New Member needs HELP

[Painful One]

Guys,
in particular I need an answer to the following situation- at the end of December I started throwing up violently, black gritty stuff and had a major headache with vision loss (those are common for me) but after that I awoke in the night with my arms having seizures and both arms became paralyzed from the shoulders down for half the day. For about one week, I awoke every night to these arm seizures that feel like child birth labor pain contractions in your arms and in both legs. My feet and hands have been burning, pins and needles, stabbing pain (in feet) and sometimes numbness every day now. I have had strange feeling, very sharp pain in my head that lasts only for a few seconds (thank God) on and off for a few minutes. My memory got knocked out and I could not remember words or speak very well. That function is just returning now. My entire body feels like I was beat with a hammer. I'm experiencing major depression too. Way worse than normal.

The worst thing that happened though is that my spine went out. My back would not hold me up at all. I had to prop myself up with pillows. It came back now so I can sit/stand but still feels very weak and I am leaning to the side a lot.

I went to my pain specialist as I have been diagnosed with chronic pain- left upper leg, back injuries, migraine headaches, REM sleep behavior disorder, hypoglycemia and some other things I can't remember right now and I told my doctor what had happened (I doubled up on my prescribed M.S Contin, Ambian, and Clonazepam during this time due to major pain and that it stopped the seizures and I could move my arms some again).

I was expecting to be referred to a movement disorder center/neurologist or something but my doctor said that I am causing this and nothing will help. No neurologist, psychiatrist, physical therapy, I even asked if rehab would help wondering if it could be the medication I have been taking for 9 years (M.S Contin 75 mg a day (never increased in 9 years) Clonazepam 1mg at night,
ambian 10 mg at night- never had any problems like this from the medicine) the doctor said no it would not help. He said that I have chronic pain and the only thing I can do is to take the medicine to manage the chronic pain condition and I also have to manage the medicine. He got pretty mad at me for doubling up on it but I did not know what to do and got into him ASAP.

Does that sound right? Nothing or nobody can help? I am causing this?? not on purpose but my brain is causing this?
I have no idea what to do. Can anyone help? Has anyone had this happen? Could this be caused by the medicine?
i took no extra medicine until the arm seizure paralysis thing happened.

Thank you for any information and input. I'm at a complete loss as to what to do. ​

 

[Jackal]

Well, you obviously have a huge medical history.

Nobody here can make a diagnosis unless they are a qualified doctor and you go see them.

However - this puke; gritty and like coffee grounds?

If so that's E.R bleeding/perforated ulcer territory and could kill.

You need a new medical opinion, dude. And be totally, brutally, explicitly transparent with them for your own sake.

Regards,

J

 

[d1nach]

This is not normal. I dont want to scare you but if i was experiencing that id be up every doctors ass because id be worried about my life being at stake. I have no idea whats causing thus but it sounds like you need treatment for something and pain meds are not going to fix it. Idk whats wrong but that pain sounds like a alarm cause your body is freaking out

 

[T. Calderone]

I think your pain management doctor has a responsibility to make sure that you are getting the best treatment possible. Evidently, he is just giving you pills and making you believe you are doing this to yourself which is so wrong. I agree with above posts: get another opinion, especially if your symptoms aren't improving. You may not get the answers you need right away because of all the things you have going on. Even if you have to go to the hospital, that would be a start. I hope you can find resolution to this soon!

 

[Ozle]

What meds are you taking exactly?

 

[Painful One]

Thank you so much for all your responses.

I am glad I'm not the only one who thinks my doctors response was very wrong.
he has been my pain specialist doctor for 9 years and he has had me taking
75mg M.S Contin for chronic pain control, 1 mg clonazepam for REM sleep behavior disorder and
10 mg ambian per day.

The fact that he told me this was my fault just blew me away and did not refer me to a different specialist
And for some tests. .?? I don't get it. Is this normal for people with chronic pain? I cannot go to any other
Doctor without a referral from him.

I do feel like I'm going to die.
I'm still super sore from the seizures. Thank God I have not had anymore. Just some bad shaking in the arms still.
Headache, broken foot (which he did not even send me to have x-rayed), nausea, super bad depression, neck and back
Pain has been really bad. Feet and hands still burning, pins and needles, numbness and stabbing in my feet.

I have been been taking the above medication for 9 years and never had anything like this happen.

 

[PriestTheyCalledHim]

Go see a doctor now, or even go to a hospital and tell the medical professionals your medical history, all the drugs you take both the prescribed ones and if you use illegal drugs, and what happened to you.

I hope you feel better soon.

 

[chelle216]

You really, really need a second Dr's opinion on this. I know you listed the drugs you're taking, but given that you had been vomiting (which in itself, in your case due to the description, is worthy of its own ER visit) is it possible that you're taking any sort of prescription anti-emetic? Perhaps even something as inoccuous seeming as a Benadryl? Maybe it's possible you're experiencing a dystonic reaction?

 

[Roxi808]

Maybe you're in tolerance withdrawal from the benzos?

 

[Painful One]

Okay guys- I called the patient advocates at my health insurance company and told them what was going on and they got me an appointment on Monday with a different Doctor. They also got me an appointment in March with a neurologist. That was the soonest available date a neurologist could see me.

But at least I managed to get two new doctors to have a look at me and hear what has been happening to me! Without a referral from my Pain Management Specialist! That is fantastic! The patient advocates even offered to help me find a new pain management doctor if I want. I'm thinking about it.

Pray for me my friends. I am scared badly.
Thanks to all whom answered here.
I appreciated it more than you will ever know.
God bless.

Ps: I am here for anyone who needs to talk about their problems also. I'm a good listener.
I know we are all dealing with a lot in one way or another here.
Love and hugs to you all.

 

[d1nach]

Praying is nice but we live in a modern society where they should be doing more then just given you opiates. If that's a acceptable treatment we mine as well be living thousands of years in the past and giving u opium. I think those doctors might have a jaw drop after hearing ur story