So are you trying to taper off of the invega sustenna with pills? If so, how is that working? I stopped the shots without followup. They can't really make you take the meds. Unless they put you in the psych ward again and get special approval. But I've heard that's very difficult.
I was kind of hoping I wouldn't have to go into detail about this, but here it goes:
Back in the summer of of 2013 I mistakenly misidentified a mushroom and ate a portion of it. Following that event, things that I started putting into my body had very different effects on me than they used to, starting with spices and food. The worst of it occurred when I decided to drink a Full Throttle energy drink while I was playing video games at home. I started having panic attacks, not even realizing what was happening to me. I finally found out what it was and figured whatever that mushroom was, its components must have caused a bad reaction with something... 3 weeks later I realized it was the caffeine that was causing them, after having had multiple panic attacks at that point. But it gets worse...
The medications no longer worked as they were supposed to. I was having withdrawal symptoms even though I was still taking them consistently. Not fully realizing this, I decided to discontinue my meds after I was switched from Risperdal Consta to oral Invega. I almost ended up losing my life because of the withdrawals, that and not being able to eat food or drink water. Couldn't even eat plain white rice without having a panic attack.
So the Invega Sustenna kind of saved my life. To make a long story short, I got back on medications on my own free will and that's what I ended up on. But after a year of taking it monthly, all those crazy symptoms from after the whole mushroom thing had pretty much gone away. I asked my pdoc to switch me to oral. So, understand that I'm only taking them because with the way the mushroom affected my anatomy, it's very likely I could wind up in the same state if I decided to suddenly drop all medications.
I'm still coming to terms with how drastically it changed me.
I'm sure that might answer some of your question. In normal circumstances, tapering off is not necessarily needed when coming off an injection. But it's different for me... the tapering off with oral meds is working out pretty well though.