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MDMA Recovery (Stories & Support - 5)

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Im scared of anything that has the potential to alter the sexual areas lol.

I have heard of Clonidine and was thinkin about trying it. I know it can cause ED or low libido but does anybody know if there is a "PSSD-like" risk with it? Or is it more like things go back to normal once off the drug?

Id always prefer all other routes to ever attempting SSRIs or serotonergic stuff again. I still dont react well to 5-HTP but I seem to do ok with the more dopaminergic stuff like L-Tyrosine.

I personally don't think there is risk of pssd with Clonidine, if you get any sexual side effects it will probably be because Clonidine has a sedating effect. Opposite of Clonidine is Mirtazapine, one of the antidepressants known for having a much lower rate of sexual side effects.
 
Yeah it's been almost a year for you, right Socrilius? A low dose mirtazapine might be fitting....Although it's not a good drug for HPPD, but again the benefits might outweigh the risks. It's all a balance game.

FNono has been taking clonodine I believe and it seems to be helping him. Not sure what else though.
 
o_O what exactly is this stuff. I see this since I was a little child and always asked myself what it could be.

They are just collagen fibrils that have bundled together in the vitreous body of the eye. This is a totally normal phenomenon, but some people realize them more than others and then they can be disturbing. Especially when intense light falls into the eye (like watching the sky) you can see them very well.
 
They are just collagen fibrils that have bundled together in the vitreous body of the eye. This is a totally normal phenomenon, but some people realize them more than others and then they can be disturbing. Especially when intense light falls into the eye (like watching the sky) you can see them very well.
Good to know. Thanks for the answer :)
 
What about the big grey translucent ones I have? They always float in and out of the corner of my eye then back into the center...Same exact pattern almost....The stringy ones float through my vision then disappearand are always a different shape. The black circles are more of a permanent feature....Wich appeared like 2 days after my OD.
 
I'm not educated in that task but I don't believe it's a real change in the eye, rather more a hypersensitivity in seeing such things.
How about visiting an eye specialist?
 
Hey, the clonidine for me helps with sleep a bit. Seems to be all it does although I don't really know at this point. Lately I've had a lot success with klonopin with mood. I'm in my 7th month. Still in the same spot I guess. Mood and anxiety slightly improving. Vision I think is worse. Tinnitus is the same.
 
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Hey, the clonidine for me helps with sleep a bit. Seems to be all it does although I don't really know at this point. Lately I've had a lot success with klonopin with mood. I'm in my 7th month. Still in the same spot I guess. Mood and anxiety slightly improving. Vision I think is worse. Tinnitus is the same.

I thought you said Klonopin gave you more anxiety or something? Did you just randomly start reacting better to it or did you mean to say Clonidine there in place of where you wrote Klonopin?

Similar sounding names....
 
I thought you said Klonopin gave you more anxiety or something? Did you just randomly start reacting better to it or did you mean to say Clonidine there in place of where you wrote Klonopin?

Similar sounding names....

Yeah, my response to klonopin has changed. It's now pretty affective for improving sleep and mood. I started by taking a quarter of a .5 mg pill. Now I'm probably taking .25 a day.
 
I think we as a group need to figure out how to get awareness out to the doctors about this condition. People are getting fucked up on medications and supplements and all this. It's frustrating. There needs to be a definitive treatment plan or more lives will be ruined. I'm venting a bit here but it just seems like we are all making mistakes in our recovery, myself included. There has to be a better way than taking anecdotal reports from bluelight and then doing your own thing and then getting more fucked up. I don't mean to be negative but I am noticing a pattern of people trying to help themselves with this or that and then ending up even more f'd.
 
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I agree totally, I'm currently on the NHS Crisis list, they pushed a ton of medication on me which I flat out refused. Doctors just refuse to accept that MDMA has caused my vision problems. One psychiatrist thought that the anxiety and the vision problems were caused out of the guilt I have by apparently don't telling my dad about the MDMA I took. It's fucking ridiculous and damn right frustrating. It's been 5 months for me and all I've taken is diazepam for around a month. I'm still pretty bad but things are improving. I wish there were more campaigns to raise awareness for HPPD as that's the perfect deterrent for drugs, way more than the drop dead campaigns that people Don't believe.

after everything I've read I'm still very scared about taking medication, I took antibiotics at the start and it really fucked me up mentally and physically.
 
That is normal with antibiotics, even healthy people can feel like crap when taking them.
I remember Cotcha told Lamotrigine is used successfully in HPPD treatment.
 
^There is a case report at least concerning treatment of HPPD (I believe it was from LSD) with lamotrigine but the issue with the studies on treating HPPD is that there is such wide variation in reaction, and what further confuses the matter is that some meds might acutely worsen HPPD while they may treat HPPD when given chronically (this was noted for SSRIs and antipsychotics).

I think it would be hard (but not impossible) to do treatment-outcome studies in ecstasy related adverse effects sufferers, there is just so much individual variation. In general, psychiatry is pretty nuanced and finding the right medication for the right person can be difficult. I would hedge my bets towards SSRIs tending to be helpful personally. Genetic studies would be interesting, seeing if there are any risk factors for developing an LTC.


I was looking through an older adverse effects thread the other day and I was amazed at how many random people were convincing the OP to avoid SSRIs like the plague and not listen to his doctor who wanted him to try SSRIs, and to take 5-HTP and stuff instead.
 
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I think we as a group need to figure out how to get awareness out to the doctors about this condition. People are getting fucked up on medications and supplements and all this. It's frustrating. There needs to be a definitive treatment plan or more lives will be ruined. I'm venting a bit here but it just seems like we are all making mistakes in our recovery, myself included. There has to be a better way than taking anecdotal reports from bluelight and then doing your own thing and then getting more fucked up. I don't mean to be negative but I am noticing a pattern of people trying to help themselves with this or that and then ending up even more f'd.
So I hardly ever post on here.....I'm close to a year and half in.....same old thing I have good waves and bad waves......but this is what I have felt since the beginning.....this should be brought to the worlds attention as a real and true condition.....studies need to be carried out to try and fix this problem.....I would be willing to help start something to bring this condition to light. It is something that needs to be figured out because it is truly wrecking lives. People should all be aware of this condition before ever trying MDMA.....if I woulda known this was a risk of MDMA it woulda been a cold day in hell before I took it.....the world is ignorant therefore leading to more suffering
 
^Same thing with Weed and Psychosis. Here in Austria there were some campaigns about the psychosis danger with cannabis. I only know one person that may got psychosis caused by (synthetic) cannabinoids, the rest of the people I know never developed any signs of psychosis with cannabis, although some of them are really heavy smokers.
There must be some predispositions, some then may get psychotic from weed or psychedelics, or get depression and HPPD from MDMA, and so on
I hope in future you may find out before you do the drugs with the help of brain scans, gene tests, and so on.
I remember from myself that I never could take the warnings serious because the cases were so rare, I think it's the same thing with MDMA actually, because actually we are somehow out of norm. A lot of people take MDMA without getting larger problems.
 
An update:

Three weeks ago I went on the SSRI Sertraline at 50mg for three days, after which I halved the dose and continued at 25mg for two weeks in total and then tapered down to 12.5mg for two days and have now abstained.

The first few days I had waves of strong nausea, almost no sexual libido (later returned) and I felt constantly 'up', as you might expect from its stimulant properties. Apart from those, side effects were very tolerable.

After only four or so days, I felt significant improvements. For the first time in a year, simply breathing air felt extraordinarily pleasant. I believe it has fixed my DP/DR and largely my HPPD. Anhedonia is still there to some extent but massively improved; apathy is gone; emotions are mild but present again. A feeling of warmth in my brain returned, whose absence I never acclimatized to. I can do light yawns again.

I don't attribute my recovery up until this point entirely to Sertraline whatsoever and I'd especially advise against using it at an early stage of the comedown. I was extremely skeptical and cautious about going on SSRIs but took a calculated risk based on a range of factors. I'm still not where I'd like to be but I'd like to think I might finally be over the worst of it now. The most major improvements happened markedly, began suddenly and continued slowly to a point then stopped again and for no discernible reason. Around December, I could sense that my brain's pleasure centre was finally rebooting and I think SSRIs were necessary for me to assist the effort for homeostasis. Interestingly, Mirtazapine is still effective but much less rushy and obtuse in its effects as it were prior to SSRI treatment, which I believe is an indicator that my brain is actually processing the chemical rather than just swimming in it. I'm still mongy by average person standards but far out of the deep deep hole from which I began this journey. I am absolutely grateful for any feeling of goodness and visual clarity now.

It's still early days as it's only been a week and a half since I came off the Sertraline so I could easily relapse as we here know all too well happens. But it's given me bounds of hope. I wanted to make sure I wasn't one of those people who inexplicably disappeared off the forum after some respite and provide anecdotal information which is obviously us LTCers bread and butter. Some bizzare and highly irritating physical symptoms which constituted half of my stressors to a debilitating level have subsided which proves I could have avoided a lot of anguish by practicing better mindfulness.

Right now I'd say my worst symptom is TMJ disorder. I've been suffering from a stiff and clicky jaw since the beginning. I've seen a few specialists about it but I've only received blanket advice like 'don't move it around incessantly' which is exactly what I do unfortunately. It's an OCD habit. It's also a constant reminder that I've fucked up despite my recovery in every other respect, it still causes me much concern. Improving it is probably just a case of mindfulness again and hoping for the best it doesn't deteriorate.

Also insomnia and tinnitus are still bad.
 
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8BitTrip, don't worry too much now about relapsing emotionally again. I remember especially under stress and too little sleep I often felt empty, but when I relaxed it got way better. I also have some 5-HTP capsules at home for the case that it gets too much, 1 cap is often enough to stabilize me for a few days when I'm under stress and have lack of sleep. Another thing that helps me a lot is exercise. I think exercise and a healthy diet are crucial in recovery, also a satisfying social life like hanging out with friends or going to parties and some hobbies that challenge you mentally (music instruments, science, art, etc.). I still highly promote turmeric/liposomal curcumin, it works great for me as a mood booster.
The response to cannabis and alcohol also turned back to normal like it was before the LTC, which is a good sign for me. If you decide to take drugs again, only in moderate doses, otherwise they can destabilize you.

For insomnia you can try some mild natural products. Valerian root and lavender can calm you down without having side effects.
 
Hey 8Bit, I would try stretching your anterior neck - try youtubing to find stretches for your SCM and anterior scalene. They are notorious for causing jaw pain, headaches and can cause tinnitus. These are muscles that get activated with anxiety and stress.
 
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