Hello, new here; hope this is right sub-forum to post this. If not feel free to move it.
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I am a sufferer of a debilitating neuro disorder that hit me exactly 10 years ago to the day, which came with a slew of symptoms including fight or flight(adrenal glands) being stuck on 100% of the time, so horrific physical+mental anxiety, traditional, nerve, and other pain/suffering of all types even those I can't explain. All I know is that benzos and oxys are all that seemed to help it at all, so even in spite of the side effects, I have been taking them. Lyrica and other meds have helped as well, but with so many meds "on my desk" so to speak, now, I am unsure exactly how to take them for max benefit. Perhaps some here can help. I will explain further. FYI I've never shot up, I've never done actual heroin, nor marijuana, never drank, etc. In fact, I never did any substance of any kind before this illness hit me 10 yrs ago, at which point they began prescribing these meds to me. I had a great life, my own IT business, played tennis weekly with a group of doctors, ironically, and aside from main computer work did, on the side, landscaping, small engine mechanics, snow removal, gardening, bought out contractors low sold high on craigslist/bay, etc. Hobbies included fishing, tennis, nitro powered r/c vehicles, computer games/designing websites, fixing other mechanical devices like printers/phones for both clients and friends/family, and tending to my own garden. There's more, but that's a condensed portrait of my life pre-illness. The day the illness hit, it took merely a day for it to disable me, and although I could walk, it would fatigue me to the extreme, felt sick all the time in a way I can't even put into words - a strange feeling of horrible unwellness - no matter what(until i discovered opiods/benzos which almost miraculously cut down that feeling and the overall suffering 70% or so, + gave me energy to get out of bed, lest I'd be bedridden right now.)
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Now, 10 years later, after having been trialed on 100+ meds, 99% of which don't work, I do know what works. Even on the meds, I have a very hard time even getting outside or moving around much now. They discovered fatty liver recently, but are not sure what caused it, as I have never drank, and they are not sure if it's from an autoimmune component of my illness, or some other component of it. I fear it is from the high doses of opiates and other drugs I have been on, but I can't be sure.
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To break it down into specifics:
I am a roughly an ~8 year user of benzos(mostly kpins 1-2mg, sometimes xanax 1-2 mg, occasionally a bar.) Neither Xanax or Valium do as much for me as Klonopin, no idea why; it just works without snowing me.
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I'm a 5 yr user of opiates(went through the whole pain clinic ordeal here in shit Massachusetts); told pain clinic my issues after I was diagnosed, they begrudgingly agreed to RX opiates in small doses, tried to push all kinds of other "pain killers" on me that did not help, such as patches of low dose fent that they would not go up on, methadone that didnt do much, etc. I finally told them firmly that oxycodone was what worked, please just prescribe what works, I am in agony. They finally RX'd oxys, beginning in low doses and eventually increases to 4x 10mg QR pills and 3x 20mg extended release a day, equaling 100mg/day for almost 3 yrs. All was well 'til they found a microdose of buprenorphine (just bup, not sub) in my system I tried from a friend, not knowing at all it would void the opioid contract, and instead of explaining it to me or showing me the most minute sympathy, they completely fucked me and kicked me out over this one trace of it on the spot. They were already afraid/unsure of how to help me - even though if they were in my body they would have known they were helping me greatly - since my illness is rare and they were basically going off my word alone that opiates were helping. When they left me hanging dry at this point with NO opiods, I had to go elsewhere, and you can guess where I went to find a replacement, in the form of M30 blues.
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In the past 1 year or so my neurologist trialed me on Lyrica and it actually helped as well. As you know, once it first builds up active levels in your blood system for the first time, you feel unnaturally/unusually happy, giddy, etc, for a couple days, then it seems to go away, but still helps with the nerve pain greatly, and possibly my mood too; not sure on that. I was on 75mg 3x a day, 'til he just upped it to 100mg 3x a day after a visit to him in Boston. He is a powerful, well respected neuro that I would like to keep in my corner. I doubt he will ever prescribe or even refer to pain clinic, but hes good for what he is good for, and doesn't ask many questions.
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The main issue at this point is tolerance and overall confusion to a degree of what to take and how/how much of it to take. I don't believe the Lyrica is interfering with the other meds, or blocking/being blocked by them, from what I have read. I know the kpins are a potentiator of opiods, and always keep that in mind when taking them. The kpins certainly help add a calming and anti-anxiety effect to the opiods which are already calming in a more physical way.
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The main questions/problems I have revolve around tolerance and what/how to use each.
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My meds are as follows:
*Prednisone, prescribed, 2mg each morning to help adrenal glands counter illness' effect on them.
*1-2mg kpins
* Clonidine, prescribed, and sometimes take this at night before my last dose of opiods, as I've heard they can potentiate it, as well as the fact that the clonidine is prescribed to be taken at night to help w/sleep+anxiety. I don't feel it helping w/anxiety, but it does reduce BP, and mine runs a little high, so it helps, but I am careful with it.
*The opiates - Normally, 2-3 M30 blue opiate pills per dose, 2x doses a day, due to how short it lasts, sometimes 3x doses a day, all taken orally. I have snorted a couple before, but didn't feel much a difference, unless I had a full stomach, then snorting helped bypass all the food. - these M30s - which from everything I've heard are fent not oxy - they do "work", but they tend to either not be quite "enough", or too much. Meaning, each one is supposed to be = to 30mg oxy, so I take 2-3 M30s at a time with 1-2mg of kpin, as well as my Lyrica throughout the day, and this 3x M30 +1-2mg kpin combination will sometimes "work" sometimes not, but I've had to take 4 M30s several times to feel a strong enough opiate effect, but at that point it doesn't make me nod, or have a softer, pleasant euphoria like the oxycodone I took so long ago did, rather it just knocks me out - often while still in my chair - within 15-20 min, and I wake up in 1-2 hours later very hungry. Now, I know fent is a cheaper high, but these M30s certainly aren't cheap pills, trust me. I have heard of people on this forum paying something like $20 for a "bag" of heroin/fent, but I don't know if they're talking about pills or powder or heroin or fent or what, and I assume they're shooting it, not swallowing a pill. If I did not have access to a moderate amount of money, I do not know what I would do, as these pills are extremely expensive, and I fear for my future.
*Lyrica - 100mg 3x a day. Certainly helps with nerve pain, especially in hands/feet, just hope it is not causing any problems being taken with these other meds. From what I've read, it isn't, but it's just a lot of pills to take each day.
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I would like to know if I am taking anything incorrectly, and also if there is a way to get back to the nice euphoric feeling I had years ago when I was first on oxys, for the first few years. I would take 30-50mg of actual RX'd oxys, and I could use the "energy" from it to go outside and garden a bit, or I could sit at computer and listen to music, feeling a beautiful euphoria come on within ~10 min, last ~20-30 min, then slowly taper off, lasting about an hour. It was not a "knockout" like these much higher opiate dose M30s give, and I'm not sure if that's because they are apparently fent, or because of my much higher tolerance now, or what. I also have no idea of the Lyrica is preventing the effects of the opiates, but I don't think so, as I didn't feel a change in the effects of the M30s when I got on the Lyrica.
I just am not sure what to do regarding the opiates I am on, how long I can afford them, what I can/should switch to, etc. It has been several years since pain clinic ejected me, and I have a new primary physician, and she suggests I try a new pain clinic again, as it has been awhile and I look "clean" on paper and in real life. She does not know I am still using opiates.
If it would mean experiencing that euphoric, longer lasting comparing to fent experience of true oxys, I would get off the M30 fents temporarily(I have a few legally prescribed suboxone boxes), just to be able to be tested as clean at a new pain clinic, just to have a chance to get on real oxys again, if they actually would bring back that cleaner, warmer, longer lasting euphoria, compared to the cold knockout of the M30 fents which don't last as long, either. I'm just not sure how much my tolerance plays a part, how long I'd have to be off M30sfor tolerance to go down low enough to "feel" the oxys, and how quickly, even if I got real oxys, my tolerance would go back up, and if at that point I would not feel much of that coveted euphoria again, then no more euphoria, then feel the need for the more powerful M30s again, etc...vicious cycle.
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Sorry for the long post. If you want it broken up, condensed, moved to another sub-forum, just tell me. Thank you.
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I am a sufferer of a debilitating neuro disorder that hit me exactly 10 years ago to the day, which came with a slew of symptoms including fight or flight(adrenal glands) being stuck on 100% of the time, so horrific physical+mental anxiety, traditional, nerve, and other pain/suffering of all types even those I can't explain. All I know is that benzos and oxys are all that seemed to help it at all, so even in spite of the side effects, I have been taking them. Lyrica and other meds have helped as well, but with so many meds "on my desk" so to speak, now, I am unsure exactly how to take them for max benefit. Perhaps some here can help. I will explain further. FYI I've never shot up, I've never done actual heroin, nor marijuana, never drank, etc. In fact, I never did any substance of any kind before this illness hit me 10 yrs ago, at which point they began prescribing these meds to me. I had a great life, my own IT business, played tennis weekly with a group of doctors, ironically, and aside from main computer work did, on the side, landscaping, small engine mechanics, snow removal, gardening, bought out contractors low sold high on craigslist/bay, etc. Hobbies included fishing, tennis, nitro powered r/c vehicles, computer games/designing websites, fixing other mechanical devices like printers/phones for both clients and friends/family, and tending to my own garden. There's more, but that's a condensed portrait of my life pre-illness. The day the illness hit, it took merely a day for it to disable me, and although I could walk, it would fatigue me to the extreme, felt sick all the time in a way I can't even put into words - a strange feeling of horrible unwellness - no matter what(until i discovered opiods/benzos which almost miraculously cut down that feeling and the overall suffering 70% or so, + gave me energy to get out of bed, lest I'd be bedridden right now.)
--------
Now, 10 years later, after having been trialed on 100+ meds, 99% of which don't work, I do know what works. Even on the meds, I have a very hard time even getting outside or moving around much now. They discovered fatty liver recently, but are not sure what caused it, as I have never drank, and they are not sure if it's from an autoimmune component of my illness, or some other component of it. I fear it is from the high doses of opiates and other drugs I have been on, but I can't be sure.
-------
To break it down into specifics:
I am a roughly an ~8 year user of benzos(mostly kpins 1-2mg, sometimes xanax 1-2 mg, occasionally a bar.) Neither Xanax or Valium do as much for me as Klonopin, no idea why; it just works without snowing me.
------
I'm a 5 yr user of opiates(went through the whole pain clinic ordeal here in shit Massachusetts); told pain clinic my issues after I was diagnosed, they begrudgingly agreed to RX opiates in small doses, tried to push all kinds of other "pain killers" on me that did not help, such as patches of low dose fent that they would not go up on, methadone that didnt do much, etc. I finally told them firmly that oxycodone was what worked, please just prescribe what works, I am in agony. They finally RX'd oxys, beginning in low doses and eventually increases to 4x 10mg QR pills and 3x 20mg extended release a day, equaling 100mg/day for almost 3 yrs. All was well 'til they found a microdose of buprenorphine (just bup, not sub) in my system I tried from a friend, not knowing at all it would void the opioid contract, and instead of explaining it to me or showing me the most minute sympathy, they completely fucked me and kicked me out over this one trace of it on the spot. They were already afraid/unsure of how to help me - even though if they were in my body they would have known they were helping me greatly - since my illness is rare and they were basically going off my word alone that opiates were helping. When they left me hanging dry at this point with NO opiods, I had to go elsewhere, and you can guess where I went to find a replacement, in the form of M30 blues.
-------
In the past 1 year or so my neurologist trialed me on Lyrica and it actually helped as well. As you know, once it first builds up active levels in your blood system for the first time, you feel unnaturally/unusually happy, giddy, etc, for a couple days, then it seems to go away, but still helps with the nerve pain greatly, and possibly my mood too; not sure on that. I was on 75mg 3x a day, 'til he just upped it to 100mg 3x a day after a visit to him in Boston. He is a powerful, well respected neuro that I would like to keep in my corner. I doubt he will ever prescribe or even refer to pain clinic, but hes good for what he is good for, and doesn't ask many questions.
-------
The main issue at this point is tolerance and overall confusion to a degree of what to take and how/how much of it to take. I don't believe the Lyrica is interfering with the other meds, or blocking/being blocked by them, from what I have read. I know the kpins are a potentiator of opiods, and always keep that in mind when taking them. The kpins certainly help add a calming and anti-anxiety effect to the opiods which are already calming in a more physical way.
-------
The main questions/problems I have revolve around tolerance and what/how to use each.
-------
My meds are as follows:
*Prednisone, prescribed, 2mg each morning to help adrenal glands counter illness' effect on them.
*1-2mg kpins
* Clonidine, prescribed, and sometimes take this at night before my last dose of opiods, as I've heard they can potentiate it, as well as the fact that the clonidine is prescribed to be taken at night to help w/sleep+anxiety. I don't feel it helping w/anxiety, but it does reduce BP, and mine runs a little high, so it helps, but I am careful with it.
*The opiates - Normally, 2-3 M30 blue opiate pills per dose, 2x doses a day, due to how short it lasts, sometimes 3x doses a day, all taken orally. I have snorted a couple before, but didn't feel much a difference, unless I had a full stomach, then snorting helped bypass all the food. - these M30s - which from everything I've heard are fent not oxy - they do "work", but they tend to either not be quite "enough", or too much. Meaning, each one is supposed to be = to 30mg oxy, so I take 2-3 M30s at a time with 1-2mg of kpin, as well as my Lyrica throughout the day, and this 3x M30 +1-2mg kpin combination will sometimes "work" sometimes not, but I've had to take 4 M30s several times to feel a strong enough opiate effect, but at that point it doesn't make me nod, or have a softer, pleasant euphoria like the oxycodone I took so long ago did, rather it just knocks me out - often while still in my chair - within 15-20 min, and I wake up in 1-2 hours later very hungry. Now, I know fent is a cheaper high, but these M30s certainly aren't cheap pills, trust me. I have heard of people on this forum paying something like $20 for a "bag" of heroin/fent, but I don't know if they're talking about pills or powder or heroin or fent or what, and I assume they're shooting it, not swallowing a pill. If I did not have access to a moderate amount of money, I do not know what I would do, as these pills are extremely expensive, and I fear for my future.
*Lyrica - 100mg 3x a day. Certainly helps with nerve pain, especially in hands/feet, just hope it is not causing any problems being taken with these other meds. From what I've read, it isn't, but it's just a lot of pills to take each day.
---------
I would like to know if I am taking anything incorrectly, and also if there is a way to get back to the nice euphoric feeling I had years ago when I was first on oxys, for the first few years. I would take 30-50mg of actual RX'd oxys, and I could use the "energy" from it to go outside and garden a bit, or I could sit at computer and listen to music, feeling a beautiful euphoria come on within ~10 min, last ~20-30 min, then slowly taper off, lasting about an hour. It was not a "knockout" like these much higher opiate dose M30s give, and I'm not sure if that's because they are apparently fent, or because of my much higher tolerance now, or what. I also have no idea of the Lyrica is preventing the effects of the opiates, but I don't think so, as I didn't feel a change in the effects of the M30s when I got on the Lyrica.
I just am not sure what to do regarding the opiates I am on, how long I can afford them, what I can/should switch to, etc. It has been several years since pain clinic ejected me, and I have a new primary physician, and she suggests I try a new pain clinic again, as it has been awhile and I look "clean" on paper and in real life. She does not know I am still using opiates.
If it would mean experiencing that euphoric, longer lasting comparing to fent experience of true oxys, I would get off the M30 fents temporarily(I have a few legally prescribed suboxone boxes), just to be able to be tested as clean at a new pain clinic, just to have a chance to get on real oxys again, if they actually would bring back that cleaner, warmer, longer lasting euphoria, compared to the cold knockout of the M30 fents which don't last as long, either. I'm just not sure how much my tolerance plays a part, how long I'd have to be off M30sfor tolerance to go down low enough to "feel" the oxys, and how quickly, even if I got real oxys, my tolerance would go back up, and if at that point I would not feel much of that coveted euphoria again, then no more euphoria, then feel the need for the more powerful M30s again, etc...vicious cycle.
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Sorry for the long post. If you want it broken up, condensed, moved to another sub-forum, just tell me. Thank you.