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  • AADD Moderators: swilow | Vagabond696

my RLS story...

i am actually considering buying some heroin to smoke, the look the doctors give me makes me feel like im on the shit, so may as well get on the gear.

i dont mean to come off like a rude cunt, but these drugs are obviously made for specific reasons and obviously still work when taken properly in situations that are properly prescribed.
 
Any doctor will admit (not to patients) but when you loosen them up at a BBQ with a few drinks that Heroin is the best pain killer ever invented where paracetamol fails. But not street heroin obviously.

Dont go straight to smoking. You probably only need to sniff 25mg to get the relaxed effect and pain releif if its rock gear.
 
which would provide best pain relief for amount used vs duration
im very against it, but havent minded smoking it a bit after a big weekend on the gear, but didnt have enough to notice any effect really due to the overpowering rice
 
ok so if i had some money left, i would buy some heroin right now.

i went to the doctor today to get the results of my blood tests, all healthy they say, my liver function test was slightly off color, but nothing to be alarmed about apparently.

i inquired about Doloxene (Dextropropoxyphene) as its been shown to help people with RLS, so thought it was at least worth a shot. the GP told me hes not willing to prescribe pain medication, i asked for anything at all the help with the pain, told him ive lost my job, am losing my mind, my whole life is falling apart.

he prescribed me voltaran rapid 50mg and said it was a 'very strong pain reliever' even though my blood test results showed muscle inflammation was not a problem.
i then requested to be referred to a pain clinic because if i dont get help legally i will have to get it illegally and he had the balls to refuse a referral and say i need to speak to the psychiatrist first and told me i need to relax as he thinks my anxiety is causing the pain in my legs.

what the fuck do i have to do to make this fucking excuse for a healthcare system to work for me?
i've tried playing their games with medications that i know will do nothing (antidepressants etc to treat pain and insomnia due to pain) and put up with their 'i cant help you' shit, so fucking why cant i see someone that will at least try to help me?

the only relief i can get is eating 15-20 nurofen plus which will take my mind off the pain, but not relieve it 100%
now i have no money, have lost my second job to this condition and now doctors think this shit is in my head?
i've had RLS as a child and a teen and now i may have a neuropathic pain issue and im doing everything i can to get help and after 2 years of constant work im only getting worse mentally and physically...

i have no idea what to do, i cant wait until late april with no help at all from anyone.
 
i've tried several doctors and 2 medical clinics over the past few months for pain killers after moving to bayswater in august last year after living in coburg.
i had to beg to get a referral to a neurologist let alone anything else, previous to that i was pleading with the doctors to try me on different medications for RLS, but was generally told 'i dont know about RLS, i cant help you'
this lead to me bringing my own suggestions of medication, which made the doctors that do nothing for me in terms of diagnosing anyway (too hard basket) do even less work and i feel made them want to help me even less.

i have tried sinemet (ldopa/carbida) and requip (ropinirole), sinemet made my condition worse and requip did nothing.
i have tried ALL conventional RLS treatment (sifrol, magnesium, fish oil, iron supplements etc) , i now believe it to be a misdiagnosis as i have period limb movement disorder (legs move in my sleep when they shouldn't) which was diagnosed in a sleep study, but my pain is 24/7, deep severe aching. i've had RLS as a child and a teenager, but i now believe i have something that is neuropathic pain when awake and PLMD (as well as central apnea).
my leg pain was causing issues falling asleep and my PLMD and central apnea was causing me to wake alot and have very poor sleep. so i had a sleep study done and RLS was diagnosed as my leg pain matches that of RLS in the sense that it is deep aching pain that is relieved when my muscles are stimulated (ie. when walking, intense stretching etc) but the pain will come back instantly when my muscles are stationary again.

i have the results of my sleep study, reports from the sleep specialist and all my previous medical records that i take with me to every doctors appointment in an attempt to show that im not full of shit and that i need help as this has been going on for too long, but it doesn't help.

Xanax provides relief, but i have only ever been prescribed that once last year and once this year as i pleaded with the GP that i was having panic attacks at night when i realised at 4am it would be another missed night of sleep, another day of intense fatigue and increased pain plus another missed day of work an income (which has now twice lead to loss of job due to too many sick days)

i had been started on balcofen and clonidine (catapres) as i explained to the doctor that i may have partial symptoms of fibromyalgia, but not even baclofen with neurontin provides any relief, i am able to sleep with baclofen and clonidine at night though, i feel only because clonodine lowers my blood pressure though.

what makes me feel the worst is that all that i do in terms of trying to do things the right way to get treatment is failing and i have always been such a strong person mentally, but now i am depressed, anxious and everytime i walk out of the Drs without any help i have a panic attack.

the GP wanted to put me on an SSRI when i said i have panic attacks, but SSRIs give me incredible insomnia and i suggested xanax as i would rather not alter my brain chemicals 100% of the time for something that may only occur every couple of days and even when on an SSRI, anxiety, depression and especially panic attacks will still occur.
 
You're more likely to get opiates or benzos and that stuff if you dont give them a healthcare or pension card. Just medicare and pay the price of doctor visit and private script.

where are u located again misk
 
i dont have a healthcare card.
i can only visit medical clinics that bulk bill due to the cost of frequent visits.
i now have no money and no source of income, so dont really have much choice anyway.

im in bayswater in melb
 
weed doesnt help the pain unfortunately.
i mainly went down the xanax request for panic disorder due to its strength and fast action.
it also helps with my leg pain for several hours.

i would need 20-30mg of valium to feel the same muscle relief just as i needed upto 80mg of temazepam to feel any relief.
i dont know how to put the severity of pain into words for others to understand, but 4mg of xanax and 15 nurofen plus and i can still feel id say 20% of the pain.
i would say i have some tolerance to both, but i take nurofen maybe once a month or two only when i want one night of less pain
xanax is a bit more frequent, but again, is only 1-2mg once or twice a month - my partner is able to get xanax at the drop of a hat due to panic disorder, which does help me, but i dont want to take her medication nor can i always access it.
i do understand the potential for benzo withdrawals, but i am talking about short term to get me to the neurologist and would be more than happy to stop if i can find the root cause of my condition and if i did present with withdrawal symptoms i would be able to taper off easily as i have had to do so with many of my other medications.
i know its not a good medication to take frequently and it would be used only as a last resort, hence why i have tried to obtain any medication to treat the pain, only in the short term. if nothing else works, i would rather know i have xanax for the relief of pain or panic attacks, again if only for short term.

i need to have a job as i am getting into a huge amount of debt and my centrelink fund will pay only my rent and some food. if some benzos or some pain medication (dont care what it is, doesnt have to be a benzo, doctors seem to struggle with this concept though) can allow me to have a casual job then that is what i need to do, i dont understand how a doctor has more ease in signing a medical certificate for a centrelink fund rather than take 5 minutes to try and treat my pain so i can work.
it absolutely baffles me.
 
Last edited:
lagger, you mentioned Methohexamine earlier, did you mean Methylhexamine?
if so, is it likely to actually be prescribed?
 
im 24, ive never requested any specific opioids until one the past few visits and i was only given tramadol once and was told never again.
ive always asked to discuss pain medication options and they just say there is nothing they can give me.

i actually swap between two different clinics and try saying different things to each thinking that i may be saying the wrong things, i rarely see the same doctor and i have asked each doctor for an opinion on my condition.

i had requested xanax once at one clinic and even offered to show them websites stating benzos are a last resort when all other treatments had failed and they put a note on my file, i came in the next time and asked for 'something to manage the symptoms' exactly as that and was told 'im not giving you xanax' even when i never said anything about xanax. i told him i was referring to another kind of RLS medication or medication to treat any similar conditions, but thanks for letting me know that now i will be viewed as a drug shopper.
that is the practice that said no pain reliever will work if paracetamol didnt work when i asked to discuss pain medication and did not mention opioids, so i will not be going back there ever again and am considering placing a complaint as they have refused all treatment options.

but i have not once said 'please give me an opioid' to that practice.
i want to discuss pain medication as perhaps there is something that will work that they will prescribe me without thinking im after a high.

i have now given up 100% on either clinic on helping me diagnose anything at all after the other clinic refused to refer me to pain clinic and said seeing a psychiatrist would be more beneficial and i should just give it more time even after telling him i have had RLS since a child and only sever pain for the past 2 years.

as far as i know these are the only bulk billing clinics a short distance from my house, but i may be wrong.

as far as nurofen is concerned, usually 15-20 tablets swallowed at once as said, once or twice a month, no more
 
i discussed the issue with a mate of mine that works in nuclear medical imaging and he gave me a few GPs to try that he and his family has used.
ill give them a try and just try and get a referral to a pain clinic if nothing else

thanks for letting me vent here guys, its helped alot
 
dont suppose you have asked for a second opinion or for a referral to a neurologist?,

i work with doctors on an everyday basis for my work and as with people in professions some have more knowledge than others, some are good and others less so. i would seek a second opinion for this issue, but also look at your stress levels and own mental health as part of the holistic package.

ive use mindfulness based therapy with pain and addiction clients and they seem to have good results. this helps people reduce the reaction to the experience (thoughts, feelings, images) and shortcut the buildup of frustration & stress that usually makes people feel worse.

ive had minor RLS from since i could remember and the mindfulness definately assisted me in managing without having to take any substsnce to sleep. for me the irritabilty of having RLS was what was keeping me up and compounding the problem, once i learned to relax and do progressive muscle relaxations specifically targeting opposite sides one at a time. when i have it now i do the mindfulness exercise and can be asleep in under 15mins
 
i do have an appointment with a neurologist, but not til late march as i cant afford to see a private Dr.
at the moment im sleeping thanks to baclofen and clonidine, but during the day its the pain thats the problem.
who knows what it is, but i have pain 24/7 in my lower legs.
i've tried doing the mental thing which does help when i have some trouble sleeping if i kind of freak out when i have a bad night, but it doesn't take away pain say during the day, when im not thinking about the pain at all, its there.
 
misk order some melatonin from overseas. its the price of a happy meal usually and its not homeopathic crap sold here and theyre very effective. only side effect is weird dreams sometimes bordering on nightmares/sleep paralysis. for me anyway
 
I'm not so sure about the efficacy of melatonin but it could be worth a try.
 
it doesn't stop pain but if u take one and half an hour later lie down with NO TV or MUSIC in a dark room at night you will sleep pretty soon, and obviously sleeping you wont feel pain until you wake up. I cycle it with other meds though so if you dont want to get addicted to having a low blood pressure from catapres its worth a try 3 nights on 3 nights something different?

get repreve. it works better than sifrol which did nothing for me but repreve works for me
 
^ I wasn't talking about any analgesic properties, but rather it's efficacy for sleep. Shulgin talks about that issue quite well in TiHKAL's entry for melatonin, that it is quite possibly no better then placebo and that many preparations for sale in America contain micro-dosages of the substance.
 
sleep is all good at the moment thanks to clonidine which i dont mind.
clonidine does help slightly with the pain, but i assume only as it lowers my blood pressure as baclofen on its own does nothing and im not able to take it during the day or my blood pressure and heart rate drops too low to do anything physical anyway.

i remember my heart rate was 48bpm and blood pressure highest level was like 90/something when i tried taking it during the day.

lagger, i didnt realise you had tried sifrol also.
i guess its worth trying repreve, certainly not getting any luck with anything else.
i was under the assumption that if sinemet made things worse and sifrol did nothing that repreve would be worthless and i really didnt want to go through the side effects of initial treatment, but got nothing better to do at the moment.
 
id exhaust every idea/med first before callin quits. im not sure of addiction potentional due to repreve. I notice it is fixing the burning aches and crap now but not putting me to sleep anymore. But i mix it with avanza and l-theanine and calc/magnesium and zink
 
Mr Blonde said:
^ I wasn't talking about any analgesic properties, but rather it's efficacy for sleep. Shulgin talks about that issue quite well in TiHKAL's entry for melatonin, that it is quite possibly no better then placebo and that many preparations for sale in America contain micro-dosages of the substance.
Click to expand...

Weird. I use the 3mg ON brand from the states. It actually makes my eyes heavily and it increases my dreams.

Anyway melatonin does work when its scripted in Austraklia and i have friends that vouch for it that wont get to bed with roofies mixed with other benzos and other gaba drugs but melatonin helps greatly. it is not PBS though.

It comes in banana and mint flavours and all sorts of stuff. its SchIV
 
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