Foreigner
Bluelighter
- Joined
- Mar 18, 2009
- Messages
- 8,310
I've been given a few weeks to live, for a condition that's otuerwise treatable, thanks to a corrupt, shitty, inefficient and incompetent health care system. I don't know why people tout Canada's health care as a gift from god. It's a piece of shit and has nothing but morons working in it.
I have ulcerative colitis and it's bad. To keep a long story short, I was having a gradual bowel hemorrhage and the emergency room sent me home twice, despite crazy bleeding.
Tried a different hospital the third time and ended up there for a month. They put me on high dose prednisone and gave me inadequate calories every day, so I starved. I went from 180lbs to 130lbs in weeks. Every day I was pressured by doctors to let them surgically remove my entire colon, and I would say no.
After much battling they gave me the immuno suppressant rescue drug remicade, which is expensive and needs special approval. I only got two of the three doses I needed and each dose was followed up by an intervention that completely sabotaged its success. For instance, one night I was feeling hot and I had a bit of a temperature, which is a side effect of prednisone. The night doctor freaked out and put me on a heavy duty IV antibiotic, which brought back all my diarrhea and colitis symptoms.
My GI doctor recently cut me off from remicade, saying that I'm not gaining weight and recovering fast enough for his satisfaction. He will only permit me to get surgery. He gave me a bunch of scare tactics about bowel rupture, abscess, infection, yada yada... but my MRI showed no evidence of that.
I'm not letting these fascists take my bowel because it's more cost effective than giving me remicade. But I am dying, very noticeably. The surgery would be big risk at this point, I am so malnourished from their neglect. I have people rallied all around me at home providing whatever I need, but my prednisone dose is still high enough that it ravages my tissues and my bones. Almost every part of me has atrophied, and I can't walk without a device. I'm 30 fucking years old and they want me to live with a shit bag hanging off my body the rest of my life.
If this were Europe I could get just the affected bowel piece removed and resectioned. But here in Canada they take your whole damn colon, and the reasoning is "other parts will just get inflamed later, this is the only way to cure it." I hate modern medicine for what it has done. In Europe I would've been on remicade from the get go. Here there is so much red tape , and they are so giddy to cut into you, that proper care is neglected.
So I'm writing this in case I disappear from here. If suddenly I never post again you know why. The medical system fucked me over, the one time I really had to place my welfare in its hands. I am so sad that I'm on my way out, but the pain I'm experiencing... I would never wish on my worse enemy. I have degenerated into a shell of the man I once was... I look like a "save Africa" commercial. I can't live this way, and I won't let them cut me up.
I have ulcerative colitis and it's bad. To keep a long story short, I was having a gradual bowel hemorrhage and the emergency room sent me home twice, despite crazy bleeding.
Tried a different hospital the third time and ended up there for a month. They put me on high dose prednisone and gave me inadequate calories every day, so I starved. I went from 180lbs to 130lbs in weeks. Every day I was pressured by doctors to let them surgically remove my entire colon, and I would say no.
After much battling they gave me the immuno suppressant rescue drug remicade, which is expensive and needs special approval. I only got two of the three doses I needed and each dose was followed up by an intervention that completely sabotaged its success. For instance, one night I was feeling hot and I had a bit of a temperature, which is a side effect of prednisone. The night doctor freaked out and put me on a heavy duty IV antibiotic, which brought back all my diarrhea and colitis symptoms.
My GI doctor recently cut me off from remicade, saying that I'm not gaining weight and recovering fast enough for his satisfaction. He will only permit me to get surgery. He gave me a bunch of scare tactics about bowel rupture, abscess, infection, yada yada... but my MRI showed no evidence of that.
I'm not letting these fascists take my bowel because it's more cost effective than giving me remicade. But I am dying, very noticeably. The surgery would be big risk at this point, I am so malnourished from their neglect. I have people rallied all around me at home providing whatever I need, but my prednisone dose is still high enough that it ravages my tissues and my bones. Almost every part of me has atrophied, and I can't walk without a device. I'm 30 fucking years old and they want me to live with a shit bag hanging off my body the rest of my life.
If this were Europe I could get just the affected bowel piece removed and resectioned. But here in Canada they take your whole damn colon, and the reasoning is "other parts will just get inflamed later, this is the only way to cure it." I hate modern medicine for what it has done. In Europe I would've been on remicade from the get go. Here there is so much red tape , and they are so giddy to cut into you, that proper care is neglected.
So I'm writing this in case I disappear from here. If suddenly I never post again you know why. The medical system fucked me over, the one time I really had to place my welfare in its hands. I am so sad that I'm on my way out, but the pain I'm experiencing... I would never wish on my worse enemy. I have degenerated into a shell of the man I once was... I look like a "save Africa" commercial. I can't live this way, and I won't let them cut me up.