First of all...My deepest empathy for your diagnosis of endometriosis, as I know it well. I've dealt with it for most of my life. It's difficult to diagnose. It's even more painful to feel not heard/not helped by "top notch specialists". Statistics show that maybe 100 out of 52,000 GYNs are capable of doing so. smfh
I lost my lifelong GP and my cancer surgeon to retirement, then death within the past several years. I found out last October (after a 6 day stint in hospital) with a partial bowel obstruction...that my colon surgeon has Parkinsons. He was/is a brilliant man who saved my sorry life, yet his disease has forced him to retire (60). I'm left to start over (55). It's a bitch.
I digress...sorry.
My PM required my extensive medical file for review, before he would accept me as a patient. No problem. I was referred by my orthopedic and new GP, as she doesn't prescribe opiates. I was required to sign a contract. It stated that I would accept prescriptions from only HIM and only ONE pharmacy. Breaking these rules or failing a drug test/pill count would be grounds for dismissal. No problem.
He offered me Fentanyl patches on the first visit. I declined, choosing to try lesser strength meds first. This is not typical, mind you, to be offered the big gun meds from the start. My history of disease, surgery and treatments, CT scans, bone scans, etc. justifies his prescribing. I have tried MS Contin, Oxycodone IR and Fentanyl patches (separate and individual) over 2 years with little success.
I don't see the point in continuing with "pain management" but have few options left. My pain is NOT managed, as meds further choke my bowel and bladder.
I've been experimenting with MMJ for a few months, but haven't found a strain that helps my pain. (long story)
deos68 is spot on. Sadly, these hoops are made for jumping...even if we can't "jump". And yes,
Ilove2nod...that sucks!
I do hope you can find a good PM.