to level 7 pain today and yesterday. I had a few hard days of work, so I'm hoping that's it. Here's hoping for more pain free days, y'all. This is no way to live.
 
Lost my post.

Dear Anna, so sorry it's not as simple as turning up the dial on your implant! Do your drs have any more ideas or are u yet to ask them?

Don't be afraid of switching PM as I for one know the outcome can be miraculous xx

Rtp
 
:\ Hey PEEPS!

I've been "Gone, Dixi, Gone". Not sure I'll be back often, with little to offer besides my despair. Who needs that?

Good to "see" everybody, both old and new. I'm happy for those who are getting answers and finding relief. I am grieving for those (like me) for whom relief will not come.

Is it the "dog days of summer" that has us feeling even more like dog shit?

Idaknow...Last week was such a joy, visiting my PM and my GP (kidney/flank pain, blood in urine). Of course, no answers other than UTI...more antibiotics. PM not even trying to "manage" anything more than his account balance...still Oxycodone. I don't take it most days because it just makes me even more PISSED OFF at rebound pain.

I'm experimenting with MMJ, though such a greenhorn. So far I've tried Cannatonic and Durban Poison oils. I don't get pain relief, but some crazy ass giggles. It's so unpredictable. I'm trying some Rick Simpson tincture now, but I can't function "stoned".

Still having the Linzess explosive BMs (yay, me!) I know I have to take the medicine to avoid obstruction. For God's sake, I feel disemboweled afterwards!

Hubby's med-resistant HBP has gone rogue again. It's been a scary couple of weeks of med changes. He sees his doctor again tomorrow.

On a lighter note...We "celebrated" 36 years of marriage on Sunday. My birthday is this coming Sunday. Sadly, my "wish" would be to feel less like walking dead.

Nevertheless, there will be Hummingbird Cake. Y'all are invited! After luscious cake, I'll be sipping Hemlock tea. :|

(((HUGS)))
 
Bump

This threads been pretty quiet lately, what's up? Are ppl feeling better?!?

Good to hear from you Dixi, I understand where you're coming from....what is left to post about when nothing ever changes & you've said all you've had to say:(

Rtp
 
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