an epidural?!? interesting, i have a seronegative spondoapathy,-ankylosing spondyliitis, bilateral sacroilliitis, pelvic sclerosis, and a bunch of other shit, but i have never even heard of, or considered that. holy cow i could of used that, many times, and will no doubt.
im not surprised, but always angered seeing people have such shit-crock experiences with their docs. after receiving those, permanent progressive, unrepairable diagnosis's. i had been complaining of constant agony to my PCP, getting a look the other way. one day it was to the point where i was loosing consciousness from the pain.. shiver. we went to the ER, and was diagnosed with this shit by MRI.
my PCP wouldnt even look at the MRI results! he asks, why this is the a top concern now, so i slide the papers over to him, with a gaze of wtf and terror on my face im sure. he still wouldnt look, after that and me saying calmly, because of these diagnoses....! my father was there, telling him how im designating.
so many doctors, so many drugs, so many adverse terrible reactions, so many say i need narcotics, but not anyone who would have to prescribe them, they thought not. i have a mass of chronic pain issues, one, pleurisy induced by an alternative mega pain blocker last november.
that same PCP, who gives me 6mgs of kpin a day, and lithium which he hasnt ordered a level check on in around a year said, he will do what ever the PMC docs suggest. nope. 2 months later, my wifes PCP asks how im doing,,, not good.... he says he will give me some relief for a bit and to come in. i didnt for a couple weeks, i was on pods, 2-3 a day for over a year, and didnt want to mess up my groove, or have the temporary relief. i broke down and went in
he is a weirdo haha, but interesting, and interested in our interest in medicine, and will chat about theories and such. he gave me 100 5/500 hydrocodone... uh, yeah, 50 gone in 10 days, still constant pain with pods and mmj. i go back to see him, and he says there was a refill, why didnt i get it? well 2 weeks early at 2 a day... and, im not dumb???
so he answers for me, those arent working for you are they? hmmm, what will?... i answered 3 5mg oxycodone a day,,, yike, major major underguestimate. every 3-4 hours after 10mg, recoil, crunch, tare, swell, split, yank, stab, twist, spasms, hot marbles popping trough ribs, hurts to breath regularly, laugh, talk in my natural voice; same hot marble sensations with my scapulas.
its been so much, so fast. im used to seeing several doctors or PT a week, but its all dropped, ive not blown up, but been told my goals and current life situation by so many doctors, i just wanted to send the pain i was in into them, for just a few moments and watch them vomit on their cheap suit instantly. with this mound of paper work, and the good nature of this man im seeing now out of respect and education, im scared to say, i need more. that was a tough call to make hah, guessing what would do the trick. he gave me 60 5mg oxys, no refills, follow up in 3 weeks, the day after the pills should run out.
when the pills wear off, its too much, i have to try and rush to sleep, or my mind goes to black.
for the pain i take;
Humira 40mg IM injection every 10 days. and to prevent fusion of spine and joints.
2 grams or so of mmj i grow.
and now, 15mg oxycodone - 30-40mgs oxy helps spread almost through out the day, but when it stops so do i...
this is absurd, i have tried so so so many meds, heavy nsaids fuck me all up for a couple days in a bad way, remicaid smashed my life, and is atm 8 months later, prednisone never did anything in all ROA,s and sent me to hell with dysphoria and pain intensity last time i took it(report in ADD), gabapentin nope, lyrica adverse reaction, and on and on.
i need this pain at some sort of negotiable level to continue diagnostics, gain the weight i rapidly lost, and still lose, and get back into physical therapy.
im certain he knows ill ask for more, and seeing how he didnt put any refills, he is either going to change the meds, like something time released or longer acting, or up the dose.
with the conditions i have, there is no way i could be left to live like this, i thought every day. i still do, this means the world to me, literally.
i guess im sharing my experience, and asking what the next move ordinarily would be from here, OC, Roxies, MScontin, more percs ?
it all depends? he said he doesnt write for hydromorphone, cant blame him for that really.
i wish there was a nice, polished, pod pill...
. When I go in to see the most recent image of my spine, I will be asking about Gabapentin and other pain relief options as suggested by you all.![:\](https://bluelight.org/xf/BL_Images/Orig_Emoji/wrygrin.gif "wry grin :\")
are difficult for me to zone into which is pathetic for a girl who read "Crime and Punishment" at 14. Working on my Masters in Library Science is out of the question when I can barely read and comprehend my medical bills, much less pay them. I can concentrate to type up a post or scribble out a poem but working on my novel is totally out of the question. I cannot even concentrate enough to finish a prone meditation. How in the world do you guys cope? Please, any advice would be much appreciated. Some vertical cuts up my forearms along the veins seem more and more appealing... And since I know most of you on this particular board have been there, I could really use your tips and tricks...
