I usually don’t post but I’ve been lurking on here for years. I’m really hoping bl can help me see another way, but first some quick background on my situation.
I’m 28 years old and have IGA nephrology and ckd, stage 4. Before I got diagnosed I was a relatively healthy person with the occasional broken bone or rolled ankle. I was a pretty good basketball player growing up and into HS and got some college offers. Halfway into my freshman year I took a hard fall in a game and broke my back. I had a 4 level anterior, posterior lumbar, spinal fusion, which ended my college career. While recovering, I moved back in with my mom and she really helped me out.
A year after that I was having some routine blood work done, and my pc doc noticed some unusual counts and referred me to a nephrologist where I was diagnosed with ckd. I have done almost everything, but unfortunately my body has rejected almost every treatment. I was on high dose steroids for a year and they didn’t help, and I had really bad side effects, including weight gain, which was almost 40 lbs.
So fast forward and now my ckd disease has progressed to stage 4. My Dr has me on this cancer medication, but is also used in the treatment of kidney diseases. It’s pretty brutal, it makes me nauseous and sick.
I can take this hardcore treatment, but I hate seeing my mom so distraught. She’s helped me rehab through 3 back surgeries, helps my aunt with shopping, and taking her to the dr because she doesn’t drive anymore because she has Parkinson’s, and also my dad passed in 2017.
I’m not really improving with this medication I’m on, and I told my Dr that I would deny dialysis, as that is not much of a life anymore. I would obviously take a kidney, but I’m not holding my breath.
My mom desperately wants me to do dialysis and now I’m torn on what to do. It’s literally going to get your blood cleaned 4 days a weeks, for 4 hours. I have accepted the situation and everything but I have people that want me to “keep fighting” and shit but I don’t want to anymore. I just wish I could go to sleep and not wake up in the morning. I went to having my education paid for through the game that I love, to bring a depressed and sick fat fuck lol. Btw, anyone who has kidney issues, what, and how do you watch your potassium?? I swear that shit is fucking impossible to control.
Anyways, there’s the situation so anyone who has some suggestions, or a kidney then then hit me up lol, jk jk.
I’m 28 years old and have IGA nephrology and ckd, stage 4. Before I got diagnosed I was a relatively healthy person with the occasional broken bone or rolled ankle. I was a pretty good basketball player growing up and into HS and got some college offers. Halfway into my freshman year I took a hard fall in a game and broke my back. I had a 4 level anterior, posterior lumbar, spinal fusion, which ended my college career. While recovering, I moved back in with my mom and she really helped me out.
A year after that I was having some routine blood work done, and my pc doc noticed some unusual counts and referred me to a nephrologist where I was diagnosed with ckd. I have done almost everything, but unfortunately my body has rejected almost every treatment. I was on high dose steroids for a year and they didn’t help, and I had really bad side effects, including weight gain, which was almost 40 lbs.
So fast forward and now my ckd disease has progressed to stage 4. My Dr has me on this cancer medication, but is also used in the treatment of kidney diseases. It’s pretty brutal, it makes me nauseous and sick.
I can take this hardcore treatment, but I hate seeing my mom so distraught. She’s helped me rehab through 3 back surgeries, helps my aunt with shopping, and taking her to the dr because she doesn’t drive anymore because she has Parkinson’s, and also my dad passed in 2017.
I’m not really improving with this medication I’m on, and I told my Dr that I would deny dialysis, as that is not much of a life anymore. I would obviously take a kidney, but I’m not holding my breath.
My mom desperately wants me to do dialysis and now I’m torn on what to do. It’s literally going to get your blood cleaned 4 days a weeks, for 4 hours. I have accepted the situation and everything but I have people that want me to “keep fighting” and shit but I don’t want to anymore. I just wish I could go to sleep and not wake up in the morning. I went to having my education paid for through the game that I love, to bring a depressed and sick fat fuck lol. Btw, anyone who has kidney issues, what, and how do you watch your potassium?? I swear that shit is fucking impossible to control.
Anyways, there’s the situation so anyone who has some suggestions, or a kidney then then hit me up lol, jk jk.
